Re: I have a question to ask.

[Guest guest]

As someone who is in a lawsuit and it AIN'T pretty!

The scum aka defense attorneys are trying to get my medical diagnosis from

toxic encephlaopthy to MCS. Since they can get the case thrown out with

my experts under Dauber. SInce MCS is NOT recognized in the courts and

that is the first strike against you.

Usually a group of " symptoms " will be listed as a single disease/diability

etc.

I have been batling these demons for over a year and they have finally seen

that I will not give up and have gone on the attack, if you have the

strength/energy go forit! Be PREPARED that most attorneys will have you

doing 90% of the work as they don't know what you know about the illnesses

yet they will take a whoping 40+% for contngency IF you can get them to

take it, if it'shourly you will still be doing the work.

Try to handle it yourself up until trial then get an attorney, a lot less

headache in doing their work etc.

Good luck and stay tuned for the hell I am going to raise come the

beginning of the year with my lawsuit!

On Fri, 27 Oct 2006, who wrote:

> Date: Fri, 27 Oct 2006 19:41:50 -0000

> From: who <jeaninem660@...>

> Reply-

>

> Subject: [] I have a question to ask.

>

> If you've been diagnosed with MCS , in a lawsuit does or will that

> cover all your sensitivity's or do they have to be listed as separate

> sensitivity's? are they diagnosed as seperate sensativity's? or all

> part of MCS. and has there been any mold cases won where MCS was the

> result of mold exposure?

> also has csm helped anyone with MCS ? I know I read that around six

> months is kind of a cut off time for csm to work, is this from start

> of exposure or after getting out? and if you have a allergic reaction

> to it does that counteract its affects to the point that it wont help

> at all? like if you have a mild reaction would it still be worth

> trying? or would the reaction off set any benefit it could have?

> will the mass spectrometry testing show all this? other than getting

> a ct scan on my sinuses, with out a doctor that knows actually what

> he's looking for, how can I get some testing done without getting a

> lot of misdiagnoses? and I'm kind of scared to have any testing with

> dyes used because I might be sensitive to some dyes used in foods, is

> this the same thing?

> you know, for a long time I really thought that mcs reactions was

> really limited to what you were exposed to only,while in the moldy

> environment. but with avoidance I'm either becoming reactive to more

> things or they are showing thierself more and I'm just now making the

> connections. not sure which way it is. I do know the heat sensitivity

> and noise sensitivity happened during that time because I noticed

> them than or right after getting out.but I didn't recognize them as

> sensitivity's than, just thought they were side effects(symptoms)

> that would go away but they haven't . and actually I still think that

> with MCS you don't become sensitive to more things, that everything

> you are sensitive to is sensitivity's you got while exposed to

> mold/myco's,inhaled along with them , because now with different

> exposures I get the same reactions, symptoms I had while exposed,

> just different ones with different exposures. I really believe that

> its what you inhale along with your mold exposure is what you become

> sensitive to and the damage to your receptors . maybe that's why some

> MCSer's have more sensitivity's than others. I pray that you don't

> acquire more sensitivity's because I can't take any more.

> I'm also sensitive to plastics or maybe the chemicals in them, and

> electrical frequency sensitive to some point. my ears haven't felt

> right since exposure and I thought I had lost some hearing but had it

> tested and they said no. they also popped one of my ear drums loose

> that had got stuck from my glands behind my ears swelling my ears

> shut which made them fell somewhat better. but I can't stand any loud

> noises and I guess this may be classified as noise sensitivity. but I

> also still cant hear as well or something interferes or something

> because its just not right. don't know really how to explain it.kind

> of like that felling you first get when your ears want to pop. but

> I'm wanting to connect it with the electrical frequency sensitivity.

> setting at a computer usually bothers my ears, sometimes worse than

> other times?????

> for quite a while cooking has been bothering me'the smells' but I've

> been getting some migraines where they are so bad i throw up. the

> last few times I fried meat in a skillet this has happened. I think

> I'm done cooking now.. I connected it with cooking the last few times

> but had to prove it to myself so i did last night and went from

> felling pretty good to wanting to die from the pain in my head and

> neck and back. . this is all so strange i cant even talk to anyone

> about it they look at me like I'm nuts.

> and I can't get my parents to understand because they cant see past

> the allergy part of mold. I'm going to have to go get the cataract

> removed because I can hardly see anymore to even type, its scary

> because I know there's more going on than just cataract but I cant

> even see to be driving myself anywhere anymore. I love my family but

> this is driving a wedge between us. it's like their ears close up

> when I try to explain it to them and it hurts my feelings and just

> makes me mad at them.

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

YOu are NOT getting worse with avoidance, but, seeing just HOW allergic

you really are.

Easy way to understand this:

Think of an onion, as you pull away the layers you expose more. WIth

avoidance your total body load is starting to get reduced. YOu have been

so overloaded that you can not really see how many reactions you are

having. As soon as the body stops getting more hits, it becomes apparent

just what ELSE you sre allergic to. YPu reach a point where you actually

stop reacting as you are so loaded up you can not perceive sany further

reactions.

When I got poisoned at med school, and everyone was coming down with this

HORRIBLE flu I was " wow, I must be healthy look, nit catching anything " .

Only after I was dianosised with chemcial injury did I learn I was sick,

but, was so overloaded I did not recognize the symptoms.

When I started to do avoidance and regain my health, my dr was THRILLED

when I called up and said I am sickkkkkkkkkkkkkkkkkkkkkkkk. As to her

that was my system starting to calm down.

Now, I react to everything nd catch everything, so thst former mode of

health guidance is gone. As my immune system says...you are sick so deal

with it

REgarding cooking, eve think that using a george forman grill OUTSIDE? I

am guessing you have electric burners as you have electrical sensitivity,

does natural gas bother you?

I know microwaves are bad for you, but that might be your only option, if

you elect NOT to do raw food diets.

Take out you NEVER know what crap is in it.

THis is not an easy illness to deal with in any manner shape or form.

On Fri, 27 Oct 2006, who wrote:

> Date: Fri, 27 Oct 2006 19:41:50 -0000

> From: who <jeaninem660@...>

> Reply-

>

> Subject: [] I have a question to ask.

>

> If you've been diagnosed with MCS , in a lawsuit does or will that

> cover all your sensitivity's or do they have to be listed as separate

> sensitivity's? are they diagnosed as seperate sensativity's? or all

> part of MCS. and has there been any mold cases won where MCS was the

> result of mold exposure?

> also has csm helped anyone with MCS ? I know I read that around six

> months is kind of a cut off time for csm to work, is this from start

> of exposure or after getting out? and if you have a allergic reaction

> to it does that counteract its affects to the point that it wont help

> at all? like if you have a mild reaction would it still be worth

> trying? or would the reaction off set any benefit it could have?

> will the mass spectrometry testing show all this? other than getting

> a ct scan on my sinuses, with out a doctor that knows actually what

> he's looking for, how can I get some testing done without getting a

> lot of misdiagnoses? and I'm kind of scared to have any testing with

> dyes used because I might be sensitive to some dyes used in foods, is

> this the same thing?

> you know, for a long time I really thought that mcs reactions was

> really limited to what you were exposed to only,while in the moldy

> environment. but with avoidance I'm either becoming reactive to more

> things or they are showing thierself more and I'm just now making the

> connections. not sure which way it is. I do know the heat sensitivity

> and noise sensitivity happened during that time because I noticed

> them than or right after getting out.but I didn't recognize them as

> sensitivity's than, just thought they were side effects(symptoms)

> that would go away but they haven't . and actually I still think that

> with MCS you don't become sensitive to more things, that everything

> you are sensitive to is sensitivity's you got while exposed to

> mold/myco's,inhaled along with them , because now with different

> exposures I get the same reactions, symptoms I had while exposed,

> just different ones with different exposures. I really believe that

> its what you inhale along with your mold exposure is what you become

> sensitive to and the damage to your receptors . maybe that's why some

> MCSer's have more sensitivity's than others. I pray that you don't

> acquire more sensitivity's because I can't take any more.

> I'm also sensitive to plastics or maybe the chemicals in them, and

> electrical frequency sensitive to some point. my ears haven't felt

> right since exposure and I thought I had lost some hearing but had it

> tested and they said no. they also popped one of my ear drums loose

> that had got stuck from my glands behind my ears swelling my ears

> shut which made them fell somewhat better. but I can't stand any loud

> noises and I guess this may be classified as noise sensitivity. but I

> also still cant hear as well or something interferes or something

> because its just not right. don't know really how to explain it.kind

> of like that felling you first get when your ears want to pop. but

> I'm wanting to connect it with the electrical frequency sensitivity.

> setting at a computer usually bothers my ears, sometimes worse than

> other times?????

> for quite a while cooking has been bothering me'the smells' but I've

> been getting some migraines where they are so bad i throw up. the

> last few times I fried meat in a skillet this has happened. I think

> I'm done cooking now.. I connected it with cooking the last few times

> but had to prove it to myself so i did last night and went from

> felling pretty good to wanting to die from the pain in my head and

> neck and back. . this is all so strange i cant even talk to anyone

> about it they look at me like I'm nuts.

> and I can't get my parents to understand because they cant see past

> the allergy part of mold. I'm going to have to go get the cataract

> removed because I can hardly see anymore to even type, its scary

> because I know there's more going on than just cataract but I cant

> even see to be driving myself anywhere anymore. I love my family but

> this is driving a wedge between us. it's like their ears close up

> when I try to explain it to them and it hurts my feelings and just

> makes me mad at them.

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

Symptoms change over time. When your body is away from mold and

chemicals you kind of repair a little but it is never the same.

Sometimes I can handle cooking, at my inlaws here I do better around

cooking maybe cuz it is a larger area to ventilate. But at my

apartment every time we cooked I would get chest pain, lung pain,

headaches sometimes. My husband now does all cooking. We use to stick

the Forman Grill on the balcony or the crock pot. But fried

foods were especially hard. Could be the Teflon chemical C8 that is

causing trouble in fried cooking. I have trouble with grills,

fireplaces --the air outside air, but sometimes it is harder to

handle than other times. I noticed after a migrane/vomiting epicode

odors are very difficult to handle where I could handle them before

getting the migrane. Kind of like when you are pregnant and can't

handle and odors but it is all the time. Sometimes when you have so

many chemicals around you it is difficult to determine which one or

all are causing pain. It is like if you worked at the Hershey plant

or a sewage plant you might not notice the constant odor but when you

are away for a while it would hit you in the face immediately.

Regarding the ears maybe a sinus infection. I was ok with cat scan

and dyes. Not allergic to iodine or shelled fish. Guess they use that

for the dyes. The doctors kept saying my sinuses were getting better

but I insisted on a cat scan and all of my sinuses were infected.

>

> > Date: Fri, 27 Oct 2006 19:41:50 -0000

> > From: who <jeaninem660@...>

> > Reply-

> >

> > Subject: [] I have a question to ask.

> >

> > If you've been diagnosed with MCS , in a lawsuit does or will that

> > cover all your sensitivity's or do they have to be listed as

separate

> > sensitivity's? are they diagnosed as seperate sensativity's? or

all

> > part of MCS. and has there been any mold cases won where MCS was

the

> > result of mold exposure?

> > also has csm helped anyone with MCS ? I know I read that around

six

> > months is kind of a cut off time for csm to work, is this from

start

> > of exposure or after getting out? and if you have a allergic

reaction

> > to it does that counteract its affects to the point that it wont

help

> > at all? like if you have a mild reaction would it still be worth

> > trying? or would the reaction off set any benefit it could have?

> > will the mass spectrometry testing show all this? other than

getting

> > a ct scan on my sinuses, with out a doctor that knows actually

what

> > he's looking for, how can I get some testing done without getting

a

> > lot of misdiagnoses? and I'm kind of scared to have any testing

with

> > dyes used because I might be sensitive to some dyes used in

foods, is

> > this the same thing?

> > you know, for a long time I really thought that mcs reactions was

> > really limited to what you were exposed to only,while in the moldy

> > environment. but with avoidance I'm either becoming reactive to

more

> > things or they are showing thierself more and I'm just now making

the

> > connections. not sure which way it is. I do know the heat

sensitivity

> > and noise sensitivity happened during that time because I noticed

> > them than or right after getting out.but I didn't recognize them

as

> > sensitivity's than, just thought they were side effects(symptoms)

> > that would go away but they haven't . and actually I still think

that

> > with MCS you don't become sensitive to more things, that

everything

> > you are sensitive to is sensitivity's you got while exposed to

> > mold/myco's,inhaled along with them , because now with different

> > exposures I get the same reactions, symptoms I had while exposed,

> > just different ones with different exposures. I really believe

that

> > its what you inhale along with your mold exposure is what you

become

> > sensitive to and the damage to your receptors . maybe that's why

some

> > MCSer's have more sensitivity's than others. I pray that you don't

> > acquire more sensitivity's because I can't take any more.

> > I'm also sensitive to plastics or maybe the chemicals in them, and

> > electrical frequency sensitive to some point. my ears haven't felt

> > right since exposure and I thought I had lost some hearing but

had it

> > tested and they said no. they also popped one of my ear drums

loose

> > that had got stuck from my glands behind my ears swelling my ears

> > shut which made them fell somewhat better. but I can't stand any

loud

> > noises and I guess this may be classified as noise sensitivity.

but I

> > also still cant hear as well or something interferes or something

> > because its just not right. don't know really how to explain

it.kind

> > of like that felling you first get when your ears want to pop. but

> > I'm wanting to connect it with the electrical frequency

sensitivity.

> > setting at a computer usually bothers my ears, sometimes worse

than

> > other times?????

> > for quite a while cooking has been bothering me'the smells' but

I've

> > been getting some migraines where they are so bad i throw up. the

> > last few times I fried meat in a skillet this has happened. I

think

> > I'm done cooking now.. I connected it with cooking the last few

times

> > but had to prove it to myself so i did last night and went from

> > felling pretty good to wanting to die from the pain in my head and

> > neck and back. . this is all so strange i cant even talk to anyone

> > about it they look at me like I'm nuts.

> > and I can't get my parents to understand because they cant see

past

> > the allergy part of mold. I'm going to have to go get the cataract

> > removed because I can hardly see anymore to even type, its scary

> > because I know there's more going on than just cataract but I cant

> > even see to be driving myself anywhere anymore. I love my family

but

> > this is driving a wedge between us. it's like their ears close up

> > when I try to explain it to them and it hurts my feelings and just

> > makes me mad at them.

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

[Guest guest]

I can believe this. If immune system is

overwhelmed, it might not be able to react. You

may be too weakened by so many things that it

might shut down. Two doctors have said I have

inflamed sinuses and maybe lungs but I find it

hard to believe because no congestion, not even

sneezing. HOWEVER years ago I thought I was

developing allergies since I was sneezing and

congested alot, already in my moldy house. I

test allergic both in skin tests and blood tests

to things like dust mites and cat (and mold and

toxins) but never sneeze, not congested. I was

given medicine to take for inflamation but afraid

to take it since I rash terribly to even mild

anti-microbials, like lately vit c powder, etc.

I think just being away from home and letting my

body do some repair that way but perhaps I take

tolerate the supplements and then maybe an

antifungal treatment for sinuses. I just know

right now I cannot.

--- Angel!! <jap2bemc@...> wrote:

>When I started to do avoidance and regain my

> health, my dr was THRILLED

> when I called up and said I am

> sickkkkkkkkkkkkkkkkkkkkkkkk. As to her

> that was my system starting to calm down.

>

> Now, I react to everything nd catch everything,

> so thst former mode of

> health guidance is gone. As my immune system

> says...you are sick so deal

> with it

>

[Guest guest]

-Thanks, all three of you. I've been getting pretty down lately with

it all. I just want my life back and dealing with this everyday is

getting to me big time. I'm pretty sure the cooking miagranes came

from the teflon pan. my apartments little and the smell lingers. I

cant stand to bake anything either. I cant tolerate being anywhere

close to charcoal and lighterfluid with a bbq. you'd think I'd lose

weight but it aint happening. my daughter brought by some drive

through the other day and I couldn't eat it because the grease smell

was gagging me. wont say where it came from but I can mark it off my

menu. this just all really sucks, I'm trying to stay strong

but I'm tired most all the time and it seems to take so much effort

to do anything. my family lives a few hours away so they really

haven't seen or have a clue what has happened to me and get mad at me

because I don't come up. they think I good just go get some allergy

shots and be all better. after what steroids did to me and reactions

to several inhalants, pain killers, etc. I'm pretty convience that

allergy shots are not going to help me. the chemical sensativity and

my sinuses are a much bigger problem.

-- In , " ldelp84227 " <ldelp84227@...>

wrote:

>

> Symptoms change over time. When your body is away from mold and

> chemicals you kind of repair a little but it is never the same.

> Sometimes I can handle cooking, at my inlaws here I do better

around

> cooking maybe cuz it is a larger area to ventilate. But at my

> apartment every time we cooked I would get chest pain, lung pain,

> headaches sometimes. My husband now does all cooking. We use to

stick

> the Forman Grill on the balcony or the crock pot. But fried

> foods were especially hard. Could be the Teflon chemical C8 that is

> causing trouble in fried cooking. I have trouble with grills,

> fireplaces --the air outside air, but sometimes it is harder to

> handle than other times. I noticed after a migrane/vomiting epicode

> odors are very difficult to handle where I could handle them before

> getting the migrane. Kind of like when you are pregnant and can't

> handle and odors but it is all the time. Sometimes when you have so

> many chemicals around you it is difficult to determine which one or

> all are causing pain. It is like if you worked at the Hershey plant

> or a sewage plant you might not notice the constant odor but when

you

> are away for a while it would hit you in the face immediately.

> Regarding the ears maybe a sinus infection. I was ok with cat scan

> and dyes. Not allergic to iodine or shelled fish. Guess they use

that

> for the dyes. The doctors kept saying my sinuses were getting

better

> but I insisted on a cat scan and all of my sinuses were infected.

>

>

>

> >

> > > Date: Fri, 27 Oct 2006 19:41:50 -0000

> > > From: who <jeaninem660@>

> > > Reply-

> > >

> > > Subject: [] I have a question to ask.

> > >

> > > If you've been diagnosed with MCS , in a lawsuit does or will

that

> > > cover all your sensitivity's or do they have to be listed as

> separate

> > > sensitivity's? are they diagnosed as seperate sensativity's? or

> all

> > > part of MCS. and has there been any mold cases won where MCS

was

> the

> > > result of mold exposure?

> > > also has csm helped anyone with MCS ? I know I read that around

> six

> > > months is kind of a cut off time for csm to work, is this from

> start

> > > of exposure or after getting out? and if you have a allergic

> reaction

> > > to it does that counteract its affects to the point that it

wont

> help

> > > at all? like if you have a mild reaction would it still be worth

> > > trying? or would the reaction off set any benefit it could have?

> > > will the mass spectrometry testing show all this? other than

> getting

> > > a ct scan on my sinuses, with out a doctor that knows actually

> what

> > > he's looking for, how can I get some testing done without

getting

> a

> > > lot of misdiagnoses? and I'm kind of scared to have any testing

> with

> > > dyes used because I might be sensitive to some dyes used in

> foods, is

> > > this the same thing?

> > > you know, for a long time I really thought that mcs reactions

was

> > > really limited to what you were exposed to only,while in the

moldy

> > > environment. but with avoidance I'm either becoming reactive to

> more

> > > things or they are showing thierself more and I'm just now

making

> the

> > > connections. not sure which way it is. I do know the heat

> sensitivity

> > > and noise sensitivity happened during that time because I

noticed

> > > them than or right after getting out.but I didn't recognize

them

> as

> > > sensitivity's than, just thought they were side effects

(symptoms)

> > > that would go away but they haven't . and actually I still

think

> that

> > > with MCS you don't become sensitive to more things, that

> everything

> > > you are sensitive to is sensitivity's you got while exposed to

> > > mold/myco's,inhaled along with them , because now with different

> > > exposures I get the same reactions, symptoms I had while

exposed,

> > > just different ones with different exposures. I really believe

> that

> > > its what you inhale along with your mold exposure is what you

> become

> > > sensitive to and the damage to your receptors . maybe that's

why

> some

> > > MCSer's have more sensitivity's than others. I pray that you

don't

> > > acquire more sensitivity's because I can't take any more.

> > > I'm also sensitive to plastics or maybe the chemicals in them,

and

> > > electrical frequency sensitive to some point. my ears haven't

felt

> > > right since exposure and I thought I had lost some hearing but

> had it

> > > tested and they said no. they also popped one of my ear drums

> loose

> > > that had got stuck from my glands behind my ears swelling my

ears

> > > shut which made them fell somewhat better. but I can't stand

any

> loud

> > > noises and I guess this may be classified as noise sensitivity.

> but I

> > > also still cant hear as well or something interferes or

something

> > > because its just not right. don't know really how to explain

> it.kind

> > > of like that felling you first get when your ears want to pop.

but

> > > I'm wanting to connect it with the electrical frequency

> sensitivity.

> > > setting at a computer usually bothers my ears, sometimes worse

> than

> > > other times?????

> > > for quite a while cooking has been bothering me'the smells' but

> I've

> > > been getting some migraines where they are so bad i throw up.

the

> > > last few times I fried meat in a skillet this has happened. I

> think

> > > I'm done cooking now.. I connected it with cooking the last few

> times

> > > but had to prove it to myself so i did last night and went from

> > > felling pretty good to wanting to die from the pain in my head

and

> > > neck and back. . this is all so strange i cant even talk to

anyone

> > > about it they look at me like I'm nuts.

> > > and I can't get my parents to understand because they cant see

> past

> > > the allergy part of mold. I'm going to have to go get the

cataract

> > > removed because I can hardly see anymore to even type, its scary

> > > because I know there's more going on than just cataract but I

cant

> > > even see to be driving myself anywhere anymore. I love my

family

> but

> > > this is driving a wedge between us. it's like their ears close

up

> > > when I try to explain it to them and it hurts my feelings and

just

> > > makes me mad at them.

> > >

> > >

> > >

> > >

> > >

> > >

> > > FAIR USE NOTICE:

> > >

> > >

> > >

[Guest guest]

-oh how well I know, and yes its not easy to deal with when you are

sick. I'm trying, but some days I just want to say '#### ##'. believe

me, a victory here would not only help me but also others in this

area but I'm not rich, and justice and fairness has nothing to do

with it.-- In , Angel!! <jap2bemc@...>

wrote:

>

> As someone who is in a lawsuit and it AIN'T pretty!

>

> The scum aka defense attorneys are trying to get my medical

diagnosis from

> toxic encephlaopthy to MCS. Since they can get the case thrown out

with

> my experts under Dauber. SInce MCS is NOT recognized in the courts

and

> that is the first strike against you.

>

> Usually a group of " symptoms " will be listed as a single

disease/diability

> etc.

>

> I have been batling these demons for over a year and they have

finally seen

> that I will not give up and have gone on the attack, if you have

the

> strength/energy go forit! Be PREPARED that most attorneys will

have you

> doing 90% of the work as they don't know what you know about the

illnesses

> yet they will take a whoping 40+% for contngency IF you can get

them to

> take it, if it'shourly you will still be doing the work.

>

> Try to handle it yourself up until trial then get an attorney, a

lot less

> headache in doing their work etc.

>

> Good luck and stay tuned for the hell I am going to raise come the

> beginning of the year with my lawsuit!

>

> On Fri, 27 Oct 2006, who wrote:

>

> > Date: Fri, 27 Oct 2006 19:41:50 -0000

> > From: who <jeaninem660@...>

> > Reply-

> >

> > Subject: [] I have a question to ask.

> >

> > If you've been diagnosed with MCS , in a lawsuit does or will that

> > cover all your sensitivity's or do they have to be listed as

separate

> > sensitivity's? are they diagnosed as seperate sensativity's? or

all

> > part of MCS. and has there been any mold cases won where MCS was

the

> > result of mold exposure?

> > also has csm helped anyone with MCS ? I know I read that around

six

> > months is kind of a cut off time for csm to work, is this from

start

> > of exposure or after getting out? and if you have a allergic

reaction

> > to it does that counteract its affects to the point that it wont

help

> > at all? like if you have a mild reaction would it still be worth

> > trying? or would the reaction off set any benefit it could have?

> > will the mass spectrometry testing show all this? other than

getting

> > a ct scan on my sinuses, with out a doctor that knows actually

what

> > he's looking for, how can I get some testing done without getting

a

> > lot of misdiagnoses? and I'm kind of scared to have any testing

with

> > dyes used because I might be sensitive to some dyes used in

foods, is

> > this the same thing?

> > you know, for a long time I really thought that mcs reactions was

> > really limited to what you were exposed to only,while in the moldy

> > environment. but with avoidance I'm either becoming reactive to

more

> > things or they are showing thierself more and I'm just now making

the

> > connections. not sure which way it is. I do know the heat

sensitivity

> > and noise sensitivity happened during that time because I noticed

> > them than or right after getting out.but I didn't recognize them

as

> > sensitivity's than, just thought they were side effects(symptoms)

> > that would go away but they haven't . and actually I still think

that

> > with MCS you don't become sensitive to more things, that

everything

> > you are sensitive to is sensitivity's you got while exposed to

> > mold/myco's,inhaled along with them , because now with different

> > exposures I get the same reactions, symptoms I had while exposed,

> > just different ones with different exposures. I really believe

that

> > its what you inhale along with your mold exposure is what you

become

> > sensitive to and the damage to your receptors . maybe that's why

some

> > MCSer's have more sensitivity's than others. I pray that you don't

> > acquire more sensitivity's because I can't take any more.

> > I'm also sensitive to plastics or maybe the chemicals in them, and

> > electrical frequency sensitive to some point. my ears haven't felt

> > right since exposure and I thought I had lost some hearing but

had it

> > tested and they said no. they also popped one of my ear drums

loose

> > that had got stuck from my glands behind my ears swelling my ears

> > shut which made them fell somewhat better. but I can't stand any

loud

> > noises and I guess this may be classified as noise sensitivity.

but I

> > also still cant hear as well or something interferes or something

> > because its just not right. don't know really how to explain

it.kind

> > of like that felling you first get when your ears want to pop. but

> > I'm wanting to connect it with the electrical frequency

sensitivity.

> > setting at a computer usually bothers my ears, sometimes worse

than

> > other times?????

> > for quite a while cooking has been bothering me'the smells' but

I've

> > been getting some migraines where they are so bad i throw up. the

> > last few times I fried meat in a skillet this has happened. I

think

> > I'm done cooking now.. I connected it with cooking the last few

times

> > but had to prove it to myself so i did last night and went from

> > felling pretty good to wanting to die from the pain in my head and

> > neck and back. . this is all so strange i cant even talk to anyone

> > about it they look at me like I'm nuts.

> > and I can't get my parents to understand because they cant see

past

> > the allergy part of mold. I'm going to have to go get the cataract

> > removed because I can hardly see anymore to even type, its scary

> > because I know there's more going on than just cataract but I cant

> > even see to be driving myself anywhere anymore. I love my family

but

> > this is driving a wedge between us. it's like their ears close up

> > when I try to explain it to them and it hurts my feelings and just

> > makes me mad at them.

> >

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

[Guest guest]

Just curious...have you tried Vitamin C, or were you the one who posted that was

making you sick? I have been careful to take Vitamin C even if I forget

anything else and it really has been helping me to feel better. I really think

boosting our immune systems is key.

Cathe

[] I have a question to ask.

> > >

> > > If you've been diagnosed with MCS , in a lawsuit does or will

that

> > > cover all your sensitivity's or do they have to be listed as

> separate

> > > sensitivity's? are they diagnosed as seperate sensativity's? or

> all

> > > part of MCS. and has there been any mold cases won where MCS

was

> the

> > > result of mold exposure?

> > > also has csm helped anyone with MCS ? I know I read that around

> six

> > > months is kind of a cut off time for csm to work, is this from

> start

> > > of exposure or after getting out? and if you have a allergic

> reaction

> > > to it does that counteract its affects to the point that it

wont

> help

> > > at all? like if you have a mild reaction would it still be worth

> > > trying? or would the reaction off set any benefit it could have?

> > > will the mass spectrometry testing show all this? other than

> getting

> > > a ct scan on my sinuses, with out a doctor that knows actually

> what

> > > he's looking for, how can I get some testing done without

getting

> a

> > > lot of misdiagnoses? and I'm kind of scared to have any testing

> with

> > > dyes used because I might be sensitive to some dyes used in

> foods, is

> > > this the same thing?

> > > you know, for a long time I really thought that mcs reactions

was

> > > really limited to what you were exposed to only,while in the

moldy

> > > environment. but with avoidance I'm either becoming reactive to

> more

> > > things or they are showing thierself more and I'm just now

making

> the

> > > connections. not sure which way it is. I do know the heat

> sensitivity

> > > and noise sensitivity happened during that time because I

noticed

> > > them than or right after getting out.but I didn't recognize

them

> as

> > > sensitivity's than, just thought they were side effects

(symptoms)

> > > that would go away but they haven't . and actually I still

think

> that

> > > with MCS you don't become sensitive to more things, that

> everything

> > > you are sensitive to is sensitivity's you got while exposed to

> > > mold/myco's,inhaled along with them , because now with different

> > > exposures I get the same reactions, symptoms I had while

exposed,

> > > just different ones with different exposures. I really believe

> that

> > > its what you inhale along with your mold exposure is what you

> become

> > > sensitive to and the damage to your receptors . maybe that's

why

> some

> > > MCSer's have more sensitivity's than others. I pray that you

don't

> > > acquire more sensitivity's because I can't take any more.

> > > I'm also sensitive to plastics or maybe the chemicals in them,

and

> > > electrical frequency sensitive to some point. my ears haven't

felt

> > > right since exposure and I thought I had lost some hearing but

> had it

> > > tested and they said no. they also popped one of my ear drums

> loose

> > > that had got stuck from my glands behind my ears swelling my

ears

> > > shut which made them fell somewhat better. but I can't stand

any

> loud

> > > noises and I guess this may be classified as noise sensitivity.

> but I

> > > also still cant hear as well or something interferes or

something

> > > because its just not right. don't know really how to explain

> it.kind

> > > of like that felling you first get when your ears want to pop.

but

> > > I'm wanting to connect it with the electrical frequency

> sensitivity.

> > > setting at a computer usually bothers my ears, sometimes worse

> than

> > > other times?????

> > > for quite a while cooking has been bothering me'the smells' but

> I've

> > > been getting some migraines where they are so bad i throw up.

the

> > > last few times I fried meat in a skillet this has happened. I

> think

> > > I'm done cooking now.. I connected it with cooking the last few

> times

> > > but had to prove it to myself so i did last night and went from

> > > felling pretty good to wanting to die from the pain in my head

and

> > > neck and back. . this is all so strange i cant even talk to

anyone

> > > about it they look at me like I'm nuts.

> > > and I can't get my parents to understand because they cant see

> past

> > > the allergy part of mold. I'm going to have to go get the

cataract

> > > removed because I can hardly see anymore to even type, its scary

> > > because I know there's more going on than just cataract but I

cant

> > > even see to be driving myself anywhere anymore. I love my

family

> but

> > > this is driving a wedge between us. it's like their ears close

up

> > > when I try to explain it to them and it hurts my feelings and

just

> > > makes me mad at them.

> > >

> > >

> > >

> > >

> > >

> > >

> > > FAIR USE NOTICE:

> > >

> > >

> > >

[Guest guest]

--yes, and eating a lot of oranges when i can get desent ones. don't

trust the orange juice.- In , " Cathe "

<cathe616@...> wrote:

>

> Just curious...have you tried Vitamin C, or were you the one who

posted that was making you sick? I have been careful to take Vitamin

C even if I forget anything else and it really has been helping me to

feel better. I really think boosting our immune systems is key.

>

> Cathe

>

> [] I have a question to ask.

> > > >

> > > > If you've been diagnosed with MCS , in a lawsuit does or

will

> that

> > > > cover all your sensitivity's or do they have to be listed

as

> > separate

> > > > sensitivity's? are they diagnosed as seperate

sensativity's? or

> > all

> > > > part of MCS. and has there been any mold cases won where

MCS

> was

> > the

> > > > result of mold exposure?

> > > > also has csm helped anyone with MCS ? I know I read that

around

> > six

> > > > months is kind of a cut off time for csm to work, is this

from

> > start

> > > > of exposure or after getting out? and if you have a

allergic

> > reaction

> > > > to it does that counteract its affects to the point that it

> wont

> > help

> > > > at all? like if you have a mild reaction would it still be

worth

> > > > trying? or would the reaction off set any benefit it could

have?

> > > > will the mass spectrometry testing show all this? other

than

> > getting

> > > > a ct scan on my sinuses, with out a doctor that knows

actually

> > what

> > > > he's looking for, how can I get some testing done without

> getting

> > a

> > > > lot of misdiagnoses? and I'm kind of scared to have any

testing

> > with

> > > > dyes used because I might be sensitive to some dyes used in

> > foods, is

> > > > this the same thing?

> > > > you know, for a long time I really thought that mcs

reactions

> was

> > > > really limited to what you were exposed to only,while in

the

> moldy

> > > > environment. but with avoidance I'm either becoming

reactive to

> > more

> > > > things or they are showing thierself more and I'm just now

> making

> > the

> > > > connections. not sure which way it is. I do know the heat

> > sensitivity

> > > > and noise sensitivity happened during that time because I

> noticed

> > > > them than or right after getting out.but I didn't recognize

> them

> > as

> > > > sensitivity's than, just thought they were side effects

> (symptoms)

> > > > that would go away but they haven't . and actually I still

> think

> > that

> > > > with MCS you don't become sensitive to more things, that

> > everything

> > > > you are sensitive to is sensitivity's you got while exposed

to

> > > > mold/myco's,inhaled along with them , because now with

different

> > > > exposures I get the same reactions, symptoms I had while

> exposed,

> > > > just different ones with different exposures. I really

believe

> > that

> > > > its what you inhale along with your mold exposure is what

you

> > become

> > > > sensitive to and the damage to your receptors . maybe

that's

> why

> > some

> > > > MCSer's have more sensitivity's than others. I pray that

you

> don't

> > > > acquire more sensitivity's because I can't take any more.

> > > > I'm also sensitive to plastics or maybe the chemicals in

them,

> and

> > > > electrical frequency sensitive to some point. my ears

haven't

> felt

> > > > right since exposure and I thought I had lost some hearing

but

> > had it

> > > > tested and they said no. they also popped one of my ear

drums

> > loose

> > > > that had got stuck from my glands behind my ears swelling

my

> ears

> > > > shut which made them fell somewhat better. but I can't

stand

> any

> > loud

> > > > noises and I guess this may be classified as noise

sensitivity.

> > but I

> > > > also still cant hear as well or something interferes or

> something

> > > > because its just not right. don't know really how to

explain

> > it.kind

> > > > of like that felling you first get when your ears want to

pop.

> but

> > > > I'm wanting to connect it with the electrical frequency

> > sensitivity.

> > > > setting at a computer usually bothers my ears, sometimes

worse

> > than

> > > > other times?????

> > > > for quite a while cooking has been bothering me'the smells'

but

> > I've

> > > > been getting some migraines where they are so bad i throw

up.

> the

> > > > last few times I fried meat in a skillet this has happened.

I

> > think

> > > > I'm done cooking now.. I connected it with cooking the last

few

> > times

> > > > but had to prove it to myself so i did last night and went

from

> > > > felling pretty good to wanting to die from the pain in my

head

> and

> > > > neck and back. . this is all so strange i cant even talk to

> anyone

> > > > about it they look at me like I'm nuts.

> > > > and I can't get my parents to understand because they cant

see

> > past

> > > > the allergy part of mold. I'm going to have to go get the

> cataract

> > > > removed because I can hardly see anymore to even type, its

scary

> > > > because I know there's more going on than just cataract but

I

> cant

> > > > even see to be driving myself anywhere anymore. I love my

> family

> > but

> > > > this is driving a wedge between us. it's like their ears

close

> up

> > > > when I try to explain it to them and it hurts my feelings

and

> just

> > > > makes me mad at them.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > FAIR USE NOTICE:

> > > >

> > > >

> > > >

[Guest guest]

I hate to tell you that you will never have your life, as you knew it, back.

I know

what you mean about the teflon pan. I use my Foreman outside on the

deck

because the smell really bothers me. We had to quit using the charcoal grill

this summer.

After my husband got it started I had to go inside but the odor lingered in

my nose for

hours. I felt like the odor was all around me and I couldn't get away from

it.

I have relatives, too, that think I should go to a good allergist and ask

why I drive

3 hrs. to see a Dr. Last Christmas I asked my relative not to burn scented

candles but

room had one burning. I mentioned it and they said they didn't have much of

a scent. I

told them I couldn't stay if they didn't blow them out. Even with that I got

a terrible

headache!! People just do not understand but mostly then DON'T WANT

TO!!!!!

BTW allergy shots did nothing for me except give me a huge hot bump on my

arm that

lasted for days. I haven't had one since I left my workplace. Haven't had a

sore throat,

cough, itchy eyes, not even a common cold and hardly a sneeze at all.

Hang in there and TAKE CARE OF YOURSELF. You alone know what makes you

sick

the others don't have a clue!!!! I carry a mask wherever I go and have no

problem using it

even though most people give me very strange looks.

Sue

-Thanks, all three of you. I've been getting pretty down lately with

it all. I just want my life back and dealing with this everyday is

getting to me big time. I'm pretty sure the cooking miagranes came

from the teflon pan. my apartments little and the smell lingers. I

cant stand to bake anything either. I cant tolerate being anywhere

close to charcoal and lighterfluid with a bbq. you'd think I'd lose

weight but it aint happening. my daughter brought by some drive

through the other day and I couldn't eat it because the grease smell

was gagging me. wont say where it came from but I can mark it off my

menu. this just all really sucks, I'm trying to stay strong

but I'm tired most all the time and it seems to take so much effort

to do anything. my family lives a few hours away so they really

haven't seen or have a clue what has happened to me and get mad at me

because I don't come up. they think I good just go get some allergy

shots and be all better. after what steroids did to me and reactions

to several inhalants, pain killers, etc. I'm pretty convience that

allergy shots are not going to help me. the chemical sensativity and

my sinuses are a much bigger problem.

[Guest guest]

Thanks, these are the same relatives that come to my home with tons of

cologne/perfume on. I've asked them not to but came with it on for the

4th of July. They thought that sitting outside it wouldn't bother me.

Actually I think it was worse since it was a hot and very humid day!!

I honestly think that people understand they just don't care and do

whatever they want.

Really sad when it's family!!

Sue

It's really rude to not believe people when what

they are asking is so simple to do even if they

do not understand or believe...just to blow out a

candle. Avoid them if you can. It's bad for

your self esteem and that matters too.

[Guest guest]

I have a juicer, but don't use it as often as I should. I know that

concentrated oj is not good, but I've read I'd need to eat a lot of oranges to

get the Vit. C I need, so I take the tablets. Vit. C has helped me

immeasurably, even with depression, believe it or not.

Cathe

[] I have a question to ask.

> > > >

> > > > If you've been diagnosed with MCS , in a lawsuit does or

will

> that

> > > > cover all your sensitivity's or do they have to be listed

as

> > separate

> > > > sensitivity's? are they diagnosed as seperate

sensativity's? or

> > all

> > > > part of MCS. and has there been any mold cases won where

MCS

> was

> > the

> > > > result of mold exposure?

> > > > also has csm helped anyone with MCS ? I know I read that

around

> > six

> > > > months is kind of a cut off time for csm to work, is this

from

> > start

> > > > of exposure or after getting out? and if you have a

allergic

> > reaction

> > > > to it does that counteract its affects to the point that it

> wont

> > help

> > > > at all? like if you have a mild reaction would it still be

worth

> > > > trying? or would the reaction off set any benefit it could

have?

> > > > will the mass spectrometry testing show all this? other

than

> > getting

> > > > a ct scan on my sinuses, with out a doctor that knows

actually

> > what

> > > > he's looking for, how can I get some testing done without

> getting

> > a

> > > > lot of misdiagnoses? and I'm kind of scared to have any

testing

> > with

> > > > dyes used because I might be sensitive to some dyes used in

> > foods, is

> > > > this the same thing?

> > > > you know, for a long time I really thought that mcs

reactions

> was

> > > > really limited to what you were exposed to only,while in

the

> moldy

> > > > environment. but with avoidance I'm either becoming

reactive to

> > more

> > > > things or they are showing thierself more and I'm just now

> making

> > the

> > > > connections. not sure which way it is. I do know the heat

> > sensitivity

> > > > and noise sensitivity happened during that time because I

> noticed

> > > > them than or right after getting out.but I didn't recognize

> them

> > as

> > > > sensitivity's than, just thought they were side effects

> (symptoms)

> > > > that would go away but they haven't . and actually I still

> think

> > that

> > > > with MCS you don't become sensitive to more things, that

> > everything

> > > > you are sensitive to is sensitivity's you got while exposed

to

> > > > mold/myco's,inhaled along with them , because now with

different

> > > > exposures I get the same reactions, symptoms I had while

> exposed,

> > > > just different ones with different exposures. I really

believe

> > that

> > > > its what you inhale along with your mold exposure is what

you

> > become

> > > > sensitive to and the damage to your receptors . maybe

that's

> why

> > some

> > > > MCSer's have more sensitivity's than others. I pray that

you

> don't

> > > > acquire more sensitivity's because I can't take any more.

> > > > I'm also sensitive to plastics or maybe the chemicals in

them,

> and

> > > > electrical frequency sensitive to some point. my ears

haven't

> felt

> > > > right since exposure and I thought I had lost some hearing

but

> > had it

> > > > tested and they said no. they also popped one of my ear

drums

> > loose

> > > > that had got stuck from my glands behind my ears swelling

my

> ears

> > > > shut which made them fell somewhat better. but I can't

stand

> any

> > loud

> > > > noises and I guess this may be classified as noise

sensitivity.

> > but I

> > > > also still cant hear as well or something interferes or

> something

> > > > because its just not right. don't know really how to

explain

> > it.kind

> > > > of like that felling you first get when your ears want to

pop.

> but

> > > > I'm wanting to connect it with the electrical frequency

> > sensitivity.

> > > > setting at a computer usually bothers my ears, sometimes

worse

> > than

> > > > other times?????

> > > > for quite a while cooking has been bothering me'the smells'

but

> > I've

> > > > been getting some migraines where they are so bad i throw

up.

> the

> > > > last few times I fried meat in a skillet this has happened.

I

> > think

> > > > I'm done cooking now.. I connected it with cooking the last

few

> > times

> > > > but had to prove it to myself so i did last night and went

from

> > > > felling pretty good to wanting to die from the pain in my

head

> and

> > > > neck and back. . this is all so strange i cant even talk to

> anyone

> > > > about it they look at me like I'm nuts.

> > > > and I can't get my parents to understand because they cant

see

> > past

> > > > the allergy part of mold. I'm going to have to go get the

> cataract

> > > > removed because I can hardly see anymore to even type, its

scary

> > > > because I know there's more going on than just cataract but

I

> cant

> > > > even see to be driving myself anywhere anymore. I love my

> family

> > but

> > > > this is driving a wedge between us. it's like their ears

close

> up

> > > > when I try to explain it to them and it hurts my feelings

and

> just

> > > > makes me mad at them.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > FAIR USE NOTICE:

> > > >

> > > >

> > > >

[Guest guest]

It's really rude to not believe people when what

they are asking is so simple to do even if they

do not understand or believe...just to blow out a

candle. Avoid them if you can. It's bad for

your self esteem and that matters too.

--- ssr3351@... wrote:

Last Christmas I asked my

> relative not to burn scented

> candles but

> room had one burning. I mentioned it and they

> said they didn't have much of

> a scent. I

> told them I couldn't stay if they didn't blow

> them out.

[Guest guest]

Sue,

I can't speak for your family, but I know I've been guilty of wearing perfume in

medical offices, not even thinking until after I'm sitting there that someone

might be offended or gagged by my scent!! (Y'know, AFTER reading the sign on

the wall that says not to wear scent to the office...) I didn't do it on

purpose, it was a simple oversight. And the weird thing is, that I cannot stand

the smell of tobacco smoke (especially coming through the ventilation system in

a building) and I avoid the detergent aisle in the grocery store like the

plague!! So I should know better, but I think most people are just ignorant

about what truly harms or offends others. If I know something bothers someone I

do my best

to comply. I'm sorry your family has been thoughtless regarding your wishes.

That really stinks (pun intended).

Cathe

Re: [] Re: I have a question to ask.

Thanks, these are the same relatives that come to my home with tons of

cologne/perfume on. I've asked them not to but came with it on for the

4th of July. They thought that sitting outside it wouldn't bother me.

Actually I think it was worse since it was a hot and very humid day!!

I honestly think that people understand they just don't care and do

whatever they want.

Really sad when it's family!!

Sue

It's really rude to not believe people when what

they are asking is so simple to do even if they

do not understand or believe...just to blow out a

candle. Avoid them if you can. It's bad for

your self esteem and that matters too.

[Guest guest]

Cathe, I think you're right about people just not thinking about it. Many

just don't

realize that fragrances really bother others. I wore perfume years ago and

I'm sure

others didn't like it but I just didn't know any better. However, my own

family members

know why I'm sick but choose not to believe it. That's the sad part!

Sue

Sue,

I can't speak for your family, but I know I've been guilty of wearing

perfume in medical offices, not even thinking until after I'm sitting there

that

someone might be offended or gagged by my scent!! (Y'know, AFTER reading the

sign on the wall that says not to wear scent to the office...) I didn't do it

on purpose, it was a simple oversight. And the weird thing is, that I cannot

stand the smell of tobacco smoke (especially coming through the ventilation

[Guest guest]

Ok, now I know I am nit brain dead...at this moment...but, if you sre on

this group and see the inherent dangers of fragrances, why are you wearing

them? If you are already getting reactive to the detergent aisle, why are

you adding more toxins to an apparently toxic body...are you trying to

speed up the overload?

On Mon, 30 Oct 2006, Cathe wrote:

> Date: Mon, 30 Oct 2006 23:22:15 -0500

> From: Cathe <cathe616@...>

> Reply-

>

> Subject: Re: [] Re: I have a question to ask.

>

> Sue,

> I can't speak for your family, but I know I've been guilty of wearing perfume

in medical offices, not even thinking until after I'm sitting there that someone

might be offended or gagged by my scent!! (Y'know, AFTER reading the sign on

the wall that says not to wear scent to the office...) I didn't do it on

purpose, it was a simple oversight. And the weird thing is, that I cannot stand

the smell of tobacco smoke (especially coming through the ventilation system in

a building) and I avoid the detergent aisle in the grocery store like the

plague!! So I should know better, but I think most people are just ignorant

about what truly harms or offends others. If I know something bothers someone I

do my best

> to comply. I'm sorry your family has been thoughtless regarding your wishes.

That really stinks (pun intended).

>

> Cathe

> Re: [] Re: I have a question to ask.

>

>

>

>

>

> Thanks, these are the same relatives that come to my home with tons of

> cologne/perfume on. I've asked them not to but came with it on for the

> 4th of July. They thought that sitting outside it wouldn't bother me.

> Actually I think it was worse since it was a hot and very humid day!!

> I honestly think that people understand they just don't care and do

> whatever they want.

> Really sad when it's family!!

> Sue

>

>

>

>

>

> It's really rude to not believe people when what

> they are asking is so simple to do even if they

> do not understand or believe...just to blow out a

> candle. Avoid them if you can. It's bad for

> your self esteem and that matters too.

>

>

[Guest guest]

I mostly wear essential oils as perfume, or else I wear scents with very few

ingredients. I wear them because I like the smell and until recently it never

really crossed my mind they might bother someone else. I thought I made the

point that scents do not bother me so I don't think how they might bother

someone else. I don't know that my patchouli oil is adding toxins to my body.

I thought this was a group for getting support or information about these

issues, not getting flamed or blasted because we are not politically perfect.

We are all at various levels of enlightenment and I think we need to keep that

in mind when voicing our opinions.

Cathe

[Guest guest]

COnsidering I am a full blown activist, placation is not one of the terms

used to describe my personality.

Lets discuss Essential oils. What they are is a concotion of a FEW drops

of a plant aka rose. The scent is extracted predominately thru chemcial

extraction versus steam, as chemcials are CHEAPER....remember the name of

the game is PROFITS, PROFITS PROFITS.

Now, lets have a wuick discussion on the histological properties of the

brain. Primarily a lipid aka " fatty " organ. There is an old agade in

science..like attracts like....so, the " ESENTIAL OILS " have to hit the

CNS /brain in order to elict the desired repsonse...so, the oil STAYS in

the brain. It is not a passing fancy so to speak.

There are no OFFICIAL studies that EO's are effective regarding elicing a

repsonse. People just wear them thinking that they are a SAFER

alternative to fragrances, when in fact they carry some of the same

inherent dangers.

This group is not soley to molly codle, sometimes, the cold water approach

is effective as it wakes people up and they sit up and take notice.

KC is a great moderator AT TIMES " wink " , but he knows my posts are not

meant to attack but to teach...no one ever said teaching had to be with

kid gloves.

Been in the trenches too long and sugar coating has by passed me since I

started my lawsuit. Once you deal with scumbag insurance

defense attorneys, you get more calloused and less tolerant at all levels.

On Wed, 1 Nov 2006, Cathe wrote:

> Date: Wed, 1 Nov 2006 21:34:56 -0500

> From: Cathe <cathe616@...>

> Reply-

>

> Subject: [] Re: I have a question to ask.

>

> I mostly wear essential oils as perfume, or else I wear scents with very few

ingredients. I wear them because I like the smell and until recently it never

really crossed my mind they might bother someone else. I thought I made the

point that scents do not bother me so I don't think how they might bother

someone else. I don't know that my patchouli oil is adding toxins to my body.

>

> I thought this was a group for getting support or information about these

issues, not getting flamed or blasted because we are not politically perfect.

We are all at various levels of enlightenment and I think we need to keep that

in mind when voicing our opinions.

>

> Cathe

>

>

>

>

[Guest guest]

Cathe this chemical problem is hard for any of us to totally

understand. Atleast you are interested in learning about the

fragrances-- that is more than a lot of people are willing to do. I

can use products that some with mcs cannot handle such as fragrance

free Tide or fragrance free Dove, etc. Some with this illness can't

even use those products. I have people tell me they don't like

fragrances either than they will have fragrance on. Even my mom says

she can't handle fragrances but I can detect it on her even though I

never get to see her. We are all at different levels, and we all

are learning.

>

>

>

>

> Cathe, I think you're right about people just not thinking about

it. Many

> just don't

> realize that fragrances really bother others. I wore perfume years

ago and

> I'm sure

> others didn't like it but I just didn't know any better. However,

my own

> family members

> know why I'm sick but choose not to believe it. That's the sad

part!

>

> Sue

>

>

>

>

> Sue,

> I can't speak for your family, but I know I've been guilty of

wearing

> perfume in medical offices, not even thinking until after I'm

sitting there that

> someone might be offended or gagged by my scent!! (Y'know, AFTER

reading the

> sign on the wall that says not to wear scent to the office...) I

didn't do it

> on purpose, it was a simple oversight. And the weird thing is,

that I cannot

> stand the smell of tobacco smoke (especially coming through the

ventilation

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I guess we all have our own approach. I am not an activist, just a

mom trying to save my husband and me. Luckily my daughter made it so

far, and has her own place. I have dealt with lawyers, judges, and

I am very mad. I don't get agressive with people like I use to--

even though I wasn't really agressive before. But my daughter would

always sneak fragranced lotions and it was hard on the relationship.

She was just 13 and at the age where they wear all the stuff. And to

move out of so many moldy homes was very hard on our family. So I

try not to say to much because everyone is basically tired of hearing

about mold and chemicals, even though I don't think anyone has been

fully educated.

I had many friends and family when I got ill and am very isolated now

so I don't push anything down anyone's throat, but I also don't stand

to be poisoned.

>

> > Date: Wed, 1 Nov 2006 21:34:56 -0500

> > From: Cathe <cathe616@...>

> > Reply-

> >

> > Subject: [] Re: I have a question to ask.

> >

> > I mostly wear essential oils as perfume, or else I wear scents

with very few ingredients. I wear them because I like the smell and

until recently it never really crossed my mind they might bother

someone else. I thought I made the point that scents do not bother

me so I don't think how they might bother someone else. I don't know

that my patchouli oil is adding toxins to my body.

> >

> > I thought this was a group for getting support or information

about these issues, not getting flamed or blasted because we are not

politically perfect. We are all at various levels of enlightenment

and I think we need to keep that in mind when voicing our opinions.

> >

> > Cathe

> >

> >

> >

> >

[Guest guest]

I don't allow anyone to try to expose me.

I have DEMANDED, THREATENED and WON my right to safety in the court system

so far in NV.

No in person appearances at either the discovery commissioners level or

currently with the judge. Trial is going to be another story...we will

see how the attorney of my experts handle my safety.

I make people LEAVE if I smell naything. FOrtnuately, my husband has a

good sense of smell and is not he not chemically sensiitive and tells

people to leave.

It must be HARD with a teenager and their desire to be fumed up like their

friends.

Jeanne Hunt in MO her daughters all have illnesses related to fragracnes

etc., her youngest has started an environmental group to create

awareness...that might be a avenue for you to try wiht yours.

On Thu, 2 Nov 2006, ldelp84227 wrote:

> Date: Thu, 02 Nov 2006 20:48:56 -0000

> From: ldelp84227 <ldelp84227@...>

> Reply-

>

> Subject: [] Re: I have a question to ask.

>

> I guess we all have our own approach. I am not an activist, just a

> mom trying to save my husband and me. Luckily my daughter made it so

> far, and has her own place. I have dealt with lawyers, judges, and

> I am very mad. I don't get agressive with people like I use to--

> even though I wasn't really agressive before. But my daughter would

> always sneak fragranced lotions and it was hard on the relationship.

> She was just 13 and at the age where they wear all the stuff. And to

> move out of so many moldy homes was very hard on our family. So I

> try not to say to much because everyone is basically tired of hearing

> about mold and chemicals, even though I don't think anyone has been

> fully educated.

>

> I had many friends and family when I got ill and am very isolated now

> so I don't push anything down anyone's throat, but I also don't stand

> to be poisoned.

>

>

>>

>>> Date: Wed, 1 Nov 2006 21:34:56 -0500

>>> From: Cathe <cathe616@...>

>>> Reply-

>>>

>>> Subject: [] Re: I have a question to ask.

>>>

>>> I mostly wear essential oils as perfume, or else I wear scents

> with very few ingredients. I wear them because I like the smell and

> until recently it never really crossed my mind they might bother

> someone else. I thought I made the point that scents do not bother

> me so I don't think how they might bother someone else. I don't know

> that my patchouli oil is adding toxins to my body.

>>>

>>> I thought this was a group for getting support or information

> about these issues, not getting flamed or blasted because we are not

> politically perfect. We are all at various levels of enlightenment

> and I think we need to keep that in mind when voicing our opinions.

>>>

>>> Cathe

>>>

>>>

>>>

>>>

[Guest guest]

Cathe,

I agree – this group should be about support and information, and the vast

majority here are helpful and supportive in a kind way. Certainly the message

can and should be delivered in a non-abusive manner. We all have reason to be

angry – but we aren’t each other’s reasons for it!

As to essential oils – I don’t know much about them, but my personal

experience is that I react as badly to fresh flowers as I do to chemical scents.

And patchouli also elicits a strong reaction. So, the issue may not be entirely

chemical. My doctor explained that it is ‘volatile organic compounds’ –which can

include natural scents, mold spores, chemicals and many other things. (I

researched VOC’s then – but don’t remember the details right now!)

For us, it doesn’t matter how much other’s wear or how many ingredients – any

amount is basically intolerable. And it’s not a matter of ‘liking or not

liking’ what it smells like. It is our body’s physical reaction to the scent –

shortness of breath, feeling on the verge of passing out, ringing ears, lung

pain, etc. A difficult thing to live with in today’s world of frangrancing

every possible product!

You may not be as sensitive as some of us are. I hope you are not in an

overloaded state that will yield to hypersensitivity as your mold exposure

lessens. That is what happened to me and many others here.

I am glad you are keeping an open mind and willing to be ‘enlightened’. I wish

some of the people in my life would attempt to understand like you!

Sue J

>I mostly wear essential oils as perfume, or else I wear scents with very few

>ingredients. I wear them because I like the smell and until recently it never

really >crossed my mind they might bother someone else. I thought I made the

point that scents do not bother me so I don't think how they might bother

someone else. I don't know that my patchouli oil is adding toxins to my body.

>

> I thought this was a group for getting support or information about these

issues, not getting flamed or blasted because we are not politically perfect. We

are all at various levels of enlightenment and I think we need to keep that in

mind when voicing our opinions.

>

> Cathe

>

Posted by: " ldelp84227 " ldelp84227@... ldelp84227

…….. I have people tell me they don't like

fragrances either than they will have fragrance on. Even my mom says

she can't handle fragrances but I can detect it on her even though I

never get to see her. We are all at different levels, and we all

are learning.

– maybe the fragrance you detect is from another product type

she uses: fabric softener, hair spray, other hair products, even scented

deodorants. I was upset that my mom kept smelling of perfume when she insisted

she wasn’t wearing any – I finally figured out it was her hairspray!

Sue J

[Guest guest]

Sue,

I will have to research more on VOC's. I am puzzled because I know essential

oils are used in aromatherapy and as medicinals (making them helpful) and they

seem a more natural approach than prescription drugs. BUT they make some people

very sick. So I'm intrigued but still exploring.

At any rate, I'm not wearing my patchouli today...and didn't yesterday. <g>

Thanks for your post.

Cathe