Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Note: forwarded message attached. Do you ? Read only the mail you want - SpamGuard. Russ you are ALWAYS a big help to me with all of you knowledge. I thank you from the bottom of my heart for everything you have done for me and the others in this group. I think it is so cool that we all can be all over the world and still be connected together through this group it just facinates me tremendously. As far as the electrical unit implanted there is someone here who has that and I cant remember who it was. I do remember the story she told about forgetting to turn it off and fell asleep with it on. WHO WAS THAT??? Sharon was that you who was telling the group about that?oh well we will find out soon enough. Thanks again Russ Oh yeah I almost forgot!!!!! Guess what happen to me today??? I was fully accepted for my SSD got final confirmation today. WOOOOOOOOOOO HOOOOOOOOOO I am so happy that finally after 10 years they agree with me. Sincerely Janine In Cali Sanford <mucols@...> wrote: Janine...I have spent almost my entire adult life outside the U.S. In someways in several places in the world healthcare is far ahead of thatin the U.S. The artificial spinal disk, for instance, had been inuse in Europe for ten years or so before it was finally approved foruse in the U.S. in 2002 (or was it 2003?). A life-long friend ofmine, an emergency physician, passed along these comments to me inrecent e-mails:"We have made some marvelous progress with treatments for heartdisease and cancer, for example, but our approach to back problemsis pagan and backwards, at best.""Pain control in the US is now changing, once again following theleadership of Europe, with a liberal attitude towards medications.The US is so political that it (maybe justifiably) protects UScompanies and inventions to the exclusion of some really efficaciousdrugs and procedures.Not too long ago, I had a friend who would fly to Vancouver BCjust to buy her (med name deleted) one of the best migraine headachedrugs to come along in ages. The FDC blocked that drug for about 10years, making the Swiss company jump thru all kinds of hoops,calling it "clinical trials."That politization of an agency of the government is probably fairlytypical, since our country demands political solutions to problems,rather than scientific solutions. The present goofballadministration scoffs at science, so you know that a strangepolitical process is guiding the development and licensing of newdrugs."The procedure that I elected was pioneered by a French (I think)physician and is available in Europe. I expect that this procedurewould also be available in Canada and Australia. I had my surgery inMexico (where the current fusion technique of pedicle screws andflexible bars was developed). Back care as practiced in Europe has,up to now, been ahead of that in the U.S. although I'm very, verysanguine about the minimally invasive spine surgery that Dr. Chiuand other practitioners in the U.S. have developed. I believe thatthis approach is the future of spine surgery and that the U.S. isnow, and will continue to be, in the vanguard from this point on. Ibelieve that you would receive excellent advice and care at theStanford clinic, and the staff there might be able to give you afirst-hand assessment of Dr. Chiu and his work. Apart from its manyother advantages, minimally invasive surgery promises to be muchcheaper and, coupled with conservative techniques, it promises tomake fusion a rare and final option. For that reason alone those whoprofit from the "expensive tinker toys" will fight it. I happened tobe in Mexico, unable to travel because of the pain, and so Icouldn't get to an MISS clinic. The procedure that I elected was,under the circumstances, the very best alternative (and the surgeontop-notch).Those seeking MISS care must be particularly watchful. As with othermedical interventions that are in their infancy unscrupulous,unethical and inadequately trained practitioners tend to jump on thebandwagon in order to fleece a gullible and uninformed public. Thisis particularly true for Minimally Invasive Spine Surgery, a fieldthat has yet to receive the medical profession's official seal ofapproval – that is, there is no board certification. For instance Iwould suspect the fellow who advertises minimally invasive FUSION. Idon't believe it.As for pain relief, I haven't seen here any reference to thoseelectrical devices that are implanted near a nerve and that, whenactivated by an external hand held control unit, block pain impulsesto the brain. Anyone suffering intractable pain that meds can'trelieve might do well to check into this option. It is available inthe U.S. and, for those who "qualify," it can give amazing relief.On the negative side, there are reports that with use over time itmay become less effective. Spine docs should know about this unit,and they should be able to tell you whether or not you would be acandidate. If yours can't, find someone who can. OK, I've rambledon, I hope it helps. Russ__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 > Oh yeah I almost forgot!!!!! Guess what happen to me today??? I was fully accepted for my SSD got final confirmation today. WOOOOOOOOOOO HOOOOOOOOOO I am so happy that finally after 10 years they agree with me. > > Sincerely Janine In Cali That is wonderful news Janine! I am so very happy for you. Bet you are doing cartwheels in your mind. Katrina :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Janine... I sincerely hope that I've been a help, and congratulations on winning your 10 year battle! Russ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 thanks Russ and Katrina LOL cartwheels what are those LOL I am trying to figure out what to do first. I think that I am going to get me the Mattress that I have needed for my backKatrina <sweettoobeme@...> wrote: > Oh yeah I almost forgot!!!!! Guess what happen to me today??? I was fully accepted for my SSD got final confirmation today. WOOOOOOOOOOO HOOOOOOOOOO I am so happy that finally after 10 years they agree with me. > > Sincerely Janine In Cali That is wonderful news Janine! I am so very happy for you.Bet you are doing cartwheels in your mind.Katrina :-) Sports Rekindle the Rivalries. Sign up for Fantasy Football Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Hey Janine , That's great news. congrats. I bet that you are just about to bust with excitement from the good news. I'm really glad for you. TAKE AS BEST CARE AS YOU CAN AND SAFE LARRY,group moderator ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Oh yeah I almost forgot!!!!! Guess what happen to me today??? I was fully accepted for my SSD got final confirmation today. WOOOOOOOOOOO HOOOOOOOOOO I am so happy that finally after 10 years they agree with me. Sincerely Janine In Cali REMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Larry its your turn now K??? were you able to call them yet?? You deserve this as much as I do if not more. I have been praying for you have a great evening k? Sincerely Janine In CaliLarry Gullahorn <lagullahorn68-69@...> wrote: Hey Janine , That's great news. congrats. I bet that you are just about to bust with excitement from the good news. I'm really glad for you. TAKE AS BEST CARE AS YOU CAN AND SAFE LARRY,group moderator ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Oh yeah I almost forgot!!!!! Guess what happen to me today??? I was fully accepted for my SSD got final confirmation today. WOOOOOOOOOOO HOOOOOOOOOO I am so happy that finally after 10 years they agree with me. Sincerely Janine In Cali REMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Hi Janine, I haven't called them yet. I'm going to wait until the middle of next week to call. I want to let a little time to pass after July 4th. before I call. I may wait until Wednesday,or Thursday. I'm still going to try to get my doctor to agree to come to my hearing. Well,I'm going to stop and go and get some sleep. I'm hurting and am going to take a nap. May you have a better day tomorrow than today. TAKE AS BEST CARE AS YOU CAN LARRY Janine Newman <jnewmans1@...> wrote: Larry its your turn now K??? were you able to call them yet?? You deserve this as much as I do if not more. I have been praying for you have a great evening k? Sincerely Janine In CaliREMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 I hope that you are feeling better after your nap. you are probably hurting after all that you did yesterday. well i will talk to you later and I will pray for you tonight. keep me posted Sincerely Janine In CaliLarry Gullahorn <lagullahorn68-69@...> wrote: Hi Janine, I haven't called them yet. I'm going to wait until the middle of next week to call. I want to let a little time to pass after July 4th. before I call. I may wait until Wednesday,or Thursday. I'm still going to try to get my doctor to agree to come to my hearing. Well,I'm going to stop and go and get some sleep. I'm hurting and am going to take a nap. May you have a better day tomorrow than today. TAKE AS BEST CARE AS YOU CAN LARRY Janine Newman <jnewmans1@...> wrote: Larry its your turn now K??? were you able to call them yet?? You deserve this as much as I do if not more. I have been praying for you have a great evening k? Sincerely Janine In Cali REMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Sports Rekindle the Rivalries. Sign up for Fantasy Football Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 I hope that you are feeling better after your nap. you are probably hurting after all that you did yesterday. well i will talk to you later and I will pray for you tonight. keep me posted Sincerely Janine In CaliLarry Gullahorn <lagullahorn68-69@...> wrote: Hi Janine, I haven't called them yet. I'm going to wait until the middle of next week to call. I want to let a little time to pass after July 4th. before I call. I may wait until Wednesday,or Thursday. I'm still going to try to get my doctor to agree to come to my hearing. Well,I'm going to stop and go and get some sleep. I'm hurting and am going to take a nap. May you have a better day tomorrow than today. TAKE AS BEST CARE AS YOU CAN LARRY Janine Newman <jnewmans1@...> wrote: Larry its your turn now K??? were you able to call them yet?? You deserve this as much as I do if not more. I have been praying for you have a great evening k? Sincerely Janine In Cali REMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Sports Rekindle the Rivalries. Sign up for Fantasy Football Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 I hope that you are feeling better after your nap. you are probably hurting after all that you did yesterday. well i will talk to you later and I will pray for you tonight. keep me posted Sincerely Janine In CaliLarry Gullahorn <lagullahorn68-69@...> wrote: Hi Janine, I haven't called them yet. I'm going to wait until the middle of next week to call. I want to let a little time to pass after July 4th. before I call. I may wait until Wednesday,or Thursday. I'm still going to try to get my doctor to agree to come to my hearing. Well,I'm going to stop and go and get some sleep. I'm hurting and am going to take a nap. May you have a better day tomorrow than today. TAKE AS BEST CARE AS YOU CAN LARRY Janine Newman <jnewmans1@...> wrote: Larry its your turn now K??? were you able to call them yet?? You deserve this as much as I do if not more. I have been praying for you have a great evening k? Sincerely Janine In Cali REMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND Sports Rekindle the Rivalries. Sign up for Fantasy Football Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 where is there a safe community for mcs'rs on the East Coast? Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 felice <anupath14@...> wrote: > > so, ok, total avoidance is the key for me at this point?? > so, where do i go? thx, felice > Wouldn't it be great if someone with mold sensitivity identified a safe place and just said " go here " . Someday HLA Moldies will cooperate and lay out guidelines for good places and warnings for bad, but that's in the future. If you saw Dr Klein's website, www.stachy.5u.com , he had to make numerous moves before finding a safe place. I did in in one shot, because I knew that when I went out to the desert and 'got clear', there was such a " relative shift " when I was re-exposed that it took a major part of guessing out of the equation. I would go out and spend time in the boondocks and then go directly to the proposed place. A lot of " potentials " that I thought might have been OK, were instantly revealed as NOT. I saved myself a great deal of trouble. When I did find a place, just like Dr Klein found, I knew that dragging spores back in my hair would be too much. I scrubbed an area of linoleum in a place that was already good, and made that my " safe zone " . I would not even sit in that area until I had taken a shower and washed my hair thoroughly. I slept on an inflatable and washable backpacking sleeping pad - which I washed every day. No pillow. Only a rolled up towel. Washed in a " good place " . I would change to a different towel every time I woke up. There is a killer plume in Incline Village. It took me many times of passing through before I realized that just going through it momentarily would keep me ill for days. Once I started decontaminating right away after passing through plumes, and not waiting for symptoms to start up - I can hardly express how many CFS symptoms were simply washed right out of my life. It isn't just where you go. It's how you go there. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Felice--I am fairly new here but I have read several months worth of posts. I live in Richmond VA in an old historic house. I have one room on a slab foundation so I stay in it and like you shower in the older part of the house. Sometimes I feel better anywhere else abut this house and sometimes not but the doctor says I am recovering (go figure). Can you move to a newer place? I am looking at houses about 8 years old and on slabs but you have to be careful. I lost the house I felt the best in and now the next best one had the shower replaced because the pan leaked. I have been looking at houses for about 6 months and they are so difficult to find. Perhaps we can support one another on this site. Jane Ann felice <anupath14@...> wrote: so, ok, total avoidance is the key for me at this point?? Most of the day I feel something going on with my tongue. A sting, irritation, discomfort, taste, whatever. Took a hike today and it felt ok. cant even tell what is a trigger anymore. I'm airing my musty basement with recently installed windows and one fan. So, that air is now venting around me. There's no winning is there?? I walk past the area and feel a tongue reaction which stays with me. Where do I go from here??? Still waiting for the last of my blood work from Dr. Shoemaker and my phone consult. I would like to go to a " safe for msc community " on the east coast for a while so I can heal. Any ideas?? I have a very old dog that I cannot leave anywhere tho. Thank God I sleep well with help. I'm still trying the fight the " basement " mustiness. Have 2 air puifiers going now with the dehumidifier. Who knows. To shower, I rush up the musty stairs with my mask, shower in the musty bathroom, and rush back down. So, this is my life. Of course, laundry daily. My machines are probably all screwed up. So, now what?? I'm just " one big reactor " !!!! It's amazing I can think at all! so, where do i go? thx, felice __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 --did you feel worse when you were detoxing mold? did your legs and arms ever become weak? Jane Ann erikmoldwarrior <erikmoldwarrior@...> wrote: felice <anupath14@...> wrote: > > so, ok, total avoidance is the key for me at this point?? > so, where do i go? thx, felice > Wouldn't it be great if someone with mold sensitivity identified a safe place and just said " go here " . Someday HLA Moldies will cooperate and lay out guidelines for good places and warnings for bad, but that's in the future. If you saw Dr Klein's website, www.stachy.5u.com , he had to make numerous moves before finding a safe place. I did in in one shot, because I knew that when I went out to the desert and 'got clear', there was such a " relative shift " when I was re-exposed that it took a major part of guessing out of the equation. I would go out and spend time in the boondocks and then go directly to the proposed place. A lot of " potentials " that I thought might have been OK, were instantly revealed as NOT. I saved myself a great deal of trouble. When I did find a place, just like Dr Klein found, I knew that dragging spores back in my hair would be too much. I scrubbed an area of linoleum in a place that was already good, and made that my " safe zone " . I would not even sit in that area until I had taken a shower and washed my hair thoroughly. I slept on an inflatable and washable backpacking sleeping pad - which I washed every day. No pillow. Only a rolled up towel. Washed in a " good place " . I would change to a different towel every time I woke up. There is a killer plume in Incline Village. It took me many times of passing through before I realized that just going through it momentarily would keep me ill for days. Once I started decontaminating right away after passing through plumes, and not waiting for symptoms to start up - I can hardly express how many CFS symptoms were simply washed right out of my life. It isn't just where you go. It's how you go there. - --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 jane mosher wrote: > > --did you feel worse when you were detoxing mold? did your legs and arms ever become weak? Jane Ann > Weak? Some mornings I thought for sure that the circulation had been cut off beyond the point of no return: totally cold and dead. I had peripheral necrosis that looked like frostbite. Had many scary hours trying to regain circulation and believing that I might be facing amputation. Dr Shoemaker writes in Mold Warriors that some people weren't so lucky as to keep all their toes. Dr Cheney noted this anomaly in the curious " loss of fingerprints " that some of us had. When you read the Townsend letter (below), you may get a sense of the frustration that I've had that CFS researchers carry on their theory-making in total isolation from the CFS cluster that got the entire phenomenon going. You never know when some of us might have some significant clues to related! I've spoken with other members of the " Original CFS cohort " and they are all in complete disbelief that endless CFS theorizing goes on, and they don't see fit to speak with us. And it wasn't " peanuts " in the teachers lounge at Truckee High school. - http://www.tldp.com/issue/157-8/157pub.htm Letter from the Publisher: Chronic Fatigue, Mycotoxins, Abnormal Clotting and Other Notes Over the past decade there has been a steady increase in alternative medicine meetings. Some are organization-based, some are presentations of individual practitioners, and some have been sponsored by groups focused on a certain protocol or sponsored by a manufacturing company. Our Townsend Calendar is burgeoning with meeting announcements, yet can certainly not be considered all- encompassing. Although the majority of these meetings do not carry continuing medical education credits, the material offered greatly exceeds the breadth and scope of our writings in the Townsend Letter and all the other publications in the alternative medical arena. Clearly, we need to have representative individuals report the pertinent findings or summarize practitioner techniques from a broader number of the meetings held. One recent meeting held this June in Mallorca, Spain, organized by American Biologics Company as well as American Biologics-Mexico Hospital, organized by Brigitte G. Byrd, offered a relaxed atmosphere to review a number of orthomolecular and anti-aging theories. Dr. R. Cheney, MD, PhD's work has been discussed in these pages and elsewhere, but it is always more provocative to hear the lecturer in person review his/her findings. As director of the Cheney Clinic in Charlotte, North Carolina, Dr. Cheney has been preeminent in researching chronic fatigue syndrome. Notes from his lecture offer some interesting " pearls " about CFS which we may overlook. We may look at this problem as " Energy/Brain/Pain " as a triad of brain fag, depleted energy and pain are required before CFS can be diagnosed. Based on good epidemiology, CFS affects 1% of the population. The number of disability claims based on CFS has climbed 500% from 1989-1993. If year of onset is graphed from 1983 to present, the highest number of cases are seen to have started in 1987. It is unclear what etiologic factor might be responsible for onset in 1987, although this is essentially 4 years after a similar dating can be made for AIDS. A review of the physical stigmata for CFS is interesting indeed. There is lymphatic pain, lymphodynia (pain of the lymph system) particularly supraclavicular pain and posterior cervical pain, but no lymphadenopathy, no lymph node enlargement. Peculiarly, there is predominance of left-sided lymphatic pain, which Cheney speculates is due to the lymphatic duct emptying in the left jugular vein. Swelling is usually noted over the left supraclavicular area. In 80% of patients, a crimson crescent is noted over the uvula and tonsils; this is different from the swelling and erythema of strep throat. Patients are so hyperreflexic that practitioners need to take caution not to place themselves in the path of the reflexing lower extremity on testing. There is abnormality on simple standing with eyes closed; it is not unusual for a patient to topple over. Very unusual is the loss of fingerprints on many of the fingers; police departments report it's very rare for fingerprints to be obliterated, yet nearly 40% of CFS patients have some fingerprint obliteration, and 10% cannot be fingerprinted whatsoever. This appears to be related to a periarteritis secondary to fibroblasts congregating in the distal circulation. Cheney suspects that CFS patients, mimicking in many ways a scurvy process, might have scurvy contributing to fingerprint obliteration. Chronic fatigue syndrome reveals remarkable abnormalities in the laboratory arena as well, but not in usual chemistry and CBC profiles. Researchers investigating cleavage by-products of antibody digestion, a relatively new area of study in immunology, are fascinated by the rapidity of immune product digestion in the CFS patient. What most people would digest immunologically in 20 minutes, the CFS patient will cleave in 20 seconds. If some of these immune proteins are important in regulating energy mechanisms, this would mean that the CFS patient is depleting important enzyme mechanisms 60 times faster than normal. Such mechanism activation and depletion is seen not only in studies of cleavage by-products, but also in relatively new studies of mitochondrial regulation and synthesis of ATP, demonstrating a severe abnormality in CFS patients. In the brain arena, abnormalities are now being noted in the CFS patient cerebellum which are not seen in AIDS, Alzheimer's, or Parkinson's. Studies comparing relative index of blood flow in the cerebrum compared to the cerebellum demonstrates an 81% reduction in cerebellar blood flow of CFS patients, not seen in any of the aforementioned brain disorders. It is to be noted for the skeptics who consider CFS to be a form of depression, that a true case of clinical depression has no abnormality in cerebral to cerebellum blood flow. Abnormal proteins are also being demonstrated in the CFS patient's spinal fluid, not seen in the normal or other brain disorders. CFS patients show abnormality in their ACTH/adrenal biochemistry. Cheney's clinic has studied the CFS patient using bicycle ergometry, which clearly and definitively demonstrates the weakness is related to abnormality in their aerobic metabolism of energy. A normal individual and athlete will show typical vital capacities of Oxygen, vO2 of 100%. The same study of the CFS patient, using the bicycle, reveals vO2 of 60%. Cheney compares this to a different organism, an organism adjusted to anaerobic metabolism, who does not use normal oxidative mechanisms of energy production. A normal individual attempts to convert from anaerobic to aerobic metabolism as quickly as possible, as anaerobic mechanisms are highly inefficient; the CFS patient survives continuously on anaerobic mechanisms and quickly fails any effort to change to normal aerobic mechanisms. Cheney's presentation provided some insight as to why careless anti-oxidant supplementation of a CFS patient may actually worsen the patient instead of improve him/her. When the CFS metabolism is under such high oxidative stress, adding high levels of certain antioxidants will simply deplete the limited glutathione reserves the individual has and potentially worsen the mitochondrial energy mechanisms, increasing the anaerobic metabolism. It is necessary to ensure that vitamin supplements, including basic antioxidants, also include chelated minerals, superoxide dismutase, green pigmented foods, bioflavonoids and glutathione to prevent upregulation of anaerobic metabolism. Mycotoxins Undoubtedly, the most controversial work presented at the meeting was by A.V. Constantini, MD, who notes that he is " just a general internist, " a country doctor who has taken his retirement days to investigate this relatively new area of pathology, mycotoxins. We are pleased to note that Dr. Constantini has agreed to submit future columns to the Townsend Letter to investigate this field, mycotoxins, exploring its relationship to cancer and cardiovascular pathology as well as other chronic diseases. His organization, the Collaborative Center for Mycotoxins in Food is located in Freiburg, Germany. At the meeting, Dr. Constantini noted that his work is not based on individual examinations in a private practice, but on research in the peer-review literature which has been either ignored or overlooked. His presentation focused on gout which his literature review concludes is not a disease of metabolism but an infectious, granulomatous disorder based on abnormality of mycotoxicity, due to exposure to fungus. Looking at the veterinarian literature, it is observed that chicken and turkey develop gout from mycotoxins or oosporeins. Animals dosed with this mycotoxin develop gout. Could this represent a fungal etiology? Examination of chickens does not reveal uric acid tophi in joints, but massive complex granuloma with presence of an orchratoxin. Other animal studies reveal gout processes, again with an infective etiology. Dr. Constantini questions how a metabolic process, like gout, can form lesions holding draining pus? He then looked at one of the standard gout cures, colchicine, to understand its mechanism of action. Colchicine has no specific activity against uric acid, but is highly effective in the acute gout attack. His literature research reveals that colchicine has an anti-fungal activity. He then looked at agents which are reportedly anti-fungal, griseofulvin, for example. Griseofulvin has been shown to eliminate toenail fungus after continued use for one year. Griseofulvin also has a remarkable effect against gout. This led Dr. Constantini to suspect that fungus may play an important role in causing a broad number of diseases. His research suggests that fungal etiologies may be seen in some forms of cancer, cardiovascular disease, alcoholism, psoriasis, leukemia, rheumatoid arthritis, bowel-related diseases, and sarcoidosis. Given the wide range of disorders with a common etiology, could there be a dietary relationship to fungal disorders? Yes, yes, yes! The number one culprit in the diet is PEANUTS! Peanuts are attacked in storage by aflatoxin, one of the foremost causes of liver cancer and a highly toxic agent in its own right. Unfortunately other grains are equally suspect of carrying fungal mycotoxins. Cereal grains and rice are all stored for periods of time, allowing mycotoxin exposure and proliferation. Complicating exposure of grains, any fermentation process allows for further introduction of mycotoxins. This means that essentially all beers and wines carry mycotoxins as well. Bread baked with yeast offers its own unique mycotoxin. Hence the classic alcohol, bread and cheese diet we love and crave offers us a continuous exposure to mycotoxins which in Dr. Constantini's eyes offers us a perfect diet to progressively develop chronic disease. Look for Dr. Constantini to share this work with us on these pages in the future. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 I have read about Dr. Cheney and he thinks it is all caused by a patent foreman ovale--=1ie a hole in the heart. I have head that he has 100 patients on a trial taking a page long list of things. I saw my internist today and she says I have Raynaud's symptoms. erikmoldwarrior <erikmoldwarrior@...> wrote: jane mosher wrote: > > --did you feel worse when you were detoxing mold? did your legs and arms ever become weak? Jane Ann > Weak? Some mornings I thought for sure that the circulation had been cut off beyond the point of no return: totally cold and dead. I had peripheral necrosis that looked like frostbite. Had many scary hours trying to regain circulation and believing that I might be facing amputation. Dr Shoemaker writes in Mold Warriors that some people weren't so lucky as to keep all their toes. Dr Cheney noted this anomaly in the curious " loss of fingerprints " that some of us had. When you read the Townsend letter (below), you may get a sense of the frustration that I've had that CFS researchers carry on their theory-making in total isolation from the CFS cluster that got the entire phenomenon going. You never know when some of us might have some significant clues to related! I've spoken with other members of the " Original CFS cohort " and they are all in complete disbelief that endless CFS theorizing goes on, and they don't see fit to speak with us. And it wasn't " peanuts " in the teachers lounge at Truckee High school. - http://www.tldp.com/issue/157-8/157pub.htm Letter from the Publisher: Chronic Fatigue, Mycotoxins, Abnormal Clotting and Other Notes Over the past decade there has been a steady increase in alternative medicine meetings. Some are organization-based, some are presentations of individual practitioners, and some have been sponsored by groups focused on a certain protocol or sponsored by a manufacturing company. Our Townsend Calendar is burgeoning with meeting announcements, yet can certainly not be considered all- encompassing. Although the majority of these meetings do not carry continuing medical education credits, the material offered greatly exceeds the breadth and scope of our writings in the Townsend Letter and all the other publications in the alternative medical arena. Clearly, we need to have representative individuals report the pertinent findings or summarize practitioner techniques from a broader number of the meetings held. One recent meeting held this June in Mallorca, Spain, organized by American Biologics Company as well as American Biologics-Mexico Hospital, organized by Brigitte G. Byrd, offered a relaxed atmosphere to review a number of orthomolecular and anti-aging theories. Dr. R. Cheney, MD, PhD's work has been discussed in these pages and elsewhere, but it is always more provocative to hear the lecturer in person review his/her findings. As director of the Cheney Clinic in Charlotte, North Carolina, Dr. Cheney has been preeminent in researching chronic fatigue syndrome. Notes from his lecture offer some interesting " pearls " about CFS which we may overlook. We may look at this problem as " Energy/Brain/Pain " as a triad of brain fag, depleted energy and pain are required before CFS can be diagnosed. Based on good epidemiology, CFS affects 1% of the population. The number of disability claims based on CFS has climbed 500% from 1989-1993. If year of onset is graphed from 1983 to present, the highest number of cases are seen to have started in 1987. It is unclear what etiologic factor might be responsible for onset in 1987, although this is essentially 4 years after a similar dating can be made for AIDS. A review of the physical stigmata for CFS is interesting indeed. There is lymphatic pain, lymphodynia (pain of the lymph system) particularly supraclavicular pain and posterior cervical pain, but no lymphadenopathy, no lymph node enlargement. Peculiarly, there is predominance of left-sided lymphatic pain, which Cheney speculates is due to the lymphatic duct emptying in the left jugular vein. Swelling is usually noted over the left supraclavicular area. In 80% of patients, a crimson crescent is noted over the uvula and tonsils; this is different from the swelling and erythema of strep throat. Patients are so hyperreflexic that practitioners need to take caution not to place themselves in the path of the reflexing lower extremity on testing. There is abnormality on simple standing with eyes closed; it is not unusual for a patient to topple over. Very unusual is the loss of fingerprints on many of the fingers; police departments report it's very rare for fingerprints to be obliterated, yet nearly 40% of CFS patients have some fingerprint obliteration, and 10% cannot be fingerprinted whatsoever. This appears to be related to a periarteritis secondary to fibroblasts congregating in the distal circulation. Cheney suspects that CFS patients, mimicking in many ways a scurvy process, might have scurvy contributing to fingerprint obliteration. Chronic fatigue syndrome reveals remarkable abnormalities in the laboratory arena as well, but not in usual chemistry and CBC profiles. Researchers investigating cleavage by-products of antibody digestion, a relatively new area of study in immunology, are fascinated by the rapidity of immune product digestion in the CFS patient. What most people would digest immunologically in 20 minutes, the CFS patient will cleave in 20 seconds. If some of these immune proteins are important in regulating energy mechanisms, this would mean that the CFS patient is depleting important enzyme mechanisms 60 times faster than normal. Such mechanism activation and depletion is seen not only in studies of cleavage by-products, but also in relatively new studies of mitochondrial regulation and synthesis of ATP, demonstrating a severe abnormality in CFS patients. In the brain arena, abnormalities are now being noted in the CFS patient cerebellum which are not seen in AIDS, Alzheimer's, or Parkinson's. Studies comparing relative index of blood flow in the cerebrum compared to the cerebellum demonstrates an 81% reduction in cerebellar blood flow of CFS patients, not seen in any of the aforementioned brain disorders. It is to be noted for the skeptics who consider CFS to be a form of depression, that a true case of clinical depression has no abnormality in cerebral to cerebellum blood flow. Abnormal proteins are also being demonstrated in the CFS patient's spinal fluid, not seen in the normal or other brain disorders. CFS patients show abnormality in their ACTH/adrenal biochemistry. Cheney's clinic has studied the CFS patient using bicycle ergometry, which clearly and definitively demonstrates the weakness is related to abnormality in their aerobic metabolism of energy. A normal individual and athlete will show typical vital capacities of Oxygen, vO2 of 100%. The same study of the CFS patient, using the bicycle, reveals vO2 of 60%. Cheney compares this to a different organism, an organism adjusted to anaerobic metabolism, who does not use normal oxidative mechanisms of energy production. A normal individual attempts to convert from anaerobic to aerobic metabolism as quickly as possible, as anaerobic mechanisms are highly inefficient; the CFS patient survives continuously on anaerobic mechanisms and quickly fails any effort to change to normal aerobic mechanisms. Cheney's presentation provided some insight as to why careless anti-oxidant supplementation of a CFS patient may actually worsen the patient instead of improve him/her. When the CFS metabolism is under such high oxidative stress, adding high levels of certain antioxidants will simply deplete the limited glutathione reserves the individual has and potentially worsen the mitochondrial energy mechanisms, increasing the anaerobic metabolism. It is necessary to ensure that vitamin supplements, including basic antioxidants, also include chelated minerals, superoxide dismutase, green pigmented foods, bioflavonoids and glutathione to prevent upregulation of anaerobic metabolism. Mycotoxins Undoubtedly, the most controversial work presented at the meeting was by A.V. Constantini, MD, who notes that he is " just a general internist, " a country doctor who has taken his retirement days to investigate this relatively new area of pathology, mycotoxins. We are pleased to note that Dr. Constantini has agreed to submit future columns to the Townsend Letter to investigate this field, mycotoxins, exploring its relationship to cancer and cardiovascular pathology as well as other chronic diseases. His organization, the Collaborative Center for Mycotoxins in Food is located in Freiburg, Germany. At the meeting, Dr. Constantini noted that his work is not based on individual examinations in a private practice, but on research in the peer-review literature which has been either ignored or overlooked. His presentation focused on gout which his literature review concludes is not a disease of metabolism but an infectious, granulomatous disorder based on abnormality of mycotoxicity, due to exposure to fungus. Looking at the veterinarian literature, it is observed that chicken and turkey develop gout from mycotoxins or oosporeins. Animals dosed with this mycotoxin develop gout. Could this represent a fungal etiology? Examination of chickens does not reveal uric acid tophi in joints, but massive complex granuloma with presence of an orchratoxin. Other animal studies reveal gout processes, again with an infective etiology. Dr. Constantini questions how a metabolic process, like gout, can form lesions holding draining pus? He then looked at one of the standard gout cures, colchicine, to understand its mechanism of action. Colchicine has no specific activity against uric acid, but is highly effective in the acute gout attack. His literature research reveals that colchicine has an anti-fungal activity. He then looked at agents which are reportedly anti-fungal, griseofulvin, for example. Griseofulvin has been shown to eliminate toenail fungus after continued use for one year. Griseofulvin also has a remarkable effect against gout. This led Dr. Constantini to suspect that fungus may play an important role in causing a broad number of diseases. His research suggests that fungal etiologies may be seen in some forms of cancer, cardiovascular disease, alcoholism, psoriasis, leukemia, rheumatoid arthritis, bowel-related diseases, and sarcoidosis. Given the wide range of disorders with a common etiology, could there be a dietary relationship to fungal disorders? Yes, yes, yes! The number one culprit in the diet is PEANUTS! Peanuts are attacked in storage by aflatoxin, one of the foremost causes of liver cancer and a highly toxic agent in its own right. Unfortunately other grains are equally suspect of carrying fungal mycotoxins. Cereal grains and rice are all stored for periods of time, allowing mycotoxin exposure and proliferation. Complicating exposure of grains, any fermentation process allows for further introduction of mycotoxins. This means that essentially all beers and wines carry mycotoxins as well. Bread baked with yeast offers its own unique mycotoxin. Hence the classic alcohol, bread and cheese diet we love and crave offers us a continuous exposure to mycotoxins which in Dr. Constantini's eyes offers us a perfect diet to progressively develop chronic disease. Look for Dr. Constantini to share this work with us on these pages in the future. --------------------------------- Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Jane, I also have Raynaud's disease, but really never thought to attribute it to mold inhalation. I was diagnosed with this after I had moved into this toxic environment. I will have to discuss this with Dr. Santilli when I see him next Tuesday. I would have never tied this in. I have a link with some information that I just found on Raynaud's disease and mold. Check this out. It proves to be very interesting an linking Raynaud's to mold. Darlene http://www.mold-survivor.com/assoc.illness.html > > > > --did you feel worse when you were detoxing mold? did your > legs and arms ever become weak? Jane Ann > > > > Weak? Some mornings I thought for sure that the circulation had > been cut off beyond the point of no return: totally cold and dead. > I had peripheral necrosis that looked like frostbite. > Had many scary hours trying to regain circulation and believing that > I might be facing amputation. Dr Shoemaker writes in Mold Warriors > that some people weren't so lucky as to keep all their toes. > > Dr Cheney noted this anomaly in the curious " loss of fingerprints " > that some of us had. When you read the Townsend letter (below), you > may get a sense of the frustration that I've had that CFS > researchers carry on their theory-making in total isolation from the > CFS cluster that got the entire phenomenon going. > You never know when some of us might have some significant clues to > related! > I've spoken with other members of the " Original CFS cohort " and they > are all in complete disbelief that endless CFS theorizing goes on, > and they don't see fit to speak with us. > And it wasn't " peanuts " in the teachers lounge at Truckee High > school. > - > > http://www.tldp.com/issue/157-8/157pub.htm > Letter from the Publisher: > > Chronic Fatigue, Mycotoxins, Abnormal Clotting > and Other Notes > > Over the past decade there has been a steady increase in > alternative medicine meetings. Some are organization-based, some are > presentations of individual practitioners, and some have been > sponsored by groups focused on a certain protocol or sponsored by a > manufacturing company. Our Townsend Calendar is burgeoning with > meeting announcements, yet can certainly not be considered all- > encompassing. Although the majority of these meetings do not carry > continuing medical education credits, the material offered greatly > exceeds the breadth and scope of our writings in the Townsend Letter > and all the other publications in the alternative medical arena. > Clearly, we need to have representative individuals report the > pertinent findings or summarize practitioner techniques from a > broader number of the meetings held. > > One recent meeting held this June in Mallorca, Spain, organized > by American Biologics Company as well as American Biologics-Mexico > Hospital, organized by Brigitte G. Byrd, offered a relaxed > atmosphere to review a number of orthomolecular and anti-aging > theories. Dr. R. Cheney, MD, PhD's work has been discussed in > these pages and elsewhere, but it is always more provocative to hear > the lecturer in person review his/her findings. As director of the > Cheney Clinic in Charlotte, North Carolina, Dr. Cheney has been > preeminent in researching chronic fatigue syndrome. Notes from his > lecture offer some interesting " pearls " about CFS which we may > overlook. We may look at this problem as " Energy/Brain/Pain " as a > triad of brain fag, depleted energy and pain are required before CFS > can be diagnosed. Based on good epidemiology, CFS affects 1% of the > population. The number of disability claims based on CFS has climbed > 500% from 1989-1993. If year of onset is graphed from 1983 to > present, the highest number of cases are seen to have started in > 1987. It is unclear what etiologic factor might be responsible for > onset in 1987, although this is essentially 4 years after a similar > dating can be made for AIDS. A review of the physical stigmata for > CFS is interesting indeed. There is lymphatic pain, lymphodynia > (pain of the lymph system) particularly supraclavicular pain and > posterior cervical pain, but no lymphadenopathy, no lymph node > enlargement. Peculiarly, there is predominance of left-sided > lymphatic pain, which Cheney speculates is due to the lymphatic duct > emptying in the left jugular vein. Swelling is usually noted over > the left supraclavicular area. In 80% of patients, a crimson > crescent is noted over the uvula and tonsils; this is different from > the swelling and erythema of strep throat. Patients are so > hyperreflexic that practitioners need to take caution not to place > themselves in the path of the reflexing lower extremity on testing. > There is abnormality on simple standing with eyes closed; it is not > unusual for a patient to topple over. Very unusual is the loss of > fingerprints on many of the fingers; police departments report it's > very rare for fingerprints to be obliterated, yet nearly 40% of CFS > patients have some fingerprint obliteration, and 10% cannot be > fingerprinted whatsoever. This appears to be related to a > periarteritis secondary to fibroblasts congregating in the distal > circulation. Cheney suspects that CFS patients, mimicking in many > ways a scurvy process, might have scurvy contributing to fingerprint > obliteration. > > Chronic fatigue syndrome reveals remarkable abnormalities in the > laboratory arena as well, but not in usual chemistry and CBC > profiles. Researchers investigating cleavage by-products of antibody > digestion, a relatively new area of study in immunology, are > fascinated by the rapidity of immune product digestion in the CFS > patient. What most people would digest immunologically in 20 > minutes, the CFS patient will cleave in 20 seconds. If some of these > immune proteins are important in regulating energy mechanisms, this > would mean that the CFS patient is depleting important enzyme > mechanisms 60 times faster than normal. Such mechanism activation > and depletion is seen not only in studies of cleavage by-products, > but also in relatively new studies of mitochondrial regulation and > synthesis of ATP, demonstrating a severe abnormality in CFS > patients. > > In the brain arena, abnormalities are now being noted in the CFS > patient cerebellum which are not seen in AIDS, Alzheimer's, or > Parkinson's. Studies comparing relative index of blood flow in the > cerebrum compared to the cerebellum demonstrates an 81% reduction in > cerebellar blood flow of CFS patients, not seen in any of the > aforementioned brain disorders. It is to be noted for the skeptics > who consider CFS to be a form of depression, that a true case of > clinical depression has no abnormality in cerebral to cerebellum > blood flow. Abnormal proteins are also being demonstrated in the CFS > patient's spinal fluid, not seen in the normal or other brain > disorders. CFS patients show abnormality in their ACTH/adrenal > biochemistry. Cheney's clinic has studied the CFS patient using > bicycle ergometry, which clearly and definitively demonstrates the > weakness is related to abnormality in their aerobic metabolism of > energy. A normal individual and athlete will show typical vital > capacities of Oxygen, vO2 of 100%. The same study of the CFS > patient, using the bicycle, reveals vO2 of 60%. Cheney compares this > to a different organism, an organism adjusted to anaerobic > metabolism, who does not use normal oxidative mechanisms of energy > production. A normal individual attempts to convert from anaerobic > to aerobic metabolism as quickly as possible, as anaerobic > mechanisms are highly inefficient; the CFS patient survives > continuously on anaerobic mechanisms and quickly fails any effort to > change to normal aerobic mechanisms. > > Cheney's presentation provided some insight as to why careless > anti-oxidant supplementation of a CFS patient may actually worsen > the patient instead of improve him/her. When the CFS metabolism is > under such high oxidative stress, adding high levels of certain > antioxidants will simply deplete the limited glutathione reserves > the individual has and potentially worsen the mitochondrial energy > mechanisms, increasing the anaerobic metabolism. It is necessary to > ensure that vitamin supplements, including basic antioxidants, also > include chelated minerals, superoxide dismutase, green pigmented > foods, bioflavonoids and glutathione to prevent upregulation of > anaerobic metabolism. > > Mycotoxins > > Undoubtedly, the most controversial work presented at the > meeting was by A.V. Constantini, MD, who notes that he is " just a > general internist, " a country doctor who has taken his retirement > days to investigate this relatively new area of pathology, > mycotoxins. We are pleased to note that Dr. Constantini has agreed > to submit future columns to the Townsend Letter to investigate this > field, mycotoxins, exploring its relationship to cancer and > cardiovascular pathology as well as other chronic diseases. His > organization, the Collaborative Center for Mycotoxins in Food is > located in Freiburg, Germany. > > At the meeting, Dr. Constantini noted that his work is not based > on individual examinations in a private practice, but on research in > the peer-review literature which has been either ignored or > overlooked. His presentation focused on gout which his literature > review concludes is not a disease of metabolism but an infectious, > granulomatous disorder based on abnormality of mycotoxicity, due to > exposure to fungus. Looking at the veterinarian literature, it is > observed that chicken and turkey develop gout from mycotoxins or > oosporeins. Animals dosed with this mycotoxin develop gout. Could > this represent a fungal etiology? Examination of chickens does not > reveal uric acid tophi in joints, but massive complex granuloma with > presence of an orchratoxin. Other animal studies reveal gout > processes, again with an infective etiology. Dr. Constantini > questions how a metabolic process, like gout, can form lesions > holding draining pus? He then looked at one of the standard gout > cures, colchicine, to understand its mechanism of action. Colchicine > has no specific activity against uric acid, but is highly effective > in the acute gout attack. His literature research reveals that > colchicine has an anti-fungal activity. He then looked at agents > which are reportedly anti-fungal, griseofulvin, for example. > Griseofulvin has been shown to eliminate toenail fungus after > continued use for one year. Griseofulvin also has a remarkable > effect against gout. This led Dr. Constantini to suspect that fungus > may play an important role in causing a broad number of diseases. > His research suggests that fungal etiologies may be seen in some > forms of cancer, cardiovascular disease, alcoholism, psoriasis, > leukemia, rheumatoid arthritis, bowel-related diseases, and > sarcoidosis. Given the wide range of disorders with a common > etiology, could there be a dietary relationship to fungal disorders? > Yes, yes, yes! > > The number one culprit in the diet is PEANUTS! Peanuts are > attacked in storage by aflatoxin, one of the foremost causes of > liver cancer and a highly toxic agent in its own right. > Unfortunately other grains are equally suspect of carrying fungal > mycotoxins. Cereal grains and rice are all stored for periods of > time, allowing mycotoxin exposure and proliferation. Complicating > exposure of grains, any fermentation process allows for further > introduction of mycotoxins. This means that essentially all beers > and wines carry mycotoxins as well. Bread baked with yeast offers > its own unique mycotoxin. Hence the classic alcohol, bread and > cheese diet we love and crave offers us a continuous exposure to > mycotoxins which in Dr. Constantini's eyes offers us a perfect diet > to progressively develop chronic disease. Look for Dr. Constantini > to share this work with us on these pages in the future. > > > > > > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 this is really awful. can you sell your house and move? darlenesb2000 <darlenesb2000@...> wrote: Jane, I also have Raynaud's disease, but really never thought to attribute it to mold inhalation. I was diagnosed with this after I had moved into this toxic environment. I will have to discuss this with Dr. Santilli when I see him next Tuesday. I would have never tied this in. I have a link with some information that I just found on Raynaud's disease and mold. Check this out. It proves to be very interesting an linking Raynaud's to mold. Darlene http://www.mold-survivor.com/assoc.illness.html > > > > --did you feel worse when you were detoxing mold? did your > legs and arms ever become weak? Jane Ann > > > > Weak? Some mornings I thought for sure that the circulation had > been cut off beyond the point of no return: totally cold and dead. > I had peripheral necrosis that looked like frostbite. > Had many scary hours trying to regain circulation and believing that > I might be facing amputation. Dr Shoemaker writes in Mold Warriors > that some people weren't so lucky as to keep all their toes. > > Dr Cheney noted this anomaly in the curious " loss of fingerprints " > that some of us had. When you read the Townsend letter (below), you > may get a sense of the frustration that I've had that CFS > researchers carry on their theory-making in total isolation from the > CFS cluster that got the entire phenomenon going. > You never know when some of us might have some significant clues to > related! > I've spoken with other members of the " Original CFS cohort " and they > are all in complete disbelief that endless CFS theorizing goes on, > and they don't see fit to speak with us. > And it wasn't " peanuts " in the teachers lounge at Truckee High > school. > - > > http://www.tldp.com/issue/157-8/157pub.htm > Letter from the Publisher: > > Chronic Fatigue, Mycotoxins, Abnormal Clotting > and Other Notes > > Over the past decade there has been a steady increase in > alternative medicine meetings. Some are organization-based, some are > presentations of individual practitioners, and some have been > sponsored by groups focused on a certain protocol or sponsored by a > manufacturing company. Our Townsend Calendar is burgeoning with > meeting announcements, yet can certainly not be considered all- > encompassing. Although the majority of these meetings do not carry > continuing medical education credits, the material offered greatly > exceeds the breadth and scope of our writings in the Townsend Letter > and all the other publications in the alternative medical arena. > Clearly, we need to have representative individuals report the > pertinent findings or summarize practitioner techniques from a > broader number of the meetings held. > > One recent meeting held this June in Mallorca, Spain, organized > by American Biologics Company as well as American Biologics-Mexico > Hospital, organized by Brigitte G. Byrd, offered a relaxed > atmosphere to review a number of orthomolecular and anti-aging > theories. Dr. R. Cheney, MD, PhD's work has been discussed in > these pages and elsewhere, but it is always more provocative to hear > the lecturer in person review his/her findings. As director of the > Cheney Clinic in Charlotte, North Carolina, Dr. Cheney has been > preeminent in researching chronic fatigue syndrome. Notes from his > lecture offer some interesting " pearls " about CFS which we may > overlook. We may look at this problem as " Energy/Brain/Pain " as a > triad of brain fag, depleted energy and pain are required before CFS > can be diagnosed. Based on good epidemiology, CFS affects 1% of the > population. The number of disability claims based on CFS has climbed > 500% from 1989-1993. If year of onset is graphed from 1983 to > present, the highest number of cases are seen to have started in > 1987. It is unclear what etiologic factor might be responsible for > onset in 1987, although this is essentially 4 years after a similar > dating can be made for AIDS. A review of the physical stigmata for > CFS is interesting indeed. There is lymphatic pain, lymphodynia > (pain of the lymph system) particularly supraclavicular pain and > posterior cervical pain, but no lymphadenopathy, no lymph node > enlargement. Peculiarly, there is predominance of left-sided > lymphatic pain, which Cheney speculates is due to the lymphatic duct > emptying in the left jugular vein. Swelling is usually noted over > the left supraclavicular area. In 80% of patients, a crimson > crescent is noted over the uvula and tonsils; this is different from > the swelling and erythema of strep throat. Patients are so > hyperreflexic that practitioners need to take caution not to place > themselves in the path of the reflexing lower extremity on testing. > There is abnormality on simple standing with eyes closed; it is not > unusual for a patient to topple over. Very unusual is the loss of > fingerprints on many of the fingers; police departments report it's > very rare for fingerprints to be obliterated, yet nearly 40% of CFS > patients have some fingerprint obliteration, and 10% cannot be > fingerprinted whatsoever. This appears to be related to a > periarteritis secondary to fibroblasts congregating in the distal > circulation. Cheney suspects that CFS patients, mimicking in many > ways a scurvy process, might have scurvy contributing to fingerprint > obliteration. > > Chronic fatigue syndrome reveals remarkable abnormalities in the > laboratory arena as well, but not in usual chemistry and CBC > profiles. Researchers investigating cleavage by-products of antibody > digestion, a relatively new area of study in immunology, are > fascinated by the rapidity of immune product digestion in the CFS > patient. What most people would digest immunologically in 20 > minutes, the CFS patient will cleave in 20 seconds. If some of these > immune proteins are important in regulating energy mechanisms, this > would mean that the CFS patient is depleting important enzyme > mechanisms 60 times faster than normal. Such mechanism activation > and depletion is seen not only in studies of cleavage by-products, > but also in relatively new studies of mitochondrial regulation and > synthesis of ATP, demonstrating a severe abnormality in CFS > patients. > > In the brain arena, abnormalities are now being noted in the CFS > patient cerebellum which are not seen in AIDS, Alzheimer's, or > Parkinson's. Studies comparing relative index of blood flow in the > cerebrum compared to the cerebellum demonstrates an 81% reduction in > cerebellar blood flow of CFS patients, not seen in any of the > aforementioned brain disorders. It is to be noted for the skeptics > who consider CFS to be a form of depression, that a true case of > clinical depression has no abnormality in cerebral to cerebellum > blood flow. Abnormal proteins are also being demonstrated in the CFS > patient's spinal fluid, not seen in the normal or other brain > disorders. CFS patients show abnormality in their ACTH/adrenal > biochemistry. Cheney's clinic has studied the CFS patient using > bicycle ergometry, which clearly and definitively demonstrates the > weakness is related to abnormality in their aerobic metabolism of > energy. A normal individual and athlete will show typical vital > capacities of Oxygen, vO2 of 100%. The same study of the CFS > patient, using the bicycle, reveals vO2 of 60%. Cheney compares this > to a different organism, an organism adjusted to anaerobic > metabolism, who does not use normal oxidative mechanisms of energy > production. A normal individual attempts to convert from anaerobic > to aerobic metabolism as quickly as possible, as anaerobic > mechanisms are highly inefficient; the CFS patient survives > continuously on anaerobic mechanisms and quickly fails any effort to > change to normal aerobic mechanisms. > > Cheney's presentation provided some insight as to why careless > anti-oxidant supplementation of a CFS patient may actually worsen > the patient instead of improve him/her. When the CFS metabolism is > under such high oxidative stress, adding high levels of certain > antioxidants will simply deplete the limited glutathione reserves > the individual has and potentially worsen the mitochondrial energy > mechanisms, increasing the anaerobic metabolism. It is necessary to > ensure that vitamin supplements, including basic antioxidants, also > include chelated minerals, superoxide dismutase, green pigmented > foods, bioflavonoids and glutathione to prevent upregulation of > anaerobic metabolism. > > Mycotoxins > > Undoubtedly, the most controversial work presented at the > meeting was by A.V. Constantini, MD, who notes that he is " just a > general internist, " a country doctor who has taken his retirement > days to investigate this relatively new area of pathology, > mycotoxins. We are pleased to note that Dr. Constantini has agreed > to submit future columns to the Townsend Letter to investigate this > field, mycotoxins, exploring its relationship to cancer and > cardiovascular pathology as well as other chronic diseases. His > organization, the Collaborative Center for Mycotoxins in Food is > located in Freiburg, Germany. > > At the meeting, Dr. Constantini noted that his work is not based > on individual examinations in a private practice, but on research in > the peer-review literature which has been either ignored or > overlooked. His presentation focused on gout which his literature > review concludes is not a disease of metabolism but an infectious, > granulomatous disorder based on abnormality of mycotoxicity, due to > exposure to fungus. Looking at the veterinarian literature, it is > observed that chicken and turkey develop gout from mycotoxins or > oosporeins. Animals dosed with this mycotoxin develop gout. Could > this represent a fungal etiology? Examination of chickens does not > reveal uric acid tophi in joints, but massive complex granuloma with > presence of an orchratoxin. Other animal studies reveal gout > processes, again with an infective etiology. Dr. Constantini > questions how a metabolic process, like gout, can form lesions > holding draining pus? He then looked at one of the standard gout > cures, colchicine, to understand its mechanism of action. Colchicine > has no specific activity against uric acid, but is highly effective > in the acute gout attack. His literature research reveals that > colchicine has an anti-fungal activity. He then looked at agents > which are reportedly anti-fungal, griseofulvin, for example. > Griseofulvin has been shown to eliminate toenail fungus after > continued use for one year. Griseofulvin also has a remarkable > effect against gout. This led Dr. Constantini to suspect that fungus > may play an important role in causing a broad number of diseases. > His research suggests that fungal etiologies may be seen in some > forms of cancer, cardiovascular disease, alcoholism, psoriasis, > leukemia, rheumatoid arthritis, bowel-related diseases, and > sarcoidosis. Given the wide range of disorders with a common > etiology, could there be a dietary relationship to fungal disorders? > Yes, yes, yes! > > The number one culprit in the diet is PEANUTS! Peanuts are > attacked in storage by aflatoxin, one of the foremost causes of > liver cancer and a highly toxic agent in its own right. > Unfortunately other grains are equally suspect of carrying fungal > mycotoxins. Cereal grains and rice are all stored for periods of > time, allowing mycotoxin exposure and proliferation. Complicating > exposure of grains, any fermentation process allows for further > introduction of mycotoxins. This means that essentially all beers > and wines carry mycotoxins as well. Bread baked with yeast offers > its own unique mycotoxin. Hence the classic alcohol, bread and > cheese diet we love and crave offers us a continuous exposure to > mycotoxins which in Dr. Constantini's eyes offers us a perfect diet > to progressively develop chronic disease. Look for Dr. Constantini > to share this work with us on these pages in the future. > > > > > > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Jane, I am in a rented apartment...move is out of the question right now, I try to leave here when possible...that is the best I can do right now. Thanks for replying. Darlene > > > > > > --did you feel worse when you were detoxing mold? did your > > legs and arms ever become weak? Jane Ann > > > > > > > Weak? Some mornings I thought for sure that the circulation had > > been cut off beyond the point of no return: totally cold and dead. > > I had peripheral necrosis that looked like frostbite. > > Had many scary hours trying to regain circulation and believing that > > I might be facing amputation. Dr Shoemaker writes in Mold Warriors > > that some people weren't so lucky as to keep all their toes. > > > > Dr Cheney noted this anomaly in the curious " loss of fingerprints " > > that some of us had. When you read the Townsend letter (below), you > > may get a sense of the frustration that I've had that CFS > > researchers carry on their theory-making in total isolation from the > > CFS cluster that got the entire phenomenon going. > > You never know when some of us might have some significant clues to > > related! > > I've spoken with other members of the " Original CFS cohort " and they > > are all in complete disbelief that endless CFS theorizing goes on, > > and they don't see fit to speak with us. > > And it wasn't " peanuts " in the teachers lounge at Truckee High > > school. > > - > > > > http://www.tldp.com/issue/157-8/157pub.htm > > Letter from the Publisher: > > > > Chronic Fatigue, Mycotoxins, Abnormal Clotting > > and Other Notes > > > > Over the past decade there has been a steady increase in > > alternative medicine meetings. Some are organization-based, some are > > presentations of individual practitioners, and some have been > > sponsored by groups focused on a certain protocol or sponsored by a > > manufacturing company. Our Townsend Calendar is burgeoning with > > meeting announcements, yet can certainly not be considered all- > > encompassing. Although the majority of these meetings do not carry > > continuing medical education credits, the material offered greatly > > exceeds the breadth and scope of our writings in the Townsend Letter > > and all the other publications in the alternative medical arena. > > Clearly, we need to have representative individuals report the > > pertinent findings or summarize practitioner techniques from a > > broader number of the meetings held. > > > > One recent meeting held this June in Mallorca, Spain, organized > > by American Biologics Company as well as American Biologics-Mexico > > Hospital, organized by Brigitte G. Byrd, offered a relaxed > > atmosphere to review a number of orthomolecular and anti-aging > > theories. Dr. R. Cheney, MD, PhD's work has been discussed in > > these pages and elsewhere, but it is always more provocative to hear > > the lecturer in person review his/her findings. As director of the > > Cheney Clinic in Charlotte, North Carolina, Dr. Cheney has been > > preeminent in researching chronic fatigue syndrome. Notes from his > > lecture offer some interesting " pearls " about CFS which we may > > overlook. We may look at this problem as " Energy/Brain/Pain " as a > > triad of brain fag, depleted energy and pain are required before CFS > > can be diagnosed. Based on good epidemiology, CFS affects 1% of the > > population. The number of disability claims based on CFS has climbed > > 500% from 1989-1993. If year of onset is graphed from 1983 to > > present, the highest number of cases are seen to have started in > > 1987. It is unclear what etiologic factor might be responsible for > > onset in 1987, although this is essentially 4 years after a similar > > dating can be made for AIDS. A review of the physical stigmata for > > CFS is interesting indeed. There is lymphatic pain, lymphodynia > > (pain of the lymph system) particularly supraclavicular pain and > > posterior cervical pain, but no lymphadenopathy, no lymph node > > enlargement. Peculiarly, there is predominance of left-sided > > lymphatic pain, which Cheney speculates is due to the lymphatic duct > > emptying in the left jugular vein. Swelling is usually noted over > > the left supraclavicular area. In 80% of patients, a crimson > > crescent is noted over the uvula and tonsils; this is different from > > the swelling and erythema of strep throat. Patients are so > > hyperreflexic that practitioners need to take caution not to place > > themselves in the path of the reflexing lower extremity on testing. > > There is abnormality on simple standing with eyes closed; it is not > > unusual for a patient to topple over. Very unusual is the loss of > > fingerprints on many of the fingers; police departments report it's > > very rare for fingerprints to be obliterated, yet nearly 40% of CFS > > patients have some fingerprint obliteration, and 10% cannot be > > fingerprinted whatsoever. This appears to be related to a > > periarteritis secondary to fibroblasts congregating in the distal > > circulation. Cheney suspects that CFS patients, mimicking in many > > ways a scurvy process, might have scurvy contributing to fingerprint > > obliteration. > > > > Chronic fatigue syndrome reveals remarkable abnormalities in the > > laboratory arena as well, but not in usual chemistry and CBC > > profiles. Researchers investigating cleavage by-products of antibody > > digestion, a relatively new area of study in immunology, are > > fascinated by the rapidity of immune product digestion in the CFS > > patient. What most people would digest immunologically in 20 > > minutes, the CFS patient will cleave in 20 seconds. If some of these > > immune proteins are important in regulating energy mechanisms, this > > would mean that the CFS patient is depleting important enzyme > > mechanisms 60 times faster than normal. Such mechanism activation > > and depletion is seen not only in studies of cleavage by-products, > > but also in relatively new studies of mitochondrial regulation and > > synthesis of ATP, demonstrating a severe abnormality in CFS > > patients. > > > > In the brain arena, abnormalities are now being noted in the CFS > > patient cerebellum which are not seen in AIDS, Alzheimer's, or > > Parkinson's. Studies comparing relative index of blood flow in the > > cerebrum compared to the cerebellum demonstrates an 81% reduction in > > cerebellar blood flow of CFS patients, not seen in any of the > > aforementioned brain disorders. It is to be noted for the skeptics > > who consider CFS to be a form of depression, that a true case of > > clinical depression has no abnormality in cerebral to cerebellum > > blood flow. Abnormal proteins are also being demonstrated in the CFS > > patient's spinal fluid, not seen in the normal or other brain > > disorders. CFS patients show abnormality in their ACTH/adrenal > > biochemistry. Cheney's clinic has studied the CFS patient using > > bicycle ergometry, which clearly and definitively demonstrates the > > weakness is related to abnormality in their aerobic metabolism of > > energy. A normal individual and athlete will show typical vital > > capacities of Oxygen, vO2 of 100%. The same study of the CFS > > patient, using the bicycle, reveals vO2 of 60%. Cheney compares this > > to a different organism, an organism adjusted to anaerobic > > metabolism, who does not use normal oxidative mechanisms of energy > > production. A normal individual attempts to convert from anaerobic > > to aerobic metabolism as quickly as possible, as anaerobic > > mechanisms are highly inefficient; the CFS patient survives > > continuously on anaerobic mechanisms and quickly fails any effort to > > change to normal aerobic mechanisms. > > > > Cheney's presentation provided some insight as to why careless > > anti-oxidant supplementation of a CFS patient may actually worsen > > the patient instead of improve him/her. When the CFS metabolism is > > under such high oxidative stress, adding high levels of certain > > antioxidants will simply deplete the limited glutathione reserves > > the individual has and potentially worsen the mitochondrial energy > > mechanisms, increasing the anaerobic metabolism. It is necessary to > > ensure that vitamin supplements, including basic antioxidants, also > > include chelated minerals, superoxide dismutase, green pigmented > > foods, bioflavonoids and glutathione to prevent upregulation of > > anaerobic metabolism. > > > > Mycotoxins > > > > Undoubtedly, the most controversial work presented at the > > meeting was by A.V. Constantini, MD, who notes that he is " just a > > general internist, " a country doctor who has taken his retirement > > days to investigate this relatively new area of pathology, > > mycotoxins. We are pleased to note that Dr. Constantini has agreed > > to submit future columns to the Townsend Letter to investigate this > > field, mycotoxins, exploring its relationship to cancer and > > cardiovascular pathology as well as other chronic diseases. His > > organization, the Collaborative Center for Mycotoxins in Food is > > located in Freiburg, Germany. > > > > At the meeting, Dr. Constantini noted that his work is not based > > on individual examinations in a private practice, but on research in > > the peer-review literature which has been either ignored or > > overlooked. His presentation focused on gout which his literature > > review concludes is not a disease of metabolism but an infectious, > > granulomatous disorder based on abnormality of mycotoxicity, due to > > exposure to fungus. Looking at the veterinarian literature, it is > > observed that chicken and turkey develop gout from mycotoxins or > > oosporeins. Animals dosed with this mycotoxin develop gout. Could > > this represent a fungal etiology? Examination of chickens does not > > reveal uric acid tophi in joints, but massive complex granuloma with > > presence of an orchratoxin. Other animal studies reveal gout > > processes, again with an infective etiology. Dr. Constantini > > questions how a metabolic process, like gout, can form lesions > > holding draining pus? He then looked at one of the standard gout > > cures, colchicine, to understand its mechanism of action. Colchicine > > has no specific activity against uric acid, but is highly effective > > in the acute gout attack. His literature research reveals that > > colchicine has an anti-fungal activity. He then looked at agents > > which are reportedly anti-fungal, griseofulvin, for example. > > Griseofulvin has been shown to eliminate toenail fungus after > > continued use for one year. Griseofulvin also has a remarkable > > effect against gout. This led Dr. Constantini to suspect that fungus > > may play an important role in causing a broad number of diseases. > > His research suggests that fungal etiologies may be seen in some > > forms of cancer, cardiovascular disease, alcoholism, psoriasis, > > leukemia, rheumatoid arthritis, bowel-related diseases, and > > sarcoidosis. Given the wide range of disorders with a common > > etiology, could there be a dietary relationship to fungal disorders? > > Yes, yes, yes! > > > > The number one culprit in the diet is PEANUTS! Peanuts are > > attacked in storage by aflatoxin, one of the foremost causes of > > liver cancer and a highly toxic agent in its own right. > > Unfortunately other grains are equally suspect of carrying fungal > > mycotoxins. Cereal grains and rice are all stored for periods of > > time, allowing mycotoxin exposure and proliferation. Complicating > > exposure of grains, any fermentation process allows for further > > introduction of mycotoxins. This means that essentially all beers > > and wines carry mycotoxins as well. Bread baked with yeast offers > > its own unique mycotoxin. Hence the classic alcohol, bread and > > cheese diet we love and crave offers us a continuous exposure to > > mycotoxins which in Dr. Constantini's eyes offers us a perfect diet > > to progressively develop chronic disease. Look for Dr. Constantini > > to share this work with us on these pages in the future. > > > > > > > > > > > > > > > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US (and > 30+ countries) for 2¢/min or less. > > > > Quote Link to comment Share on other sites More sharing options...
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