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Chris--new to the group.

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Hey Chris!

First of all, welcome!

Sorry for the reason you are here,

But glad you are here!

As I have said sooooo many times before, this is more of a family than a support

group....you will, of course, find support here, but also love, compassion,

answers with no BS!

I was diagnosed based upon pretty much everythin else being

excluded....the only test I did not undergo was a pregnancy test....but, I carry

a " prednisone baby " now...lol.

My eventual diagnosis was confirmed by a very high ferritin level...prednisone

settled my other symptons....the pain and fatigue still

" broke " through....I have been on pred. For app. Two and a half years now...I do

not like the side-effects but I honestly believe I would be

Dead without it.....but, to answer your question, based upon what you have

described and your doc's diagnosis. It sounds like " Sir Still's " .

Hang in there and definitele keep coming back here...

God bless you, my friend!

Larry B. From NC.

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