RE: Re: 's probably going to Erie-LOTS of question

[Guest guest]

Thank God for calm husbands! My husband is usually very calm and has a plan

when I'm totally stressed about something. Let us know when you're able to

get to Erie.

Brayden is 8 mos. old now and was diagnosed last month with a 29 degree

curve. We are seeing a doctor here in Portland, OR at Shriners who put

Brayden in a brace. I do not think our doctor utilizes the Mehta casting

technique so we are in the process of contacting someone in SLC. We are

supposed to have x-rays again in a month, so we will see. However, I was

told more than once that the brace is ONLY for keeping the curve at 29

degrees-not to expect straightening. This I don't understand.

Anyway-I'll be thinking of you and your family and saying a prayer for .

Bev J

From: infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of Tasha Fontenot

Sent: Sunday, August 12, 2007 7:21 PM

To: infantile_scoliosis

Subject: Re: Re: 's probably going to Erie-LOTS of

question

Bev,

Thank you so much. It is so hard sometimes. I have my good weeks, months and

then we go to an appt. I then start to second guess everything we are doing.

Only because we have not had " great " success with 's current doctor. I

have tried to get him on board with Ms. Mehta's techniques, but he will not

change " his way " . Since we are not getting the correction that I know so

many children are I am ready to change doctors.

I was so stressed out about going to Erie. My husband gets home, I tell him

everything and he says well I guess we will take a Fall vacation. He just

doesn't stress. Thank God!

I can't remember Brayden's age or curve info. Where do you go for treatment

now? Is he in a cast or brace currently?

Keep us posted.

Take care,

Tasha

bjforney@... <mailto:bjforney%40comcast.net> wrote: Tasha--

We are almost in the same boat and I believe within the next month we'll be

heading to SLC from Oregon to see if Brayden can be a Mehta Casting patient.

This is a lot of stress you are under right now but remember to just take

one day at a time. You are doing the right thing and is blessed to have

your for his mother. We are our babies' only advocates and we're doing the

best for our children by seeking the treatment that works and always

questioning what's happening with our babies. I will pray for you. We will

all look back on this one day and realize what we accomplished for our

beautiful children and maybe others will not have to go through this because

of our efforts.

Bev

-------------- Original message --------------

From: " babymaxpd "

Great! I will call you when I put Max down for nap around 1 pm or

thereafter.

Thanks,

Aekta

> > >

> > > Hi everyone-first let me thank all of you that responded about

> > 's diaper change hurting.

> > > We went back yesterday to ish Rite. He did have very

> little

> > skin irritation on his hip bones. They gave me stuff to put on

it

> > and trimmed his cast a bit........he seems to be better today.

> > Thank God we live close.

> > > This cast I am afraid could possible do nothing for him and

> could

> > make his curve worse. His hip bones are pretty much out of the

> cast.

> > I was numb when I left there yesterday. They have no rhyme or

> > reason for what they do. Enough said.

> > > I talked to Jane this morning and we have a tentative

appt

> on

> > Oct. 22. I say tentative because she thinks Dr. really

> > needs to look at the most recent Xray.

> > > OK here goes the questions......................

> > > Our 1st appt would not be until Monday, Oct 22. IF Dr.

> > thinks he needs to be casted again or even go into a brace, we

> would

> > have to wait until Thursday, Oct. 25. That is a few days and I

> > have no clue what we would do in between that time. Mini-

> > vacation! She said they have housing..........I would rather

stay

> > in a hotel, but for that many days it might be cheaper. Who all

> is

> > allowed to stay in the parent housing? We have (twin

> brother)

> > to consider. We don't have family in town so we would either

have

> > to take him or arrange something else.

> > > You guys PLEASE say a prayer for me/us. I know this will all

> work

> > out, but I am not sure how. I am already stressing about it all

> and

> > have not even talked to my husband. That will be another

factor.

> > His business/work.

> > > Anyway I will send Dr. his current xray and then see

> what

> > he thinks.

> > > Would we go ahead and take the cast off as scheduled for

> September

> > 11 and have him go into the brace? Should I ask Dr.

about

> > that?

> > > I am sure I will have many other questions in the next week or

2

> > so stay tuned.

> > > Thanks everyone for your support.

> > > Tasha

> > >

> > >

> > >

> > >

> > >

> > >

> > > Tasha

> > > Mommy of twin boys- and 27mths

> > > Fort Worth, Texas

> > >

> > >

> > > ---------------------------------

> > > Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to

> see

> > what's on, when.

> > >

> > >