Re: Coping with pain? Meds?

[Guest guest]

Have you asked your GP or Rheumatologist for any of

the following: Lyrica, Oxynorm/Oxycontin, and/or

diclofenac (aka Voltaren). A combination of meds works

better for me in smaller doses with less side effects.

I have found that one or two 75mg capsules of Lyrica

separated by at least one hour in the morning followed

by 12.5mg of diclofenac in the afternoon, and 5mg of

Oxynorm at bedtime to do a great deal towards

relieving my overall pain symptoms. Additionally, I

keep extra Oxynorm capsules with me which I use when I

experience an unacceptable level of pain. Remember,

however, to keep a copy of your presciption or

pharmaceutical Rx label with you when carrying

Oxynorm, since this is an Category II Controlled

Substance (or it was the last time I checked) that

patient's with valid prescriptions should be allowed

to carry. Check with your pharmacist to make sure!!!

As for 'pot', our doctors here in the Netherlands can

legally prescribe pharm quality hashish (and even

Category I's) , if they think it might do their

patient some good. It's also available in Dutch

'Coffee Shops', but the quality is not vigorously

controlled and its mainly bought by tourists.

ly, I have never used any of these types of

drugs, since I am not convinced that they do not do

more harm than good. On the other hand for those who

are terminally ill with cancer, etc. I can see that it

might help.

C.M.J.

--- Darv wrote:

>

>

> I tried taking prednisone and methotrexate and they

> had little effect other

> than to stop the fevers. Vitamin D did help some

> with my muscle pain. But

> the joint pain will just not seem to go away for me.

> I am currently coping

> best I can with Norco and Trilisate (a liquid

> NSAID). The Trilisate helps

> but makes my ears ring. Still, it's worth the

> trade off. Never the less,

> I wake in the AM, with my joints and muscles stiff.

> My wife brings in hot

> towels which seems to help and I down a bunch of the

> Norco. It takes about

> 1 to 2 hours just to get mobile moving. If my wife

> massages my muscles

> that seems to help too but it's a very slow painful

> process. Then the pain

> is still with me all day. It's not unbearable

> pain, it is just relentless

> and there is no end in sight. Even with the Norco,

> it is never totally

> gone.

>

>

>

> I'd like to hear back from folks on how each of you

> cope with the pain and

> morning stiffness of the disease? Any other

> suggestions, medications that

> have helped you that I can discuss with my doctor?

>

>

>

>

> I am also curious about whether or not anyone is

> using pot as a means to

> control the pain. It has been suggested to me but I

> am a bit leery of it

> and wonder about it's true benefit vs people just

> using their medical

> condition as an excuse. I've never tried any

> illegal substance but it has

> become semi legal in California depending on who you

> ask. If I were to try

> it, I would only consider it if I could do so

> without smoking it. Since

> this is a sensitive matter, feel free to write me

> off line. It is something

> I never thought I would consider.

>

>

>

> Thanks in advance,

>

> Darv

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

Hey Darv.

I'm Larry...one of " The Wild Men " of the group....actually, I am just crazy

as hell...my beautiful one and a half year old

Granddaughter looked at me yesterday morning and said " Paw Paw, Psycho " LOL

.......cracked me up......out of the mouth of babes and all!!! In response

to your inquiries: I am just going to dive right in.....I personally

believe in doing WHATEVER it takes to cope with the pain.....that " WHATEVER "

is different from one person to another....that is why I stress that my

response is based on my PERSONAL opinion....Yes, I have smoked pot in the

past to relieve my pain and would do so again if necessary......I have also

taken " it in brownie form.....and, strangely enough, the brownie form was

the most effective. And, yes, caution must be taken...there aren't many

folks who truly understand the medical usage of MARIHUTCHIE.......I am

afraid there may be some here who might end their friendship with me over

this admission........but I believe in honesty, especially among and between

members of this group....we are all on the same side battling this

relentless dragon.....any information that can help another should be shared

.....AND, it is my PERSONAL opinion that pot is an herb and like any other

herb, it does have medicinal properties......the ONLY difference is its

legal " status " . I had a friend years ago who would say " Man makes liquor,

God grows pot: who you gonna trust? " Some truth to that statement!

Anyway, sorry....I did not mean to go into a dissertation.

Other methods I use to " control " pain: moist hot packs, cold packs, a TENS

unit, slowwwwwww, easyyyyyyyy, stretches, some range of motion exercises

with gravity as the only resistance, pacing activities, pain meds of course,

and that seems to pretty much complete the list.....I hope I have been of

some help to you, brother!

Please keep posting......if I can clarify anything or help in any other way,

please don't hold back...let me know.

We are all in this thing together....

Many Blessings!

Larry B. From Western NC

-- Coping with pain? Meds?

I tried taking prednisone and methotrexate and they had little effect other

than to stop the fevers. Vitamin D did help some with my muscle pain. But

the joint pain will just not seem to go away for me. I am currently coping

best I can with Norco and Trilisate (a liquid NSAID). The Trilisate helps

but makes my ears ring. Still, it's worth the trade off. Never the less,

I wake in the AM, with my joints and muscles stiff. My wife brings in hot

towels which seems to help and I down a bunch of the Norco. It takes about

1 to 2 hours just to get mobile moving. If my wife massages my muscles

that seems to help too but it's a very slow painful process. Then the pain

is still with me all day. It's not unbearable pain, it is just relentless

and there is no end in sight. Even with the Norco, it is never totally

gone.

I'd like to hear back from folks on how each of you cope with the pain and

morning stiffness of the disease? Any other suggestions, medications that

have helped you that I can discuss with my doctor?

I am also curious about whether or not anyone is using pot as a means to

control the pain. It has been suggested to me but I am a bit leery of it

and wonder about it's true benefit vs people just using their medical

condition as an excuse. I've never tried any illegal substance but it has

become semi legal in California depending on who you ask. If I were to try

it, I would only consider it if I could do so without smoking it. Since

this is a sensitive matter, feel free to write me off line. It is something

I never thought I would consider.

Thanks in advance,

Darv