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Re: We're hoping to cast! What do I bring?

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Sandi,

When is your appt.? You are aware, that Dr. Sturm IS Mehta trained, but he

does not have the correct equipment that gets best results. (I know some of you

will argue the correct equipment point with me, but in my opinion it is KEY!)

They should have parent housing at the hospital that is free. Have you checked

into that?

" *\\o/* San *\\o/* " wrote:

Well, we're going to Chicago for a casting consult. I pray this is an

option for . If he can be casted, they'll do it while we're

there.

What do I need to bring?

We had a repeat spinal x-ray done yesterday because his back looked

WAY worse to me and I was feeling the ends of his ribs :( We still

haven't heard back from them regarding what his curve measured, but I

did pick up copies of those and the original x-rays, as well as his

MRI films.

Should I have anything else with me when we go up there?

Are there any other assistance programs I should know about? We're

staying at hotel, out of pocket, and they are giving us the " college

rate " since they don't have a hospital rate, but it's still expensive.

We're travelling with our other children and a caregiver for them.

So, aside from the obvious things (toiletries, clothing, etc.) what do

we need to bring? I bought an expanding file for all of his stuff.

Photos of his back? Any other medical records?

What kind of clothing will he need?

Anything else I need to know?

Thanks

Sandi ( & Jack)

---------------------------------

Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on,

when.

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Guest guest

Sandi,

When is your appt.? You are aware, that Dr. Sturm IS Mehta trained, but he

does not have the correct equipment that gets best results. (I know some of you

will argue the correct equipment point with me, but in my opinion it is KEY!)

They should have parent housing at the hospital that is free. Have you checked

into that?

" *\\o/* San *\\o/* " wrote:

Well, we're going to Chicago for a casting consult. I pray this is an

option for . If he can be casted, they'll do it while we're

there.

What do I need to bring?

We had a repeat spinal x-ray done yesterday because his back looked

WAY worse to me and I was feeling the ends of his ribs :( We still

haven't heard back from them regarding what his curve measured, but I

did pick up copies of those and the original x-rays, as well as his

MRI films.

Should I have anything else with me when we go up there?

Are there any other assistance programs I should know about? We're

staying at hotel, out of pocket, and they are giving us the " college

rate " since they don't have a hospital rate, but it's still expensive.

We're travelling with our other children and a caregiver for them.

So, aside from the obvious things (toiletries, clothing, etc.) what do

we need to bring? I bought an expanding file for all of his stuff.

Photos of his back? Any other medical records?

What kind of clothing will he need?

Anything else I need to know?

Thanks

Sandi ( & Jack)

---------------------------------

Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see what's on,

when.

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Guest guest

Hi Sandi,

Since august 2006, Max has been seeing Dr. Sturm monthly before Dr.

Sturm went on medical leave.

When we first saw Dr. Sturm last year, they primarily needed a copy

of his MRI, any spinal x-rays to help show progression, your

insurance card, the address & phone number of your family physician

or pediatrican so thet can receive info on Dr. Sturm's evaluation.

Because time in unpredictable, I brought some toys,books,and snacks

to occupy Max's time.

Regarding housing, please realize Chicago is a very large city and

have many patients to accomadate for. I know the parent housing is

limited to the parents of those children having invasive surgery.

Our children are important, but since space is limited, parent

housing my not be available. I know Erie is very accomadating, but

again, the size of Erie and the number of surgeries performed there

may not be as high as Chicago.

I have a list of hotels in the area and the Mc House (a

minimal donation is expected-when we were in Madison,WI it was

$10/night). I will gladly e-mail the info to you if you'd like. Or

if you would like suggestions as to where to stay in the Chicago

area, I will gladly provide my opinion. I was born and raised in

Chicago near the Shriner's Hospital and just moved from there 5

years ago.

I hope you and your family can make a mini-trip to Chicago and enjoy

some of the big city sites.

When is your appointment with Dr.Sturm?

You have my personal & work e-mail address, please feel free to e-

mail me if you need more info.

Aekta

> Well, we're going to Chicago for a casting consult. I

pray this is an

> option for . If he can be casted, they'll do it while we're

> there.

>

> What do I need to bring?

>

> We had a repeat spinal x-ray done yesterday because his back looked

> WAY worse to me and I was feeling the ends of his ribs :( We still

> haven't heard back from them regarding what his curve measured,

but I

> did pick up copies of those and the original x-rays, as well as his

> MRI films.

>

> Should I have anything else with me when we go up there?

>

> Are there any other assistance programs I should know about? We're

> staying at hotel, out of pocket, and they are giving us

the " college

> rate " since they don't have a hospital rate, but it's still

expensive.

> We're travelling with our other children and a caregiver for them.

>

> So, aside from the obvious things (toiletries, clothing, etc.)

what do

> we need to bring? I bought an expanding file for all of his stuff.

> Photos of his back? Any other medical records?

>

> What kind of clothing will he need?

>

> Anything else I need to know?

>

> Thanks

> Sandi ( & Jack)

>

>

>

>

>

> ---------------------------------

> Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see

what's on, when.

>

>

Link to comment
Share on other sites

Guest guest

Hi Sandi,

Since august 2006, Max has been seeing Dr. Sturm monthly before Dr.

Sturm went on medical leave.

When we first saw Dr. Sturm last year, they primarily needed a copy

of his MRI, any spinal x-rays to help show progression, your

insurance card, the address & phone number of your family physician

or pediatrican so thet can receive info on Dr. Sturm's evaluation.

Because time in unpredictable, I brought some toys,books,and snacks

to occupy Max's time.

Regarding housing, please realize Chicago is a very large city and

have many patients to accomadate for. I know the parent housing is

limited to the parents of those children having invasive surgery.

Our children are important, but since space is limited, parent

housing my not be available. I know Erie is very accomadating, but

again, the size of Erie and the number of surgeries performed there

may not be as high as Chicago.

I have a list of hotels in the area and the Mc House (a

minimal donation is expected-when we were in Madison,WI it was

$10/night). I will gladly e-mail the info to you if you'd like. Or

if you would like suggestions as to where to stay in the Chicago

area, I will gladly provide my opinion. I was born and raised in

Chicago near the Shriner's Hospital and just moved from there 5

years ago.

I hope you and your family can make a mini-trip to Chicago and enjoy

some of the big city sites.

When is your appointment with Dr.Sturm?

You have my personal & work e-mail address, please feel free to e-

mail me if you need more info.

Aekta

> Well, we're going to Chicago for a casting consult. I

pray this is an

> option for . If he can be casted, they'll do it while we're

> there.

>

> What do I need to bring?

>

> We had a repeat spinal x-ray done yesterday because his back looked

> WAY worse to me and I was feeling the ends of his ribs :( We still

> haven't heard back from them regarding what his curve measured,

but I

> did pick up copies of those and the original x-rays, as well as his

> MRI films.

>

> Should I have anything else with me when we go up there?

>

> Are there any other assistance programs I should know about? We're

> staying at hotel, out of pocket, and they are giving us

the " college

> rate " since they don't have a hospital rate, but it's still

expensive.

> We're travelling with our other children and a caregiver for them.

>

> So, aside from the obvious things (toiletries, clothing, etc.)

what do

> we need to bring? I bought an expanding file for all of his stuff.

> Photos of his back? Any other medical records?

>

> What kind of clothing will he need?

>

> Anything else I need to know?

>

> Thanks

> Sandi ( & Jack)

>

>

>

>

>

> ---------------------------------

> Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see

what's on, when.

>

>

Link to comment
Share on other sites

Guest guest

Hi Sandi,

Since august 2006, Max has been seeing Dr. Sturm monthly before Dr.

Sturm went on medical leave.

When we first saw Dr. Sturm last year, they primarily needed a copy

of his MRI, any spinal x-rays to help show progression, your

insurance card, the address & phone number of your family physician

or pediatrican so thet can receive info on Dr. Sturm's evaluation.

Because time in unpredictable, I brought some toys,books,and snacks

to occupy Max's time.

Regarding housing, please realize Chicago is a very large city and

have many patients to accomadate for. I know the parent housing is

limited to the parents of those children having invasive surgery.

Our children are important, but since space is limited, parent

housing my not be available. I know Erie is very accomadating, but

again, the size of Erie and the number of surgeries performed there

may not be as high as Chicago.

I have a list of hotels in the area and the Mc House (a

minimal donation is expected-when we were in Madison,WI it was

$10/night). I will gladly e-mail the info to you if you'd like. Or

if you would like suggestions as to where to stay in the Chicago

area, I will gladly provide my opinion. I was born and raised in

Chicago near the Shriner's Hospital and just moved from there 5

years ago.

I hope you and your family can make a mini-trip to Chicago and enjoy

some of the big city sites.

When is your appointment with Dr.Sturm?

You have my personal & work e-mail address, please feel free to e-

mail me if you need more info.

Aekta

> Well, we're going to Chicago for a casting consult. I

pray this is an

> option for . If he can be casted, they'll do it while we're

> there.

>

> What do I need to bring?

>

> We had a repeat spinal x-ray done yesterday because his back looked

> WAY worse to me and I was feeling the ends of his ribs :( We still

> haven't heard back from them regarding what his curve measured,

but I

> did pick up copies of those and the original x-rays, as well as his

> MRI films.

>

> Should I have anything else with me when we go up there?

>

> Are there any other assistance programs I should know about? We're

> staying at hotel, out of pocket, and they are giving us

the " college

> rate " since they don't have a hospital rate, but it's still

expensive.

> We're travelling with our other children and a caregiver for them.

>

> So, aside from the obvious things (toiletries, clothing, etc.)

what do

> we need to bring? I bought an expanding file for all of his stuff.

> Photos of his back? Any other medical records?

>

> What kind of clothing will he need?

>

> Anything else I need to know?

>

> Thanks

> Sandi ( & Jack)

>

>

>

>

>

> ---------------------------------

> Sick sense of humor? Visit Yahoo! TV's Comedy with an Edge to see

what's on, when.

>

>

Link to comment
Share on other sites

Guest guest

The only other assistance I know of is through the Childrens Miracle Network.

In Kansas you can receive up to $500 reinbursement for medical expenses a year.

I will try to research a state contact website or something. You might try

using goodsearch.com and see if anything comes up as well.

Shellie

" *\\o/* San *\\o/* " wrote:

Well, we're going to Chicago for a casting consult. I pray this is an

option for . If he can be casted, they'll do it while we're

there.

What do I need to bring?

We had a repeat spinal x-ray done yesterday because his back looked

WAY worse to me and I was feeling the ends of his ribs :( We still

haven't heard back from them regarding what his curve measured, but I

did pick up copies of those and the original x-rays, as well as his

MRI films.

Should I have anything else with me when we go up there?

Are there any other assistance programs I should know about? We're

staying at hotel, out of pocket, and they are giving us the " college

rate " since they don't have a hospital rate, but it's still expensive.

We're travelling with our other children and a caregiver for them.

So, aside from the obvious things (toiletries, clothing, etc.) what do

we need to bring? I bought an expanding file for all of his stuff.

Photos of his back? Any other medical records?

What kind of clothing will he need?

Anything else I need to know?

Thanks

Sandi ( & Jack)

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

Link to comment
Share on other sites

Guest guest

The only other assistance I know of is through the Childrens Miracle Network.

In Kansas you can receive up to $500 reinbursement for medical expenses a year.

I will try to research a state contact website or something. You might try

using goodsearch.com and see if anything comes up as well.

Shellie

" *\\o/* San *\\o/* " wrote:

Well, we're going to Chicago for a casting consult. I pray this is an

option for . If he can be casted, they'll do it while we're

there.

What do I need to bring?

We had a repeat spinal x-ray done yesterday because his back looked

WAY worse to me and I was feeling the ends of his ribs :( We still

haven't heard back from them regarding what his curve measured, but I

did pick up copies of those and the original x-rays, as well as his

MRI films.

Should I have anything else with me when we go up there?

Are there any other assistance programs I should know about? We're

staying at hotel, out of pocket, and they are giving us the " college

rate " since they don't have a hospital rate, but it's still expensive.

We're travelling with our other children and a caregiver for them.

So, aside from the obvious things (toiletries, clothing, etc.) what do

we need to bring? I bought an expanding file for all of his stuff.

Photos of his back? Any other medical records?

What kind of clothing will he need?

Anything else I need to know?

Thanks

Sandi ( & Jack)

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

Link to comment
Share on other sites

Guest guest

Our appointment is the first one with Dr. Mehta on the 8th. I'm

pretty sure she and Dr. Sturm will be capable.

Sandi

Sandi,

> When is your appt.? You are aware, that Dr. Sturm IS Mehta

trained, but he does not have the correct equipment that gets best

results. (I know some of you will argue the correct equipment point

with me, but in my opinion it is KEY!)

> They should have parent housing at the hospital that is free. Have

you checked into that?

>

Link to comment
Share on other sites

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