Re: Remission-Dave

[Guest guest]

Dave-

I don't believe there is a " cure " for Stills. I hope that you do have a more

positive outcome then the rest of us have had. But I remember when I was first

diagnosed how I was hoping, wishing and praying that this wasn't forever. My Dr.

was very honest and to the point. She told me that I can live a happy and

fulfilling life, and that there is a " chance " I could go into remission but that

not to worry so much about when and if. Just to live for the day.

Alot of our members that are feeling " back to normal " are busy living a healthy

and happy life. So you don't usually hear about the members that are doing good.

As for the rest of us that are in a flare and in pain, need the support of

others. But there are some positive stories.

Actually I think one of our board members went into remission for quite a long

time, like 10 years or something like that. No medication and lived a normal

life, but then had a relapse. I know that there is something called a medication

induced remission. Where you feel good, " kinda " back to normal, (whatever that

feels like) but you are still taking your medication. Hopefully you will find

your right cocktail of medication and feel better. I have read that your onset

is usually the worst part of the disease.

I hope that someone will respond to your post and give you a more positive

answer to your question. I am not a doctor and I can only respond with what I

have read and the stories that I have heard over the years.

Good Luck and take care of yourself!!

Love and Support,

Keri in CA

RE:Dave

Welcome Dave, Just exactly where do you live? I used to live in Ferndale, Royal

Oak, Biringham,Waterford and we now live in Oscoda on Lake Huron.I have never

met in person anyone in Mi. with Still.There is another Woman named who

live in the Saginaw area.I have had Stills many years and am disabled and

recieve SSI. Of course I am alot older than you.Stress absolutely plays a

part,but I don't think thats what causes it.My doc said they think it starts

with a virus in the liver or brain.I'mnot sure I believe that either.All I know

is without this group I don't know where I'd be now.The people here are so

caring and empathetic,you'll never find any better.They have big shoulders (some

not their own lol) and listen to you even when they are in a bad way

themselves.So sit back or lay down and kick off your shoes and ask away.Again

welcome.Elly---------------------------------Be a better friend, newshound, and

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