Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Hey , Enbrel did nothing for me. That's why I switched to Kineret, which I am understanding studies are showing it's better for Stills whereas Enbrel is better for RA. Some people don't do well on Kineret though and they may try Humira, Remicade, Rituxan, etc. Let us know what you guys decide to do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 Hey , Enbrel did nothing for me. That's why I switched to Kineret, which I am understanding studies are showing it's better for Stills whereas Enbrel is better for RA. Some people don't do well on Kineret though and they may try Humira, Remicade, Rituxan, etc. Let us know what you guys decide to do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 , I tried Enbrel for a year or so. I didn't have much luck with the once-a-week injection, so I switched to the twice-a-week mix it yourself version. This seemed to work better (plus it didn't sting!), but I always took it in combination with MTX and prednisone. It only worked for about six months, then gradually stopped working. I don't know what your husband's doc told him, but mine did the " try it for three months " thing (gives it time to build up in your system) before deciding to switch. in Maine > > Hi everyone > I was wondering if any of you have had negative results from Etanercept/Enbrel. (UK) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 > I had a lot of problems that seem to have been related to Enbrel & > Humira that went away progressively after having the drugs stopped. As far > as my RD is concerned he doesn't want me on any " biologics " unless I have no > other choice as my body sems to really hate them. The majority of problems I > had were neurological such as slurred speech, inability to balance among > quite a few others, a few that are embarrassing as hell including one that > never went away. > I would start to see a neurologist if you aren't already, and make sure your RD knows every single thing that is going on. Later, Kirk. > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 > I had a lot of problems that seem to have been related to Enbrel & > Humira that went away progressively after having the drugs stopped. As far > as my RD is concerned he doesn't want me on any " biologics " unless I have no > other choice as my body sems to really hate them. The majority of problems I > had were neurological such as slurred speech, inability to balance among > quite a few others, a few that are embarrassing as hell including one that > never went away. > I would start to see a neurologist if you aren't already, and make sure your RD knows every single thing that is going on. Later, Kirk. > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 > I had a lot of problems that seem to have been related to Enbrel & > Humira that went away progressively after having the drugs stopped. As far > as my RD is concerned he doesn't want me on any " biologics " unless I have no > other choice as my body sems to really hate them. The majority of problems I > had were neurological such as slurred speech, inability to balance among > quite a few others, a few that are embarrassing as hell including one that > never went away. > I would start to see a neurologist if you aren't already, and make sure your RD knows every single thing that is going on. Later, Kirk. > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
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