Re: A word about diagnosis - Cort

[Guest guest]

Cort:

We've become a " fast food " nation and want to label everything, thus

the desire to name what we have no matter what. But you all ready

knew that. For me, the thinking is, if it's declared then it can be

treated, which is not always the case.

Example: One of my cousin's was diagnosed with brain fever because

her mother insisted that she have a diagnosis. Truth is the doctor's

don't know what's " wrong " with her, didn't know how to treat her

without naming something for insurance purposes and even though it

was wrong, started different drugs to see if anything would take. So

far as I know, there's still no true diagnosis but she's deteriorated

so much and has developed such a bad taste for doctors she's now

using " natural " remedies to combat her troubles and ailments.

The drive to name, however wrong it may be, is not only the patient's

problem but also the insurance companies that won't pay the doctor's

unless there's a " reason " . There are many hands in this, no one

takes the " blame " and no one takes responsibility. Talk about

frustration for the doctors! Of course, this is just my opinion. As

my husband says, " Opinion's are like a---oles; everyone has them and

they all stink. "

Take care and be well.

Ellen

[Guest guest]

Ellen

 I found just the opposite of what your sis went threw . they refused to give a

name to what I was dealing with even when the insurance was demanding it . two

and a half years later I was finally dxed as teaching university of

rumatolagy.so as many with this stills thing most are not diagnosed very fast

but now days it seams like stills is a bit more known and even on the TV talked

about now and then then even ten years ago just my thought >

 

the  redneck

Marty 

The whole of that Bill [of Rights] is a declaration of the right of the people

at large or considered as individuals...t establishes some rights of the

individual as unalienable and which consequently, no majority has a right to

deprive them of.

         ---Albert Gallatin to , Oct 7, 1789

 

The great object is that every man be armed " and " everyone who is able may have

a gun. " ( Henry, in the Virginia Convention on the ratification of the

Constitution.

 

   No freeman shall ever be debarred the use of arms.

         --- Jefferson:  1776

 

  " Waiting periods are only a step. Registration is only a step. The prohibition

of private firearms is the goal. " Janet Reno

"

as United Statesattorney general in the Clintonwhite house (now do we really

want Hillary there to?)

 

so what is the truth?  what the founding fathers ment, or what people today try

to twist it to ?

Give up one right and the others will soon fallow

Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

[Guest guest]

Ellen

 I found just the opposite of what your sis went threw . they refused to give a

name to what I was dealing with even when the insurance was demanding it . two

and a half years later I was finally dxed as teaching university of

rumatolagy.so as many with this stills thing most are not diagnosed very fast

but now days it seams like stills is a bit more known and even on the TV talked

about now and then then even ten years ago just my thought >

 

the  redneck

Marty 

The whole of that Bill [of Rights] is a declaration of the right of the people

at large or considered as individuals...t establishes some rights of the

individual as unalienable and which consequently, no majority has a right to

deprive them of.

         ---Albert Gallatin to , Oct 7, 1789

 

The great object is that every man be armed " and " everyone who is able may have

a gun. " ( Henry, in the Virginia Convention on the ratification of the

Constitution.

 

   No freeman shall ever be debarred the use of arms.

         --- Jefferson:  1776

 

  " Waiting periods are only a step. Registration is only a step. The prohibition

of private firearms is the goal. " Janet Reno

"

as United Statesattorney general in the Clintonwhite house (now do we really

want Hillary there to?)

 

so what is the truth?  what the founding fathers ment, or what people today try

to twist it to ?

Give up one right and the others will soon fallow

Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

[Guest guest]

Marty:

Thank you for the input. I'm sorry you had to go so long without dx,

but it's good to know your doctors didn't give in to the demands of

the insurance companies. Someone told me that Kathleen was

diagnosed with Stills as well about 10 years ago or so but I don't

know how true that is. It's been on Mystery Diagnosis and Diagnosis X

and there's another show my husband watches called the Real Housewives

of NYC where one of the mother's has a child with Stills. It's become

better known but still not well enough known for the general public to

know what or who we are.

Take care and be well.

Ellen

[Guest guest]

Marty:

Thank you for the input. I'm sorry you had to go so long without dx,

but it's good to know your doctors didn't give in to the demands of

the insurance companies. Someone told me that Kathleen was

diagnosed with Stills as well about 10 years ago or so but I don't

know how true that is. It's been on Mystery Diagnosis and Diagnosis X

and there's another show my husband watches called the Real Housewives

of NYC where one of the mother's has a child with Stills. It's become

better known but still not well enough known for the general public to

know what or who we are.

Take care and be well.

Ellen

[Guest guest]

Marty:

Thank you for the input. I'm sorry you had to go so long without dx,

but it's good to know your doctors didn't give in to the demands of

the insurance companies. Someone told me that Kathleen was

diagnosed with Stills as well about 10 years ago or so but I don't

know how true that is. It's been on Mystery Diagnosis and Diagnosis X

and there's another show my husband watches called the Real Housewives

of NYC where one of the mother's has a child with Stills. It's become

better known but still not well enough known for the general public to

know what or who we are.

Take care and be well.

Ellen

[Guest guest]

Cort,

Actually " Still's Disease " was first classified by Dr. Stills in the

JRA form. " Sytemic JRA " , one of the 3 classified types. It also

being the worse of the 3 and more likley to become chronic. It was

not until much later that Adult version was classified. Of course,

and as you have mentioned, is it really the same thing or " almost,

sort of, exactly like " the juvenile form in most ways?

Tom from PA

>

> Greetings Ellen,

>

> First OT: Seems like the non-college grad folks in WV

> have more common sense than the farmers' kids in IO.

>

> Quote: " Real Housewives of NYC where one of the

> mother's has a child with Stills. "

>

> I thought that Still's was an 'adult' disease as in

> AOJRA, or has the media added to the confusion here by

> confusing Still's with a true case of JRA?

>

> Cort

>

[Guest guest]

Cort,

Actually " Still's Disease " was first classified by Dr. Stills in the

JRA form. " Sytemic JRA " , one of the 3 classified types. It also

being the worse of the 3 and more likley to become chronic. It was

not until much later that Adult version was classified. Of course,

and as you have mentioned, is it really the same thing or " almost,

sort of, exactly like " the juvenile form in most ways?

Tom from PA

>

> Greetings Ellen,

>

> First OT: Seems like the non-college grad folks in WV

> have more common sense than the farmers' kids in IO.

>

> Quote: " Real Housewives of NYC where one of the

> mother's has a child with Stills. "

>

> I thought that Still's was an 'adult' disease as in

> AOJRA, or has the media added to the confusion here by

> confusing Still's with a true case of JRA?

>

> Cort

>

[Guest guest]

Cort,

Actually " Still's Disease " was first classified by Dr. Stills in the

JRA form. " Sytemic JRA " , one of the 3 classified types. It also

being the worse of the 3 and more likley to become chronic. It was

not until much later that Adult version was classified. Of course,

and as you have mentioned, is it really the same thing or " almost,

sort of, exactly like " the juvenile form in most ways?

Tom from PA

>

> Greetings Ellen,

>

> First OT: Seems like the non-college grad folks in WV

> have more common sense than the farmers' kids in IO.

>

> Quote: " Real Housewives of NYC where one of the

> mother's has a child with Stills. "

>

> I thought that Still's was an 'adult' disease as in

> AOJRA, or has the media added to the confusion here by

> confusing Still's with a true case of JRA?

>

> Cort

>