Re: support for spuses

[Guest guest]

darling, I've been wondering where you've been! I'm sorry Phil

is having so much trouble and yes, I hope they do " sort " him out so YOU

can get some rest. But just so you know I also worry about you and the

kids, and I'm sure I'm not alone. My email is up on top honey, use it

whenever you want. Good luck with the doctors and Phil.

take care and be well.

Ellen

[Guest guest]

, I would think your suffering is every bit as real as as the suffering

of someone with Stills. You're not only coping with doing work you wouldn't

have to if you had a partner who was operating at full strength, but you're

also probably putting up with his understandably cranky moments as well. And

on top of all that, you are probably worried to death about him! I'd think

it would be tiring and very stressful. So stop with the guilt, and take care

of you too!

Let us know what the docs said about his breathing issues... Tom (Uncle

Fuzzy) just was diagnosed with sleep apnea (do I have that right, Tom?) and

might be good to talk to, if that's what it is.

[Guest guest]

Hi ,

I'm Jo. I'm new to the group ( a few months now). But I've been wishing

for a spouses group that my husband could visit. (being a guy, not sure if

he'd actually GO to the site, LOL) but I know that there are things that the

non-sick spouses could share and might actually only share in a private setting

because of the delicate nature of the feelings involved.

we get so much support here as the sick people, but I think my hubby would

curb what he has to say if he knew I'd be reading it.... you know, so as not

to hurt my feelings.

just my thoughts,

Jo

In a message dated 11/6/2008 7:12:21 A.M. Eastern Standard Time,

steelewendy@... writes:

Hi Everyone

Its from the UK. My husband Phil suffers with AOSD and I guess I am a

little selfish because I often think " why cant I have some help & support "

the only support I have had is from my parents. The guys on the site are great

and do answer any questions I have but I feel so guilty moaning about my

situation when everyone is suffering.

So if anyone does decide a site for spouses is a good idea then I for one

would be hugely grateful.

Especially at the moment because Phils breathing is really bad and when

sleeping I often have to poke him because he stops breathing. Fortunately he

at

Speciallist tomorrow so fingers crossed that they sort it out.

Hi to everyone and I truly hope today is a good day

Lots of love UK

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[Guest guest]

Hi ,

I'm Jo. I'm new to the group ( a few months now). But I've been wishing

for a spouses group that my husband could visit. (being a guy, not sure if

he'd actually GO to the site, LOL) but I know that there are things that the

non-sick spouses could share and might actually only share in a private setting

because of the delicate nature of the feelings involved.

we get so much support here as the sick people, but I think my hubby would

curb what he has to say if he knew I'd be reading it.... you know, so as not

to hurt my feelings.

just my thoughts,

Jo

In a message dated 11/6/2008 7:12:21 A.M. Eastern Standard Time,

steelewendy@... writes:

Hi Everyone

Its from the UK. My husband Phil suffers with AOSD and I guess I am a

little selfish because I often think " why cant I have some help & support "

the only support I have had is from my parents. The guys on the site are great

and do answer any questions I have but I feel so guilty moaning about my

situation when everyone is suffering.

So if anyone does decide a site for spouses is a good idea then I for one

would be hugely grateful.

Especially at the moment because Phils breathing is really bad and when

sleeping I often have to poke him because he stops breathing. Fortunately he

at

Speciallist tomorrow so fingers crossed that they sort it out.

Hi to everyone and I truly hope today is a good day

Lots of love UK

[Non-text portions of this message have been removed]

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Holiday needs. Search Now.

(http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://\

searchblog.aol.com/2008/11/04/happy-holidays-from

-aol-search/?ncid=emlcntussear00000001)

[Guest guest]

Hi ,

I'm Jo. I'm new to the group ( a few months now). But I've been wishing

for a spouses group that my husband could visit. (being a guy, not sure if

he'd actually GO to the site, LOL) but I know that there are things that the

non-sick spouses could share and might actually only share in a private setting

because of the delicate nature of the feelings involved.

we get so much support here as the sick people, but I think my hubby would

curb what he has to say if he knew I'd be reading it.... you know, so as not

to hurt my feelings.

just my thoughts,

Jo

In a message dated 11/6/2008 7:12:21 A.M. Eastern Standard Time,

steelewendy@... writes:

Hi Everyone

Its from the UK. My husband Phil suffers with AOSD and I guess I am a

little selfish because I often think " why cant I have some help & support "

the only support I have had is from my parents. The guys on the site are great

and do answer any questions I have but I feel so guilty moaning about my

situation when everyone is suffering.

So if anyone does decide a site for spouses is a good idea then I for one

would be hugely grateful.

Especially at the moment because Phils breathing is really bad and when

sleeping I often have to poke him because he stops breathing. Fortunately he

at

Speciallist tomorrow so fingers crossed that they sort it out.

Hi to everyone and I truly hope today is a good day

Lots of love UK

[Non-text portions of this message have been removed]

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[Guest guest]

and Jo and the rest

 I would have to agree again with Jo. now this is getting out of control as I

can not agree with a woman that much it puts my standing as a male chauvinist

pig in jeopardy big time so Jo stop it now! LOL any hoot I know comes

here now and then but i have had the same thoughts. dose she post as she would

want to ( most likely dose as she is an out spoken person ) and what shook me is

I found I also did not always because of here coming here funny how that works

but i am over that now and like her I am a bit out spoken . but not many are

like us so knowing that I think it may be a very good idea

 hugs all

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 To learn about Stills Disease  http://www.stillsdisease.org/stills_info

For conservitive minded people  http://www.americac2c.org " If  we ever forget

that we're one nation under God, then we will be a nation gone  under. " ~

Reagan

 

 In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

 

A nation can survive its fools and even the ambitious. But it cannot survive

treason from within.~Cicero

                                                   

" The  most terrifying words in the English language are: I'm from the

government  and I'm here to help. "    ~  Reagan 

[Guest guest]

!

I know that was an old post about spouses. I have not been reading much. I

am sending you a hug cause having an illness since 1972( I have been mostly

lucky) I know how it effects everyone. I hope they find out about his

breathing. Maybe it is sleep apnea , my hubby has that.

I hope today is a good one for you, my ancestors are from UK and Irleand. My

dads family lived there for generations. so say hi to the UK for me.

Your friend

Liz

NJ

Near Philadelphia

formerly NYC er..( 37 years..miss it )

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[Guest guest]

!

I know that was an old post about spouses. I have not been reading much. I

am sending you a hug cause having an illness since 1972( I have been mostly

lucky) I know how it effects everyone. I hope they find out about his

breathing. Maybe it is sleep apnea , my hubby has that.

I hope today is a good one for you, my ancestors are from UK and Irleand. My

dads family lived there for generations. so say hi to the UK for me.

Your friend

Liz

NJ

Near Philadelphia

formerly NYC er..( 37 years..miss it )

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002)

[Guest guest]

!

I know that was an old post about spouses. I have not been reading much. I

am sending you a hug cause having an illness since 1972( I have been mostly

lucky) I know how it effects everyone. I hope they find out about his

breathing. Maybe it is sleep apnea , my hubby has that.

I hope today is a good one for you, my ancestors are from UK and Irleand. My

dads family lived there for generations. so say hi to the UK for me.

Your friend

Liz

NJ

Near Philadelphia

formerly NYC er..( 37 years..miss it )

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002)