hi

[Guest guest]

,

 

My name is Mandy, I have been diagnosed with Stills for almost a year now. It

will be a year in November, I am 22 years old. And am still learning how to deal

with this disease and a normal life. But I would love to talk with you more. I

think it would be nice to talk to someone more my age. If you want I will give

you my e-mail address. Write back soon, sorry so short, not feeling great today.

Hello to the group I hope you all are having a good day.

 

Mandy

Subject: Newbie!!!

To: stillsdisease

Date: Tuesday, September 16, 2008, 3:38 PM

Hey Everyone!!

 

Newbie here!! I would like to tell everyone about my self. My name is

,and I'm 21 years old from North Central West Virginia.I was just

diagnosed with AOSD and Rhuematoid Arthritis on July 27,2008,so I am fresh so to

speak lol.I'm very excited that I found this group,because like many people,I

had never heard of AOSD or anything like it until July 25,2008 when my whole

ordeal came along. Mine all really started on July 9,2008,when I started to

notice a pinkish colored rash,and I had a sore throat,so the first doctor i went

to,said it was just allergies and just sent me home.A couple day's later,I was

spiking a fever up to 103.9 F,and then my rash would start to come out during or

a few hours before my fever,so i went to another doctor,and they did a strep

throat culture and it came back negative,so at this point in time,my sore throat

was so sore,I could barely talk.A few more day's went on and it got to the point

to where i was in pain,aching

pain with no relief,and my knee's were stiff and very painfull, i could not even

walk.Went to the emergancy room,and guess what?! the ER doctor said i had

pharyngitis, sent me home again with no answers.Went one last time to another

doctor,and they did a complete blood work up,and said that i probably had

mono.All of this had gotten so bad,that i layed in my bed at home in severe pain

to where i could not even lift my head,and couldn't eat anything but apple sauce

for 16 day's,when i finally got that life saving phone call saying to get to a

major hospital,my white blood cell count was extremely high.So of course i was

scared out of my mind and was wondering what was going on,so my mom and her

friend helped me out of my home and into my mom's car where she drove me to a

major hospital.When i got to the ER,a couple nurses had to help me bend my

knee's and move my leg's to get me out of the car,the ER doctors ran a bunch of

test's,was admitted to their

hospital,and had 3 other dr's trying to figure out what was going on,because at

first,they thought i had Lupus.so to make a longgggg story short, 3 days later

after many test's, a rhuematologist came in and said " i'm 99% positive you have

Adult Onset Still's Disease with rhuematoid arthritis " I was BLOWN AWAY!!!!Since

then i have been searching everywhere for more information on this disease,and

support groupes,because i would like to know about other people with this

disease,and how they do thing's in life,and just to see if someone has similiar

thing's as my self. for my self,i try to stay positive as much as possible,but

it's hard when nobody else know's what your going through,and you have no one to

talk to about it.so here i am ready and willing to meet everyone on here and to

hope we can all become friends )

 

Hope to hear back soon!!!