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Re: just diagnosed - 5 yrs old girl - any advice

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Hi and welcome! I'm not sure about others here, but basically the

first things I did was read/research! And about 4 months later found

this GREAT group!

It is a shock if the OCD is something that seemed to come along sort

of suddenly. That's the way I felt with my then 11-y/o son; he's 13

now. But then I thought about it and he actually had some minor OCD

behaviors all long, they just weren't a problem (like wanting his

letters to look perfect, erasing and rewriting them, tracing over

them, wanting some things a certain way, the reassurance questions -

nothing that really affected the whole family, like it does NOW).

Hopefully you'll be able to find a therapist that's knowledgeable

about OCD and treatment nearby. Have you checked out the OCD

foundation website, lots of info there too.

This is a great group, as I've already said :) and the moderators and

other parents are very knowledgeable and experienced about the

treatments and medications for OCD. This is a great place to learn

and to VENT when needed and to just tell about how things are going,

ask questions, etc. If there's a certain subject, say, " zoloft " that

you want to know about, you can search the archives and see what that

pulls up from past messages. I've used that a lot.

What kind of OCD behaviors does your daughter have? My son

is now 13 and in 7th grade. He began showing extreme OCD behaviors

at the beginning of 6th grade. And his has always been things he has

to do (or can't do) because it " has to feel right " and " to keep

something bad from happening. " Also, weird to me, his handwriting

complete changed. Still puzzles me!

Well, again welcome to this wonderful group and hope to hear lots

more from you!

- single mom to (13) with OCD and dysgraphia; (13-twin)

with a little separation anxiety; Randall (16) -

> Just as the Re: line says. My daughter was diagnosed last week, and

> we're still a little in shock. I am reading " Obsessive Compulsive

> Disorder, Help for Children and Adolesents " to try to get a better

> grasp on this. I imagine I'll do alot more reading too.

>

> Anything any of you might have done differently if you could go

back

> to where I am now?

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Thanks

My daughter is only five. She had some symptoms as early as 1 though,

and we used to joke about my " little obsessive compulsive girl " . At

the time, I just thought it was her personality, but the results of

the testing show " severe " OCD with moderate to severe ADHD. I agree

with the OCD, but the ADHD seems a little far fetched in this case.

My daughter had a bout last fall where she kept repeating physical

actions, such as walking though doorwys repeatedly, tapping special

spots, rituals, etc. She also had some trouble completing work, and

often erased here colouring though the paper (She's only in

kindergarden!).

Oh well, my approach now is that there are alot worse things that

could happen to a person. If this is the worst, I'll count myself

(and herself) lucky.

> > Just as the Re: line says. My daughter was diagnosed last week,

and

> > we're still a little in shock. I am reading " Obsessive Compulsive

> > Disorder, Help for Children and Adolesents " to try to get a better

> > grasp on this. I imagine I'll do alot more reading too.

> >

> > Anything any of you might have done differently if you could go

> back

> > to where I am now?

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Hi there, and welcome!

The good news is that having a diagnosis now is the best thing that

could happen to your daughter. We didn't have the correct diagnosis for 3

years after my daughter got sick (at age 4) and it was awful. Once we got the

diagnosis, therapy (cognitive behavioral therapy with a therapist trained and

experienced in anxiety disorders) and medication (first Paxil, then Luvox,

now Celexa which seems to be a miracle), our Annie is a relatively normal

kid. Her ADD (not really diagnosed until last year, and still unclear whether

it is ADD or just the reaction she has to the SSRIs) is her biggest issue

now, but we're making progress on that too.

You're at the hardest point, but have hope. Your daughter will be

much, much better before long.

Best wishes,

, in Nevada, mom to Annie (9 with OCD) and Ben (6, currently

with croup and on his way to the doctor in 2 minutes!)

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Hi there, and welcome!

The good news is that having a diagnosis now is the best thing that

could happen to your daughter. We didn't have the correct diagnosis for 3

years after my daughter got sick (at age 4) and it was awful. Once we got the

diagnosis, therapy (cognitive behavioral therapy with a therapist trained and

experienced in anxiety disorders) and medication (first Paxil, then Luvox,

now Celexa which seems to be a miracle), our Annie is a relatively normal

kid. Her ADD (not really diagnosed until last year, and still unclear whether

it is ADD or just the reaction she has to the SSRIs) is her biggest issue

now, but we're making progress on that too.

You're at the hardest point, but have hope. Your daughter will be

much, much better before long.

Best wishes,

, in Nevada, mom to Annie (9 with OCD) and Ben (6, currently

with croup and on his way to the doctor in 2 minutes!)

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Welcome tiredlazydog!!

I'm not surprised your in shock! Being informed that your child

has a chronic illness is quite distressing!! You do sound very

capable, especially since you are already educating yourself and have

found this list!

My advice is to find a Cognitive Behavioural Therapist that

specilizes in OCD and uses the Exposure and Response Prevention

method of treatment(ERP) ASAP! According to the Expert Consensus

Guidelines only CBT with ERP will treat and reduce the symptoms of

OCD. Talk therapy does not work! Play therapy can be incorporated

for younger children - as a tool in identifying and treating the

anxiety provoking stimuli. Medication may be necessary, and

generally with children recommended when ERP is not successful, or

has not begun and the symptoms have become severe. Medication is also

suggested when there are other factors, such as depression.

Meications for OCD are generally anti-depressants, but at a higher

dose level. The size of the child is not a factor and under

prescribing is a common mistake.

I suggest that you look into the FILES section on the

OCDANDPARENTING web site. There are several excellent articles on

treatment, medication, etc.

http://groups.yahoo.com/group//

Another excellent resource is the Obsessive-Compulsive Foundation

www.ocfoundation.org

Finding a support group for yourself will also help. If you tell

us a bit about yourself, where you live, what services you know of,

I'm sure there are others here who can offer advice.

Take care, wendy, in (ottawa) Canada

wrote:

Just as the Re: line says. My daughter was diagnosed last week, and

we're still a little in shock. I am reading " Obsessive Compulsive

Disorder, Help for Children and Adolesents " to try to get a better

grasp on this. I imagine I'll do alot more reading too.

Anything any of you might have done differently if you could go back

to where I am now?

______________________________________________________________________

Web-hosting solutions for home and business! http://website.yahoo.ca

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Welcome tiredlazydog!!

I'm not surprised your in shock! Being informed that your child

has a chronic illness is quite distressing!! You do sound very

capable, especially since you are already educating yourself and have

found this list!

My advice is to find a Cognitive Behavioural Therapist that

specilizes in OCD and uses the Exposure and Response Prevention

method of treatment(ERP) ASAP! According to the Expert Consensus

Guidelines only CBT with ERP will treat and reduce the symptoms of

OCD. Talk therapy does not work! Play therapy can be incorporated

for younger children - as a tool in identifying and treating the

anxiety provoking stimuli. Medication may be necessary, and

generally with children recommended when ERP is not successful, or

has not begun and the symptoms have become severe. Medication is also

suggested when there are other factors, such as depression.

Meications for OCD are generally anti-depressants, but at a higher

dose level. The size of the child is not a factor and under

prescribing is a common mistake.

I suggest that you look into the FILES section on the

OCDANDPARENTING web site. There are several excellent articles on

treatment, medication, etc.

http://groups.yahoo.com/group//

Another excellent resource is the Obsessive-Compulsive Foundation

www.ocfoundation.org

Finding a support group for yourself will also help. If you tell

us a bit about yourself, where you live, what services you know of,

I'm sure there are others here who can offer advice.

Take care, wendy, in (ottawa) Canada

wrote:

Just as the Re: line says. My daughter was diagnosed last week, and

we're still a little in shock. I am reading " Obsessive Compulsive

Disorder, Help for Children and Adolesents " to try to get a better

grasp on this. I imagine I'll do alot more reading too.

Anything any of you might have done differently if you could go back

to where I am now?

______________________________________________________________________

Web-hosting solutions for home and business! http://website.yahoo.ca

Link to comment
Share on other sites

Welcome tiredlazydog!!

I'm not surprised your in shock! Being informed that your child

has a chronic illness is quite distressing!! You do sound very

capable, especially since you are already educating yourself and have

found this list!

My advice is to find a Cognitive Behavioural Therapist that

specilizes in OCD and uses the Exposure and Response Prevention

method of treatment(ERP) ASAP! According to the Expert Consensus

Guidelines only CBT with ERP will treat and reduce the symptoms of

OCD. Talk therapy does not work! Play therapy can be incorporated

for younger children - as a tool in identifying and treating the

anxiety provoking stimuli. Medication may be necessary, and

generally with children recommended when ERP is not successful, or

has not begun and the symptoms have become severe. Medication is also

suggested when there are other factors, such as depression.

Meications for OCD are generally anti-depressants, but at a higher

dose level. The size of the child is not a factor and under

prescribing is a common mistake.

I suggest that you look into the FILES section on the

OCDANDPARENTING web site. There are several excellent articles on

treatment, medication, etc.

http://groups.yahoo.com/group//

Another excellent resource is the Obsessive-Compulsive Foundation

www.ocfoundation.org

Finding a support group for yourself will also help. If you tell

us a bit about yourself, where you live, what services you know of,

I'm sure there are others here who can offer advice.

Take care, wendy, in (ottawa) Canada

wrote:

Just as the Re: line says. My daughter was diagnosed last week, and

we're still a little in shock. I am reading " Obsessive Compulsive

Disorder, Help for Children and Adolesents " to try to get a better

grasp on this. I imagine I'll do alot more reading too.

Anything any of you might have done differently if you could go back

to where I am now?

______________________________________________________________________

Web-hosting solutions for home and business! http://website.yahoo.ca

Link to comment
Share on other sites

CBT with ERP. Is it known to be succesful with really young kids?

My girl doesn't seem to have well established consequences yet, she

seems to do things only because she has to, not because of something

that will happen.

> Just as the Re: line says. My daughter was diagnosed last week, and

> we're still a little in shock. I am reading " Obsessive Compulsive

> Disorder, Help for Children and Adolesents " to try to get a better

> grasp on this. I imagine I'll do alot more reading too.

> Anything any of you might have done differently if you could go back

> to where I am now?

>

>

>

______________________________________________________________________

> Web-hosting solutions for home and business! http://website.yahoo.ca

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Share on other sites

CBT with ERP. Is it known to be succesful with really young kids?

My girl doesn't seem to have well established consequences yet, she

seems to do things only because she has to, not because of something

that will happen.

> Just as the Re: line says. My daughter was diagnosed last week, and

> we're still a little in shock. I am reading " Obsessive Compulsive

> Disorder, Help for Children and Adolesents " to try to get a better

> grasp on this. I imagine I'll do alot more reading too.

> Anything any of you might have done differently if you could go back

> to where I am now?

>

>

>

______________________________________________________________________

> Web-hosting solutions for home and business! http://website.yahoo.ca

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Dear tiredlazydog,

To answer your question:

> Anything any of you might have done differently if

> you could go back

> to where I am now?

In our situation we thought we had a huge behavior

problem on our hands. By the time we were having an

'aha' moment our son hated us and did not trust us.

It has made everything more difficult for his

treatment. Finding the right treatment is cruicial.

Welcome to the group!

Vivian

__________________________________________________

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