Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Buddy take your lactulose and as much as you need or suppose to take at this time watch your diet lay off the Blue Bell - high fats - salts - red meat - eat right fresh foods veggies drink enough water and take care of you and take all your meds. Since you are now back in Texas are you being followed and have Dr's to see or call for ESLD and what's next - any appt's ????? From your posts it sounds like more confusion and emotions running high. You know more brain fog - confusion - emotions going crazy - anger - aggression - even not thinking rationally and clearly is signs of more problems going on with you - encephalopathy and it may get to a point you don't realize it all and reality. What's going on - how are you - and do you have caregivers and friends still set up in Texas ????? How are you really emotionally handling it all from your transplant denial in Fla ???? If you don't want to discuss it all in group at this time you know you can email me - Suzie - and others to discuss ESLD with us. Hang In There !!!!!!!!!!!!!! Love and Hugs. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Deb wrote: Buddy take your lactulose and as much as you need or suppose to take at this time watch your diet lay off the Blue Bell - high fats - salts - red meat - eat right fresh foods veggies drink enough water and take care of you and take all your meds. Thank you for your concern. I can improve in all areas, I eat FF yogurt which is OK with me. and I don't even like much meat at all, anymore. Might be the teeth, I dunno. Since you are now back in Texas are you being followed and have Dr's to see or call for ESLD and what's next - any appt's ????? I have been checking, alot...and I don't think I'm being followed, but the helicopters are always present. (sorry, still have humor!), I still am a patient at St Lukes, they knew I was going to Mayo, I have a consulation and blood work thing done too, plus they want an MRI, but said i could use the one from Macys. I feel as though I am going a little crazy. There is alot more beneath the surface of what's been going on, but I don't want to cry for help, to everyone, because I'm still programmed that is weak, and that I know everyone else has problems much more serious than mine. and if I do tell the doc and nurses what is going on, they may put me in an institution.. and I can't do that. I just can't. My family would go along with this plan of action in a New York minute. The doctor doesn't meet with me alone anymore, I think for fear I may be dangerous. I'm not sure. but ever since we had a couple of incidents, he wants someone to accompany me, and he has his x-tra person, in the tiny exam room. If that is the case, I feel ashamed. Please anybody reading this, I don't want want cheerleading, or patronizing, or sympathy or pity. I'm no different than the rest of you, except maybe I have to try and work and be concious of hanging on..like a world that is spinning to fast for me and I'm hanging on by my fingers, and my body is streched out, is about to pulled off, but on the next "come around", I'm still there. I don't know what would happen if what I was holding onto began to break, or bust off alltogether. I don't think anybody does. Unless they are there. From your posts it sounds like more confusion and emotions running high. YEP. You know more brain fog - confusion - emotions going crazy - anger - aggression - even not thinking rationally and clearly is signs of more problems going on with you - encephalopathy and it may get to a point you don't realize it all and reality. YEP. That bothers me.. I've always kinda' felt a gentle nudge would get me on the fast track to Loonyville. (my apologies for using that term, to describe menatal illness, if someone reading this is actually Loony). What's going on - how are you - and do you have caregivers and friends still set up in Texas ????? I am aggresively advertising for a roomate, on line, and soon my Cobra runs out, which is perfect timing because my Medicqare 2 yr. wait is over at the same time. Money, the lack of, owing, (my power just got turned on about an hour ago, it was disconnected, seems there was some problem in accounting with new hire! haha along with my cell phone, anyway, How are you really emotionally handling it all from your transplant denial in Fla ???? I'm doing the best I think anybody could. The unsuccessful study, with two other pts, putting it on hold unitil they know what happened, and the rejections, for a number of reasons, one of which, I HATE to say this, being my mental stability may not good for receiving a TP at this time, and other things, My ex- caregiver has and is accusing me of unethical practices, and that along with a zillion others things went wrong while in her "care" do make me a little despondant. If you don't want to discuss it all in group at this time you know you can email me - Suzie - and others to discuss ESLD with us. I have decided to do this publicly, in group, so many someone can benefit in some way.. I don't know how..but someway get something from it, (more than geeezzz, I thought I WAS NUTS!)..and also, to the new people that don't know me.. that my core, my spirit, is not intentionally that of as asshole, I that I used to be an alright person. Del Hang In There !!!!!!!!!!!!!! Love and Hugs. Deb Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
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