Re: / New Here - la 18 months

August 22, 2007

Yes, you should definitely get an appt with a pediatric ortho who specializes in

INFANTILE scoliosis. The first step is to determine if it is idiopathic (no

known cause) or if it is congenital (there is a known cause such as a

hemivertebrae or something like that). If it is idiopathic, ask them to measure

the RVAD. If it is under 20 degrees than it will likely resolve. If it is over

20, then there is a good chance it will progress.

Noelle (12-2-01)

Ian (8-15-04)

[infantile_scoliosi s] New Here - la 18 months

Hi -

My name is Lee Ann and I wanted to take a moment and introduce myself and my

daughter la. We call her Gabby. Gabby is 18 months old and suffers from

hypotonia, myelin delay, GERD, eosinophilic esophagitis (EE), she wears DAFO's

(little leg braces), receives OT and PT and lives solely on an elemental diet

(special amino acid formula). The PMR doctor at our neurologists office

recommended that we have hip and spine x-rays done, just as a " baseline. " We

expected them to be normal; however, her spinal x-ray came back showing a 10

degree scoliosis with the apex to the left at T9 and T10. From what I have read,

this is very mild, but was wondering what we should or shouldn't be doing? So I

am seeking some quidance. Our neurologist said to do nothing and x-ray again in

one year. Any thoughts?

Lee Ann, Livonia, Michigan [Wife to Bud, Mom to 3 typical and

la 18 months w/ hypotonia, infantile scoliosis 10 degrees, myelin delay,

GERD and diagnosed w/ EE 2/27/07 (>57 eos/hpf), Elemental diet, clear scope

6/11/07, beginning food trials; wears DAFO's, receives OT/PT, takes Prevacid for

reflux and milk of magnesia for constipation]

August 22, 2007

Thanks . I called Children's Hospital of Michigan (in Detroit) and

spoke to their orthopedic department. They have one physician (Dr.

Reynolds) who specializes in infantile scoliosis. He only sees scoliosis

patients on Fridays, so the first available appointment is December 7th.

Actually, that should be fine because it will be 4 months from now and he will

then be able to compare the August 13th x-ray to see if there has been any

progression. I really appreciate your guidance, as a year seemed like a long

time to me too.

Lee Ann, Livonia, Michigan [Wife to Bud, Mom to 3 typical and la

18 months w/ hypotonia, myelin delay, GERD and diagnosed w/ EE 2/27/07 (>57

eos/hpf), Elemental diet, clear scope 6/11/07, beginning food trials; wears

DAFO's, receives OT/PT, takes Prevacid for reflux and milk of magnesia for

constipation]