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Re: Good News !!! Received call form Erie

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That is great news! I am sure you will be pleased with Dr. Kishan as well. I

will keep my fingers crossed that Landon will not progress!

Noelle (12-2-01)

Ian (8-15-04)

So overwhelmed

To recap - was dx'd with a 70 degree curve early June. We're

under treatment at St. Louis Shriner's and doing a six month wait time

(to which we object) to see how it progresses.

Reading the last week here has left me so overwhelmed with information

and doctor's names and casting types. So, bear with me while I try to

wrap my brain around this.

There are doctors who do casting and doctors who do Mehta casting,

correct? And in order to do Mehta casting do they HAVE to have some

sort of specialized equipment? Which cities are definitely doing

that? Does anyone know 100% that Chicago is NOT (Dr. Sturm).

I have called him and his assistant and no one has called us back.

I'm beginning to feel that this is all in vain and we're going to end

up faced with a lifetime of surgeries regardless because of the

severity of his curve. I hate this. I hate having to make a decision

on this. I feel like no one out there (in the medical field) cares or

is listening to us.

Sandi

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That is great news! I am sure you will be pleased with Dr. Kishan as well. I

will keep my fingers crossed that Landon will not progress!

Noelle (12-2-01)

Ian (8-15-04)

So overwhelmed

To recap - was dx'd with a 70 degree curve early June. We're

under treatment at St. Louis Shriner's and doing a six month wait time

(to which we object) to see how it progresses.

Reading the last week here has left me so overwhelmed with information

and doctor's names and casting types. So, bear with me while I try to

wrap my brain around this.

There are doctors who do casting and doctors who do Mehta casting,

correct? And in order to do Mehta casting do they HAVE to have some

sort of specialized equipment? Which cities are definitely doing

that? Does anyone know 100% that Chicago is NOT (Dr. Sturm).

I have called him and his assistant and no one has called us back.

I'm beginning to feel that this is all in vain and we're going to end

up faced with a lifetime of surgeries regardless because of the

severity of his curve. I hate this. I hate having to make a decision

on this. I feel like no one out there (in the medical field) cares or

is listening to us.

Sandi

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  • 3 years later...
Guest guest

That is wonderful news! I am very happy for you and Landon. Keep us

posted as to how the 3 month check up goes.

Jill and

>

> I just received a call from Jane in Erie. Dr reviewed

Landon's x-rays and is measuring him at 20 degrees (5 degrees less

than we were previously told by another ortho) and his RVAD is only

6 !!! He doesn't believe it to be progressive but wants him to have

x-rays again in 3 months as there is no absoulute that it won't

progress. We have an appointment already with Dr Kishan in Loma

(who is Mehta trained) next Wednesday the 25th and will keep it

and follow up with him in the future.

>

> Tammy

>

>

> So overwhelmed

>

> To recap - was dx'd with a 70 degree curve early June.

We're

> under treatment at St. Louis Shriner's and doing a six month wait

time

> (to which we object) to see how it progresses.

>

> Reading the last week here has left me so overwhelmed with

information

> and doctor's names and casting types. So, bear with me while I

try to

> wrap my brain around this.

>

> There are doctors who do casting and doctors who do Mehta casting,

> correct? And in order to do Mehta casting do they HAVE to have

some

> sort of specialized equipment? Which cities are definitely doing

> that? Does anyone know 100% that Chicago is NOT (Dr. Sturm).

>

> I have called him and his assistant and no one has called us back.

> I'm beginning to feel that this is all in vain and we're going to

end

> up faced with a lifetime of surgeries regardless because of the

> severity of his curve. I hate this. I hate having to make a

decision

> on this. I feel like no one out there (in the medical field)

cares or

> is listening to us.

>

> Sandi

>

>

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Guest guest

Tammy,

That is great. Hopefully Landon is one of those kiddos whose scoli. resolves

itself. 20 cobb is low and an RVAD of 5 is very indicative it could resolve on

it's own. Good to do follow ups to make sure, but that is great. Tell Dr.

Kishan, that Cole's mom said " hi! " .

and Cole

Tammy Proctor wrote: I

just received a call from Jane in Erie. Dr reviewed Landon's

x-rays and is measuring him at 20 degrees (5 degrees less than we were

previously told by another ortho) and his RVAD is only 6 !!! He doesn't believe

it to be progressive but wants him to have x-rays again in 3 months as there is

no absoulute that it won't progress. We have an appointment already with Dr

Kishan in Loma (who is Mehta trained) next Wednesday the 25th and will

keep it and follow up with him in the future.

Tammy

So overwhelmed

To recap - was dx'd with a 70 degree curve early June. We're

under treatment at St. Louis Shriner's and doing a six month wait time

(to which we object) to see how it progresses.

Reading the last week here has left me so overwhelmed with information

and doctor's names and casting types. So, bear with me while I try to

wrap my brain around this.

There are doctors who do casting and doctors who do Mehta casting,

correct? And in order to do Mehta casting do they HAVE to have some

sort of specialized equipment? Which cities are definitely doing

that? Does anyone know 100% that Chicago is NOT (Dr. Sturm).

I have called him and his assistant and no one has called us back.

I'm beginning to feel that this is all in vain and we're going to end

up faced with a lifetime of surgeries regardless because of the

severity of his curve. I hate this. I hate having to make a decision

on this. I feel like no one out there (in the medical field) cares or

is listening to us.

Sandi

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Guest guest

Tammy,

That is great. Hopefully Landon is one of those kiddos whose scoli. resolves

itself. 20 cobb is low and an RVAD of 5 is very indicative it could resolve on

it's own. Good to do follow ups to make sure, but that is great. Tell Dr.

Kishan, that Cole's mom said " hi! " .

and Cole

Tammy Proctor wrote: I

just received a call from Jane in Erie. Dr reviewed Landon's

x-rays and is measuring him at 20 degrees (5 degrees less than we were

previously told by another ortho) and his RVAD is only 6 !!! He doesn't believe

it to be progressive but wants him to have x-rays again in 3 months as there is

no absoulute that it won't progress. We have an appointment already with Dr

Kishan in Loma (who is Mehta trained) next Wednesday the 25th and will

keep it and follow up with him in the future.

Tammy

So overwhelmed

To recap - was dx'd with a 70 degree curve early June. We're

under treatment at St. Louis Shriner's and doing a six month wait time

(to which we object) to see how it progresses.

Reading the last week here has left me so overwhelmed with information

and doctor's names and casting types. So, bear with me while I try to

wrap my brain around this.

There are doctors who do casting and doctors who do Mehta casting,

correct? And in order to do Mehta casting do they HAVE to have some

sort of specialized equipment? Which cities are definitely doing

that? Does anyone know 100% that Chicago is NOT (Dr. Sturm).

I have called him and his assistant and no one has called us back.

I'm beginning to feel that this is all in vain and we're going to end

up faced with a lifetime of surgeries regardless because of the

severity of his curve. I hate this. I hate having to make a decision

on this. I feel like no one out there (in the medical field) cares or

is listening to us.

Sandi

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