Guest guest Posted January 29, 2002 Report Share Posted January 29, 2002 Hi and welcome! I'm not sure about others here, but basically the first things I did was read/research! And about 4 months later found this GREAT group! It is a shock if the OCD is something that seemed to come along sort of suddenly. That's the way I felt with my then 11-y/o son; he's 13 now. But then I thought about it and he actually had some minor OCD behaviors all long, they just weren't a problem (like wanting his letters to look perfect, erasing and rewriting them, tracing over them, wanting some things a certain way, the reassurance questions - nothing that really affected the whole family, like it does NOW). Hopefully you'll be able to find a therapist that's knowledgeable about OCD and treatment nearby. Have you checked out the OCD foundation website, lots of info there too. This is a great group, as I've already said and the moderators and other parents are very knowledgeable and experienced about the treatments and medications for OCD. This is a great place to learn and to VENT when needed and to just tell about how things are going, ask questions, etc. If there's a certain subject, say, " zoloft " that you want to know about, you can search the archives and see what that pulls up from past messages. I've used that a lot. What kind of OCD behaviors does your daughter have? My son is now 13 and in 7th grade. He began showing extreme OCD behaviors at the beginning of 6th grade. And his has always been things he has to do (or can't do) because it " has to feel right " and " to keep something bad from happening. " Also, weird to me, his handwriting complete changed. Still puzzles me! Well, again welcome to this wonderful group and hope to hear lots more from you! - single mom to (13) with OCD and dysgraphia; (13-twin) with a little separation anxiety; Randall (16) - > Just as the Re: line says. My daughter was diagnosed last week, and > we're still a little in shock. I am reading " Obsessive Compulsive > Disorder, Help for Children and Adolesents " to try to get a better > grasp on this. I imagine I'll do alot more reading too. > > Anything any of you might have done differently if you could go back > to where I am now? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2002 Report Share Posted January 29, 2002 Thanks My daughter is only five. She had some symptoms as early as 1 though, and we used to joke about my " little obsessive compulsive girl " . At the time, I just thought it was her personality, but the results of the testing show " severe " OCD with moderate to severe ADHD. I agree with the OCD, but the ADHD seems a little far fetched in this case. My daughter had a bout last fall where she kept repeating physical actions, such as walking though doorwys repeatedly, tapping special spots, rituals, etc. She also had some trouble completing work, and often erased here colouring though the paper (She's only in kindergarden!). Oh well, my approach now is that there are alot worse things that could happen to a person. If this is the worst, I'll count myself (and herself) lucky. > > Just as the Re: line says. My daughter was diagnosed last week, and > > we're still a little in shock. I am reading " Obsessive Compulsive > > Disorder, Help for Children and Adolesents " to try to get a better > > grasp on this. I imagine I'll do alot more reading too. > > > > Anything any of you might have done differently if you could go > back > > to where I am now? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi there, and welcome! The good news is that having a diagnosis now is the best thing that could happen to your daughter. We didn't have the correct diagnosis for 3 years after my daughter got sick (at age 4) and it was awful. Once we got the diagnosis, therapy (cognitive behavioral therapy with a therapist trained and experienced in anxiety disorders) and medication (first Paxil, then Luvox, now Celexa which seems to be a miracle), our Annie is a relatively normal kid. Her ADD (not really diagnosed until last year, and still unclear whether it is ADD or just the reaction she has to the SSRIs) is her biggest issue now, but we're making progress on that too. You're at the hardest point, but have hope. Your daughter will be much, much better before long. Best wishes, , in Nevada, mom to Annie (9 with OCD) and Ben (6, currently with croup and on his way to the doctor in 2 minutes!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Hi there, and welcome! The good news is that having a diagnosis now is the best thing that could happen to your daughter. We didn't have the correct diagnosis for 3 years after my daughter got sick (at age 4) and it was awful. Once we got the diagnosis, therapy (cognitive behavioral therapy with a therapist trained and experienced in anxiety disorders) and medication (first Paxil, then Luvox, now Celexa which seems to be a miracle), our Annie is a relatively normal kid. Her ADD (not really diagnosed until last year, and still unclear whether it is ADD or just the reaction she has to the SSRIs) is her biggest issue now, but we're making progress on that too. You're at the hardest point, but have hope. Your daughter will be much, much better before long. Best wishes, , in Nevada, mom to Annie (9 with OCD) and Ben (6, currently with croup and on his way to the doctor in 2 minutes!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Welcome tiredlazydog!! I'm not surprised your in shock! Being informed that your child has a chronic illness is quite distressing!! You do sound very capable, especially since you are already educating yourself and have found this list! My advice is to find a Cognitive Behavioural Therapist that specilizes in OCD and uses the Exposure and Response Prevention method of treatment(ERP) ASAP! According to the Expert Consensus Guidelines only CBT with ERP will treat and reduce the symptoms of OCD. Talk therapy does not work! Play therapy can be incorporated for younger children - as a tool in identifying and treating the anxiety provoking stimuli. Medication may be necessary, and generally with children recommended when ERP is not successful, or has not begun and the symptoms have become severe. Medication is also suggested when there are other factors, such as depression. Meications for OCD are generally anti-depressants, but at a higher dose level. The size of the child is not a factor and under prescribing is a common mistake. I suggest that you look into the FILES section on the OCDANDPARENTING web site. There are several excellent articles on treatment, medication, etc. http://groups.yahoo.com/group// Another excellent resource is the Obsessive-Compulsive Foundation www.ocfoundation.org Finding a support group for yourself will also help. If you tell us a bit about yourself, where you live, what services you know of, I'm sure there are others here who can offer advice. Take care, wendy, in (ottawa) Canada wrote: Just as the Re: line says. My daughter was diagnosed last week, and we're still a little in shock. I am reading " Obsessive Compulsive Disorder, Help for Children and Adolesents " to try to get a better grasp on this. I imagine I'll do alot more reading too. Anything any of you might have done differently if you could go back to where I am now? ______________________________________________________________________ Web-hosting solutions for home and business! http://website.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Welcome tiredlazydog!! I'm not surprised your in shock! Being informed that your child has a chronic illness is quite distressing!! You do sound very capable, especially since you are already educating yourself and have found this list! My advice is to find a Cognitive Behavioural Therapist that specilizes in OCD and uses the Exposure and Response Prevention method of treatment(ERP) ASAP! According to the Expert Consensus Guidelines only CBT with ERP will treat and reduce the symptoms of OCD. Talk therapy does not work! Play therapy can be incorporated for younger children - as a tool in identifying and treating the anxiety provoking stimuli. Medication may be necessary, and generally with children recommended when ERP is not successful, or has not begun and the symptoms have become severe. Medication is also suggested when there are other factors, such as depression. Meications for OCD are generally anti-depressants, but at a higher dose level. The size of the child is not a factor and under prescribing is a common mistake. I suggest that you look into the FILES section on the OCDANDPARENTING web site. There are several excellent articles on treatment, medication, etc. http://groups.yahoo.com/group// Another excellent resource is the Obsessive-Compulsive Foundation www.ocfoundation.org Finding a support group for yourself will also help. If you tell us a bit about yourself, where you live, what services you know of, I'm sure there are others here who can offer advice. Take care, wendy, in (ottawa) Canada wrote: Just as the Re: line says. My daughter was diagnosed last week, and we're still a little in shock. I am reading " Obsessive Compulsive Disorder, Help for Children and Adolesents " to try to get a better grasp on this. I imagine I'll do alot more reading too. Anything any of you might have done differently if you could go back to where I am now? ______________________________________________________________________ Web-hosting solutions for home and business! http://website.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Welcome tiredlazydog!! I'm not surprised your in shock! Being informed that your child has a chronic illness is quite distressing!! You do sound very capable, especially since you are already educating yourself and have found this list! My advice is to find a Cognitive Behavioural Therapist that specilizes in OCD and uses the Exposure and Response Prevention method of treatment(ERP) ASAP! According to the Expert Consensus Guidelines only CBT with ERP will treat and reduce the symptoms of OCD. Talk therapy does not work! Play therapy can be incorporated for younger children - as a tool in identifying and treating the anxiety provoking stimuli. Medication may be necessary, and generally with children recommended when ERP is not successful, or has not begun and the symptoms have become severe. Medication is also suggested when there are other factors, such as depression. Meications for OCD are generally anti-depressants, but at a higher dose level. The size of the child is not a factor and under prescribing is a common mistake. I suggest that you look into the FILES section on the OCDANDPARENTING web site. There are several excellent articles on treatment, medication, etc. http://groups.yahoo.com/group// Another excellent resource is the Obsessive-Compulsive Foundation www.ocfoundation.org Finding a support group for yourself will also help. If you tell us a bit about yourself, where you live, what services you know of, I'm sure there are others here who can offer advice. Take care, wendy, in (ottawa) Canada wrote: Just as the Re: line says. My daughter was diagnosed last week, and we're still a little in shock. I am reading " Obsessive Compulsive Disorder, Help for Children and Adolesents " to try to get a better grasp on this. I imagine I'll do alot more reading too. Anything any of you might have done differently if you could go back to where I am now? ______________________________________________________________________ Web-hosting solutions for home and business! http://website.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 CBT with ERP. Is it known to be succesful with really young kids? My girl doesn't seem to have well established consequences yet, she seems to do things only because she has to, not because of something that will happen. > Just as the Re: line says. My daughter was diagnosed last week, and > we're still a little in shock. I am reading " Obsessive Compulsive > Disorder, Help for Children and Adolesents " to try to get a better > grasp on this. I imagine I'll do alot more reading too. > Anything any of you might have done differently if you could go back > to where I am now? > > > ______________________________________________________________________ > Web-hosting solutions for home and business! http://website.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 CBT with ERP. Is it known to be succesful with really young kids? My girl doesn't seem to have well established consequences yet, she seems to do things only because she has to, not because of something that will happen. > Just as the Re: line says. My daughter was diagnosed last week, and > we're still a little in shock. I am reading " Obsessive Compulsive > Disorder, Help for Children and Adolesents " to try to get a better > grasp on this. I imagine I'll do alot more reading too. > Anything any of you might have done differently if you could go back > to where I am now? > > > ______________________________________________________________________ > Web-hosting solutions for home and business! http://website.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Dear tiredlazydog, To answer your question: > Anything any of you might have done differently if > you could go back > to where I am now? In our situation we thought we had a huge behavior problem on our hands. By the time we were having an 'aha' moment our son hated us and did not trust us. It has made everything more difficult for his treatment. Finding the right treatment is cruicial. Welcome to the group! Vivian __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.