Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Hello, I don't know if you have had a pet scan, but it is one of the most useful test to determine exactly what part of your brain is being impacted. I recommend the Pet Scan Center at the University of Irvine in Southern California. THe Doctor who reads them is Dr. Wu and he is VERY familiar with the impact mold has on the brain. If you can't get to Southern California, I would still try to contact Dr. Wu and ask his advise as to what type of Pet scan you should get done. Once you get the results a neuro cognitive behavorist can take the information and will know exactly what you need to do to help you. I hope this helps! LiveSimply <quackadillian@...> wrote: I am trying to find out if anyone has found any kind of cognitive or behavioral therapy to be useful for their post-mold neuro issues? You know, the kinds of therapy that people have after brain injuries.. like car injuries and the like.. I am trying to find some kind of way to work whatever brain 'muscles' that are nonfunctional for me now, because I am having some real problems with them. I have had neurological workups done, and now I need to find a doctor who can structure this for me, - do something with that data.. something that will help me get better. So I can get back to work. The thing I am having the most problems with are sequential things.. do this, then this, then this.. IS THAT POSSIBLE? IS ANYONE DOING IT? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 , What kind of things can they do?? I didn't think the brain healed or didn't heal very well anyway. I don't mind radiography if there is something to be gained by it. Or, did you do it just for diagnostic purposes, just to know what is going on...? --- Riffee <hotsandonmyfeet@...> wrote: > Hello, >I don't know if you have had a pet scan, but > it is one of the most useful test to determine > exactly what part of your brain is being > impacted Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 , (or anyone else) Any specifics you can supply (specific people to contact, first names, email addresses, phone numbers.. etc...) would be very helpful.. Imaging sounds like it makes a lot of sense, although I need to get insurance to pay for it, somehow, I am unemployed. That is the main reason I have not done much bopping around and visiting with the various specialists. (although I would like to, I can't afford it.) I'm a technical guy, and I can deal with science.. talking with scientists, etc. (had worked with them for a good chunk of my pre-mold life) So, in other words, I am looking for specific information, contacts, methods, imaging information, keywords for searches, etc. *Thank you* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 i do the crossword puzzle in the newspaper every nite, & it sometimes takes me FOREVER......but it seems to help. " if ya don't use it, ya lose it " , you know.... vicki [] Any kind of cognitive therapy for mold neuro issues? I am trying to find out if anyone has found any kind of cognitive or behavioral therapy to be useful for their post-mold neuro issues? You know, the kinds of therapy that people have after brain injuries.. like car injuries and the like.. I am trying to find some kind of way to work whatever brain 'muscles' that are nonfunctional for me now, because I am having some real problems with them. I have had neurological workups done, and now I need to find a doctor who can structure this for me, - do something with that data.. something that will help me get better. So I can get back to work. The thing I am having the most problems with are sequential things.. do this, then this, then this.. IS THAT POSSIBLE? IS ANYONE DOING IT? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 I would think hyperbaric oxygen treatment if you could afford would have impact on any tissue damage. Brain heals more slowly than other tissue. --- LiveSimply <quackadillian@...> wrote: > I am trying to find out if anyone has found any > kind of cognitive or > behavioral therapy to be useful Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Hello, I had similar problems with my brain following mould exposure in 2000 and subsequent development of MCS. I have been following a mould desensitization program and have had a slow but steady recovery, so that I am able to work full time from my home. Last November I had a severe perfume exposure and actually missed weeks of work, and was left with severe generalized pain 24/7 which did not respond to pain medication. I began doing research on Strokes because I felt that the process might be similar. To make a long story short, I tried hyperbaric oxygen therapy last April (had 3 x 1 hr sessions, three days in a row) and noticed dramatic improvement. The greatest effect that I noticed was that the pain went away, most of it during the first session! I also noticed that I was thinking 'clearer' and my memory improved. I also found that 'brain games' such as crossword puzzles; & sudoku; were a fun way to consistently get my brain working. Initially I couldn't even follow knitting patterns, but I have recovered that capability and only wish I had more time to do my hobbies. Best of luck to you on your journey to wellness. Cheers, a --- In , LiveSimply <quackadillian@...> wrote: > > I am trying to find out if anyone has found any kind of cognitive or > behavioral therapy to be useful for their post-mold neuro issues? > > You know, the kinds of therapy that people have after brain injuries.. like > car injuries and the like.. > > I am trying to find some kind of way to work whatever brain 'muscles' that > are nonfunctional for me now, because I am having some real problems with > them. I have had neurological workups done, and now I need to find a doctor > who can structure this for me, - do something with that data.. something > that will help me get better. So I can get back to work. > > The thing I am having the most problems with are sequential things.. do > this, then this, then this.. > > IS THAT POSSIBLE? > IS ANYONE DOING IT? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 I'll look into that, thank you. What is a 'mold desensitization program'? Avoidance? On 11/20/06, yukon_paula <yukon_paula@...> wrote: > > Hello, > > I had similar problems with my brain following mould exposure in 2000 > and subsequent development of MCS. I have been following a mould > desensitization program and have had a slow but steady recovery, so > that I am able to work full time from my home. Last November I had a > severe perfume exposure and actually missed weeks of work, and was > left with severe generalized pain 24/7 which did not respond to pain > medication. I began doing research on Strokes because I felt that the > process might be similar. To make a long story short, I tried > hyperbaric oxygen therapy last April (had 3 x 1 hr sessions, three > days in a row) and noticed dramatic improvement. The greatest effect > that I noticed was that the pain went away, most of it during the > first session! I also noticed that I was thinking 'clearer' and my > memory improved. I also found that 'brain games' such as crossword > puzzles; & sudoku; were a fun way to consistently get my brain > working. Initially I couldn't even follow knitting patterns, but I > have recovered that capability and only wish I had more time to do my > hobbies. > > Best of luck to you on your journey to wellness. > > Cheers, > > a > > > > > > I am trying to find out if anyone has found any kind of cognitive or > > behavioral therapy to be useful for their post-mold neuro issues? > > > > You know, the kinds of therapy that people have after brain > injuries.. like > > car injuries and the like.. > > > > I am trying to find some kind of way to work whatever > brain 'muscles' that > > are nonfunctional for me now, because I am having some real > problems with > > them. I have had neurological workups done, and now I need to find > a doctor > > who can structure this for me, - do something with that data.. > something > > that will help me get better. So I can get back to work. > > > > The thing I am having the most problems with are sequential > things.. do > > this, then this, then this.. > > > > IS THAT POSSIBLE? > > IS ANYONE DOING IT? > > > > > > Quote Link to comment Share on other sites More sharing options...
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