Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 My little girl Madison (9) was diagnosed with a learning disability by the public school system here in Sonoma County as she entered Kindergarten 5 years ago and we've had an IEP ever since. We'd talked with them about reassessing her as symptoms of Autism became evident but they always stuck by their original assessment. We recently had Maddie assessed by North Bay Regional and they determined her assessment as PDD NOS. Reading the Wikipedia definition of this diagnosis shows it is right on the money regarding my daughter: hypersensitivity to sound, very particular about food (will only eat a few things like pasta, cereal, cheese, milk, grape juice, goldfish crackers, very little vegetables and fruits), extremely irrational fears (of flies and " car noises " when going out into the kitchen alone she covers her ears and we can barely hear traffic from our house). Anyone have any experience or information about this diagnosis? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Sounds a lot like my daughter who is 6 yrs. old. We're in NJ. She is dx'd. with mild-moderate autism, along with an auditory processing disorder and an anxiety disorder. She has very extreme anxiety difficulties with typical items, such as DVD's and tapes which she thinks they ALL have the MGM Lion on them and that scares her. She was at first dx'd with PDD NOS, but it was upgraded due to her language difficulties and not being able to stay on task or answer questions. I want to keep my daughter's autism dx. because more services come with this dx. than with PDD NOS. When she had the PDD-NOS dx. I had to struggle to get some of the services that I knew she needed, and I had to fight with my insurance much of the time. Now, I usually get the services that are requested by all her numerous drs. My daughter attends a private special ed. school which is paid for through my district. The school has lots of extra therapies, such as hippo therapy, music therapy, art therapy and aquatic therapy. She is in a multiple handicapped room which has mainly children with ADD or ADHD and autism. All of the kids in her class are verbal and its a very small class. These are some of the things I wanted in a classroom setting. As she gets older, I may find that she requires less one-on-one attention and I will pursue getting her evaluated again. How is your daughter's language? Your daughter's diet consists of many dairy and gluten foods. Have you ever considered trying her on the gluten free casein free diet? Its tough to get started on, and children often rebel badly at first, but many parents have seen great improvements in their children after being on it (its a 100% on it or nothing diet). Some have seen drastic improvements in a short amount of time. It may be something to consider. Karmen Re: My little girl... My little girl Madison (9) was diagnosed with a learning disability by the public school system here in Sonoma County as she entered Kindergarten 5 years ago and we've had an IEP ever since. We'd talked with them about reassessing her as symptoms of Autism became evident but they always stuck by their original assessment. We recently had Maddie assessed by North Bay Regional and they determined her assessment as PDD NOS. Reading the Wikipedia definition of this diagnosis shows it is right on the money regarding my daughter: hypersensitivity to sound, very particular about food (will only eat a few things like pasta, cereal, cheese, milk, grape juice, goldfish crackers, very little vegetables and fruits), extremely irrational fears (of flies and " car noises " when going out into the kitchen alone she covers her ears and we can barely hear traffic from our house). Anyone have any experience or information about this diagnosis? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 When my daughter was about 4.5 she was dx'd with PDD NOS and it was right, it's autism. We did intensive brushes to help her with touch issues and added noises to her daily life to help her learn to tune them out. I have to say these things helped her immensely. She can now do things she could never do, like watch a tv with the volume on, go to the movies, drive in a car with the radio on, touch people correctly, be touched softly, brush her hair. Wear clothes that may have a string hanging or a little dab of dirt. She eats tons of things now. She will try anything now. Then all she ate was chicken nuggets, pretzels, cheerios, and milk. There is hope. TJ > My little girl Madison (9) was diagnosed with a learning disability by > the public school system here in Sonoma County as she entered > Kindergarten 5 years ago and we've had an IEP ever since. We'd talked > with them about reassessing her as symptoms of Autism became evident > but they always stuck by their original assessment. We recently had > Maddie assessed by North Bay Regional and they determined her > assessment as PDD NOS. Reading the Wikipedia definition of this > diagnosis shows it is right on the money regarding my daughter: > hypersensitivity to sound, very particular about food (will only eat a > few things like pasta, cereal, cheese, milk, grape juice, goldfish > crackers, very little vegetables and fruits), extremely irrational > fears (of flies and " car noises " when going out into the kitchen alone > she covers her ears and we can barely hear traffic from our house). > Anyone have any experience or information about this diagnosis? Thank > you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 When my daughter was about 4.5 she was dx'd with PDD NOS and it was right, it's autism. We did intensive brushes to help her with touch issues and added noises to her daily life to help her learn to tune them out. I have to say these things helped her immensely. She can now do things she could never do, like watch a tv with the volume on, go to the movies, drive in a car with the radio on, touch people correctly, be touched softly, brush her hair. Wear clothes that may have a string hanging or a little dab of dirt. She eats tons of things now. She will try anything now. Then all she ate was chicken nuggets, pretzels, cheerios, and milk. There is hope. TJ > My little girl Madison (9) was diagnosed with a learning disability by > the public school system here in Sonoma County as she entered > Kindergarten 5 years ago and we've had an IEP ever since. We'd talked > with them about reassessing her as symptoms of Autism became evident > but they always stuck by their original assessment. We recently had > Maddie assessed by North Bay Regional and they determined her > assessment as PDD NOS. Reading the Wikipedia definition of this > diagnosis shows it is right on the money regarding my daughter: > hypersensitivity to sound, very particular about food (will only eat a > few things like pasta, cereal, cheese, milk, grape juice, goldfish > crackers, very little vegetables and fruits), extremely irrational > fears (of flies and " car noises " when going out into the kitchen alone > she covers her ears and we can barely hear traffic from our house). > Anyone have any experience or information about this diagnosis? Thank > you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 When my daughter was about 4.5 she was dx'd with PDD NOS and it was right, it's autism. We did intensive brushes to help her with touch issues and added noises to her daily life to help her learn to tune them out. I have to say these things helped her immensely. She can now do things she could never do, like watch a tv with the volume on, go to the movies, drive in a car with the radio on, touch people correctly, be touched softly, brush her hair. Wear clothes that may have a string hanging or a little dab of dirt. She eats tons of things now. She will try anything now. Then all she ate was chicken nuggets, pretzels, cheerios, and milk. There is hope. TJ > My little girl Madison (9) was diagnosed with a learning disability by > the public school system here in Sonoma County as she entered > Kindergarten 5 years ago and we've had an IEP ever since. We'd talked > with them about reassessing her as symptoms of Autism became evident > but they always stuck by their original assessment. We recently had > Maddie assessed by North Bay Regional and they determined her > assessment as PDD NOS. Reading the Wikipedia definition of this > diagnosis shows it is right on the money regarding my daughter: > hypersensitivity to sound, very particular about food (will only eat a > few things like pasta, cereal, cheese, milk, grape juice, goldfish > crackers, very little vegetables and fruits), extremely irrational > fears (of flies and " car noises " when going out into the kitchen alone > she covers her ears and we can barely hear traffic from our house). > Anyone have any experience or information about this diagnosis? Thank > you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Typically a diagnosis of PDD or other forms of autism are done by a licensed psychologist. Do you know of any in your region who diagnose autism? I would suggest starting there, if you cannot afford it you have the right to request an outside evaluation at the school's expense. Only, you may not like what they find, obviously those paid by the school to do tests feel some sort of obligation to the school, and either private or outside, the school is not legally required to change based on those evaluations, only required to " consider " them, what ever the heck that means. HTH, Debi - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 That's great news, Taijij! How old is your daughter now? The Whole Truth Nothing But the Truth So Help Me God... _____ From: Autism_in_Girls [mailto:Autism_in_Girls ] On Behalf Of taijij at work Sent: Friday, August 15, 2008 5:49 AM To: Autism_in_Girls Subject: Re: Re: My little girl... When my daughter was about 4.5 she was dx'd with PDD NOS and it was right, it's autism. We did intensive brushes to help her with touch issues and added noises to her daily life to help her learn to tune them out. I have to say these things helped her immensely. She can now do things she could never do, like watch a tv with the volume on, go to the movies, drive in a car with the radio on, touch people correctly, be touched softly, brush her hair. Wear clothes that may have a string hanging or a little dab of dirt. She eats tons of things now. She will try anything now. Then all she ate was chicken nuggets, pretzels, cheerios, and milk. There is hope. TJ On Fri, Aug 15, 2008 at 8:02 AM, Don <thewholetruth@ <mailto:thewholetruth%40comcast.net> comcast.net> wrote: > My little girl Madison (9) was diagnosed with a learning disability by > the public school system here in Sonoma County as she entered > Kindergarten 5 years ago and we've had an IEP ever since. We'd talked > with them about reassessing her as symptoms of Autism became evident > but they always stuck by their original assessment. We recently had > Maddie assessed by North Bay Regional and they determined her > assessment as PDD NOS. Reading the Wikipedia definition of this > diagnosis shows it is right on the money regarding my daughter: > hypersensitivity to sound, very particular about food (will only eat a > few things like pasta, cereal, cheese, milk, grape juice, goldfish > crackers, very little vegetables and fruits), extremely irrational > fears (of flies and " car noises " when going out into the kitchen alone > she covers her ears and we can barely hear traffic from our house). > Anyone have any experience or information about this diagnosis? Thank > you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 Hi Karmen, and thanks for you reply. Her language skills are good now, although if you use words she doesn't understand when you ask her a question, she just stares at you, most of the time. I've read about the gluten/casein free diet, but like you said, it's practically all she'll eat right now is gluten/casseine foods. We don't really know what to do about that. She's pretty skinny as it is. I can't imagine taking away the only foods she'll eat for any reason. She's still just so picky about what she eats. I appreciate you reminding about the G/C-free diet. We really need to figure out how to give it a try. I have heard some amazing success stories. Right now, my wife is suffering from major depression and what appears (to me) to be Bipolar Disorder, so a lot of my time is spent just being with my daughter, and trying to keep my wife's anger issues at a minimum. It's a very difficult distraction here. Thanks for your feedback, Karmen! The Whole Truth Nothing But the Truth So Help Me God... _____ From: Autism_in_Girls [mailto:Autism_in_Girls ] On Behalf Of kcboone Sent: Friday, August 15, 2008 5:44 AM To: Autism_in_Girls Subject: Re: Re: My little girl... Sounds a lot like my daughter who is 6 yrs. old. We're in NJ. She is dx'd. with mild-moderate autism, along with an auditory processing disorder and an anxiety disorder. She has very extreme anxiety difficulties with typical items, such as DVD's and tapes which she thinks they ALL have the MGM Lion on them and that scares her. She was at first dx'd with PDD NOS, but it was upgraded due to her language difficulties and not being able to stay on task or answer questions. I want to keep my daughter's autism dx. because more services come with this dx. than with PDD NOS. When she had the PDD-NOS dx. I had to struggle to get some of the services that I knew she needed, and I had to fight with my insurance much of the time. Now, I usually get the services that are requested by all her numerous drs. My daughter attends a private special ed. school which is paid for through my district. The school has lots of extra therapies, such as hippo therapy, music therapy, art therapy and aquatic therapy. She is in a multiple handicapped room which has mainly children with ADD or ADHD and autism. All of the kids in her class are verbal and its a very small class. These are some of the things I wanted in a classroom setting. As she gets older, I may find that she requires less one-on-one attention and I will pursue getting her evaluated again. How is your daughter's language? Your daughter's diet consists of many dairy and gluten foods. Have you ever considered trying her on the gluten free casein free diet? Its tough to get started on, and children often rebel badly at first, but many parents have seen great improvements in their children after being on it (its a 100% on it or nothing diet). Some have seen drastic improvements in a short amount of time. It may be something to consider. Karmen Re: My little girl... My little girl Madison (9) was diagnosed with a learning disability by the public school system here in Sonoma County as she entered Kindergarten 5 years ago and we've had an IEP ever since. We'd talked with them about reassessing her as symptoms of Autism became evident but they always stuck by their original assessment. We recently had Maddie assessed by North Bay Regional and they determined her assessment as PDD NOS. Reading the Wikipedia definition of this diagnosis shows it is right on the money regarding my daughter: hypersensitivity to sound, very particular about food (will only eat a few things like pasta, cereal, cheese, milk, grape juice, goldfish crackers, very little vegetables and fruits), extremely irrational fears (of flies and " car noises " when going out into the kitchen alone she covers her ears and we can barely hear traffic from our house). Anyone have any experience or information about this diagnosis? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 Hi Karmen, and thanks for you reply. Her language skills are good now, although if you use words she doesn't understand when you ask her a question, she just stares at you, most of the time. I've read about the gluten/casein free diet, but like you said, it's practically all she'll eat right now is gluten/casseine foods. We don't really know what to do about that. She's pretty skinny as it is. I can't imagine taking away the only foods she'll eat for any reason. She's still just so picky about what she eats. I appreciate you reminding about the G/C-free diet. We really need to figure out how to give it a try. I have heard some amazing success stories. Right now, my wife is suffering from major depression and what appears (to me) to be Bipolar Disorder, so a lot of my time is spent just being with my daughter, and trying to keep my wife's anger issues at a minimum. It's a very difficult distraction here. Thanks for your feedback, Karmen! The Whole Truth Nothing But the Truth So Help Me God... _____ From: Autism_in_Girls [mailto:Autism_in_Girls ] On Behalf Of kcboone Sent: Friday, August 15, 2008 5:44 AM To: Autism_in_Girls Subject: Re: Re: My little girl... Sounds a lot like my daughter who is 6 yrs. old. We're in NJ. She is dx'd. with mild-moderate autism, along with an auditory processing disorder and an anxiety disorder. She has very extreme anxiety difficulties with typical items, such as DVD's and tapes which she thinks they ALL have the MGM Lion on them and that scares her. She was at first dx'd with PDD NOS, but it was upgraded due to her language difficulties and not being able to stay on task or answer questions. I want to keep my daughter's autism dx. because more services come with this dx. than with PDD NOS. When she had the PDD-NOS dx. I had to struggle to get some of the services that I knew she needed, and I had to fight with my insurance much of the time. Now, I usually get the services that are requested by all her numerous drs. My daughter attends a private special ed. school which is paid for through my district. The school has lots of extra therapies, such as hippo therapy, music therapy, art therapy and aquatic therapy. She is in a multiple handicapped room which has mainly children with ADD or ADHD and autism. All of the kids in her class are verbal and its a very small class. These are some of the things I wanted in a classroom setting. As she gets older, I may find that she requires less one-on-one attention and I will pursue getting her evaluated again. How is your daughter's language? Your daughter's diet consists of many dairy and gluten foods. Have you ever considered trying her on the gluten free casein free diet? Its tough to get started on, and children often rebel badly at first, but many parents have seen great improvements in their children after being on it (its a 100% on it or nothing diet). Some have seen drastic improvements in a short amount of time. It may be something to consider. Karmen Re: My little girl... My little girl Madison (9) was diagnosed with a learning disability by the public school system here in Sonoma County as she entered Kindergarten 5 years ago and we've had an IEP ever since. We'd talked with them about reassessing her as symptoms of Autism became evident but they always stuck by their original assessment. We recently had Maddie assessed by North Bay Regional and they determined her assessment as PDD NOS. Reading the Wikipedia definition of this diagnosis shows it is right on the money regarding my daughter: hypersensitivity to sound, very particular about food (will only eat a few things like pasta, cereal, cheese, milk, grape juice, goldfish crackers, very little vegetables and fruits), extremely irrational fears (of flies and " car noises " when going out into the kitchen alone she covers her ears and we can barely hear traffic from our house). Anyone have any experience or information about this diagnosis? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 Hi Karmen, and thanks for you reply. Her language skills are good now, although if you use words she doesn't understand when you ask her a question, she just stares at you, most of the time. I've read about the gluten/casein free diet, but like you said, it's practically all she'll eat right now is gluten/casseine foods. We don't really know what to do about that. She's pretty skinny as it is. I can't imagine taking away the only foods she'll eat for any reason. She's still just so picky about what she eats. I appreciate you reminding about the G/C-free diet. We really need to figure out how to give it a try. I have heard some amazing success stories. Right now, my wife is suffering from major depression and what appears (to me) to be Bipolar Disorder, so a lot of my time is spent just being with my daughter, and trying to keep my wife's anger issues at a minimum. It's a very difficult distraction here. Thanks for your feedback, Karmen! The Whole Truth Nothing But the Truth So Help Me God... _____ From: Autism_in_Girls [mailto:Autism_in_Girls ] On Behalf Of kcboone Sent: Friday, August 15, 2008 5:44 AM To: Autism_in_Girls Subject: Re: Re: My little girl... Sounds a lot like my daughter who is 6 yrs. old. We're in NJ. She is dx'd. with mild-moderate autism, along with an auditory processing disorder and an anxiety disorder. She has very extreme anxiety difficulties with typical items, such as DVD's and tapes which she thinks they ALL have the MGM Lion on them and that scares her. She was at first dx'd with PDD NOS, but it was upgraded due to her language difficulties and not being able to stay on task or answer questions. I want to keep my daughter's autism dx. because more services come with this dx. than with PDD NOS. When she had the PDD-NOS dx. I had to struggle to get some of the services that I knew she needed, and I had to fight with my insurance much of the time. Now, I usually get the services that are requested by all her numerous drs. My daughter attends a private special ed. school which is paid for through my district. The school has lots of extra therapies, such as hippo therapy, music therapy, art therapy and aquatic therapy. She is in a multiple handicapped room which has mainly children with ADD or ADHD and autism. All of the kids in her class are verbal and its a very small class. These are some of the things I wanted in a classroom setting. As she gets older, I may find that she requires less one-on-one attention and I will pursue getting her evaluated again. How is your daughter's language? Your daughter's diet consists of many dairy and gluten foods. Have you ever considered trying her on the gluten free casein free diet? Its tough to get started on, and children often rebel badly at first, but many parents have seen great improvements in their children after being on it (its a 100% on it or nothing diet). Some have seen drastic improvements in a short amount of time. It may be something to consider. Karmen Re: My little girl... My little girl Madison (9) was diagnosed with a learning disability by the public school system here in Sonoma County as she entered Kindergarten 5 years ago and we've had an IEP ever since. We'd talked with them about reassessing her as symptoms of Autism became evident but they always stuck by their original assessment. We recently had Maddie assessed by North Bay Regional and they determined her assessment as PDD NOS. Reading the Wikipedia definition of this diagnosis shows it is right on the money regarding my daughter: hypersensitivity to sound, very particular about food (will only eat a few things like pasta, cereal, cheese, milk, grape juice, goldfish crackers, very little vegetables and fruits), extremely irrational fears (of flies and " car noises " when going out into the kitchen alone she covers her ears and we can barely hear traffic from our house). Anyone have any experience or information about this diagnosis? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 I completely understand. My husband is Asperger's and Bi-polar. I think his anger at times is unmatchable and very frightening. He's NEVER taken my daughter anywhere ever, not once. I single parent her with the exception of one VERY helpful friend who will go with my daughter and I anywhere I may need an extra pair of hands. She's been my saving grace. I can say this about the diet: there are some substitute type of foods that are gfcf such as cereals, frozen waffles and breads. And there are typical things, such as meats, french fries and eggs and veggies that are naturally gfcf (double check the ingredients of frozen fries of course). At the time I tried the diet, my daughter's diet was bland already so it wasn't too hard to give it a try. My problem was with my husband who would 'sneak' her foods that were not on the diet because it was easier for him to just give her those items than to give her the ones she was allowed. My daughter would ask for the ones that she wasn't allowed and he'd just give in instead of dealing with her whining. The diet can be tough to start, especially with a child that only eats certain foods. Your hesitation is warranted there. Do you give her any supplements such as Cod Liver Oil, Coromega, zinc, probiotics, and enzymes? They can be quite helpful as well. Karmen Re: My little girl... My little girl Madison (9) was diagnosed with a learning disability by the public school system here in Sonoma County as she entered Kindergarten 5 years ago and we've had an IEP ever since. We'd talked with them about reassessing her as symptoms of Autism became evident but they always stuck by their original assessment. We recently had Maddie assessed by North Bay Regional and they determined her assessment as PDD NOS. Reading the Wikipedia definition of this diagnosis shows it is right on the money regarding my daughter: hypersensitivity to sound, very particular about food (will only eat a few things like pasta, cereal, cheese, milk, grape juice, goldfish crackers, very little vegetables and fruits), extremely irrational fears (of flies and " car noises " when going out into the kitchen alone she covers her ears and we can barely hear traffic from our house). Anyone have any experience or information about this diagnosis? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 I completely understand. My husband is Asperger's and Bi-polar. I think his anger at times is unmatchable and very frightening. He's NEVER taken my daughter anywhere ever, not once. I single parent her with the exception of one VERY helpful friend who will go with my daughter and I anywhere I may need an extra pair of hands. She's been my saving grace. I can say this about the diet: there are some substitute type of foods that are gfcf such as cereals, frozen waffles and breads. And there are typical things, such as meats, french fries and eggs and veggies that are naturally gfcf (double check the ingredients of frozen fries of course). At the time I tried the diet, my daughter's diet was bland already so it wasn't too hard to give it a try. My problem was with my husband who would 'sneak' her foods that were not on the diet because it was easier for him to just give her those items than to give her the ones she was allowed. My daughter would ask for the ones that she wasn't allowed and he'd just give in instead of dealing with her whining. The diet can be tough to start, especially with a child that only eats certain foods. Your hesitation is warranted there. Do you give her any supplements such as Cod Liver Oil, Coromega, zinc, probiotics, and enzymes? They can be quite helpful as well. Karmen Re: My little girl... My little girl Madison (9) was diagnosed with a learning disability by the public school system here in Sonoma County as she entered Kindergarten 5 years ago and we've had an IEP ever since. We'd talked with them about reassessing her as symptoms of Autism became evident but they always stuck by their original assessment. We recently had Maddie assessed by North Bay Regional and they determined her assessment as PDD NOS. Reading the Wikipedia definition of this diagnosis shows it is right on the money regarding my daughter: hypersensitivity to sound, very particular about food (will only eat a few things like pasta, cereal, cheese, milk, grape juice, goldfish crackers, very little vegetables and fruits), extremely irrational fears (of flies and " car noises " when going out into the kitchen alone she covers her ears and we can barely hear traffic from our house). Anyone have any experience or information about this diagnosis? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 I completely understand. My husband is Asperger's and Bi-polar. I think his anger at times is unmatchable and very frightening. He's NEVER taken my daughter anywhere ever, not once. I single parent her with the exception of one VERY helpful friend who will go with my daughter and I anywhere I may need an extra pair of hands. She's been my saving grace. I can say this about the diet: there are some substitute type of foods that are gfcf such as cereals, frozen waffles and breads. And there are typical things, such as meats, french fries and eggs and veggies that are naturally gfcf (double check the ingredients of frozen fries of course). At the time I tried the diet, my daughter's diet was bland already so it wasn't too hard to give it a try. My problem was with my husband who would 'sneak' her foods that were not on the diet because it was easier for him to just give her those items than to give her the ones she was allowed. My daughter would ask for the ones that she wasn't allowed and he'd just give in instead of dealing with her whining. The diet can be tough to start, especially with a child that only eats certain foods. Your hesitation is warranted there. Do you give her any supplements such as Cod Liver Oil, Coromega, zinc, probiotics, and enzymes? They can be quite helpful as well. Karmen Re: My little girl... My little girl Madison (9) was diagnosed with a learning disability by the public school system here in Sonoma County as she entered Kindergarten 5 years ago and we've had an IEP ever since. We'd talked with them about reassessing her as symptoms of Autism became evident but they always stuck by their original assessment. We recently had Maddie assessed by North Bay Regional and they determined her assessment as PDD NOS. Reading the Wikipedia definition of this diagnosis shows it is right on the money regarding my daughter: hypersensitivity to sound, very particular about food (will only eat a few things like pasta, cereal, cheese, milk, grape juice, goldfish crackers, very little vegetables and fruits), extremely irrational fears (of flies and " car noises " when going out into the kitchen alone she covers her ears and we can barely hear traffic from our house). Anyone have any experience or information about this diagnosis? Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 In a message dated 8/17/08 10:29:30 A.M. Eastern Daylight Time, taijijat@... writes: stood up and hummna hummmna hmmm, i want him. and how old does she think she is....lol that was a funny story eric abbys dad **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut000300\ 00000007 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 In a message dated 8/17/08 10:29:30 A.M. Eastern Daylight Time, taijijat@... writes: stood up and hummna hummmna hmmm, i want him. and how old does she think she is....lol that was a funny story eric abbys dad **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut000300\ 00000007 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 In a message dated 8/17/08 10:29:30 A.M. Eastern Daylight Time, taijijat@... writes: stood up and hummna hummmna hmmm, i want him. and how old does she think she is....lol that was a funny story eric abbys dad **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut000300\ 00000007 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 She is something else. > > In a message dated 8/17/08 10:29:30 A.M. Eastern Daylight Time, > taijijat@... <taijijat%40gmail.com> writes: > > stood up and hummna hummmna hmmm, i want him. > > and how old does she think she is....lol that was a funny story > eric abbys dad > > **************Looking for a car that's sporty, fun and fits in your budget? > > Read reviews on AOL Autos. > ( > http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut0003000\ 0000007) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 She is something else. > > In a message dated 8/17/08 10:29:30 A.M. Eastern Daylight Time, > taijijat@... <taijijat%40gmail.com> writes: > > stood up and hummna hummmna hmmm, i want him. > > and how old does she think she is....lol that was a funny story > eric abbys dad > > **************Looking for a car that's sporty, fun and fits in your budget? > > Read reviews on AOL Autos. > ( > http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut0003000\ 0000007) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 She is something else. > > In a message dated 8/17/08 10:29:30 A.M. Eastern Daylight Time, > taijijat@... <taijijat%40gmail.com> writes: > > stood up and hummna hummmna hmmm, i want him. > > and how old does she think she is....lol that was a funny story > eric abbys dad > > **************Looking for a car that's sporty, fun and fits in your budget? > > Read reviews on AOL Autos. > ( > http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut0003000\ 0000007) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 My missy is of very boy crazy too as it i so of called and we are really struggling to this in the home right now. she wants of boyfriends, and while she is of 15 her development is of much younger so the social fashions of her having boyfriends is of hard because most boys of 15 are of interested in other things outside of just girlfriend boyfriend things and this is of a very hard things for us right now. My missy is of very well developed for her age and so this attracts of other boys that see of this and not of my daughter and this causes of me great concern for her. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 My missy is of very boy crazy too as it i so of called and we are really struggling to this in the home right now. she wants of boyfriends, and while she is of 15 her development is of much younger so the social fashions of her having boyfriends is of hard because most boys of 15 are of interested in other things outside of just girlfriend boyfriend things and this is of a very hard things for us right now. My missy is of very well developed for her age and so this attracts of other boys that see of this and not of my daughter and this causes of me great concern for her. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 developmentally and emotionally no she is of not ready. this is of what worries of me with boys. I to not had of this experiences as a kid so lack what to do and wonder maybe if kassi can give of some insight to things of this since this is of an areas i to have no presonal areas in outside of book knowings but they do not cover of teens and sexuality of young teens on the spectrums. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 Hi Theresa, My daughter (6) is the ONLY girl in her multiple handicapped class. Last year there was another little girl in the class but she was older than my daughter and is now in the next class up. The year before, there were 3 girls. It makes me a little nervous that she is the ONLY girl. I think she needs to TRY to develop friendships with girls which is VERY hard for her. She is an only child and she has such a busy after school schedule with private therapies and treatments that we never have play dates. I even said to her that we were going to start having friends come over and it upset her VERY much. She's not good with change and has NEVER had to share her things. Its been quite unsettling for me. So, I've enrolled her in a girls group at church which will begin on the day after Labor Day. I hope she will make at least ONE friend in that group that I can invite over. I've enlisted the help of a teenage girl to shadow her in the girls group at church (same shadow she has for Sunday school), so hopefully this will yield some positive possible friendships. We'll see. Just thought I'd comment on the ONLY girl in class situation. Karmen Re: Re: My little girl... That does make sense, my daughter (5) doesn't even really know the difference between a boy and a girl yet. At least I don't think she does. If I show her a picture of a boy and ask her if it's a boy or girl, she will sometimes say girl and sometimes say boy... also sometimes depends on how you ask, cause sometimes she just repeats the last choice you gave. She's also had mostly boys in her classes (pre-K) and this year in the VE K-2nd grade class at her school she will be the ONLY girl! There will be plenty of girls in the mainstream class that she will eat lunch with and will visit for times during the day. But even when presented with girls and boys in a class she almost always gravitates towards the boys when she does try to interact... of course most of the time she couldn't care less if anyone plays with her or not. She has always LOVED the kids in her class with DS... In the last two years she had 3 different boys with DS in her classes and she has been best buddies with each of them! If I had to predict boys she'd fancy in the future, I'd say she will find a boy with DS to be her boyfriend. Theresa (who starts K tomorrow!)'s mom > > Yes, I understand. Kayla has decided that I should find her a boyfriend > and > that's just what a good mom should do. Well, I am not going to find her a > boyfriend but she really thinks this is my job. Kayla is not mentally or > emotionally ready for a boyfriend but wants one so badly. She had lots of > boys in every class she has ever been in, I am guessing this is due to > autism affecting boys at a much higher rate then girls and well, she is > just > more comfortable with boys because of this. Not sure if this has anything > to do with her wanting one so badly. > T > > On Sun, Aug 17, 2008 at 1:53 PM, sondra <hfa2@...<hfa2%40columbus.rr.com>> > wrote: > > > My missy is of very boy crazy too as it i so of called and we are > > really struggling to this in the home right now. she wants of > > boyfriends, and while she is of 15 her development is of much younger > > so the social fashions of her having boyfriends is of hard because most > > boys of 15 are of interested in other things outside of just girlfriend > > boyfriend things and this is of a very hard things for us right now. My > > missy is of very well developed for her age and so this attracts of > > other boys that see of this and not of my daughter and this causes of > > me great concern for her. > > sondra > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 Hi Theresa, My daughter (6) is the ONLY girl in her multiple handicapped class. Last year there was another little girl in the class but she was older than my daughter and is now in the next class up. The year before, there were 3 girls. It makes me a little nervous that she is the ONLY girl. I think she needs to TRY to develop friendships with girls which is VERY hard for her. She is an only child and she has such a busy after school schedule with private therapies and treatments that we never have play dates. I even said to her that we were going to start having friends come over and it upset her VERY much. She's not good with change and has NEVER had to share her things. Its been quite unsettling for me. So, I've enrolled her in a girls group at church which will begin on the day after Labor Day. I hope she will make at least ONE friend in that group that I can invite over. I've enlisted the help of a teenage girl to shadow her in the girls group at church (same shadow she has for Sunday school), so hopefully this will yield some positive possible friendships. We'll see. Just thought I'd comment on the ONLY girl in class situation. Karmen Re: Re: My little girl... That does make sense, my daughter (5) doesn't even really know the difference between a boy and a girl yet. At least I don't think she does. If I show her a picture of a boy and ask her if it's a boy or girl, she will sometimes say girl and sometimes say boy... also sometimes depends on how you ask, cause sometimes she just repeats the last choice you gave. She's also had mostly boys in her classes (pre-K) and this year in the VE K-2nd grade class at her school she will be the ONLY girl! There will be plenty of girls in the mainstream class that she will eat lunch with and will visit for times during the day. But even when presented with girls and boys in a class she almost always gravitates towards the boys when she does try to interact... of course most of the time she couldn't care less if anyone plays with her or not. She has always LOVED the kids in her class with DS... In the last two years she had 3 different boys with DS in her classes and she has been best buddies with each of them! If I had to predict boys she'd fancy in the future, I'd say she will find a boy with DS to be her boyfriend. Theresa (who starts K tomorrow!)'s mom > > Yes, I understand. Kayla has decided that I should find her a boyfriend > and > that's just what a good mom should do. Well, I am not going to find her a > boyfriend but she really thinks this is my job. Kayla is not mentally or > emotionally ready for a boyfriend but wants one so badly. She had lots of > boys in every class she has ever been in, I am guessing this is due to > autism affecting boys at a much higher rate then girls and well, she is > just > more comfortable with boys because of this. Not sure if this has anything > to do with her wanting one so badly. > T > > On Sun, Aug 17, 2008 at 1:53 PM, sondra <hfa2@...<hfa2%40columbus.rr.com>> > wrote: > > > My missy is of very boy crazy too as it i so of called and we are > > really struggling to this in the home right now. she wants of > > boyfriends, and while she is of 15 her development is of much younger > > so the social fashions of her having boyfriends is of hard because most > > boys of 15 are of interested in other things outside of just girlfriend > > boyfriend things and this is of a very hard things for us right now. My > > missy is of very well developed for her age and so this attracts of > > other boys that see of this and not of my daughter and this causes of > > me great concern for her. > > sondra > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 I have always liked her being the only girl. This is going to sound bad, but because she was the only girl she got extra attention from the teachers and I think that really helped her. T > Hi Theresa, > > My daughter (6) is the ONLY girl in her multiple handicapped class. Last > year there was another little girl in the class but she was older than my > daughter and is now in the next class up. The year before, there were 3 > girls. It makes me a little nervous that she is the ONLY girl. I think she > needs to TRY to develop friendships with girls which is VERY hard for her. > She is an only child and she has such a busy after school schedule with > private therapies and treatments that we never have play dates. I even said > to her that we were going to start having friends come over and it upset her > VERY much. She's not good with change and has NEVER had to share her things. > Its been quite unsettling for me. So, I've enrolled her in a girls group at > church which will begin on the day after Labor Day. I hope she will make at > least ONE friend in that group that I can invite over. I've enlisted the > help of a teenage girl to shadow her in the girls group at church (same > shadow she has for Sunday school), so hopefully this will yield some > positive possible friendships. We'll see. > > Just thought I'd comment on the ONLY girl in class situation. > > Karmen > > Re: Re: My little girl... > > That does make sense, my daughter (5) doesn't even really know the > difference between a boy and a girl yet. At least I don't think she does. > If > I show her a picture of a boy and ask her if it's a boy or girl, she will > sometimes say girl and sometimes say boy... also sometimes depends on how > you ask, cause sometimes she just repeats the last choice you gave. > > She's also had mostly boys in her classes (pre-K) and this year in the VE > K-2nd grade class at her school she will be the ONLY girl! There will be > plenty of girls in the mainstream class that she will eat lunch with and > will visit for times during the day. But even when presented with girls and > boys in a class she almost always gravitates towards the boys when she does > try to interact... of course most of the time she couldn't care less if > anyone plays with her or not. > > She has always LOVED the kids in her class with DS... In the last two years > she had 3 different boys with DS in her classes and she has been best > buddies with each of them! If I had to predict boys she'd fancy in the > future, I'd say she will find a boy with DS to be her boyfriend. > > Theresa > (who starts K tomorrow!)'s mom > > On 8/17/08, taijij at work <taijijat@... <taijijat%40gmail.com>> > wrote: > > > > Yes, I understand. Kayla has decided that I should find her a boyfriend > > and > > that's just what a good mom should do. Well, I am not going to find her a > > boyfriend but she really thinks this is my job. Kayla is not mentally or > > emotionally ready for a boyfriend but wants one so badly. She had lots of > > boys in every class she has ever been in, I am guessing this is due to > > autism affecting boys at a much higher rate then girls and well, she is > > just > > more comfortable with boys because of this. Not sure if this has anything > > to do with her wanting one so badly. > > T > > > > On Sun, Aug 17, 2008 at 1:53 PM, sondra <hfa2@...<hfa2%40columbus.rr.com> > <hfa2%40columbus.rr.com>> > > wrote: > > > > > My missy is of very boy crazy too as it i so of called and we are > > > really struggling to this in the home right now. she wants of > > > boyfriends, and while she is of 15 her development is of much younger > > > so the social fashions of her having boyfriends is of hard because most > > > boys of 15 are of interested in other things outside of just girlfriend > > > boyfriend things and this is of a very hard things for us right now. My > > > missy is of very well developed for her age and so this attracts of > > > other boys that see of this and not of my daughter and this causes of > > > me great concern for her. > > > sondra > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.