Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Hi We are going to get my son tested for coeliacs, I have got an appointment to start the process this week. has been gluten free for 9 years from age 3. He is now 12 and would love to be able to eat ‘normal’ food like birthday cakes, pizza etc. He did previously had the blood test and it came back positive for coeliacs, but as he had already been gluten free for over a year at this stage, I am now considering if this result could have been a true positive. We understand that we will have to introduce gluten for a free weeks and has agreed to tell us if he feels at all poorly. I guess it depends on your situation and the age of the child. Being gluten free has become more of an issue for as he became older and if he could start to eat a ‘normal’ diet, he would be delighted (especially as we are going to Italy on holiday next year)! I think it is an issue you could revisit when your twins are older. Tina From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Sibusisiwe Jensen Sent: 24 October 2010 10:02 To: Autism-Biomedical-Europe Subject: Gluten Dilemma Hi, My four year old autistic twins had an appointment with a Gastroentorologist yesterday. He wants to test them for Coeliac disease, which involves giving them gluten. They started regressing last year and then I came across information about Gluten and Autism on the internet. Just after 3 days of taking them off the Gluten we noticed dramatic changes; they are now talking, they have eye contact, less stimming etc and are in mainstream education. The thought of putting them back on the gluten for 6 weeks just goes against my every motherly instinct!!! I know it is important to find out whether or not they have Coeliac's, but from my understanding of the condition, the way to control it is by excluding gluten from one's diet (and we are doing that already). The Gastro refused to do allergy tests and says he will only do them as a 'whole package' with the Coeliac's test. I would really appreciate some thoughts especially from anyone living with Coeliac's or anyone else with some ideas/information. I am so terrified of my babies regressing again and losing all these amazing gains they have made the last 12 months. Quote Link to comment Share on other sites More sharing options...
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