2 months off Kineret is bad, very bad

July 17, 2007

Some of you may recall I had bronchitis/whooping cough/whatever it

was in May and June. I was off the Kineret for two full months. At

first I was doing okay and then suddenly the week before I was to go

back on the Kineret, i started feeling really, really bad. A lot of

pain and fatigue and cognition issues. Brought back bad memories of

before I was diagnosed.

I started back on the Kineret last week, but I am still getting

worse. I estimate 3-8 months before I am back feeling better

again. Grrr. so upsetting.

I had to call the doc at the end of last week for pain meds. It has

been 2 years since I've been on any pain meds. 2 years. And I

called crying for some. They sent in a script and made me an appt

for yesterday. I went in yesterday and the RD was so nice. We're

doing labs and we might up my Arava for a bit to see if it will help

get things back under control quicker. She said she thought she

could see a faint rash on my arms, which is something new for me, I

have never had a rash.

Anyway, she said to take the pain meds and rest as much as

possible. They prescribed Tramadol, which i have never taken

before. It doesn't make me sleepy, so i'm gonig to try it at work

today.

I did learn something through this - I definitely need the Kineret.

It's something I had been wondering about and I will never wonder

again.

Houston, Texas

Recommended Posts