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Re: Any kind of cognitive therapy for mold neuro issues?

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Hello,

I don't know if you have had a pet scan, but it is one of the most useful test

to determine exactly what part of your brain is being impacted. I recommend the

Pet Scan Center at the University of Irvine in Southern California. THe Doctor

who reads them is Dr. Wu and he is VERY familiar with the impact mold has on the

brain. If you can't get to Southern California, I would still try to contact

Dr. Wu and ask his advise as to what type of Pet scan you should get done. Once

you get the results a neuro cognitive behavorist can take the information and

will know exactly what you need to do to help you.

I hope this helps!

LiveSimply <quackadillian@...> wrote:

I am trying to find out if anyone has found any kind of cognitive or

behavioral therapy to be useful for their post-mold neuro issues?

You know, the kinds of therapy that people have after brain injuries.. like

car injuries and the like..

I am trying to find some kind of way to work whatever brain 'muscles' that

are nonfunctional for me now, because I am having some real problems with

them. I have had neurological workups done, and now I need to find a doctor

who can structure this for me, - do something with that data.. something

that will help me get better. So I can get back to work.

The thing I am having the most problems with are sequential things.. do

this, then this, then this..

IS THAT POSSIBLE?

IS ANYONE DOING IT?

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, What kind of things can they do?? I didn't

think the brain healed or didn't heal very well

anyway. I don't mind radiography if there is

something to be gained by it.

Or, did you do it just for diagnostic purposes,

just to know what is going on...?

--- Riffee <hotsandonmyfeet@...>

wrote:

> Hello,

>I don't know if you have had a pet scan, but

> it is one of the most useful test to determine

> exactly what part of your brain is being

> impacted

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, (or anyone else)

Any specifics you can supply (specific people to contact, first names, email

addresses, phone numbers.. etc...)

would be very helpful..

Imaging sounds like it makes a lot of sense, although I need to get

insurance to pay for it, somehow, I am unemployed.

That is the main reason I have not done much bopping around and visiting

with the various specialists.

(although I would like to, I can't afford it.)

I'm a technical guy, and I can deal with science.. talking with scientists,

etc. (had worked with them for a good chunk of my pre-mold life)

So, in other words, I am looking for specific information, contacts,

methods, imaging information, keywords for searches, etc.

*Thank you*

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i do the crossword puzzle in the newspaper every nite, & it sometimes takes me

FOREVER......but it seems to help. " if ya don't use it, ya lose it " , you

know....

vicki

[] Any kind of cognitive therapy for mold neuro issues?

I am trying to find out if anyone has found any kind of cognitive or

behavioral therapy to be useful for their post-mold neuro issues?

You know, the kinds of therapy that people have after brain injuries.. like

car injuries and the like..

I am trying to find some kind of way to work whatever brain 'muscles' that

are nonfunctional for me now, because I am having some real problems with

them. I have had neurological workups done, and now I need to find a doctor

who can structure this for me, - do something with that data.. something

that will help me get better. So I can get back to work.

The thing I am having the most problems with are sequential things.. do

this, then this, then this..

IS THAT POSSIBLE?

IS ANYONE DOING IT?

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I would think hyperbaric oxygen treatment if you

could afford would have impact on any tissue

damage. Brain heals more slowly than other

tissue.

--- LiveSimply <quackadillian@...> wrote:

> I am trying to find out if anyone has found any

> kind of cognitive or

> behavioral therapy to be useful

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  • 3 weeks later...

Hello,

I had similar problems with my brain following mould exposure in 2000

and subsequent development of MCS. I have been following a mould

desensitization program and have had a slow but steady recovery, so

that I am able to work full time from my home. Last November I had a

severe perfume exposure and actually missed weeks of work, and was

left with severe generalized pain 24/7 which did not respond to pain

medication. I began doing research on Strokes because I felt that the

process might be similar. To make a long story short, I tried

hyperbaric oxygen therapy last April (had 3 x 1 hr sessions, three

days in a row) and noticed dramatic improvement. The greatest effect

that I noticed was that the pain went away, most of it during the

first session! I also noticed that I was thinking 'clearer' and my

memory improved. I also found that 'brain games' such as crossword

puzzles; & sudoku; were a fun way to consistently get my brain

working. Initially I couldn't even follow knitting patterns, but I

have recovered that capability and only wish I had more time to do my

hobbies.

Best of luck to you on your journey to wellness.

Cheers,

a

--- In , LiveSimply <quackadillian@...>

wrote:

>

> I am trying to find out if anyone has found any kind of cognitive or

> behavioral therapy to be useful for their post-mold neuro issues?

>

> You know, the kinds of therapy that people have after brain

injuries.. like

> car injuries and the like..

>

> I am trying to find some kind of way to work whatever

brain 'muscles' that

> are nonfunctional for me now, because I am having some real

problems with

> them. I have had neurological workups done, and now I need to find

a doctor

> who can structure this for me, - do something with that data..

something

> that will help me get better. So I can get back to work.

>

> The thing I am having the most problems with are sequential

things.. do

> this, then this, then this..

>

> IS THAT POSSIBLE?

> IS ANYONE DOING IT?

>

>

>

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I'll look into that, thank you.

What is a 'mold desensitization program'? Avoidance?

On 11/20/06, yukon_paula <yukon_paula@...> wrote:

>

> Hello,

>

> I had similar problems with my brain following mould exposure in 2000

> and subsequent development of MCS. I have been following a mould

> desensitization program and have had a slow but steady recovery, so

> that I am able to work full time from my home. Last November I had a

> severe perfume exposure and actually missed weeks of work, and was

> left with severe generalized pain 24/7 which did not respond to pain

> medication. I began doing research on Strokes because I felt that the

> process might be similar. To make a long story short, I tried

> hyperbaric oxygen therapy last April (had 3 x 1 hr sessions, three

> days in a row) and noticed dramatic improvement. The greatest effect

> that I noticed was that the pain went away, most of it during the

> first session! I also noticed that I was thinking 'clearer' and my

> memory improved. I also found that 'brain games' such as crossword

> puzzles; & sudoku; were a fun way to consistently get my brain

> working. Initially I couldn't even follow knitting patterns, but I

> have recovered that capability and only wish I had more time to do my

> hobbies.

>

> Best of luck to you on your journey to wellness.

>

> Cheers,

>

> a

>

>

> >

> > I am trying to find out if anyone has found any kind of cognitive or

> > behavioral therapy to be useful for their post-mold neuro issues?

> >

> > You know, the kinds of therapy that people have after brain

> injuries.. like

> > car injuries and the like..

> >

> > I am trying to find some kind of way to work whatever

> brain 'muscles' that

> > are nonfunctional for me now, because I am having some real

> problems with

> > them. I have had neurological workups done, and now I need to find

> a doctor

> > who can structure this for me, - do something with that data..

> something

> > that will help me get better. So I can get back to work.

> >

> > The thing I am having the most problems with are sequential

> things.. do

> > this, then this, then this..

> >

> > IS THAT POSSIBLE?

> > IS ANYONE DOING IT?

> >

> >

> >

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