Re: Fired Due to Environmental Illnesses!! WHen is Enough, Enough!

[Guest guest]

Letitia, I was wondering when you were going to stand abrupt with this

action. You know what my involvement is with taking " ACTION WITH THE

FIGHT " Let us have the strength and we will prevail. You and I talk

on a daily basis, and I agree with you very much....come on...we need

NUMBERS IN PEOPLE. I know personally that I am so tired of being

sick, and my health continues to declines on a daily basis. I do not

have the strength for just talk, Letitia I am with you on this. I

hope this message you have posted here makes a difference among the

group so we can take ACTION IN NUMBERS soon ENOUGH IS ENOUGH. We need

to go forward and if not with the website and stories, then I will

also help you to do this in another way. I dont give up for what I

believe in, my persistance and assertiveness prevails. I will talk to

you in a bit Letitia. ACTION ACTION IN NUMBERS....PLEASE HELP SO YOU

CAN GET THE BENEFIT TOWARDS A HEALTHIER FUTURE AND GET YOUR STORY TO

LETITIA---

Darlene

In , " Letitia s " <mold_activist@...>

wrote:

>

> As I have been part of this group for 2 years, I have been thankful

for what KC has done for all of us, without excepting a PENNY from any

of us. There has been a lot of information which has helped me, but

there has also been venting as well. Since this time, I have been on a

long journey in my quest to learn more about sick building syndrome

and to receive treatment which I have. Being African-American, I had

to endure a lot in my life, but I have never let that stop me. I have

been a fighter ALL of my adulthood. In my late 20's, I was involved in

a freak airline accident in which I contracted a debilatating

neurological disease where I recovered from and no one has ever done

that. As I read an email letter from my employer, yesterday (No

phone call from my supervisor) stating that effective September 29,

2006, I will be removed from the government, I was floored. That was

my breaking point. When is enough, enough! What does that mean? No

disability retirement? Filing a grievance? Getting a lawyer to help

me on contigency.. Which I have not been able to find? Funds are

running low because I have been homeless for several months and I have

donated thousands of dollars to assist fellow " mold buddies " who have

been displaced or did not have funds of their own. Who will help me?

I know that God will provide because he has to this point.

>

> I want to start a non-profit organization to help individuals who

have been exposed to mold to provide funding, counseling, receive

treatments, legal support and obtain homes. Here I am trying to build

a website for mold victims and I have asked this group for " mold

stories " several times so that we can get the story out and only

received a few out of 1500 people. For those who did respond, thank

you. I am in the process of building a website which anyone can

relate to it. I was doing this out of my personal money, since I had

to sell my house and I have not had any income since June 2005. I

want to put videos on it. Pictures of mold victims/victors. Similar to

www.laf.org. Make it colorful and uplifting. Someone asked me last

night why are you wasting your money building a website for " mold

buddies " when they do not want to give you stories. They do not want

help, it appears that they are happy in their " situation " and you can

not help people who do not want to help themselves. Is he right?

Have you been making " EXCUSES " ? Why have I received only a few

stories? Do you want to make a difference so that this ordeal does

not happen to anyone else? I didn't care what shape your story was

in, because it had to go through editing and then it would be sent

back to you for concurrence. I have several people who were going to

do the editing (personal friends of mine), but I do not have enough

letters to put on the website. Was/Am I disappointed? Yes.

>

> Am I wasting my time?

>

> I tried to do the conference calls for us. I did not get a turn out

for that either. What do you want to do?

> We are only hurting ourselves and others who are being affected

today or in the future. There is POWER in NUMBERS! This issue is so

much bigger than just yourself.

> I was thinking about getting this site up so we can get donations so

that the kids do not suffer around the holidays. I guess I have a

compassion for kids and my hearts go out for them. Why should they

suffer? They are just kids.

>

> Are you content with living on s.s, medicare or nothing? Do you

want to go to a doctor and receive treatment so that you have a much

better " quality of life " ? What are you doing about it? Have you had

enough yet? How long are you going to vent among yourselves?

>

> It takes a " small group of people " to make a difference and I

believe that this is the group to do it.

>

> You can only do what you can or what you want to do? We are all

sick, but the degree vary...

>

> I was doing a prayer and fasting for 40 days for the mold buddies,

which God has allowed me to write the Mold Victors prayer. Duriing

this time, I have lost 25 pounds (and is still continuously losing)

and I have changed my PH level from 5.8 (acidic) to 7.8 (alkaline)

while doing the Stanley Burrough's Lemondade Diet. I have energy even

though I am suffering from fibro, CFS, MCS and neuralgia. You will

not lose weight until you get rid of the yeast. ( Just for information.)

>

> I have enough... Have you? You have to live with your decision....

>

> If you want to send me the mold stories, please do so by Thursday,

September 28th COB. They will not be edited. Just please send them

in. Even if it is only a couple of lines. Do what you can now, we

can edit it later. I would like enough to have in my possession to

present to media/Congress. (Someone asked who can do it, I can.)

Having a few will not do. Can I count on your support? I am in the

Washington, DC area living in a hotel. Got exposed to mold here

again. You can send your stories to me personally at mold_activist@...

>

> If anyone lives in the Washington, DC area and want to be part of

this event, which will take place on Friday, Sept. 29, please email me

at mold_activist@... (KC do not allow the message to go to the board,

I would appreciate it.) I am already FIRED so what else can they do to

me. I need your support in this demonstration.

>

> If anyone wants to be a part of the action network

team. We need help in getting the word out. Helping with the

non-profit, conference calls, rep for your state, working with the

media, videos, Mold Awareness Month events in November 2006 etc. I am

working on events for Mold Awareness Month for November 2006. Do you

have any ideas? We all have talents. What can you do? Please send it

to me at mold_activist@...

>

> I believe that God has me here for a purpose.

>

>

> If you replied to me in the past about wanting to help, please

resend me your name, phone number and want you want to do.

>

>

> I prefer not to get any messages, unless it pertains to the subjects

above. I have to reiterate. I DO NOT WANT TO get any messages,

unless it pertains to the subjects above. (KC, please do not post any

of those messages or send them back to me. Please delete them.

Please respect my WISHES.

>

> I am about ACTION!

>

> I, too have a enough of people sending emails and not following

through or venting to hear themselves SPEAK!

>

> I have to go now to FIGHT OUR BATTLE!!!! This battle is bigger than me!

> I will continue to pray for all of you.

>

>

> Your mold buddy,

>

> LETITIA PETERS

> Activist

>

> P.S. Marcie, yes, I am your prayer angel. Good luck with the

treatments on Thursday...

>

>

>

>

>

>

> @...: bobbinsbiomed@...: Wed, 20 Sep 2006 14:28:07

-0400Subject: Re: [] , This one looks like it

would be up your alley!

>

>

>

>

> Who is they? In a message dated 9/20/2006 6:58:47 AM Central

Standard Time, snk1955@... writes:In a message dated 9/19/2006 9:08:42

P.M. Pacific Standard Time, _bobbinsbiomed@bobbins_

(mailto:bobbinsbiomed@...) writes:Sharon,Sounds great, but who hand

delivers these letters?????Sounds greaThey do. They bundle them

and run them over.[Non-text portions of this message have been

removed]

[Guest guest]

" Letitia s " <mold_activist@...> wrote:

> Am I wasting my time?

> Your mold buddy,

> LETITIA PETERS

> Activist

Before you proceed further with mold activism, you should contact

Rick M.S. author of " Trichothecene Mycotoxicosis may be

Indistinguishable from CFS " and hear his story.

He tried to warn me about the strange counterintuitive way sufferers

were completley disinterested, and vehemently rejected his

information, and told me I was wasting my time: " They probably won't

listen to you " .

I couldn't believe it, telling him " But I'm a prototype for CFS. They

can't possibly ignore this. " and put my story out in vast numbers of

websites, the CDC/NIH, bmj, various doctor groups and researchers,

group, and most of all " Mold Warriors " .

I'm still having a tough time trying to make sense of the sheer

magnitude of disinterest from the very people who would seemingly have

the greatest desire for this information.

-

[Guest guest]

-geez erik, your just a real downer. why didn't you try to start

something like letitia is, 20+ years ago????????? can you possably

look beyond yourself? sence you know so much after 20+ years why

haven't you done something more productive than whining because no

one listened to you back than. you really could have helped many in

those 20+ years, but it seems you just hang around waiting to say I

told ya so. what good does that do?? and to anyone that wants to send

nasty letters, save it. I don't care to hear any of it. I to get

aggervated at it all. I have posted links with information on the

very questions being hashed on this board but I guess no one reads

because I don't copy and paste it and they might have to do some

work. I have a lot going on and I took the time to write something

for letitia. it's for the cause, the more out there in web land, the

better chances of helping others as well as ourselves.

-- In , " erikmoldwarrior "

<erikmoldwarrior@...> wrote:

>

> " Letitia s " <mold_activist@> wrote:

>

> > Am I wasting my time?

>

> > Your mold buddy,

> > LETITIA PETERS

> > Activist

>

>

> Before you proceed further with mold activism, you should contact

> Rick M.S. author of " Trichothecene Mycotoxicosis may be

> Indistinguishable from CFS " and hear his story.

> He tried to warn me about the strange counterintuitive way

sufferers

> were completley disinterested, and vehemently rejected his

> information, and told me I was wasting my time: " They probably

won't

> listen to you " .

> I couldn't believe it, telling him " But I'm a prototype for CFS.

They

> can't possibly ignore this. " and put my story out in vast numbers

of

> websites, the CDC/NIH, bmj, various doctor groups and researchers,

> group, and most of all " Mold Warriors " .

> I'm still having a tough time trying to make sense of the sheer

> magnitude of disinterest from the very people who would seemingly

have

> the greatest desire for this information.

> -

>

[Guest guest]

This group has worked together for the legislation stories and the

mold hearings and I know I write to many government officials, press,

radio shows, the green party. We are doing our work as we can. I

sent my story to and hope others will also. But we all have

to do what we can when we can. We are all in different positions.

> >

> > > Am I wasting my time?

> >

> > > Your mold buddy,

> > > LETITIA PETERS

> > > Activist

> >

> >

> > Before you proceed further with mold activism, you should

contact

> > Rick M.S. author of " Trichothecene Mycotoxicosis may be

> > Indistinguishable from CFS " and hear his story.

> > He tried to warn me about the strange counterintuitive way

> sufferers

> > were completley disinterested, and vehemently rejected his

> > information, and told me I was wasting my time: " They probably

> won't

> > listen to you " .

> > I couldn't believe it, telling him " But I'm a prototype for CFS.

> They

> > can't possibly ignore this. " and put my story out in vast numbers

> of

> > websites, the CDC/NIH, bmj, various doctor groups and

researchers,

> > group, and most of all " Mold Warriors " .

> > I'm still having a tough time trying to make sense of the sheer

> > magnitude of disinterest from the very people who would seemingly

> have

> > the greatest desire for this information.

> > -

> >

>

[Guest guest]

LiveSimply <quackadillian@...> wrote:

>

> Okay, let me play the devils advocate here and say, 'what if the

> government acknowledged tomorrow all that we know is true about mold

and health' - what would happen?

>

> The first thing that would happen is that many, many people would be

thrown out of their (rented) homes because their landlords would not

want to chance the liability that would accrue if they could not

(falsely, almost ridiculously) claim to be 'unaware of' the health

> nightmare that mold brings upon tenants like they do now..

>

If such standards were to be set, would they be based on normal HLA,

Mold Susceptible HLA, Or Double Dreaded HLA?

There are too many people who aren't reactive that wouldn't allow

their property to be devalued for the sake of " susceptibles " when it

doesn't bother a " normie " .

Asking them to make it safe for YOUR highly reactive state would be

like a cat-allergy sufferer saying the property is worthless because a

cat lived there, or for a peanut allergy sufferer to ask that a

country bar be burned down because of the crushed peanut shells on the

floor. It's only worthless to THEM.

What would YOU do if a neighbor MCSer complained that your new car

was blasting them, and asked you not to park it on your property,

because that was too close?

Probably in order for a legislative standard to be enforced, everyone

will be required to have their HLA tested, and then if one wishes to

work, go to school, or reside in a mold zone, they would have to sign

a waiver or liability or legal release in order to have the privilege

of trying to suffer and survive alongside " normies " - basically still

taking the burden of their susceptibility upon themselves.

For someone like me, who has to dodge mold inside or out, no

standards can ever be developed which can possibly apply that wouldn't

be an unreasonable burden of those of lesser susceptibility.

I think that we " Double Dreaded Mold Genies " are pretty much flying

solo with this problem.

-

/message/19358

[Guest guest]

Letitia,

I am very sorry to hear that you have been terminated over this

condition. This is the same way they took care of my wife. There is

hope and speaking with you over the years and the organization that

you are trying to put together, please don't be disappointed over

the lack of responses. Don't give up, you are a great inspiration to

many and I know you have worked very hard at this. Ignore the

negativity, we deal with enough of this as it is. There may not be

any particular reason why others have not offered to help, other

than their plates are overflowing as it is.

I'm sorry these posts went in the direction that they had, but I was

going to release anything and everything, so everyone can see what

is taking place and their opinon, no matter how negative they may

be. It went in the direction that I expected, sorry to say. So I do

apologize AGAIN to the " newbies " . But within time you will

understand. Many bring up viable issues and they have that right.

This is a SUPPORT group and it will remain that way. For those that

do not understand the term, check it out in the dictionary. There

are many other groups that you can say whatever you want to, in the

language you wish to communicate with. This is not that type of

group. We have enough stress in our lives that we have had to deal

with and the added unnecessary stress does not help one bit. As a

matter of fact it aggreviates our condition.

I have taken care of situations in the past, some times regretably,

but you are left no choice. This board is what it is and it will

remain on the same course it has for years. No one treatment,

precedure, lifestyle is absolute, you have to do what works for you.

My perception or anyone elses for that matter is not always the

correct and final answer.

So hang in there. We have said over and over again, What works for

one may not work for another. Each person is unique and so is their

condition. This is why many doctors treat us as an individuals and

do not go with the old treatment of one size fits all. If any of the

treatment works, consider yourself one of the lucky ones, because

there are those that these treatments will not work at all, for one

reason or another. Even the treating physicians will say that also.

This is why we must remain with an open mind and their research must

continue. They haven't given up, so why should we or anyone else!

KC

And I did not use spell check. lol

[Guest guest]

Thanks for the encouragement KC for the group. Apparently we need

it. I know I don't want to be called a normi or a moldy or

whatever. It is bad enough to be in the nightmare but I would like

to think we have some hope. God . I am very fragile right now

and your message is not good especially for the new people that are

scared to death.

--- In , " tigerpaw2c " <tigerpaw2c@...>

wrote:

>

> Letitia,

>

> I am very sorry to hear that you have been terminated over this

> condition. This is the same way they took care of my wife. There is

> hope and speaking with you over the years and the organization that

> you are trying to put together, please don't be disappointed over

> the lack of responses. Don't give up, you are a great inspiration

to

> many and I know you have worked very hard at this. Ignore the

> negativity, we deal with enough of this as it is. There may not be

> any particular reason why others have not offered to help, other

> than their plates are overflowing as it is.

>

> I'm sorry these posts went in the direction that they had, but I

was

> going to release anything and everything, so everyone can see what

> is taking place and their opinon, no matter how negative they may

> be. It went in the direction that I expected, sorry to say. So I do

> apologize AGAIN to the " newbies " . But within time you will

> understand. Many bring up viable issues and they have that right.

> This is a SUPPORT group and it will remain that way. For those that

> do not understand the term, check it out in the dictionary. There

> are many other groups that you can say whatever you want to, in the

> language you wish to communicate with. This is not that type of

> group. We have enough stress in our lives that we have had to deal

> with and the added unnecessary stress does not help one bit. As a

> matter of fact it aggreviates our condition.

>

> I have taken care of situations in the past, some times regretably,

> but you are left no choice. This board is what it is and it will

> remain on the same course it has for years. No one treatment,

> precedure, lifestyle is absolute, you have to do what works for

you.

> My perception or anyone elses for that matter is not always the

> correct and final answer.

>

> So hang in there. We have said over and over again, What works for

> one may not work for another. Each person is unique and so is their

> condition. This is why many doctors treat us as an individuals and

> do not go with the old treatment of one size fits all. If any of

the

> treatment works, consider yourself one of the lucky ones, because

> there are those that these treatments will not work at all, for one

> reason or another. Even the treating physicians will say that also.

> This is why we must remain with an open mind and their research

must

> continue. They haven't given up, so why should we or anyone else!

>

> KC

>

> And I did not use spell check. lol

>

[Guest guest]

" ldelp84227 " <ldelp84227@...> wrote:

It is bad enough to be in the nightmare but I would like to think

we have some hope. God . I am very fragile right now and your

message is not good especially for the new people that are scared to

death.

>

After Dr told me " You are at a point where most people

with CFS commit suicide " , and sure felt like it, I guess that I

went " beyond scared " .

I remember losing control of an airplane at 800 feet, and I was so

certain that I wasn't going to survive that I simply stopped caring

about whether I did or not, and put my total focus into action - and

it worked.

And when I reached a point in this illness where I felt that there

was no chance for survival, I made one last attempt at a promising

concept - and it worked. So much so, that, as I described in Mold

Warriors, I went from the most aggressive experimental antiviral

program of a novel immune modulator " ampligen " treatment for severe

ME/CFS back to mountain climbing within six months.

I literally walked out of an NIH experimental treatment program to

do this. I thought that people in a similar situation might see

this as a clue, perhaps even something they might want to try.

Instead, it is perceived as " boasting " .

While perhaps I might be forgiven if I were to brag about having

accomplished something that doctors utterly failed to do, the more

critical aspect is that recoveries of this nature cannot be faked.

The very fact of having done it is a statement regarding etiology

of the illness - a demonstration that I uncovered something that

might be extremely useful to others.

As I told Rick , " My experience confirms your hypothesis in a

huge way " , and I thought that this is how science is meant to be

conducted.

It has been most alarming to find that instead of seeing my story

as a significant and compelling clue, and a possible means of

helping people, that the " bragging component " is found to be so

offensive that the fact that this is a scientific clue is completely

dismissed.

Dr Shoemaker is virtually the only medical professional who saw my

story for what it is: A demonstration of positive correlation of

illness to decreased biotoxin exposure, instead of simply the

negative one of people falling deeper into illness.

People should be scared, because if they are anything like me,

conventional medicine is not currently helping them much or even

demonstrating interest in pursuing relevant clues when they are

presented. But at the same time, my story offers hope to people who

recognize their illness in my story, because if they are like me,

then they too might benefit from extreme avoidance in the same way I

have.

It's been a miracle.

-

[Guest guest]

jane mosher < wrote:

>

> where can I get ampligen??? can my doctor prescribe it for me???

I live in Richmond, Va.

>

Ampligen is an experimental drug that has not yet been approved.

It is being tested in HIV and severe ME/CFS.

It can cost up to a hundred thousand dollars a year.

When I heard how much it cost, I said " It may as well be on the Moon "

It took as much as nine months before improvement started to kick in.

The people I saw did get some benefit, but only about 20% in oxygen

uptake and, at best, were only able to return to work part-time.

When they ran out of money or the funded study ended, most relapsed

worse than they were to begin with.

Sorry to give you such a grim picture, but in a way, it turned out

much better for me, because I just decided to go all-out on mold

avoidance - and wound up improving more than anyone had ever seen.

So much so, that people don't believe it, even though I have

pictures. They usually say " Then you must not have been truly ill

in the first place " without stopping to think that if I hadn't, I

wouldn't have been included in the experimental NIH/CFS ampligen

program protocols.

All things considered, I'll stick with extreme avoidance.

-

[Guest guest]

,

What do you recommend for people who can't practice extreme avoidance,

for example, people whose work ends up exposing them to low levels of

mold.

(perhaps because they need the medical insurance that some 'real

jobs' still provide)

For example, before I got sick, I could go into any building without

any problems, but now, its not infrequent that when I go into

businesses that I get sick. I dread the idea of having to work in

those places but when I get better enough to start really looking for

work I very well might end up having to.

What do people in that situation do?

[Guest guest]

LiveSimply <quackadillian@...> wrote:

>

> ,

> What do you recommend for people who can't practice extreme

avoidance, for example, people whose work ends up exposing them to low

levels of mold.

> For example, before I got sick, I could go into any building without

> any problems, but now, its not infrequent that when I go into

> businesses that I get sick. I dread the idea of having to work in

> those places but when I get better enough to start really looking for

> work I very well might end up having to.

>

> What do people in that situation do?

>

That's when you absolutely MUST practice a strategy of extreme

avoidance and make a concerted effort at monitoring and controlling

your exposure at ALL times so that you can build up enough reserve to

tolerate some limited exposure at OTHER times, just as I'm doing now.

At this moment I am in a building that used to knock me flat in

minutes, and now I can work all day here.

But to do that, I " balance the books " by constantly looking at

indicators of exposure that are usually more subtle that ones people

are usually referring to.

Responding to minor perceptive " Hits " instead of just major " Slams " .

People tend to quickly jump to the conclusion that they already know

what I am describing when I say " extreme avoidance " , often thinking

that this just means a " tent out in the desert " , even though this is

not what I actually said:

/message/32214

-

[Guest guest]

Sorry for posting on this thread 12 days late, my reading at the 5th

grade level and being run down most of the time and having other

priorities it's hard to keep up.

I read one of these post and just bit my tongue, I didn't have the

courage nor did I think I was knowledgeable enough about the facts and

the absence of them to say what I thought. I do agree with what

says.

I just couldn't think of a way to articulate this without offending

anyone.

's analogies do an excellent job of articulating my thoughts also.

> LiveSimply <quackadillian@...> wrote:

>>

>> Okay, let me play the devils advocate here and say, 'what if the

>> government acknowledged tomorrow all that we know is true about mold

>and health' - what would happen?

>>

>> The first thing that would happen is that many, many people would be

>thrown out of their (rented) homes because their landlords would not

>want to chance the liability that would accrue if they could not

>(falsely, almost ridiculously) claim to be 'unaware of' the health

>> nightmare that mold brings upon tenants like they do now..

>>

>

>If such standards were to be set, would they be based on normal HLA,

>Mold Susceptible HLA, Or Double Dreaded HLA?

> There are too many people who aren't reactive that wouldn't allow

>their property to be devalued for the sake of " susceptibles " when it

>doesn't bother a " normie " .

> Asking them to make it safe for YOUR highly reactive state would be

>like a cat-allergy sufferer saying the property is worthless because a

>cat lived there, or for a peanut allergy sufferer to ask that a

>country bar be burned down because of the crushed peanut shells on the

>floor. It's only worthless to THEM.

> What would YOU do if a neighbor MCSer complained that your new car

>was blasting them, and asked you not to park it on your property,

>because that was too close?

> Probably in order for a legislative standard to be enforced, everyone

>will be required to have their HLA tested, and then if one wishes to

>work, go to school, or reside in a mold zone, they would have to sign

>a waiver or liability or legal release in order to have the privilege

>of trying to suffer and survive alongside " normies " - basically still

>taking the burden of their susceptibility upon themselves.

> For someone like me, who has to dodge mold inside or out, no

>standards can ever be developed which can possibly apply that wouldn't

>be an unreasonable burden of those of lesser susceptibility.

> I think that we " Double Dreaded Mold Genies " are pretty much flying

>solo with this problem.

>-

> /message/19358

>

>

>

>

>

>

[Guest guest]

On Sun, 01 Oct 2006 15:56:15 -0000, you wrote:

>It's been a miracle.

>-

Sorry again for posting 12 days late.

It's my goal not to give up but to try to emulate 's success and

validate what has been harping on since I first joined this group

in 2002.

As bad as I feel most of the time it truly would be a miracle but I

do believe what he is saying to be accurate. I have observed the

phenomenon in my personal experiences enough times to believe this.

is one of only a few people in this group that has described the

depths of hell he's been though which I can relate to intimately,

only to make a full recovery and return to gainful employment and a

functional life.

Regardless of what people think about his ego I am impressed. Jealous

that I haven't had the discipline, foresight, and determination it

must have taken to achieve this but just the same impressed.

I also realize that certain people have the odds stacked in their

favor, not everyone has access to an airplane hanger. Or the resources

to build a motor home from the ground up.

-----------------------------------------------------

After Dr told me " You are at a point where most people

with CFS commit suicide " , and sure felt like it, I guess that I

went " beyond scared " .

I remember losing control of an airplane at 800 feet, and I was so

certain that I wasn't going to survive that I simply stopped caring

about whether I did or not, and put my total focus into action - and

it worked.

And when I reached a point in this illness where I felt that there

was no chance for survival, I made one last attempt at a promising

concept - and it worked. So much so, that, as I described in Mold

Warriors, I went from the most aggressive experimental antiviral

program of a novel immune modulator " ampligen " treatment for severe

ME/CFS back to mountain climbing within six months.

I literally walked out of an NIH experimental treatment program to

do this. I thought that people in a similar situation might see

this as a clue, perhaps even something they might want to try.

Instead, it is perceived as " boasting " .

While perhaps I might be forgiven if I were to brag about having

accomplished something that doctors utterly failed to do, the more

critical aspect is that recoveries of this nature cannot be faked.

The very fact of having done it is a statement regarding etiology

of the illness - a demonstration that I uncovered something that

might be extremely useful to others.

As I told Rick , " My experience confirms your hypothesis in a

huge way " , and I thought that this is how science is meant to be

conducted.

It has been most alarming to find that instead of seeing my story

as a significant and compelling clue, and a possible means of

helping people, that the " bragging component " is found to be so

offensive that the fact that this is a scientific clue is completely

dismissed.

Dr Shoemaker is virtually the only medical professional who saw my

story for what it is: A demonstration of positive correlation of

illness to decreased biotoxin exposure, instead of simply the

negative one of people falling deeper into illness.

People should be scared, because if they are anything like me,

conventional medicine is not currently helping them much or even

demonstrating interest in pursuing relevant clues when they are

presented. But at the same time, my story offers hope to people who

recognize their illness in my story, because if they are like me,

then they too might benefit from extreme avoidance in the same way I

have.

It's been a miracle.

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