Re: New Diagnosis and Lots of Questions

[Guest guest]

Thanks for the info, Sandi. You said that you have to make appts.

months ahead of time for the OR. So, how does that work if he goes

up there and needed a cast right away?

>

> ,

> We are under treatment in Chicago as well, and we live in Southern

> Illinois. We had his first cast applied in early August and will

> return in two weeks for a follow-up check. This appointment should

be

> a fairly quick one - just to check on his progress. His cast will

be

> removed then a new one will be applied the following day some time

in

> November. Dr. Sturm says 12 weeks is the average, but since they do

> the casting in the operating room under anesthesia, they have to

> schedule the OR months ahead of time. It fills up so quickly (the

> schedule). They projected that Jack will need to be casted for a

> year, so we are assuming we'll have another 11 visits (half of which

> are follow-ups to casting). Plus, whatever happens beyond that -

> bracing or what have you - beyond two years old. Again, it's very

> much up in the air and we won't know each step until we come to it,

> really, but we know we'll be going up to Chicago, on average, once a

> month.

>

> Luckily for us it's just a four hour drive, so one overnight for

> check-ups and a couple overnights for castings. However, I know

there

> are several agencies that help with flights for medical

appointments -

> Angel Flights, Miracle Flights, and a program through Northwest, I

> believe. www.infantilescoliosis.org has some info there. Another

> option, with repeat trips, may be Birmingham for you - but flight

time

> and drive time may be the same between Chicago and Birmingham, and I

> think you metioned having family in Chicago.

>

> This is Dr. Sturm's contact info, from the scoliosis.org forums

(where

> I found it initially).

> F. Sturm, MD

>

> Shriner's Hospital

>

>

>

> 2211 N. Oak Park Ave

>

> Chicago IL 60707-3392

>

> Adolescent, Juvenile/Infantile

>

> http://www.shrinershq.org/Hospitals/Chicago/

>

>

> As the others explained, there is a difference between the

positioning

> and the manipulation, from what I understand. The Mehta method

> involves correcting the rotation of the spine and the curve of the

> spine, as well as allows for lung expansion and correction of the

> hollowing from the rib movement. These are key because Jack was

> braced in a rigid under the arm brace made from a plaster mold and

it

> caused his ribs to be compressed and deformed. This is likely what

a

> Risser cast would have done as well. Another important note to make

> is that Miss (dr) Mehta devoted her entire orthopaedic career to

> nonsurgical methods of treatment with early intervention. She knows

> her stuff. It was a blessing to meet her in Chicago and we are

> honored that she was able to evaluated and take part in what

> we believe will be a cure.

>

> I hope that helps a bit

>

> Sandi

>

[Guest guest]

Hi ,

I hope you don't mind I chime in about our experiences with

Shriner's Chicago. We applied to Shriner's Chicago before Dr. Sturm

was Miss Mehta trained (2006) and then almost 1 year later (2007)he

hosted the ETP with Miss Mehta.

Our experience back in 2006 (which could have changed by now). We

applied, received an acceptance letter, went to the appointment and

was given our only treatment option of casting for Max's particular

case. We were told that there is a very long operating room wait

list to get surgeries scheduled. However, being that Dr. Sturm

recognized how imperative Max needed to be casted we received a call

of Max's first cast within 1 month of our first clinic appointment.

As Sandi explained, Dr. Sturm asks for 4 week follow-up appointments

after each cast is applied (sometimes we had to go 5 or 6 as I

prefer friday follow-up appointments-less time off from work). This

comes to visits to Chicago 1 month for cast, 4 weeks later follow-

up, next month cast, etc.....But this can vary depending on how each

child responds to the treatment.

Shriner's Chicago has always given us last minute casting dates

(within a couple of weeks) and haven't schedule any of Max's O.R.

appointments much in advance. I know this can pose a problem for

many people's schedule (but things could change in their scheduling

process/procedures). My work is flexible (I am so grateful for FMLA)

and my husband is self-employed. I just want to be honest with our

experience with scheduling casting dates. But if you explain your

situation, they may be more accomodating.

All in all the real message to consider is what is best for your

child. I'm not going to Shriners Chicago to save money. I'd pay all

the money in the world to get Max the best healthcare...he deserves

it. I would sell my house, cars, everything we owned. We have seen

now 6 opinions including Dr. Sturm and Miss Mehta's. It wasn't up

until Shriners Chicago in 2006 I came to peace knowing I am doing

EVERYTHING I can do for my pride and joy. Yes, it hurts inside to

know Max will not get the results many other children will get or

have gotten, but this is a fact of Max's life and I will not give up

hope that casting will benefit him in the long run to some degree.

Yes, I tried to avoid traveling and medical costs initially, and

even had Max in a brace closer to home, but ultimately I realized

this wasn't in my child's best interest-his curve doubled in 3

months!

I know I'm rambling, but I just want to share our experiences.

Best wishes to you.

Aekta

> >

> > ,

> > We are under treatment in Chicago as well, and we live in

Southern

> > Illinois. We had his first cast applied in early August and will

> > return in two weeks for a follow-up check. This appointment

should

> be

> > a fairly quick one - just to check on his progress. His cast

will

> be

> > removed then a new one will be applied the following day some

time

> in

> > November. Dr. Sturm says 12 weeks is the average, but since

they do

> > the casting in the operating room under anesthesia, they have to

> > schedule the OR months ahead of time. It fills up so quickly

(the

> > schedule). They projected that Jack will need to be casted for a

> > year, so we are assuming we'll have another 11 visits (half of

which

> > are follow-ups to casting). Plus, whatever happens beyond that -

> > bracing or what have you - beyond two years old. Again, it's

very

> > much up in the air and we won't know each step until we come to

it,

> > really, but we know we'll be going up to Chicago, on average,

once a

> > month.

> >

> > Luckily for us it's just a four hour drive, so one overnight for

> > check-ups and a couple overnights for castings. However, I know

> there

> > are several agencies that help with flights for medical

> appointments -

> > Angel Flights, Miracle Flights, and a program through Northwest,

I

> > believe. www.infantilescoliosis.org has some info there.

Another

> > option, with repeat trips, may be Birmingham for you - but

flight

> time

> > and drive time may be the same between Chicago and Birmingham,

and I

> > think you metioned having family in Chicago.

> >

> > This is Dr. Sturm's contact info, from the scoliosis.org forums

> (where

> > I found it initially).

> > F. Sturm, MD

> >

> > Shriner's Hospital

> >

> >

> >

> > 2211 N. Oak Park Ave

> >

> > Chicago IL 60707-3392

> >

> > Adolescent, Juvenile/Infantile

> >

> > http://www.shrinershq.org/Hospitals/Chicago/

> >

> >

> > As the others explained, there is a difference between the

> positioning

> > and the manipulation, from what I understand. The Mehta method

> > involves correcting the rotation of the spine and the curve of

the

> > spine, as well as allows for lung expansion and correction of the

> > hollowing from the rib movement. These are key because Jack was

> > braced in a rigid under the arm brace made from a plaster mold

and

> it

> > caused his ribs to be compressed and deformed. This is likely

what

> a

> > Risser cast would have done as well. Another important note to

make

> > is that Miss (dr) Mehta devoted her entire orthopaedic career to

> > nonsurgical methods of treatment with early intervention. She

knows

> > her stuff. It was a blessing to meet her in Chicago and we

are

> > honored that she was able to evaluated and take part in

what

> > we believe will be a cure.

> >

> > I hope that helps a bit

> >

> > Sandi

> >

>

[Guest guest]

,

Shriners in Erie was great in scheduling the casting dates ahead.

This was our only other Shriner's experience.

But I strongly urge you to voice your concern to Chicago, if you

decide to accept treatment there, that this is a big concern. They

are very understanding. Also to keep following up if you don't hear

back from them in a reasonable time. ASfter the August ETP in

Chicago, their processes may have changed and may be better at

shceduling the OR. We'll find out next friday.Please don't let the

scheduling discourage you from getting the quality care your baby

deserves.

It is great to have family in the chicago area. My sister and her

family are 45 minutes away from the hospital. It nice for them to

see Max grow monthly.

Keep us posted as things develop.

Best wishes,

Aekta

> > >

> > > ,

> > > We are under treatment in Chicago as well, and we live in

> Southern

> > > Illinois. We had his first cast applied in early August and

will

> > > return in two weeks for a follow-up check. This appointment

> should

> > be

> > > a fairly quick one - just to check on his progress. His cast

> will

> > be

> > > removed then a new one will be applied the following day some

> time

> > in

> > > November. Dr. Sturm says 12 weeks is the average, but since

> they do

> > > the casting in the operating room under anesthesia, they have

to

> > > schedule the OR months ahead of time. It fills up so quickly

> (the

> > > schedule). They projected that Jack will need to be casted for

a

> > > year, so we are assuming we'll have another 11 visits (half of

> which

> > > are follow-ups to casting). Plus, whatever happens beyond

that -

> > > bracing or what have you - beyond two years old. Again, it's

> very

> > > much up in the air and we won't know each step until we come

to

> it,

> > > really, but we know we'll be going up to Chicago, on average,

> once a

> > > month.

> > >

> > > Luckily for us it's just a four hour drive, so one overnight

for

> > > check-ups and a couple overnights for castings. However, I

know

> > there

> > > are several agencies that help with flights for medical

> > appointments -

> > > Angel Flights, Miracle Flights, and a program through

Northwest,

> I

> > > believe. www.infantilescolio sis.org has some info there.

> Another

> > > option, with repeat trips, may be Birmingham for you - but

> flight

> > time

> > > and drive time may be the same between Chicago and Birmingham,

> and I

> > > think you metioned having family in Chicago.

> > >

> > > This is Dr. Sturm's contact info, from the scoliosis.org

forums

> > (where

> > > I found it initially).

> > > F. Sturm, MD

> > >

> > > Shriner's Hospital

> > >

> > >

> > >

> > > 2211 N. Oak Park Ave

> > >

> > > Chicago IL 60707-3392

> > >

> > > Adolescent, Juvenile/Infantile

> > >

> > > http://www.shriners hq.org/Hospitals /Chicago/

> > >

> > >

> > > As the others explained, there is a difference between the

> > positioning

> > > and the manipulation, from what I understand. The Mehta method

> > > involves correcting the rotation of the spine and the curve of

> the

> > > spine, as well as allows for lung expansion and correction of

the

> > > hollowing from the rib movement. These are key because Jack was

> > > braced in a rigid under the arm brace made from a plaster mold

> and

> > it

> > > caused his ribs to be compressed and deformed. This is likely

> what

> > a

> > > Risser cast would have done as well. Another important note to

> make

> > > is that Miss (dr) Mehta devoted her entire orthopaedic career

to

> > > nonsurgical methods of treatment with early intervention. She

> knows

> > > her stuff. It was a blessing to meet her in Chicago and we

> are

> > > honored that she was able to evaluated and take part

in

> what

> > > we believe will be a cure.

> > >

> > > I hope that helps a bit

> > >

> > > Sandi

> > >

> >

>

>

>

>

>

>

>

_____________________________________________________________________

_______________

> Looking for a deal? Find great prices on flights and hotels with

Yahoo! FareChase.

> http://farechase.yahoo.com/

>

>

[Guest guest]

,

Shriners in Erie was great in scheduling the casting dates ahead.

This was our only other Shriner's experience.

But I strongly urge you to voice your concern to Chicago, if you

decide to accept treatment there, that this is a big concern. They

are very understanding. Also to keep following up if you don't hear

back from them in a reasonable time. ASfter the August ETP in

Chicago, their processes may have changed and may be better at

shceduling the OR. We'll find out next friday.Please don't let the

scheduling discourage you from getting the quality care your baby

deserves.

It is great to have family in the chicago area. My sister and her

family are 45 minutes away from the hospital. It nice for them to

see Max grow monthly.

Keep us posted as things develop.

Best wishes,

Aekta

> > >

> > > ,

> > > We are under treatment in Chicago as well, and we live in

> Southern

> > > Illinois. We had his first cast applied in early August and

will

> > > return in two weeks for a follow-up check. This appointment

> should

> > be

> > > a fairly quick one - just to check on his progress. His cast

> will

> > be

> > > removed then a new one will be applied the following day some

> time

> > in

> > > November. Dr. Sturm says 12 weeks is the average, but since

> they do

> > > the casting in the operating room under anesthesia, they have

to

> > > schedule the OR months ahead of time. It fills up so quickly

> (the

> > > schedule). They projected that Jack will need to be casted for

a

> > > year, so we are assuming we'll have another 11 visits (half of

> which

> > > are follow-ups to casting). Plus, whatever happens beyond

that -

> > > bracing or what have you - beyond two years old. Again, it's

> very

> > > much up in the air and we won't know each step until we come

to

> it,

> > > really, but we know we'll be going up to Chicago, on average,

> once a

> > > month.

> > >

> > > Luckily for us it's just a four hour drive, so one overnight

for

> > > check-ups and a couple overnights for castings. However, I

know

> > there

> > > are several agencies that help with flights for medical

> > appointments -

> > > Angel Flights, Miracle Flights, and a program through

Northwest,

> I

> > > believe. www.infantilescolio sis.org has some info there.

> Another

> > > option, with repeat trips, may be Birmingham for you - but

> flight

> > time

> > > and drive time may be the same between Chicago and Birmingham,

> and I

> > > think you metioned having family in Chicago.

> > >

> > > This is Dr. Sturm's contact info, from the scoliosis.org

forums

> > (where

> > > I found it initially).

> > > F. Sturm, MD

> > >

> > > Shriner's Hospital

> > >

> > >

> > >

> > > 2211 N. Oak Park Ave

> > >

> > > Chicago IL 60707-3392

> > >

> > > Adolescent, Juvenile/Infantile

> > >

> > > http://www.shriners hq.org/Hospitals /Chicago/

> > >

> > >

> > > As the others explained, there is a difference between the

> > positioning

> > > and the manipulation, from what I understand. The Mehta method

> > > involves correcting the rotation of the spine and the curve of

> the

> > > spine, as well as allows for lung expansion and correction of

the

> > > hollowing from the rib movement. These are key because Jack was

> > > braced in a rigid under the arm brace made from a plaster mold

> and

> > it

> > > caused his ribs to be compressed and deformed. This is likely

> what

> > a

> > > Risser cast would have done as well. Another important note to

> make

> > > is that Miss (dr) Mehta devoted her entire orthopaedic career

to

> > > nonsurgical methods of treatment with early intervention. She

> knows

> > > her stuff. It was a blessing to meet her in Chicago and we

> are

> > > honored that she was able to evaluated and take part

in

> what

> > > we believe will be a cure.

> > >

> > > I hope that helps a bit

> > >

> > > Sandi

> > >

> >

>

>

>

>

>

>

>

_____________________________________________________________________

_______________

> Looking for a deal? Find great prices on flights and hotels with

Yahoo! FareChase.

> http://farechase.yahoo.com/

>

>

[Guest guest]

,

Shriners in Erie was great in scheduling the casting dates ahead.

This was our only other Shriner's experience.

But I strongly urge you to voice your concern to Chicago, if you

decide to accept treatment there, that this is a big concern. They

are very understanding. Also to keep following up if you don't hear

back from them in a reasonable time. ASfter the August ETP in

Chicago, their processes may have changed and may be better at

shceduling the OR. We'll find out next friday.Please don't let the

scheduling discourage you from getting the quality care your baby

deserves.

It is great to have family in the chicago area. My sister and her

family are 45 minutes away from the hospital. It nice for them to

see Max grow monthly.

Keep us posted as things develop.

Best wishes,

Aekta

> > >

> > > ,

> > > We are under treatment in Chicago as well, and we live in

> Southern

> > > Illinois. We had his first cast applied in early August and

will

> > > return in two weeks for a follow-up check. This appointment

> should

> > be

> > > a fairly quick one - just to check on his progress. His cast

> will

> > be

> > > removed then a new one will be applied the following day some

> time

> > in

> > > November. Dr. Sturm says 12 weeks is the average, but since

> they do

> > > the casting in the operating room under anesthesia, they have

to

> > > schedule the OR months ahead of time. It fills up so quickly

> (the

> > > schedule). They projected that Jack will need to be casted for

a

> > > year, so we are assuming we'll have another 11 visits (half of

> which

> > > are follow-ups to casting). Plus, whatever happens beyond

that -

> > > bracing or what have you - beyond two years old. Again, it's

> very

> > > much up in the air and we won't know each step until we come

to

> it,

> > > really, but we know we'll be going up to Chicago, on average,

> once a

> > > month.

> > >

> > > Luckily for us it's just a four hour drive, so one overnight

for

> > > check-ups and a couple overnights for castings. However, I

know

> > there

> > > are several agencies that help with flights for medical

> > appointments -

> > > Angel Flights, Miracle Flights, and a program through

Northwest,

> I

> > > believe. www.infantilescolio sis.org has some info there.

> Another

> > > option, with repeat trips, may be Birmingham for you - but

> flight

> > time

> > > and drive time may be the same between Chicago and Birmingham,

> and I

> > > think you metioned having family in Chicago.

> > >

> > > This is Dr. Sturm's contact info, from the scoliosis.org

forums

> > (where

> > > I found it initially).

> > > F. Sturm, MD

> > >

> > > Shriner's Hospital

> > >

> > >

> > >

> > > 2211 N. Oak Park Ave

> > >

> > > Chicago IL 60707-3392

> > >

> > > Adolescent, Juvenile/Infantile

> > >

> > > http://www.shriners hq.org/Hospitals /Chicago/

> > >

> > >

> > > As the others explained, there is a difference between the

> > positioning

> > > and the manipulation, from what I understand. The Mehta method

> > > involves correcting the rotation of the spine and the curve of

> the

> > > spine, as well as allows for lung expansion and correction of

the

> > > hollowing from the rib movement. These are key because Jack was

> > > braced in a rigid under the arm brace made from a plaster mold

> and

> > it

> > > caused his ribs to be compressed and deformed. This is likely

> what

> > a

> > > Risser cast would have done as well. Another important note to

> make

> > > is that Miss (dr) Mehta devoted her entire orthopaedic career

to

> > > nonsurgical methods of treatment with early intervention. She

> knows

> > > her stuff. It was a blessing to meet her in Chicago and we

> are

> > > honored that she was able to evaluated and take part

in

> what

> > > we believe will be a cure.

> > >

> > > I hope that helps a bit

> > >

> > > Sandi

> > >

> >

>

>

>

>

>

>

>

_____________________________________________________________________

_______________

> Looking for a deal? Find great prices on flights and hotels with

Yahoo! FareChase.

> http://farechase.yahoo.com/

>

>

[Guest guest]

Hi sandi,

Thank you for your kind words. It means so much. I am so eager to

hear about Jack's follow-up. I think you said it is 9/26. Will you

travel with the girls again or just do a round trip since the

apopintment is so short? It's a lot of driving and gas money, but

they're worth a miilion times more!

Aekta

>

> I would talk to and Dr. Sturm about it. I'm sure they can

> accomodate an out of state-er, who would need more notice for

> appointments. They're all SUPER nice and down to earth up

there.

> (versus our local Shriner's, who - well - that's another story)

>

> Aekta, much love to you, sweetie. I echo that sentiment over and

over

> again. I cringe to think of how not open to casting I was in the

> beginning. I wanted to run in the night and not even go back to

his

> appointment the next day, but I am SO glad we did it. The

> appointments (especially the travel) are a financial burden, of

> course, but what is the alternative? Our boys (and girls out

there)

> deserve it and I'd do anything to make it happen.

>

> Sandi

>

[Guest guest]

Hi sandi,

Thank you for your kind words. It means so much. I am so eager to

hear about Jack's follow-up. I think you said it is 9/26. Will you

travel with the girls again or just do a round trip since the

apopintment is so short? It's a lot of driving and gas money, but

they're worth a miilion times more!

Aekta

>

> I would talk to and Dr. Sturm about it. I'm sure they can

> accomodate an out of state-er, who would need more notice for

> appointments. They're all SUPER nice and down to earth up

there.

> (versus our local Shriner's, who - well - that's another story)

>

> Aekta, much love to you, sweetie. I echo that sentiment over and

over

> again. I cringe to think of how not open to casting I was in the

> beginning. I wanted to run in the night and not even go back to

his

> appointment the next day, but I am SO glad we did it. The

> appointments (especially the travel) are a financial burden, of

> course, but what is the alternative? Our boys (and girls out

there)

> deserve it and I'd do anything to make it happen.

>

> Sandi

>

[Guest guest]

Hi sandi,

Thank you for your kind words. It means so much. I am so eager to

hear about Jack's follow-up. I think you said it is 9/26. Will you

travel with the girls again or just do a round trip since the

apopintment is so short? It's a lot of driving and gas money, but

they're worth a miilion times more!

Aekta

>

> I would talk to and Dr. Sturm about it. I'm sure they can

> accomodate an out of state-er, who would need more notice for

> appointments. They're all SUPER nice and down to earth up

there.

> (versus our local Shriner's, who - well - that's another story)

>

> Aekta, much love to you, sweetie. I echo that sentiment over and

over

> again. I cringe to think of how not open to casting I was in the

> beginning. I wanted to run in the night and not even go back to

his

> appointment the next day, but I am SO glad we did it. The

> appointments (especially the travel) are a financial burden, of

> course, but what is the alternative? Our boys (and girls out

there)

> deserve it and I'd do anything to make it happen.

>

> Sandi

>

[Guest guest]

It is very important for siblings to be part of the treatment as

much as possible. It may be just as comforting to them as itis to

Jack to have familiar surroundings. I'm sure they are a great help

with the car ride.

That is great about the hotel you've earned it.

Aekta

>

> >

> > Thank you for your kind words. It means so much. I am so eager

to

> > hear about Jack's follow-up. I think you said it is 9/26. Will

you

> > travel with the girls again or just do a round trip since the

> > apopintment is so short? It's a lot of driving and gas money,

but

> > they're worth a miilion times more!

>

[Guest guest]

It is very important for siblings to be part of the treatment as

much as possible. It may be just as comforting to them as itis to

Jack to have familiar surroundings. I'm sure they are a great help

with the car ride.

That is great about the hotel you've earned it.

Aekta

>

> >

> > Thank you for your kind words. It means so much. I am so eager

to

> > hear about Jack's follow-up. I think you said it is 9/26. Will

you

> > travel with the girls again or just do a round trip since the

> > apopintment is so short? It's a lot of driving and gas money,

but

> > they're worth a miilion times more!

>

[Guest guest]

It is very important for siblings to be part of the treatment as

much as possible. It may be just as comforting to them as itis to

Jack to have familiar surroundings. I'm sure they are a great help

with the car ride.

That is great about the hotel you've earned it.

Aekta

>

> >

> > Thank you for your kind words. It means so much. I am so eager

to

> > hear about Jack's follow-up. I think you said it is 9/26. Will

you

> > travel with the girls again or just do a round trip since the

> > apopintment is so short? It's a lot of driving and gas money,

but

> > they're worth a miilion times more!

>

[Guest guest]

--sorry brenda, i was out of town. no, i do not believe that he does

the casting. we had an appt. with him before i found out about this

website and got into chicago. i just have heard a lot of great

things about him. let us know what your doing. reagan and josie

- In infantile_scoliosis , Dolley

wrote:

>

> Does Dr. Nustavt do casting? I am calling up to Chicago to see if

we can be seen, but if we can't get up there right away, I might give

this Dr. Nustavt a try.

>

> Thanks,

>

>

> Re: [infantile_scoliosi s] New Diagnosis and Lots of

> Questions

> >

> > Hi, .

> > Can I ask what state you live in?

> >

> > Dylan's RVAD is low enough that it may correct on its own, but I

> would

> > want him evaluated by a casting doctor, myself. My son has a far

> more

> > severe curve, but some progress so quickly that you may be losing

> > precious time for casting correction.

> >

> > Jack was prescribed a brace and was supposed to wear it 16 hours

a

> day

> > by his first orthopaedic evaluation. (It was a brace made from a

> > plaster mold of him.) The second we saw said he NEVER braces

before

> > two because the bones have not calcified and it causes more rib

> > deformity (meaning it doesn't stabilize the spine because the

bones

> > are still soft - so it just presses the ribs down further, making

> the

> > rib angle even worse). This was confirmed by a second x-ray and

now

> > Jack's RVAD is 45*.

> >

> > The third doctor was a casting doctor and Miss (Dr.) Mehta - they

> > confirmed no brace and a cast. It's crucial that if Dylan needs

to

> be

> > casted that he be first evaluated by a doctor trained by Miss

Mehta

> > (she developed this procedure and has trained maybe six hospitals

to

> > do the proper procedure) and on the proper equipment.

> >

> > If you let us know where you are, we can help you get in touch

with

> > the physician nearest you. It may just be a wait and see approach

> > with a curve that small, but since it has progressed so rapidly,

you

> > may be better off just having it taken care of while he's still

> > growing quickly.

> >

> > Welcome to the group

> > Sandi & Jack (13m, 70* right thoracic with a 45* RVAD at

diagnosis,

> > 38* in his first cast)

> >

> >

> >

> >

> >

> ____________ _________ _________ _________ _________ _________ _

> ____________ __

> > Park yourself in front of a world of choices in alternative

> vehicles. Visit the Yahoo! Auto Green Center.

> > http://autos. yahoo.com/ green_center/

> >

> >

[Guest guest]

,

That is great! Please keep us posted on how everything goes.

Aekta

> > >

> > > We live in Florida. We are currently scheduled to see Dr.

Price

> > in Orlando in October and yesterday morning I sent off an

> > > application to Shriners in Tampa, FL.

> > >

> > >

> > >

> > > Re: [infantile_scoliosi s] New Diagnosis and Lots of

> > Questions

> > >

> > > Hi, .

> > > Can I ask what state you live in?

> > >

> > > Dylan's RVAD is low enough that it may correct on its own, but

I

> > would

> > > want him evaluated by a casting doctor, myself. My son has a

far

> > more

> > > severe curve, but some progress so quickly that you may be

losing

> > > precious time for casting correction.

> > >

> > > Jack was prescribed a brace and was supposed to wear it 16

hours

> a

> > day

> > > by his first orthopaedic evaluation. (It was a brace made from

a

> > > plaster mold of him.) The second we saw said he NEVER braces

> before

> > > two because the bones have not calcified and it causes more rib

> > > deformity (meaning it doesn't stabilize the spine because the

> bones

> > > are still soft - so it just presses the ribs down further,

making

> > the

> > > rib angle even worse). This was confirmed by a second x-ray

and

> now

> > > Jack's RVAD is 45*.

> > >

> > > The third doctor was a casting doctor and Miss (Dr.) Mehta -

they

> > > confirmed no brace and a cast. It's crucial that if Dylan

needs

> to

> > be

> > > casted that he be first evaluated by a doctor trained by Miss

> Mehta

> > > (she developed this procedure and has trained maybe six

hospitals

> to

> > > do the proper procedure) and on the proper equipment.

> > >

> > > If you let us know where you are, we can help you get in touch

> with

> > > the physician nearest you. It may just be a wait and see

approach

> > > with a curve that small, but since it has progressed so

rapidly,

> you

> > > may be better off just having it taken care of while he's still

> > > growing quickly.

> > >

> > > Welcome to the group

> > > Sandi & Jack (13m, 70* right thoracic with a 45* RVAD at

> diagnosis,

> > > 38* in his first cast)

> > >

> > >

> > >

> > >

> > >

> > ____________ _________ _________ _________ _________ _________ _

> > ____________ __

> > > Park yourself in front of a world of choices in alternative

> > vehicles. Visit the Yahoo! Auto Green Center.

> > > http://autos. yahoo.com/ green_center/

> > >

> > >

[Guest guest]

,

That is great! Please keep us posted on how everything goes.

Aekta

> > >

> > > We live in Florida. We are currently scheduled to see Dr.

Price

> > in Orlando in October and yesterday morning I sent off an

> > > application to Shriners in Tampa, FL.

> > >

> > >

> > >

> > > Re: [infantile_scoliosi s] New Diagnosis and Lots of

> > Questions

> > >

> > > Hi, .

> > > Can I ask what state you live in?

> > >

> > > Dylan's RVAD is low enough that it may correct on its own, but

I

> > would

> > > want him evaluated by a casting doctor, myself. My son has a

far

> > more

> > > severe curve, but some progress so quickly that you may be

losing

> > > precious time for casting correction.

> > >

> > > Jack was prescribed a brace and was supposed to wear it 16

hours

> a

> > day

> > > by his first orthopaedic evaluation. (It was a brace made from

a

> > > plaster mold of him.) The second we saw said he NEVER braces

> before

> > > two because the bones have not calcified and it causes more rib

> > > deformity (meaning it doesn't stabilize the spine because the

> bones

> > > are still soft - so it just presses the ribs down further,

making

> > the

> > > rib angle even worse). This was confirmed by a second x-ray

and

> now

> > > Jack's RVAD is 45*.

> > >

> > > The third doctor was a casting doctor and Miss (Dr.) Mehta -

they

> > > confirmed no brace and a cast. It's crucial that if Dylan

needs

> to

> > be

> > > casted that he be first evaluated by a doctor trained by Miss

> Mehta

> > > (she developed this procedure and has trained maybe six

hospitals

> to

> > > do the proper procedure) and on the proper equipment.

> > >

> > > If you let us know where you are, we can help you get in touch

> with

> > > the physician nearest you. It may just be a wait and see

approach

> > > with a curve that small, but since it has progressed so

rapidly,

> you

> > > may be better off just having it taken care of while he's still

> > > growing quickly.

> > >

> > > Welcome to the group

> > > Sandi & Jack (13m, 70* right thoracic with a 45* RVAD at

> diagnosis,

> > > 38* in his first cast)

> > >

> > >

> > >

> > >

> > >

> > ____________ _________ _________ _________ _________ _________ _

> > ____________ __

> > > Park yourself in front of a world of choices in alternative

> > vehicles. Visit the Yahoo! Auto Green Center.

> > > http://autos. yahoo.com/ green_center/

> > >

> > >