Some advice, please

[Guest guest]

Thanks, Kate, for the information. I have a Polar heart rate watch (which I had before for exercise) I can keep this on all the time, and can see with a glance how many beats per minute I am. Usually, when sitting down it averages 80 or 90. If I go upstairs it shoots up to about 110 or more. I had a bath about half and hour ago and it refuses to to under 100! Trouble with the watch is,it can become an obsession, and I keep strapping it on everyone else to compare!! My husband (aged 58, overweight,no exercise etc..etc..) has trouble keeping it above 60 !! Weird. I'm much younger, fit ,non-smoker, eaten healthily all my life, and I'm usually double that!! NOT FAIR!!

Arlene - I'll look in the archives for the tincture recipe (sounds great) - which month is it in please??

Love,

Peta x

[Guest guest]

Hi Peta,

I take beta blockers but strictly on an as needed basis. I check

my pulse when I get up and if it is at all rapid, I take my propranalol.

Since officially I am only taking it twice daily, I check my pulse again

late afternoon and evening. Some days I require 3 doses, others just

1. On days when I've had tests and had to go without the propranalol

altogether, I find that without for one day is okay - my pulse is rapid

but not too bad. If I have to go 2 days, it jumps up right out of

control. My doctor is content with my handling of it. I find

I often can tell I need to take it because I will hear a roaring in my

ears, pulsing in time to my heart.

Anyway, if you are playing around with your beta blockers, be sure to

pay attention to your heart.

Kate

PParkegail@... wrote:

Yesterday I didn't take a Beta Blocker(80 mg Propanolol).

I

felt better than I had in ages - heart rate quite low, knees

not

knocking...am I cured??? )

A friend, who had had Graves for 6 years said, don't mess about with

your Beta Blockers. This morning, I still feel O.K. What I'm

trying

to do is unmask the symptoms and see how I am.

The friend (I'll try and bring her along to the Brighton meeting in

December - she's just had RAI treatment, I wasn't allwoed to hug her

for a week!) She was on Carbimazole and Beta Blockers and she STILL

collapsed with a heart rate of 180!! So she's been through it (She's

Canadian, but lives up the road!)

What do you think, friends??

P.S Whilst I've been writing this, my 13 year old has put my hair

into little plaits. She said "Can I do something with your face"? I

said "What do you suggest, a paper bag?" (or two, in case the first

one blows off!!!!) She says she's going to make me stunning before

midday!!! LOLOLOLOL. Wish her luck!!

Love,

Peta x

[Guest guest]

Hi Everyone...

Just throwing this out, but thought I would let people know of my experiences. I have been combining both Western medicine (PTU) with naturopathic, as you probably remember. Lately, since I have gone down so much on my PTU because I was hypo (now down to 25 mg.), I stopped using my naturopathic tincture of bugleweed, motherwart, lemonbalm, etc. I had noticed that I was having more palpitations, more breathlessness, more tiredness and thought it was because I was still hypo. But I thought I would try an experiment and go back to the tincture plus the PTU. Voila, no more symptoms...(four days now) RIGHT NOW, I am feeling pretty good, and just wanted to share this with those of you who have the racing heart and fast pulse.

Arlene

PS: The archives has the site for the recipe for this tincture...

Re: Some advice, PleaseHi Peta, I take beta blockers but strictly on an as needed basis. I check my pulse when I get up and if it is at all rapid, I take my propranalol. Since officially I am only taking it twice daily, I check my pulse again late afternoon and evening. Some days I require 3 doses, others just 1. On days when I've had tests and had to go without the propranalol altogether, I find that without for one day is okay - my pulse is rapid but not too bad. If I have to go 2 days, it jumps up right out of control. My doctor is content with my handling of it. I find I often can tell I need to take it because I will hear a roaring in my ears, pulsing in time to my heart. Anyway, if you are playing around with your beta blockers, be sure to pay attention to your heart. Kate PParkegail@... wrote: Yesterday I didn't take a Beta Blocker(80 mg Propanolol). I felt better than I had in ages - heart rate quite low, knees not knocking...am I cured??? ) A friend, who had had Graves for 6 years said, don't mess about with your Beta Blockers. This morning, I still feel O.K. What I'm trying to do is unmask the symptoms and see how I am. The friend (I'll try and bring her along to the Brighton meeting in December - she's just had RAI treatment, I wasn't allwoed to hug her for a week!) She was on Carbimazole and Beta Blockers and she STILL collapsed with a heart rate of 180!! So she's been through it (She's Canadian, but lives up the road!) What do you think, friends?? P.S Whilst I've been writing this, my 13 year old has put my hair into little plaits. She said " Can I do something with your face " ? I said " What do you suggest, a paper bag? " (or two, in case the first one blows off!!!!) She says she's going to make me stunning before midday!!! LOLOLOLOL. Wish her luck!! Love, Peta x

[Guest guest]

Dearest Peta,

I am in a bit of a rush to get to work, but must first thank you for you post

on my

little weekend dental fear program. I had forgotten about the feeling I should

not be

driving afterwards. Hummm, I am not quite so on the fence now.

As to the beta blockers. I was on them for a long time and was warned not to

discontinue

abruptly. !!!! Had to be weaned off of them over a few months. Do you have the

package

insert. It should be on there. Or go in and ask your pharmacist. Or I am sure

there would

be a web site...perhaps the drug company?

-Pam-

I also take as needed now, but that works because I have been weaned off and

now only

take one , once in awhile....a whole different situation.

[Guest guest]

Hi Dawn,

your theory is backed up and clearly reported in the Physicians' Desk Reference (PDR). It says that beta blockers can mask symptoms of hyperthyroidism, so if you abruptly withdraw them you can experience full blown hyperT symptoms. The book recommends weaning off them slowly. So does Goodman & Gillman's The Pharmacological Basis of Therapeutics.

[Guest guest]

Dear Peta,

It can be dangerous to abruptly discontinue your beta blocker medication; I

was advised to just stop them by a doctor once my thyroid levels were within

range and I got cross with her because she didn't seem to know that you are

not supposed to do that. Most probaly I would have been okay just stopping

them, but I wanted to wean myself slowly off them cutting the dose down

gradually - she shrugged and more or less said, alright, do that then.

I can't really remember WHY it can be dangerous, but as with the ATDs, it

seems to me to make sense not to shock your body by abruptly changing meds.

I really understand the desire to " unmask " your symptoms, but perhaps the

abrupt withdrawal of ANY medication might actually CAUSE new disruption to

your system, triggering responses to the absense of chemicals that your body

had come to rely on? So it would be hard to tell if you were unmasking

problems, or actually stimulating them.

This is just my theory here - it is not medically backed up, I am not a

doctor or a medical person at all but it seems to make sense to me and fits

in with why the slow withdrawal of ATDs makes more sense to me, than just

stopping them.

DAWN ROSE

>From: Pam <pladd@...>

>Reply-hyperthyroidism

>hyperthyroidism

>Subject: Re: Some advice, Please

>Date: Sat, 17 Nov 2001 10:01:02 -0800

>

>Dearest Peta,

> I am in a bit of a rush to get to work, but must first thank you for you

>post on my

>little weekend dental fear program. I had forgotten about the feeling I

>should not be

>driving afterwards. Hummm, I am not quite so on the fence now.

>

> As to the beta blockers. I was on them for a long time and was warned

>not to discontinue

>abruptly. !!!! Had to be weaned off of them over a few months. Do you have

>the package

>insert. It should be on there. Or go in and ask your pharmacist. Or I am

>sure there would

>be a web site...perhaps the drug company?

> -Pam-

> I also take as needed now, but that works because I have been weaned off

>and now only

>take one , once in awhile....a whole different situation.

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi Peta,

Here was the information posted by :

Re: Naturopath results " >Hi Zooey,> I can see from your question you have much interest in herbs as an >alternative. Me too. I have found two basic recipe for graves disease >tinctures. This one is Motherwort and Lemonbalm. >http://bcn.net/~stoll/archives/graves/57444.html#57444 The second has >bugleweed as its primary ingredient and a batch of half gallon can be >whipped up for about $20 if you use vinegar instead of vodka. Here is >the recipe:>> " Another option to consider would be a combination formula of the >following herbs: Take 4 parts Bugleweed (Lycopus spp.), 2 parts >Motherwort (Leonurus cardiaca), 2 parts Skullcap (Scutellaria spp.), >and 1 part Hawthorn (Crataegus spp.) in tincture form three times >daily. >>Before using this or any other herb or nutritional supplement I would >advise that you first consult with your primary physician or health >care provider. " >The URL http://webhome.idirect.com/~wolfnowl/thyroid5.htm> I have found several internet sources of reasonably priced herbs >should you want them. Good luck.> "

Hope this helps, Arlene

[Guest guest]

About three months ago I began having trouble breathing, headaches,

and sinus problems. I discovered black/green mold in the vents in my

apartment and asked the landlord to clean it out, which they did but

it grew back. I asked them to test the mold, and they hired someone

that determined that " most of the mold was Cladosporium, but some

Aspergillus/Pencillium spores were also found in the vents "

I've read some scary things online about aspegillus and pencillium,

but would appreciate any feedback you have for me. My questions include:

1. Should I ask for additional testing to determine something more

specific about the mold that was present?

2. Is there any further testing that can be done to determine how much

damage I've sustained from neurotoxins?

3. Should I truly throw out everything that is in that apartment and

start over, or can I just wipe tiongs down with bleach and have

fabrics dry cleaned or vaccummed?

4. How normal is it to find these types of mold?

Thanks for any help or guidance, SickBuilding community. I'm pretty

freaked out.

M

[Guest guest]

If I were you, I would ask a disinterested third party to collect and

mail in the samples to a lab of your choosing, with a chain of custody

filled out for them - and have the mold identified yourself.

The quality of mold labs and also the skill/integrity of those who

perform mold testing and remediation varies considerably. Your

landlord's mold testing may or may not be accurate, but I would not

trust them with something as important as yur health, given that they

have a strong financial incentive to gloss over any situation that

requires action on their part.. (whatever problem is making the mold

grow there in the first place)

Any mold remediation effort should begin by removing the sources of

moisture that nourish mold.. permanently.. Simply cleaning up mold

that is there now is doomed to fail if the problem that made it grow

is not fixed.

> 1. Should I ask for additional testing to determine something more

> specific about the mold that was present?

Again, given as this is a problem that was supposed to be fixed but

which has returned, I would have the testing done yourself..

I would also do whatever it takes to protect yourself Until the

situation is safe, if the vent is emitting moldy air, and it is

possible (in other words, if its safe to block - I don't know your

situation) I would block it off somehow until the situation is cleared

up. Don't let it poison you.

Use the windows for ventilation. If its a heating vent and you need

heat, use electric heaters to heat your apartment..

Anything is better than breathing moldy air..

Texas Tech (indoorairresearch.net ) has a good team of people who do

mold testing and their prices are very competitive as well.

You might want to check them or someone like them out..

[Guest guest]

Is the air good for you in Sedona?

<sedonadonald@...> wrote: Hi, M.

I have receintly been through the same thing. I moved out of the enviroment

imediatley. I had

things hepa vaccumed outside, clothes dry cleaned or washed comercially and

deliever to the new

residence that had been air tested. All hard surfaces were tacky wiped and

cleaned with hydron

peroxide. I did buy a new bed, pillows and sheets. My landlord paid for the

cleaning and moving

with a lot of threats of legal action. I did pay for the airtesting at the new

place. The meat

and vegatbles with a lot of water diet helped as well. I have be using hydron

peroxide for nasel

cleaning and gargling. It will take time to recover, it just depents on the

length of exposure.

Hope you do well.

Don in Sedona

--- mryan911 <mryan911@...> wrote:

> About three months ago I began having trouble breathing, headaches,

> and sinus problems. I discovered black/green mold in the vents in my

> apartment and asked the landlord to clean it out, which they did but

> it grew back. I asked them to test the mold, and they hired someone

> that determined that " most of the mold was Cladosporium, but some

> Aspergillus/Pencillium spores were also found in the vents "

>

> I've read some scary things online about aspegillus and pencillium,

> but would appreciate any feedback you have for me. My questions include:

> 1. Should I ask for additional testing to determine something more

> specific about the mold that was present?

> 2. Is there any further testing that can be done to determine how much

> damage I've sustained from neurotoxins?

> 3. Should I truly throw out everything that is in that apartment and

> start over, or can I just wipe tiongs down with bleach and have

> fabrics dry cleaned or vaccummed?

> 4. How normal is it to find these types of mold?

>

> Thanks for any help or guidance, SickBuilding community. I'm pretty

> freaked out.

>

> M

>

>

>

>

>

>

>

>

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[Guest guest]

Ho Jo Anne -Caitlin has never been on Mobic... but I can tell you that we've been having a difficult time with stomach over the past two months and that is after 5 years of being on naproxen. She has always taken something to protect her stomach... usually pepcid. Does your daughter take something like that? Maybe that would help. Anyway, I just wanted to say that it's entirely possible for stomach side effects to happen later in the process. They can be serious and I don't blame you for discontinuing the mobic. Hopefully, the symptoms will resolve and your poor daughter can start eating well again... then maybe the doc can add a secondary medication to protect the stomach... or perhaps try a different NSAID - many times one will bother somebody and another will be tolerated just fine.Hope she is felling better - have a great vacation!Colleen - mom to Caitlin, 9, systemicJo Anne

<jandjstewart@...> wrote: For those whose children have had stomach issues with NSAID's - how long after beginning the med did it take for symptoms to show up? Lianna's been having diarrhea for three days now (a call to the doc just said keep her hydrated and virus related diarrhea could last more than a week). I'm assuming this is a virus, but it's just so different from any other sickness she's had. She started on Mobic two weeks prior and I'm worried that this could be a side effect from the med. We

stopped Mobic on Wednesday because she was throwing up and since she's eaten very little the last two days, haven't started it again. What do you think? Just a virus or possible side effect? Here it is Friday night and we're leaving for vacation Sunday morning! Jo Anne (Lianna, almost 5 ERA)

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