Re: Musings on Progress in science and why I say things I do but won't any more

[Guest guest]

hi Natasa can you expand on these studies i seem confused what are they? where

are they? can we look at them? we all want to know more as its seems beyond

belief! best Isobel x

>

>

> This to clear few things up from my perspective if anyone is interested,

> long but then I'll stop promise LOL.

>

> As most know I've never bought into mercury-causing-autism theory in

> the past, it never made much sense whichever way I looked at it, it

> makes even less sense to me now, and especially after carefully reading

> papers on developmental outcomes of congenital mercury exposure (in

> which all classic Autism symptoms are clearly absent), or those on both

> acute and chronic/subclinical exposures in children and adults... And

> yes I do believe that many chelators are potentially fantastic for our

> kids, and for reasons that may not have much to do with metal removal

> (yes I DID post loads of science on those effects on this one and many

> other lists a good while ago, if anyone is interested can search… ),

> and that chelation for those who tolerate it is a good part of biomed

> and that is one of the reasons I try not to bring up the issue of

> causation, and also because what is the point anyway. That is not to say

> that mercury or metals might not in some yet-to-be-discovered way be

> contributing to autism, but that is a far cry from them being causative

> factors. But this is not why I'm posting this, as not willing to argue

> any of that now or in future… actually I forgot what the point was.

> Ah yes, Advocacy! Because causative factors don't matter if the

> treatment is going to be the same, no?

>

> But lately something has been happening. A small group of researchers

> has been coming up with some incredibly exciting discoveries that could

> have enormous effects for our kids. If this research pans out it will

> have the potential to start on the path of many novel treatments –

> even for severe kids and those who don't respond to biomed,

> including kids who remain very much autistic after a decade of

> chelation/biomed, it would also help tailor treatments to those who are

> responders and are doing well but not off the spectrum … of course

> these discoveries, if confirmed and allowed to expand and translate into

> clinical trials, will not bring instant (or even long-term) solutions

> for everyone BUT they would bring about a permanent shift in how autism

> is perceived by mainstream doctors and public – the undeniable (to

> mainstream) proof that autism is medical and should leave the realm of

> psychobabble/behavioural science. No more eye-gazing studies, ever. This

> new knowledge would also have the potential to halt the explosion of

> autism, and if not get rid of it completely then soften the blow...

>

> This research is under real threat of getting squashed, because of some

> powerful people with a lot to lose if it pans out, and the very same

> people who buried similar research 20 years ago are very busy trying to

> do the same thing right now - through fake negative studies, public

> attacks, accusations and starving anyone involved out of government

> grant funds. End result being that the people at the forefront of this

> research are starved out of cash, overworked and demoralised. In order

> to survive this research desperately needs lots of outspoken advocacy

> and support right now. But while all this has been going on most autism

> parents are too absorbed into autism=mercury narrative to even notice!!

> I can't help but find this … perplexing? Sad? Not sure what the word

> is…

>

> In short a golden opportunity to bring about MAJOR paradigm shift in the

> way autism is perceived and treated and supported is about to sink

> unless nothing is done on advocacy front in near future.

>

>

> So yes the mercury=causation theory does not really matter. Until it

> does, until it shapes things in such a way that it paralyses progress.

> As is happening right now.

>

> Then again maybe it is the way it should be, maybe we are not supposed

> to `know' things, maybe autism is meant to be with us forever,

> some Original Sin crap or something, perpetuation of suffering for

> generations to come. Should any of us care? Should I care? I'll

> definitely try not to. Will shut up.

>

[Guest guest]

I am just completely confused to be quite honest, i just thought Natasa was saying that mercury was not a factor in autism, therefore why bother chelating, i don't want to be getting up every 4 hours through the night if i am wasting my time, but my son is making gains so i guess i just keep going..... i just get very confused when the message isn't very clear.

x

To: Autism-Biomedical-Europe From: canadacath@...Date: Fri, 26 Nov 2010 13:05:15 +0000Subject: Re: Musings on Progress in science and why I say things I do but won't any more

, if you are seeing gains why would you stop?This thread was started by someone asking our opinion on whether IV chelation was safe and whether to go with the DAN or Andy Cutler's (AC) chelation protocol. Many people emailed to let her know their positive personal experience with AC chelation, myself included. No one emailed to say how happy they were with DAN chelation and no one has posted any personal negative experience with AC chelation.Every single person who responded in favour of AC chelation is actually doing it with their child. We are speaking from our own experience, and we are all saying how positive it is. AC chelation has changed my family's life to a degree that I would say is miraculous in such a short period. Maybe this is why people are so happy to share their experience with others who ask them and not because they are brainwashed.I would hate it if this thread has put other people off starting AC chelation because except for one person who may or may not have tried it, every other person on this thread who is doing AC chelation has had a great experience with it. I do understand that it feels like we are being told we are wrong, but clearly there are enough of us saying it works that this is not possible.> > >> > > > > > This to clear few things up from my perspective if anyone is interested,> > > long but then I'll stop promise LOL.> > > > > > As most know I've never bought into mercury-causing-autism theory in> > > the past, it never made much sense whichever way I looked at it, it> > > makes even less sense to me now, and especially after carefully reading> > > papers on developmental outcomes of congenital mercury exposure (in> > > which all classic Autism symptoms are clearly absent), or those on both> > > acute and chronic/subclinical exposures in children and adults... And> > > yes I do believe that many chelators are potentially fantastic for our> > > kids, and for reasons that may not have much to do with metal removal> > > (yes I DID post loads of science on those effects on this one and many> > > other lists a good while ago, if anyone is interested can search… ),> > > and that chelation for those who tolerate it is a good part of biomed> > > and that is one of the reasons I try not to bring up the issue of> > > causation, and also because what is the point anyway. That is not to say> > > that mercury or metals might not in some yet-to-be-discovered way be> > > contributing to autism, but that is a far cry from them being causative> > > factors. But this is not why I'm posting this, as not willing to argue> > > any of that now or in future… actually I forgot what the point was.> > > Ah yes, Advocacy! Because causative factors don't matter if the> > > treatment is going to be the same, no?> > > > > > But lately something has been happening. A small group of researchers> > > has been coming up with some incredibly exciting discoveries that could> > > have enormous effects for our kids. If this research pans out it will> > > have the potential to start on the path of many novel treatments –> > > even for severe kids and those who don't respond to biomed,> > > including kids who remain very much autistic after a decade of> > > chelation/biomed, it would also help tailor treatments to those who are> > > responders and are doing well but not off the spectrum … of course> > > these discoveries, if confirmed and allowed to expand and translate into> > > clinical trials, will not bring instant (or even long-term) solutions> > > for everyone BUT they would bring about a permanent shift in how autism> > > is perceived by mainstream doctors and public – the undeniable (to> > > mainstream) proof that autism is medical and should leave the realm of> > > psychobabble/behavioural science. No more eye-gazing studies, ever. This> > > new knowledge would also have the potential to halt the explosion of> > > autism, and if not get rid of it completely then soften the blow...> > > > > > This research is under real threat of getting squashed, because of some> > > powerful people with a lot to lose if it pans out, and the very same> > > people who buried similar research 20 years ago are very busy trying to> > > do the same thing right now - through fake negative studies, public> > > attacks, accusations and starving anyone involved out of government> > > grant funds. End result being that the people at the forefront of this> > > research are starved out of cash, overworked and demoralised. In order> > > to survive this research desperately needs lots of outspoken advocacy> > > and support right now. But while all this has been going on most autism> > > parents are too absorbed into autism=mercury narrative to even notice!!> > > I can't help but find this … perplexing? Sad? Not sure what the word> > > is…> > > > > > In short a golden opportunity to bring about MAJOR paradigm shift in the> > > way autism is perceived and treated and supported is about to sink> > > unless nothing is done on advocacy front in near future.> > > > > > > > > So yes the mercury=causation theory does not really matter. Until it> > > does, until it shapes things in such a way that it paralyses progress.> > > As is happening right now.> > > > > > Then again maybe it is the way it should be, maybe we are not supposed> > > to `know' things, maybe autism is meant to be with us forever,> > > some Original Sin crap or something, perpetuation of suffering for> > > generations to come. Should any of us care? Should I care? I'll> > > definitely try not to. Will shut up.> > >> >>

[Guest guest]

I am just completely confused to be quite honest, i just thought Natasa was saying that mercury was not a factor in autism, therefore why bother chelating, i don't want to be getting up every 4 hours through the night if i am wasting my time, but my son is making gains so i guess i just keep going..... i just get very confused when the message isn't very clear.

x

To: Autism-Biomedical-Europe From: canadacath@...Date: Fri, 26 Nov 2010 13:05:15 +0000Subject: Re: Musings on Progress in science and why I say things I do but won't any more

, if you are seeing gains why would you stop?This thread was started by someone asking our opinion on whether IV chelation was safe and whether to go with the DAN or Andy Cutler's (AC) chelation protocol. Many people emailed to let her know their positive personal experience with AC chelation, myself included. No one emailed to say how happy they were with DAN chelation and no one has posted any personal negative experience with AC chelation.Every single person who responded in favour of AC chelation is actually doing it with their child. We are speaking from our own experience, and we are all saying how positive it is. AC chelation has changed my family's life to a degree that I would say is miraculous in such a short period. Maybe this is why people are so happy to share their experience with others who ask them and not because they are brainwashed.I would hate it if this thread has put other people off starting AC chelation because except for one person who may or may not have tried it, every other person on this thread who is doing AC chelation has had a great experience with it. I do understand that it feels like we are being told we are wrong, but clearly there are enough of us saying it works that this is not possible.> > >> > > > > > This to clear few things up from my perspective if anyone is interested,> > > long but then I'll stop promise LOL.> > > > > > As most know I've never bought into mercury-causing-autism theory in> > > the past, it never made much sense whichever way I looked at it, it> > > makes even less sense to me now, and especially after carefully reading> > > papers on developmental outcomes of congenital mercury exposure (in> > > which all classic Autism symptoms are clearly absent), or those on both> > > acute and chronic/subclinical exposures in children and adults... And> > > yes I do believe that many chelators are potentially fantastic for our> > > kids, and for reasons that may not have much to do with metal removal> > > (yes I DID post loads of science on those effects on this one and many> > > other lists a good while ago, if anyone is interested can search… ),> > > and that chelation for those who tolerate it is a good part of biomed> > > and that is one of the reasons I try not to bring up the issue of> > > causation, and also because what is the point anyway. That is not to say> > > that mercury or metals might not in some yet-to-be-discovered way be> > > contributing to autism, but that is a far cry from them being causative> > > factors. But this is not why I'm posting this, as not willing to argue> > > any of that now or in future… actually I forgot what the point was.> > > Ah yes, Advocacy! Because causative factors don't matter if the> > > treatment is going to be the same, no?> > > > > > But lately something has been happening. A small group of researchers> > > has been coming up with some incredibly exciting discoveries that could> > > have enormous effects for our kids. If this research pans out it will> > > have the potential to start on the path of many novel treatments –> > > even for severe kids and those who don't respond to biomed,> > > including kids who remain very much autistic after a decade of> > > chelation/biomed, it would also help tailor treatments to those who are> > > responders and are doing well but not off the spectrum … of course> > > these discoveries, if confirmed and allowed to expand and translate into> > > clinical trials, will not bring instant (or even long-term) solutions> > > for everyone BUT they would bring about a permanent shift in how autism> > > is perceived by mainstream doctors and public – the undeniable (to> > > mainstream) proof that autism is medical and should leave the realm of> > > psychobabble/behavioural science. No more eye-gazing studies, ever. This> > > new knowledge would also have the potential to halt the explosion of> > > autism, and if not get rid of it completely then soften the blow...> > > > > > This research is under real threat of getting squashed, because of some> > > powerful people with a lot to lose if it pans out, and the very same> > > people who buried similar research 20 years ago are very busy trying to> > > do the same thing right now - through fake negative studies, public> > > attacks, accusations and starving anyone involved out of government> > > grant funds. End result being that the people at the forefront of this> > > research are starved out of cash, overworked and demoralised. In order> > > to survive this research desperately needs lots of outspoken advocacy> > > and support right now. But while all this has been going on most autism> > > parents are too absorbed into autism=mercury narrative to even notice!!> > > I can't help but find this … perplexing? Sad? Not sure what the word> > > is…> > > > > > In short a golden opportunity to bring about MAJOR paradigm shift in the> > > way autism is perceived and treated and supported is about to sink> > > unless nothing is done on advocacy front in near future.> > > > > > > > > So yes the mercury=causation theory does not really matter. Until it> > > does, until it shapes things in such a way that it paralyses progress.> > > As is happening right now.> > > > > > Then again maybe it is the way it should be, maybe we are not supposed> > > to `know' things, maybe autism is meant to be with us forever,> > > some Original Sin crap or something, perpetuation of suffering for> > > generations to come. Should any of us care? Should I care? I'll> > > definitely try not to. Will shut up.> > >> >>

[Guest guest]

I am just completely confused to be quite honest, i just thought Natasa was saying that mercury was not a factor in autism, therefore why bother chelating, i don't want to be getting up every 4 hours through the night if i am wasting my time, but my son is making gains so i guess i just keep going..... i just get very confused when the message isn't very clear.

x

To: Autism-Biomedical-Europe From: canadacath@...Date: Fri, 26 Nov 2010 13:05:15 +0000Subject: Re: Musings on Progress in science and why I say things I do but won't any more

, if you are seeing gains why would you stop?This thread was started by someone asking our opinion on whether IV chelation was safe and whether to go with the DAN or Andy Cutler's (AC) chelation protocol. Many people emailed to let her know their positive personal experience with AC chelation, myself included. No one emailed to say how happy they were with DAN chelation and no one has posted any personal negative experience with AC chelation.Every single person who responded in favour of AC chelation is actually doing it with their child. We are speaking from our own experience, and we are all saying how positive it is. AC chelation has changed my family's life to a degree that I would say is miraculous in such a short period. Maybe this is why people are so happy to share their experience with others who ask them and not because they are brainwashed.I would hate it if this thread has put other people off starting AC chelation because except for one person who may or may not have tried it, every other person on this thread who is doing AC chelation has had a great experience with it. I do understand that it feels like we are being told we are wrong, but clearly there are enough of us saying it works that this is not possible.> > >> > > > > > This to clear few things up from my perspective if anyone is interested,> > > long but then I'll stop promise LOL.> > > > > > As most know I've never bought into mercury-causing-autism theory in> > > the past, it never made much sense whichever way I looked at it, it> > > makes even less sense to me now, and especially after carefully reading> > > papers on developmental outcomes of congenital mercury exposure (in> > > which all classic Autism symptoms are clearly absent), or those on both> > > acute and chronic/subclinical exposures in children and adults... And> > > yes I do believe that many chelators are potentially fantastic for our> > > kids, and for reasons that may not have much to do with metal removal> > > (yes I DID post loads of science on those effects on this one and many> > > other lists a good while ago, if anyone is interested can search… ),> > > and that chelation for those who tolerate it is a good part of biomed> > > and that is one of the reasons I try not to bring up the issue of> > > causation, and also because what is the point anyway. That is not to say> > > that mercury or metals might not in some yet-to-be-discovered way be> > > contributing to autism, but that is a far cry from them being causative> > > factors. But this is not why I'm posting this, as not willing to argue> > > any of that now or in future… actually I forgot what the point was.> > > Ah yes, Advocacy! Because causative factors don't matter if the> > > treatment is going to be the same, no?> > > > > > But lately something has been happening. A small group of researchers> > > has been coming up with some incredibly exciting discoveries that could> > > have enormous effects for our kids. If this research pans out it will> > > have the potential to start on the path of many novel treatments –> > > even for severe kids and those who don't respond to biomed,> > > including kids who remain very much autistic after a decade of> > > chelation/biomed, it would also help tailor treatments to those who are> > > responders and are doing well but not off the spectrum … of course> > > these discoveries, if confirmed and allowed to expand and translate into> > > clinical trials, will not bring instant (or even long-term) solutions> > > for everyone BUT they would bring about a permanent shift in how autism> > > is perceived by mainstream doctors and public – the undeniable (to> > > mainstream) proof that autism is medical and should leave the realm of> > > psychobabble/behavioural science. No more eye-gazing studies, ever. This> > > new knowledge would also have the potential to halt the explosion of> > > autism, and if not get rid of it completely then soften the blow...> > > > > > This research is under real threat of getting squashed, because of some> > > powerful people with a lot to lose if it pans out, and the very same> > > people who buried similar research 20 years ago are very busy trying to> > > do the same thing right now - through fake negative studies, public> > > attacks, accusations and starving anyone involved out of government> > > grant funds. End result being that the people at the forefront of this> > > research are starved out of cash, overworked and demoralised. In order> > > to survive this research desperately needs lots of outspoken advocacy> > > and support right now. But while all this has been going on most autism> > > parents are too absorbed into autism=mercury narrative to even notice!!> > > I can't help but find this … perplexing? Sad? Not sure what the word> > > is…> > > > > > In short a golden opportunity to bring about MAJOR paradigm shift in the> > > way autism is perceived and treated and supported is about to sink> > > unless nothing is done on advocacy front in near future.> > > > > > > > > So yes the mercury=causation theory does not really matter. Until it> > > does, until it shapes things in such a way that it paralyses progress.> > > As is happening right now.> > > > > > Then again maybe it is the way it should be, maybe we are not supposed> > > to `know' things, maybe autism is meant to be with us forever,> > > some Original Sin crap or something, perpetuation of suffering for> > > generations to come. Should any of us care? Should I care? I'll> > > definitely try not to. Will shut up.> > >> >>

[Guest guest]

hi , if you are seeing gains you'd be mad to listen to me or

anyone besides I've never said not to bother chelating, quite the

opposite!!

hope you continue to see gains! nxx

> > > >

> > > >

> > > > This to clear few things up from my perspective if anyone is

interested,

> > > > long but then I'll stop promise LOL.

> > > >

> > > > As most know I've never bought into mercury-causing-autism

theory in

> > > > the past, it never made much sense whichever way I looked at it,

it

> > > > makes even less sense to me now, and especially after carefully

reading

> > > > papers on developmental outcomes of congenital mercury exposure

(in

> > > > which all classic Autism symptoms are clearly absent), or those

on both

> > > > acute and chronic/subclinical exposures in children and

adults... And

> > > > yes I do believe that many chelators are potentially fantastic

for our

> > > > kids, and for reasons that may not have much to do with metal

removal

> > > > (yes I DID post loads of science on those effects on this one

and many

> > > > other lists a good while ago, if anyone is interested can

search… ),

> > > > and that chelation for those who tolerate it is a good part of

biomed

> > > > and that is one of the reasons I try not to bring up the issue

of

> > > > causation, and also because what is the point anyway. That is

not to say

> > > > that mercury or metals might not in some yet-to-be-discovered

way be

> > > > contributing to autism, but that is a far cry from them being

causative

> > > > factors. But this is not why I'm posting this, as not willing to

argue

> > > > any of that now or in future… actually I forgot what the

point was.

> > > > Ah yes, Advocacy! Because causative factors don't matter if the

> > > > treatment is going to be the same, no?

> > > >

> > > > But lately something has been happening. A small group of

researchers

> > > > has been coming up with some incredibly exciting discoveries

that could

> > > > have enormous effects for our kids. If this research pans out it

will

> > > > have the potential to start on the path of many novel treatments

–

> > > > even for severe kids and those who don't respond to biomed,

> > > > including kids who remain very much autistic after a decade of

> > > > chelation/biomed, it would also help tailor treatments to those

who are

> > > > responders and are doing well but not off the spectrum … of

course

> > > > these discoveries, if confirmed and allowed to expand and

translate into

> > > > clinical trials, will not bring instant (or even long-term)

solutions

> > > > for everyone BUT they would bring about a permanent shift in how

autism

> > > > is perceived by mainstream doctors and public – the

undeniable (to

> > > > mainstream) proof that autism is medical and should leave the

realm of

> > > > psychobabble/behavioural science. No more eye-gazing studies,

ever. This

> > > > new knowledge would also have the potential to halt the

explosion of

> > > > autism, and if not get rid of it completely then soften the

blow...

> > > >

> > > > This research is under real threat of getting squashed, because

of some

> > > > powerful people with a lot to lose if it pans out, and the very

same

> > > > people who buried similar research 20 years ago are very busy

trying to

> > > > do the same thing right now - through fake negative studies,

public

> > > > attacks, accusations and starving anyone involved out of

government

> > > > grant funds. End result being that the people at the forefront

of this

> > > > research are starved out of cash, overworked and demoralised. In

order

> > > > to survive this research desperately needs lots of outspoken

advocacy

> > > > and support right now. But while all this has been going on most

autism

> > > > parents are too absorbed into autism=mercury narrative to even

notice!!

> > > > I can't help but find this … perplexing? Sad? Not sure what

the word

> > > > is…

> > > >

> > > > In short a golden opportunity to bring about MAJOR paradigm

shift in the

> > > > way autism is perceived and treated and supported is about to

sink

> > > > unless nothing is done on advocacy front in near future.

> > > >

> > > >

> > > > So yes the mercury=causation theory does not really matter.

Until it

> > > > does, until it shapes things in such a way that it paralyses

progress.

> > > > As is happening right now.

> > > >

> > > > Then again maybe it is the way it should be, maybe we are not

supposed

> > > > to `know' things, maybe autism is meant to be with us forever,

> > > > some Original Sin crap or something, perpetuation of suffering

for

> > > > generations to come. Should any of us care? Should I care? I'll

> > > > definitely try not to. Will shut up.

> > > >

> > >

> >

>

[Guest guest]

hi , if you are seeing gains you'd be mad to listen to me or

anyone besides I've never said not to bother chelating, quite the

opposite!!

hope you continue to see gains! nxx

> > > >

> > > >

> > > > This to clear few things up from my perspective if anyone is

interested,

> > > > long but then I'll stop promise LOL.

> > > >

> > > > As most know I've never bought into mercury-causing-autism

theory in

> > > > the past, it never made much sense whichever way I looked at it,

it

> > > > makes even less sense to me now, and especially after carefully

reading

> > > > papers on developmental outcomes of congenital mercury exposure

(in

> > > > which all classic Autism symptoms are clearly absent), or those

on both

> > > > acute and chronic/subclinical exposures in children and

adults... And

> > > > yes I do believe that many chelators are potentially fantastic

for our

> > > > kids, and for reasons that may not have much to do with metal

removal

> > > > (yes I DID post loads of science on those effects on this one

and many

> > > > other lists a good while ago, if anyone is interested can

search… ),

> > > > and that chelation for those who tolerate it is a good part of

biomed

> > > > and that is one of the reasons I try not to bring up the issue

of

> > > > causation, and also because what is the point anyway. That is

not to say

> > > > that mercury or metals might not in some yet-to-be-discovered

way be

> > > > contributing to autism, but that is a far cry from them being

causative

> > > > factors. But this is not why I'm posting this, as not willing to

argue

> > > > any of that now or in future… actually I forgot what the

point was.

> > > > Ah yes, Advocacy! Because causative factors don't matter if the

> > > > treatment is going to be the same, no?

> > > >

> > > > But lately something has been happening. A small group of

researchers

> > > > has been coming up with some incredibly exciting discoveries

that could

> > > > have enormous effects for our kids. If this research pans out it

will

> > > > have the potential to start on the path of many novel treatments

–

> > > > even for severe kids and those who don't respond to biomed,

> > > > including kids who remain very much autistic after a decade of

> > > > chelation/biomed, it would also help tailor treatments to those

who are

> > > > responders and are doing well but not off the spectrum … of

course

> > > > these discoveries, if confirmed and allowed to expand and

translate into

> > > > clinical trials, will not bring instant (or even long-term)

solutions

> > > > for everyone BUT they would bring about a permanent shift in how

autism

> > > > is perceived by mainstream doctors and public – the

undeniable (to

> > > > mainstream) proof that autism is medical and should leave the

realm of

> > > > psychobabble/behavioural science. No more eye-gazing studies,

ever. This

> > > > new knowledge would also have the potential to halt the

explosion of

> > > > autism, and if not get rid of it completely then soften the

blow...

> > > >

> > > > This research is under real threat of getting squashed, because

of some

> > > > powerful people with a lot to lose if it pans out, and the very

same

> > > > people who buried similar research 20 years ago are very busy

trying to

> > > > do the same thing right now - through fake negative studies,

public

> > > > attacks, accusations and starving anyone involved out of

government

> > > > grant funds. End result being that the people at the forefront

of this

> > > > research are starved out of cash, overworked and demoralised. In

order

> > > > to survive this research desperately needs lots of outspoken

advocacy

> > > > and support right now. But while all this has been going on most

autism

> > > > parents are too absorbed into autism=mercury narrative to even

notice!!

> > > > I can't help but find this … perplexing? Sad? Not sure what

the word

> > > > is…

> > > >

> > > > In short a golden opportunity to bring about MAJOR paradigm

shift in the

> > > > way autism is perceived and treated and supported is about to

sink

> > > > unless nothing is done on advocacy front in near future.

> > > >

> > > >

> > > > So yes the mercury=causation theory does not really matter.

Until it

> > > > does, until it shapes things in such a way that it paralyses

progress.

> > > > As is happening right now.

> > > >

> > > > Then again maybe it is the way it should be, maybe we are not

supposed

> > > > to `know' things, maybe autism is meant to be with us forever,

> > > > some Original Sin crap or something, perpetuation of suffering

for

> > > > generations to come. Should any of us care? Should I care? I'll

> > > > definitely try not to. Will shut up.

> > > >

> > >

> >

>

[Guest guest]

hi , if you are seeing gains you'd be mad to listen to me or

anyone besides I've never said not to bother chelating, quite the

opposite!!

hope you continue to see gains! nxx

> > > >

> > > >

> > > > This to clear few things up from my perspective if anyone is

interested,

> > > > long but then I'll stop promise LOL.

> > > >

> > > > As most know I've never bought into mercury-causing-autism

theory in

> > > > the past, it never made much sense whichever way I looked at it,

it

> > > > makes even less sense to me now, and especially after carefully

reading

> > > > papers on developmental outcomes of congenital mercury exposure

(in

> > > > which all classic Autism symptoms are clearly absent), or those

on both

> > > > acute and chronic/subclinical exposures in children and

adults... And

> > > > yes I do believe that many chelators are potentially fantastic

for our

> > > > kids, and for reasons that may not have much to do with metal

removal

> > > > (yes I DID post loads of science on those effects on this one

and many

> > > > other lists a good while ago, if anyone is interested can

search… ),

> > > > and that chelation for those who tolerate it is a good part of

biomed

> > > > and that is one of the reasons I try not to bring up the issue

of

> > > > causation, and also because what is the point anyway. That is

not to say

> > > > that mercury or metals might not in some yet-to-be-discovered

way be

> > > > contributing to autism, but that is a far cry from them being

causative

> > > > factors. But this is not why I'm posting this, as not willing to

argue

> > > > any of that now or in future… actually I forgot what the

point was.

> > > > Ah yes, Advocacy! Because causative factors don't matter if the

> > > > treatment is going to be the same, no?

> > > >

> > > > But lately something has been happening. A small group of

researchers

> > > > has been coming up with some incredibly exciting discoveries

that could

> > > > have enormous effects for our kids. If this research pans out it

will

> > > > have the potential to start on the path of many novel treatments

–

> > > > even for severe kids and those who don't respond to biomed,

> > > > including kids who remain very much autistic after a decade of

> > > > chelation/biomed, it would also help tailor treatments to those

who are

> > > > responders and are doing well but not off the spectrum … of

course

> > > > these discoveries, if confirmed and allowed to expand and

translate into

> > > > clinical trials, will not bring instant (or even long-term)

solutions

> > > > for everyone BUT they would bring about a permanent shift in how

autism

> > > > is perceived by mainstream doctors and public – the

undeniable (to

> > > > mainstream) proof that autism is medical and should leave the

realm of

> > > > psychobabble/behavioural science. No more eye-gazing studies,

ever. This

> > > > new knowledge would also have the potential to halt the

explosion of

> > > > autism, and if not get rid of it completely then soften the

blow...

> > > >

> > > > This research is under real threat of getting squashed, because

of some

> > > > powerful people with a lot to lose if it pans out, and the very

same

> > > > people who buried similar research 20 years ago are very busy

trying to

> > > > do the same thing right now - through fake negative studies,

public

> > > > attacks, accusations and starving anyone involved out of

government

> > > > grant funds. End result being that the people at the forefront

of this

> > > > research are starved out of cash, overworked and demoralised. In

order

> > > > to survive this research desperately needs lots of outspoken

advocacy

> > > > and support right now. But while all this has been going on most

autism

> > > > parents are too absorbed into autism=mercury narrative to even

notice!!

> > > > I can't help but find this … perplexing? Sad? Not sure what

the word

> > > > is…

> > > >

> > > > In short a golden opportunity to bring about MAJOR paradigm

shift in the

> > > > way autism is perceived and treated and supported is about to

sink

> > > > unless nothing is done on advocacy front in near future.

> > > >

> > > >

> > > > So yes the mercury=causation theory does not really matter.

Until it

> > > > does, until it shapes things in such a way that it paralyses

progress.

> > > > As is happening right now.

> > > >

> > > > Then again maybe it is the way it should be, maybe we are not

supposed

> > > > to `know' things, maybe autism is meant to be with us forever,

> > > > some Original Sin crap or something, perpetuation of suffering

for

> > > > generations to come. Should any of us care? Should I care? I'll

> > > > definitely try not to. Will shut up.

> > > >

> > >

> >

>