Re: Daughter worse after 3rd cast

[Guest guest]

This did happen to Madison once. It happened because her rotation was being

corrected though. Did her rotation improve with this new cast?

pgboukidis wrote: My daughter Meredith was a

patient of Dr. D''s in

Philadelphia. Dr. D' applied Meredith's first cast in February

2007 and got her curve down from 32 to 15. When it was time for

Meredith to get recasted she had an awful chest cold and could not be

put under anesthesia. Dr. D' thought we could just wrap her in

a cast so that she would not progress while she was getting over her

cold. I basically held her arms up and she casted her. She then

took an x-ray and her curve was 20.

We went back in in May and her out of cast curve was down to 11 (only

out of cast for 2 hours). Dr. D' casted her and told me it

wasn't necessary to do an in cast x-ray and that we no longer needed

to come to Philadelphia for treatment. We were told to go home and

get a brace after she came out of this cast. I requested an in cast

x-ray and they did it for me. When I got home, I called Dr. D'

and asked her to measure it. She told me that Meredith's cobb was 11

and RVAD was 22. I asked to come back to Philadelphia but she

insisted that Meredith was fine.

Anyway, I followed my gut and made an appointment with Dr. in

Erie. We just got back from Erie a couple of days ago. When she came

out of this last cast she looked worse to me and sure enough her

curve had gone from 11 degrees in May to 25 degrees out of cast last

week.

The minute she came out of the cast I knew she looked worse than

before. She was worse when she came out of the cast than when she

went into it. I didn't know if anyone else had this happen. I

thought it wasn't possible for this to happen if the cast was applied

properly. How could she go into the cast at 11 and come out at 25?

Anyway, I'm so grateful that I had the appointment and that she was

casted without any delay. Dr. and the entire staff in Erie

were so nice and attentive to Meredith.

tte and Meredith (19 months)

---------------------------------

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[Guest guest]

My son is 10 and has been in a back brace since 2 1/2, not casted for a lengthy

period of time, but I imagine there may be similarities... (I wish I knew about

some of the newer procedures when he was a baby!) He was 44 and 39 when he was

1st diagnosed. He has had back braces for the 7 1/2 years! Wow, time flies!

I think it was last year...When they casted Connor for the back brace it

appeared to be good cast and subsequent brace, but after several months in that

brace his curve went from the 20's to mid 40's. It was actually worse in the

brace then out of the brace. I believe it had something to do with the original

casting of the brace and pressure on the wrong part of his curve and possibly a

growth spurt. So those two combined didn't correct the curve but made it worse.

Good job tte for listening to your gut!! Just know that the curve can go

up and down up to 5 degrees (I believe) if they aren't measuring it at the same

point each time that can add degrees too! Didn't two different people measure?

It sounds like you are doing a great job with the follow up.

Connor's curves have been better and worse throughout the his scoliosis years.

Not sure why...He has been up and down! Connor has not had any surgeries, as of

yet, and we are hoping to avoid it all together. His curve started at 44/39 and

has been as high as 56/49 and last year was 19/15. I can see that there is some

rotation when you look at his back and I have a feeling his curve is

worse...we'll see. He is still very flexible and we seem to get good correction

with the brace.

I'm nervous about the rotation and the curve. He goes to Shriner's in SLC or

tele-medicine clinics, etc. Anything new for 10 year olds?? Let me know and

Thanks a bunch!

Jen

Daughter worse after 3rd cast

My daughter Meredith was a patient of Dr. D''s in

Philadelphia. Dr. D' applied Meredith's first cast in February

2007 and got her curve down from 32 to 15. When it was time for

Meredith to get recasted she had an awful chest cold and could not be

put under anesthesia. Dr. D' thought we could just wrap her in

a cast so that she would not progress while she was getting over her

cold. I basically held her arms up and she casted her. She then

took an x-ray and her curve was 20.

We went back in in May and her out of cast curve was down to 11 (only

out of cast for 2 hours). Dr. D' casted her and told me it

wasn't necessary to do an in cast x-ray and that we no longer needed

to come to Philadelphia for treatment. We were told to go home and

get a brace after she came out of this cast. I requested an in cast

x-ray and they did it for me. When I got home, I called Dr. D'

and asked her to measure it. She told me that Meredith's cobb was 11

and RVAD was 22. I asked to come back to Philadelphia but she

insisted that Meredith was fine.

Anyway, I followed my gut and made an appointment with Dr. in

Erie. We just got back from Erie a couple of days ago. When she came

out of this last cast she looked worse to me and sure enough her

curve had gone from 11 degrees in May to 25 degrees out of cast last

week.

The minute she came out of the cast I knew she looked worse than

before. She was worse when she came out of the cast than when she

went into it. I didn't know if anyone else had this happen. I

thought it wasn't possible for this to happen if the cast was applied

properly. How could she go into the cast at 11 and come out at 25?

Anyway, I'm so grateful that I had the appointment and that she was

casted without any delay. Dr. and the entire staff in Erie

were so nice and attentive to Meredith.

tte and Meredith (19 months)

[Guest guest]

I can't answer your question, I do know that it does happen. Was her rotation

addressed? Sometimes it seemed Evan's COBB went down adn the RVAD went up and

then another time his RVAD went down and the COBB increased very slightly.

So sorry to hear the numbers went up, but just wait and see how she is after

this cast. Glad Dr.SAnders worked her in.

Take care.

and Evan

pgboukidis wrote:

My daughter Meredith was a patient of Dr. D''s in

Philadelphia. Dr. D' applied Meredith's first cast in February

2007 and got her curve down from 32 to 15. When it was time for

Meredith to get recasted she had an awful chest cold and could not be

put under anesthesia. Dr. D' thought we could just wrap her in

a cast so that she would not progress while she was getting over her

cold. I basically held her arms up and she casted her. She then

took an x-ray and her curve was 20.

We went back in in May and her out of cast curve was down to 11 (only

out of cast for 2 hours). Dr. D' casted her and told me it

wasn't necessary to do an in cast x-ray and that we no longer needed

to come to Philadelphia for treatment. We were told to go home and

get a brace after she came out of this cast. I requested an in cast

x-ray and they did it for me. When I got home, I called Dr. D'

and asked her to measure it. She told me that Meredith's cobb was 11

and RVAD was 22. I asked to come back to Philadelphia but she

insisted that Meredith was fine.

Anyway, I followed my gut and made an appointment with Dr. in

Erie. We just got back from Erie a couple of days ago. When she came

out of this last cast she looked worse to me and sure enough her

curve had gone from 11 degrees in May to 25 degrees out of cast last

week.

The minute she came out of the cast I knew she looked worse than

before. She was worse when she came out of the cast than when she

went into it. I didn't know if anyone else had this happen. I

thought it wasn't possible for this to happen if the cast was applied

properly. How could she go into the cast at 11 and come out at 25?

Anyway, I'm so grateful that I had the appointment and that she was

casted without any delay. Dr. and the entire staff in Erie

were so nice and attentive to Meredith.

tte and Meredith (19 months)

---------------------------------

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[Guest guest]

I can't answer your question, I do know that it does happen. Was her rotation

addressed? Sometimes it seemed Evan's COBB went down adn the RVAD went up and

then another time his RVAD went down and the COBB increased very slightly.

So sorry to hear the numbers went up, but just wait and see how she is after

this cast. Glad Dr.SAnders worked her in.

Take care.

and Evan

pgboukidis wrote:

My daughter Meredith was a patient of Dr. D''s in

Philadelphia. Dr. D' applied Meredith's first cast in February

2007 and got her curve down from 32 to 15. When it was time for

Meredith to get recasted she had an awful chest cold and could not be

put under anesthesia. Dr. D' thought we could just wrap her in

a cast so that she would not progress while she was getting over her

cold. I basically held her arms up and she casted her. She then

took an x-ray and her curve was 20.

We went back in in May and her out of cast curve was down to 11 (only

out of cast for 2 hours). Dr. D' casted her and told me it

wasn't necessary to do an in cast x-ray and that we no longer needed

to come to Philadelphia for treatment. We were told to go home and

get a brace after she came out of this cast. I requested an in cast

x-ray and they did it for me. When I got home, I called Dr. D'

and asked her to measure it. She told me that Meredith's cobb was 11

and RVAD was 22. I asked to come back to Philadelphia but she

insisted that Meredith was fine.

Anyway, I followed my gut and made an appointment with Dr. in

Erie. We just got back from Erie a couple of days ago. When she came

out of this last cast she looked worse to me and sure enough her

curve had gone from 11 degrees in May to 25 degrees out of cast last

week.

The minute she came out of the cast I knew she looked worse than

before. She was worse when she came out of the cast than when she

went into it. I didn't know if anyone else had this happen. I

thought it wasn't possible for this to happen if the cast was applied

properly. How could she go into the cast at 11 and come out at 25?

Anyway, I'm so grateful that I had the appointment and that she was

casted without any delay. Dr. and the entire staff in Erie

were so nice and attentive to Meredith.

tte and Meredith (19 months)

---------------------------------

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[Guest guest]

I can't answer your question, I do know that it does happen. Was her rotation

addressed? Sometimes it seemed Evan's COBB went down adn the RVAD went up and

then another time his RVAD went down and the COBB increased very slightly.

So sorry to hear the numbers went up, but just wait and see how she is after

this cast. Glad Dr.SAnders worked her in.

Take care.

and Evan

pgboukidis wrote:

My daughter Meredith was a patient of Dr. D''s in

Philadelphia. Dr. D' applied Meredith's first cast in February

2007 and got her curve down from 32 to 15. When it was time for

Meredith to get recasted she had an awful chest cold and could not be

put under anesthesia. Dr. D' thought we could just wrap her in

a cast so that she would not progress while she was getting over her

cold. I basically held her arms up and she casted her. She then

took an x-ray and her curve was 20.

We went back in in May and her out of cast curve was down to 11 (only

out of cast for 2 hours). Dr. D' casted her and told me it

wasn't necessary to do an in cast x-ray and that we no longer needed

to come to Philadelphia for treatment. We were told to go home and

get a brace after she came out of this cast. I requested an in cast

x-ray and they did it for me. When I got home, I called Dr. D'

and asked her to measure it. She told me that Meredith's cobb was 11

and RVAD was 22. I asked to come back to Philadelphia but she

insisted that Meredith was fine.

Anyway, I followed my gut and made an appointment with Dr. in

Erie. We just got back from Erie a couple of days ago. When she came

out of this last cast she looked worse to me and sure enough her

curve had gone from 11 degrees in May to 25 degrees out of cast last

week.

The minute she came out of the cast I knew she looked worse than

before. She was worse when she came out of the cast than when she

went into it. I didn't know if anyone else had this happen. I

thought it wasn't possible for this to happen if the cast was applied

properly. How could she go into the cast at 11 and come out at 25?

Anyway, I'm so grateful that I had the appointment and that she was

casted without any delay. Dr. and the entire staff in Erie

were so nice and attentive to Meredith.

tte and Meredith (19 months)

---------------------------------

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[Guest guest]

tte,

I am so sorry to hear about your roller coaster. I don't know why Dr D'

decided to stop casting. Dr. Khoury has always told me to continue casting until

the child gets to 5 degrees cobb and virtually no rotation or RVAD UNLESS the

child has seemed to stop gsaining ground for a few casts in a row. Why stop when

the child still improving? As far as the brace goes, in Erie the brace molds are

made while the child is on the traction table or from a previous cast so the

rotation can continue to be addressed. So I am again surprised she sent you

elsewhere to get the brace fitted.

Well, Dr. is great. Hopefully Meredith is on the road to recovery again.

He will take good care of her. Have you talked to Dr. D' about all this?

Keep us posted.

/Cole

pgboukidis wrote: My

daughter Meredith was a patient of Dr. D''s in

Philadelphia. Dr. D' applied Meredith's first cast in February

2007 and got her curve down from 32 to 15. When it was time for

Meredith to get recasted she had an awful chest cold and could not be

put under anesthesia. Dr. D' thought we could just wrap her in

a cast so that she would not progress while she was getting over her

cold. I basically held her arms up and she casted her. She then

took an x-ray and her curve was 20.

We went back in in May and her out of cast curve was down to 11 (only

out of cast for 2 hours). Dr. D' casted her and told me it

wasn't necessary to do an in cast x-ray and that we no longer needed

to come to Philadelphia for treatment. We were told to go home and

get a brace after she came out of this cast. I requested an in cast

x-ray and they did it for me. When I got home, I called Dr. D'

and asked her to measure it. She told me that Meredith's cobb was 11

and RVAD was 22. I asked to come back to Philadelphia but she

insisted that Meredith was fine.

Anyway, I followed my gut and made an appointment with Dr. in

Erie. We just got back from Erie a couple of days ago. When she came

out of this last cast she looked worse to me and sure enough her

curve had gone from 11 degrees in May to 25 degrees out of cast last

week.

The minute she came out of the cast I knew she looked worse than

before. She was worse when she came out of the cast than when she

went into it. I didn't know if anyone else had this happen. I

thought it wasn't possible for this to happen if the cast was applied

properly. How could she go into the cast at 11 and come out at 25?

Anyway, I'm so grateful that I had the appointment and that she was

casted without any delay. Dr. and the entire staff in Erie

were so nice and attentive to Meredith.

tte and Meredith (19 months)

---------------------------------

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[Guest guest]

Meredith's rotation went from 22 in May to 11 last week in Erie which we

were very happy about. I guess my major concern was that when she was put in

the cast in May her cobb was 11 and right when she came out of it last week she

was 25. I didn't understand how it could get worse while she was in the

cast. The amazing thing was that in the cast she had applied in April when she

had her chest cold (not in traction) she actually improved.

To be honest, what was more frustrating to me than Meredith's curve going up

again was that we were sent home to brace without her doctor following

through to make sure she was ready for that.

But we are so pleased in Erie. Dr. got her cobb down to 10 and her

RVAD to 9 in the cast last week. Hopefully we are back on track.

Thanks for everyone's feedback!

tte and Meredith (19 months)

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[Guest guest]

Was she placed in traction for the cast where she was not sedated? If she was

not put in traction using the AMIL table, perhaps that is why she got worse?

Ditto what said about casting until 5 degrees too. I know Dr. K said

that he had a few patients get worse after moving to a brace too soon, so he now

waits until 5 degrees to brace. Our process was the same as for the cast with

being sedated and going through the whole cast process and then having the brace

made from that mold.

Noelle (12-2-01)

Ian (8-15-04)

Daughter worse after 3rd cast

My daughter Meredith was a patient of Dr. D''s in

Philadelphia. Dr. D' applied Meredith's first cast in February

2007 and got her curve down from 32 to 15. When it was time for

Meredith to get recasted she had an awful chest cold and could not be

put under anesthesia. Dr. D' thought we could just wrap her in

a cast so that she would not progress while she was getting over her

cold. I basically held her arms up and she casted her. She then

took an x-ray and her curve was 20.

We went back in in May and her out of cast curve was down to 11 (only

out of cast for 2 hours). Dr. D' casted her and told me it

wasn't necessary to do an in cast x-ray and that we no longer needed

to come to Philadelphia for treatment. We were told to go home and

get a brace after she came out of this cast. I requested an in cast

x-ray and they did it for me. When I got home, I called Dr. D'

and asked her to measure it. She told me that Meredith's cobb was 11

and RVAD was 22. I asked to come back to Philadelphia but she

insisted that Meredith was fine.

Anyway, I followed my gut and made an appointment with Dr. in

Erie. We just got back from Erie a couple of days ago. When she came

out of this last cast she looked worse to me and sure enough her

curve had gone from 11 degrees in May to 25 degrees out of cast last

week.

The minute she came out of the cast I knew she looked worse than

before. She was worse when she came out of the cast than when she

went into it. I didn't know if anyone else had this happen. I

thought it wasn't possible for this to happen if the cast was applied

properly. How could she go into the cast at 11 and come out at 25?

Anyway, I'm so grateful that I had the appointment and that she was

casted without any delay. Dr. and the entire staff in Erie

were so nice and attentive to Meredith.

tte and Meredith (19 months)