? on Custom probiotics

[Guest guest]

Hi,

Please need your help again. Have held off starting liverlife, cytoflora, and

biocidin that we purchased until my daughter who has rett syndrome has an

endoscopy this friday to check status of reflux.

We had started the biocidin and cytoflora within the same week, 2 weeks ago but

she had very hard time so stopped (bowel motility really slowed down and

subsequent pain, bloating, gas and more reflux). I have heard on here and from

the bioray company that it might be best to start with liverlife then add in

cytoflora and then biocidin. All slowly

At any of these points should we also be adding in a probiotic? I have heard

mentioned on here that custom probiotics are a good line of probiotics and I

have read many of their testomials as well on their site. Which one of their

products would be best to try. The two that I see mostly mentioned are the

Adult Formula CP-1 and then the CP D-Lactate free formulation that is specific

for autism. What is it about that one that it is geared more towards autism?

What is lactate free? Also I think powder formula vs. capsule would be better

cause could better titrate the dosage.

Just so scared to try anything because so many supplements in the past have

caused my daughter so much pain and distress. We did start working with an

integrative medicine doctor a couple months ago but I know we are not his usual

type of client but he is very intelligent, compassionate, great listener and

really wants to help. But I think newer to him to have a client like my

daughter who has such difficulty with supplements. We are seeing him because

stool tests showed very low growth of e.coli, Lactobacillus bacteria and

bifidobacterium bacteria and very high growth of 2 pathogens.

I am hoping between him and the help on here we can figure out something to help

my daughter.

Thank you

[Guest guest]

Thank you Sandy,

Good to hear that your son is doing well. It is hard to know what method to

start with as there seems to be many different approaches/products that people

have tried. It's got my head spinning. Our daughter has motility issues so I

can see where if it is die off that is happening that it could make things more

backed up and problematic. We did do the SCD for 8 months. The first month she

did well but then things got worse and needed to stop. I still do a version of

it as well. Were fermented foods hard for him to tolerate at first?

> >

> > Hi,

> > Please need your help again. Have held off starting liverlife, cytoflora,

and biocidin that we purchased until my daughter who has rett syndrome has an

endoscopy this friday to check status of reflux.

> > We had started the biocidin and cytoflora within the same week, 2 weeks ago

but she had very hard time so stopped (bowel motility really slowed down and

subsequent pain, bloating, gas and more reflux). I have heard on here and from

the bioray company that it might be best to start with liverlife then add in

cytoflora and then biocidin. All slowly

> > At any of these points should we also be adding in a probiotic? I have

heard mentioned on here that custom probiotics are a good line of probiotics and

I have read many of their testomials as well on their site. Which one of their

products would be best to try. The two that I see mostly mentioned are the

Adult Formula CP-1 and then the CP D-Lactate free formulation that is specific

for autism. What is it about that one that it is geared more towards autism?

What is lactate free? Also I think powder formula vs. capsule would be better

cause could better titrate the dosage.

> > Just so scared to try anything because so many supplements in the past have

caused my daughter so much pain and distress. We did start working with an

integrative medicine doctor a couple months ago but I know we are not his usual

type of client but he is very intelligent, compassionate, great listener and

really wants to help. But I think newer to him to have a client like my

daughter who has such difficulty with supplements. We are seeing him because

stool tests showed very low growth of e.coli, Lactobacillus bacteria and

bifidobacterium bacteria and very high growth of 2 pathogens.

> > I am hoping between him and the help on here we can figure out something to

help my daughter.

> > Thank you

> >

> >

>