/ New Here - la 18 months

[Guest guest]

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Thank you for the advice. We actually have a repeat MRI of her brain scheduled

for Sept. 13th, I think I will see if we can add the spine at the same time,

since she will already be sedated. Do you think we should also have a

" baseline " appointment with a pediatric orthopedic too? I don't want to be a

neurotic mom, but I don't want to miss anything either....she does have other

neurologic / low tone issues, which would put her at higher risk for scoliosis.

I really appreciate your input as I know virtually nothing about scoliosis and

its course of progression or its treatment. Thanks again!

Lee Ann, Livonia, Michigan [Wife to Bud, Mom to 3 typical and la

18 months w/ hypotonia, myelin delay, GERD and diagnosed w/ EE 2/27/07 (>57

eos/hpf), Elemental diet, clear scope 6/11/07, beginning food trials; wears

DAFO's, receives OT/PT, takes Prevacid for reflux and milk of magnesia for

constipation]

[infantile_scoliosi s] New Here - la 18 months

Hi -

My name is Lee Ann and I wanted to take a moment and introduce myself and my

daughter la. We call her Gabby. Gabby is 18 months old and suffers from

hypotonia, myelin delay, GERD, eosinophilic esophagitis (EE), she wears DAFO's

(little leg braces), receives OT and PT and lives solely on an elemental diet

(special amino acid formula). The PMR doctor at our neurologists office

recommended that we have hip and spine x-rays done, just as a " baseline. " We

expected them to be normal; however, her spinal x-ray came back showing a 10

degree scoliosis with the apex to the left at T9 and T10. From what I have read,

this is very mild, but was wondering what we should or shouldn't be doing? So I

am seeking some quidance. Our neurologist said to do nothing and x-ray again in

one year. Any thoughts?

Lee Ann, Livonia, Michigan [Wife to Bud, Mom to 3 typical and la

18 months w/ hypotonia, infantile scoliosis 10 degrees, myelin delay, GERD and

diagnosed w/ EE 2/27/07 (>57 eos/hpf), Elemental diet, clear scope 6/11/07,

beginning food trials; wears DAFO's, receives OT/PT, takes Prevacid for reflux

and milk of magnesia for constipation]