Re: mystery diagnoses and AOSD

[Guest guest]

Give us some specifics to we can fire up some more mail. I missed that show.

(just found out I may have that from watching NISSA on it about a week ago.

I still have to go get my diagnosisi in 3 weeks. I'll sure like to be cure

wt. aspirin !

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Give us some specifics to we can fire up some more mail. I missed that show.

(just found out I may have that from watching NISSA on it about a week ago.

I still have to go get my diagnosisi in 3 weeks. I'll sure like to be cure

wt. aspirin !

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Crole , Also I may have a LOT to do wt. the fact that they found it very,

very early berore the entire body was afected, after wish point it seems to be

out of control, & " set in contiuing to move from limb to limb, then to the

bones & then inside organs what happened to me. I Cant' understand WHY< WHY do

they need to wait & see the very LAST clues to make the final diagnoses, like

in the case of NISSA. After 6 yrs. I finally got the rash, have been under

the care of a Rheuma all that time but because I had anothe desease (F>M) he

had NO cleu.

Something needs to chanche about this process of elimination.

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Crole , Also I may have a LOT to do wt. the fact that they found it very,

very early berore the entire body was afected, after wish point it seems to be

out of control, & " set in contiuing to move from limb to limb, then to the

bones & then inside organs what happened to me. I Cant' understand WHY< WHY do

they need to wait & see the very LAST clues to make the final diagnoses, like

in the case of NISSA. After 6 yrs. I finally got the rash, have been under

the care of a Rheuma all that time but because I had anothe desease (F>M) he

had NO cleu.

Something needs to chanche about this process of elimination.

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Crole , Also I may have a LOT to do wt. the fact that they found it very,

very early berore the entire body was afected, after wish point it seems to be

out of control, & " set in contiuing to move from limb to limb, then to the

bones & then inside organs what happened to me. I Cant' understand WHY< WHY do

they need to wait & see the very LAST clues to make the final diagnoses, like

in the case of NISSA. After 6 yrs. I finally got the rash, have been under

the care of a Rheuma all that time but because I had anothe desease (F>M) he

had NO cleu.

Something needs to chanche about this process of elimination.

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Carole, when that program first aired (last year?), I posted a huge

rant to the listserv and also wrote several very steamy letters to the

producers of the program and the doctor who made/treated the diagnosis

about irresponsible dramatizations. Never heard back from them... I

think I'll send the letters again!

/Maine

>

> Hello Stills folks,

>

> I just watched the mystery X on the Discovery Health channel with

the guy

> who had stills and was CURED with aspirin.

>

> WHAT WHAT WHAT WHAT WHAT???????

>

[Guest guest]

Carole, when that program first aired (last year?), I posted a huge

rant to the listserv and also wrote several very steamy letters to the

producers of the program and the doctor who made/treated the diagnosis

about irresponsible dramatizations. Never heard back from them... I

think I'll send the letters again!

/Maine

>

> Hello Stills folks,

>

> I just watched the mystery X on the Discovery Health channel with

the guy

> who had stills and was CURED with aspirin.

>

> WHAT WHAT WHAT WHAT WHAT???????

>

[Guest guest]

Carole, when that program first aired (last year?), I posted a huge

rant to the listserv and also wrote several very steamy letters to the

producers of the program and the doctor who made/treated the diagnosis

about irresponsible dramatizations. Never heard back from them... I

think I'll send the letters again!

/Maine

>

> Hello Stills folks,

>

> I just watched the mystery X on the Discovery Health channel with

the guy

> who had stills and was CURED with aspirin.

>

> WHAT WHAT WHAT WHAT WHAT???????

>