Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 I don't know if the newbies remember but I first got this in 1972. Until about 1995 all my symptoms came and left and were totally Stills. Now it has changed and the docs call me undifferentiated connective tissue disorder. So what I am gonna tell you is not Stills like... It was coldish at my sons baseball game.....maybe it was windy.. The weather service said it was 61.. I looked at my hands to see hands that looked liked they belonged to someone who was dead 5 weeks. It freaked me out. I have had white raynauds before but this was awful and confirmed to me I was in a flare and not just depressed or lazy( what I say to myself) The hands were a dusky sick gray( like elephant gray) and all knuckles were black.....my friend gasped my hubby who is a md just started to say the physiological reason why this happens( arteries clamping down etc)just like a doc ha h a hhha Between this and having iritis of the eyes , mouth ulcers and feeling like I am 101 years old by 5 pm...I guess It is not in my head...oh yea I get stubborn bladder infections. Weird!!!!!!!..Those hands freaked me out...I took a nice warm shower and then had some hot tea..Its is somewhat normal now..I still have a couple of hours in the Am that I feel OK ( spoon theory)Thanks for listening Hugs to my stilligans..motto of my story...don't doubt yourself...and as always call in stilligans as needed Love always Liz ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Thanks Bram. They are almost 100%.. A little white here or there....But that was scary..just in time for haloween...I should have pointed to the sky and cackled...hhahhhahha.. Thanks for your TLC...Many hugs Love Liz ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Thanks Bram. They are almost 100%.. A little white here or there....But that was scary..just in time for haloween...I should have pointed to the sky and cackled...hhahhhahha.. Thanks for your TLC...Many hugs Love Liz ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Thanks Bram. They are almost 100%.. A little white here or there....But that was scary..just in time for haloween...I should have pointed to the sky and cackled...hhahhhahha.. Thanks for your TLC...Many hugs Love Liz ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Liz: I'm so sorry you have to through all this stuff. I'm glad your hands are better and your hubby can give you point for point what's going on (that would annoy the dickens out of me) but the fact you take this in stride is astounding! By the way, how was the game? Did you son do well? I don't understand the concept of not having any winners or losers, by the way. Our son played little league at one time; how are the kids supposed to learn how to win graciously or lose gracefully if they haven't the experience? Evidently, I like philosophy; runs in the family. Please excuse me, the dogs are begging to go outside and play. Feel better hon. Take care and be well. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Liz: I'm so sorry you have to through all this stuff. I'm glad your hands are better and your hubby can give you point for point what's going on (that would annoy the dickens out of me) but the fact you take this in stride is astounding! By the way, how was the game? Did you son do well? I don't understand the concept of not having any winners or losers, by the way. Our son played little league at one time; how are the kids supposed to learn how to win graciously or lose gracefully if they haven't the experience? Evidently, I like philosophy; runs in the family. Please excuse me, the dogs are begging to go outside and play. Feel better hon. Take care and be well. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Liz: I'm so sorry you have to through all this stuff. I'm glad your hands are better and your hubby can give you point for point what's going on (that would annoy the dickens out of me) but the fact you take this in stride is astounding! By the way, how was the game? Did you son do well? I don't understand the concept of not having any winners or losers, by the way. Our son played little league at one time; how are the kids supposed to learn how to win graciously or lose gracefully if they haven't the experience? Evidently, I like philosophy; runs in the family. Please excuse me, the dogs are begging to go outside and play. Feel better hon. Take care and be well. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 >Liz-How are your hands now?? They do sell " warmth " gloves in some of the " help the sick arthritis people " (LOL) magazines that come to the houses. If I get one of the mags. before I move;I will send you all th info. Luv;Bram. > > > I don't know if the newbies remember but I first got this in 1972. Until > about 1995 all my symptoms came and left and were totally Stills. Now it has > changed and the docs call me undifferentiated connective tissue disorder. So > what I am gonna tell you is not Stills like... It was coldish at my sons > baseball game.....maybe it was windy.. The weather service said it was 61.. I > looked at my hands to see hands that looked liked they belonged to someone who was > dead 5 weeks. It freaked me out. I have had white raynauds before but this > was awful and confirmed to me I was in a flare and not just depressed or lazy( > what I say to myself) The hands were a dusky sick gray( like elephant > gray) and all knuckles were black.....my friend gasped my hubby who is a md just > started to say the physiological reason why this happens( arteries clamping > down etc)just like a doc ha h a hhha Between this and having iritis of > the eyes , mouth ulcers and feeling like I am 101 years old by 5 pm...I guess > It is not in my head...oh yea I get stubborn bladder infections. > Weird!!!!!!!..Those hands freaked me out...I took a nice warm shower and then had some > hot tea..Its is somewhat normal now..I still have a couple of hours in the Am > that I feel OK ( spoon theory)Thanks for listening > > Hugs to my stilligans..motto of my story...don't doubt yourself...and as > always call in stilligans as needed > > Love always > Liz > > > > > > ************************************** See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 >Liz-How are your hands now?? They do sell " warmth " gloves in some of the " help the sick arthritis people " (LOL) magazines that come to the houses. If I get one of the mags. before I move;I will send you all th info. Luv;Bram. > > > I don't know if the newbies remember but I first got this in 1972. Until > about 1995 all my symptoms came and left and were totally Stills. Now it has > changed and the docs call me undifferentiated connective tissue disorder. So > what I am gonna tell you is not Stills like... It was coldish at my sons > baseball game.....maybe it was windy.. The weather service said it was 61.. I > looked at my hands to see hands that looked liked they belonged to someone who was > dead 5 weeks. It freaked me out. I have had white raynauds before but this > was awful and confirmed to me I was in a flare and not just depressed or lazy( > what I say to myself) The hands were a dusky sick gray( like elephant > gray) and all knuckles were black.....my friend gasped my hubby who is a md just > started to say the physiological reason why this happens( arteries clamping > down etc)just like a doc ha h a hhha Between this and having iritis of > the eyes , mouth ulcers and feeling like I am 101 years old by 5 pm...I guess > It is not in my head...oh yea I get stubborn bladder infections. > Weird!!!!!!!..Those hands freaked me out...I took a nice warm shower and then had some > hot tea..Its is somewhat normal now..I still have a couple of hours in the Am > that I feel OK ( spoon theory)Thanks for listening > > Hugs to my stilligans..motto of my story...don't doubt yourself...and as > always call in stilligans as needed > > Love always > Liz > > > > > > ************************************** See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 >Liz-How are your hands now?? They do sell " warmth " gloves in some of the " help the sick arthritis people " (LOL) magazines that come to the houses. If I get one of the mags. before I move;I will send you all th info. Luv;Bram. > > > I don't know if the newbies remember but I first got this in 1972. Until > about 1995 all my symptoms came and left and were totally Stills. Now it has > changed and the docs call me undifferentiated connective tissue disorder. So > what I am gonna tell you is not Stills like... It was coldish at my sons > baseball game.....maybe it was windy.. The weather service said it was 61.. I > looked at my hands to see hands that looked liked they belonged to someone who was > dead 5 weeks. It freaked me out. I have had white raynauds before but this > was awful and confirmed to me I was in a flare and not just depressed or lazy( > what I say to myself) The hands were a dusky sick gray( like elephant > gray) and all knuckles were black.....my friend gasped my hubby who is a md just > started to say the physiological reason why this happens( arteries clamping > down etc)just like a doc ha h a hhha Between this and having iritis of > the eyes , mouth ulcers and feeling like I am 101 years old by 5 pm...I guess > It is not in my head...oh yea I get stubborn bladder infections. > Weird!!!!!!!..Those hands freaked me out...I took a nice warm shower and then had some > hot tea..Its is somewhat normal now..I still have a couple of hours in the Am > that I feel OK ( spoon theory)Thanks for listening > > Hugs to my stilligans..motto of my story...don't doubt yourself...and as > always call in stilligans as needed > > Love always > Liz > > > > > > ************************************** See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
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