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Re: 6th cast/brace? Too soon I think??

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Posted
Posted

Tasha,

In my opinion your doc is bracing too soon. Has been having consistent

gains with each cast? If he has, why stop? Or has he been set at 20 degrees now

for a few casts in a row? I think a lot of docs are willing to stop at anything

under 20 degrees, because in real scoli. terms, anything under 20 degrees is not

really considered scoliosis. Sure, 27 months is older, but not too old to get

some correction more correction. How is the rotation? The rotation should be

pretty much gone to stop casting.

I would definitely contact Dr. .

How fun for you and your boys to eat ice-cream and popsicles without worry about

a messy cast. Did you get some pics.?

Please let us know what the final decision is.

/Cole

Tasha Fontenot wrote: Hi

everyone............last Wednesday had his cast removed. He had a FUN cast

free day. Playing in the water, held his 1st ice cream cones and Popsicles!! He

and his brother had a blast. And then they enjoyed a REAL bubble bath. And I

loved the cast free hugs. His little back " looked " great. His rib hump is

almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

there was a chance, but didn't think it was time. Especially after seeing the

out of cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as much

as he will and the cast will not do any more. He stated that if his spine got

worse in the brace we may have to cast for a while, brace for while and go back

and forth. Once he starts wearing the brace he would not be seen for 6 months.

Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr.

looked everything over, but now starting a brace I am very scared. I don't want

to lose what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

Tasha,

In my opinion your doc is bracing too soon. Has been having consistent

gains with each cast? If he has, why stop? Or has he been set at 20 degrees now

for a few casts in a row? I think a lot of docs are willing to stop at anything

under 20 degrees, because in real scoli. terms, anything under 20 degrees is not

really considered scoliosis. Sure, 27 months is older, but not too old to get

some correction more correction. How is the rotation? The rotation should be

pretty much gone to stop casting.

I would definitely contact Dr. .

How fun for you and your boys to eat ice-cream and popsicles without worry about

a messy cast. Did you get some pics.?

Please let us know what the final decision is.

/Cole

Tasha Fontenot wrote: Hi

everyone............last Wednesday had his cast removed. He had a FUN cast

free day. Playing in the water, held his 1st ice cream cones and Popsicles!! He

and his brother had a blast. And then they enjoyed a REAL bubble bath. And I

loved the cast free hugs. His little back " looked " great. His rib hump is

almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

there was a chance, but didn't think it was time. Especially after seeing the

out of cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as much

as he will and the cast will not do any more. He stated that if his spine got

worse in the brace we may have to cast for a while, brace for while and go back

and forth. Once he starts wearing the brace he would not be seen for 6 months.

Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr.

looked everything over, but now starting a brace I am very scared. I don't want

to lose what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given up

hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew there

was a chance, but didn't think it was time. Especially after seeing the out of

cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given up

hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew there

was a chance, but didn't think it was time. Especially after seeing the out of

cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

Link to comment
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Posted
Posted

Thanks ............I think it is way too soon. After I posted I

couldn't stand it anymore and called Jane. She wants me to send last

week's Xray for Dr. to see. Now I just wait on ish Rite to get it

to me. My concern is they are S L O W.

Your comment about stopping at 20 because in real scoliosis terms-well that is

how his doc thinks. I don't agree.

had good improvement with the first 3 casts and then just basically stay

the same. So that is why his doc feels the way he does.

I am just scared to take him out of cast at this point.

Rotation? I truly do not know. We did notice his rib hump is almost gone. I

barely noticed it.

I just added pictures of last week. I can't believe it, but the boys have not

ask me to play in the water again. Thank God.

Thanks again for your comments.

Baird wrote:

Tasha,

In my opinion your doc is bracing too soon. Has been having consistent

gains with each cast? If he has, why stop? Or has he been set at 20 degrees now

for a few casts in a row? I think a lot of docs are willing to stop at anything

under 20 degrees, because in real scoli. terms, anything under 20 degrees is not

really considered scoliosis. Sure, 27 months is older, but not too old to get

some correction more correction. How is the rotation? The rotation should be

pretty much gone to stop casting.

I would definitely contact Dr. .

How fun for you and your boys to eat ice-cream and popsicles without worry

about a messy cast. Did you get some pics.?

Please let us know what the final decision is.

/Cole

Tasha Fontenot wrote: Hi

everyone............last Wednesday had his cast removed. He had a FUN cast

free day. Playing in the water, held his 1st ice cream cones and Popsicles!! He

and his brother had a blast. And then they enjoyed a REAL bubble bath. And I

loved the cast free hugs. His little back " looked " great. His rib hump is

almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

there was a chance, but didn't think it was time. Especially after seeing the

out of cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as much

as he will and the cast will not do any more. He stated that if his spine got

worse in the brace we may have to cast for a while, brace for while and go back

and forth. Once he starts wearing the brace he would not be seen for 6 months.

Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr.

looked everything over, but now starting a brace I am very scared. I don't want

to lose what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

Link to comment
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Posted
Posted

Thanks ............I think it is way too soon. After I posted I

couldn't stand it anymore and called Jane. She wants me to send last

week's Xray for Dr. to see. Now I just wait on ish Rite to get it

to me. My concern is they are S L O W.

Your comment about stopping at 20 because in real scoliosis terms-well that is

how his doc thinks. I don't agree.

had good improvement with the first 3 casts and then just basically stay

the same. So that is why his doc feels the way he does.

I am just scared to take him out of cast at this point.

Rotation? I truly do not know. We did notice his rib hump is almost gone. I

barely noticed it.

I just added pictures of last week. I can't believe it, but the boys have not

ask me to play in the water again. Thank God.

Thanks again for your comments.

Baird wrote:

Tasha,

In my opinion your doc is bracing too soon. Has been having consistent

gains with each cast? If he has, why stop? Or has he been set at 20 degrees now

for a few casts in a row? I think a lot of docs are willing to stop at anything

under 20 degrees, because in real scoli. terms, anything under 20 degrees is not

really considered scoliosis. Sure, 27 months is older, but not too old to get

some correction more correction. How is the rotation? The rotation should be

pretty much gone to stop casting.

I would definitely contact Dr. .

How fun for you and your boys to eat ice-cream and popsicles without worry

about a messy cast. Did you get some pics.?

Please let us know what the final decision is.

/Cole

Tasha Fontenot wrote: Hi

everyone............last Wednesday had his cast removed. He had a FUN cast

free day. Playing in the water, held his 1st ice cream cones and Popsicles!! He

and his brother had a blast. And then they enjoyed a REAL bubble bath. And I

loved the cast free hugs. His little back " looked " great. His rib hump is

almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

there was a chance, but didn't think it was time. Especially after seeing the

out of cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as much

as he will and the cast will not do any more. He stated that if his spine got

worse in the brace we may have to cast for a while, brace for while and go back

and forth. Once he starts wearing the brace he would not be seen for 6 months.

Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr.

looked everything over, but now starting a brace I am very scared. I don't want

to lose what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

Hi Tasha,

Wow! is 2, so no major changes may occur...but I never give up

hope. But why 20 degrees for ? Whay that number? Still seems

high? Maybe as you said there hasn't been much improvement in the

past few casts and the doc feels that's the best that can be

achieved.

With Max, Dr. told us our goal is to just get Max to 40

degrees out of cast (currently 60). Then Max will go into a brace.

If the curve progresses again in the brace they would put him back in

cast. If he can hold at 40 degrees out of cast he would not need

growing rod surgery.I know and Max are 2 different children with

2 different curves ('s more classic, Max more unusual). But we

do see Miss Mehta tomorrow morning and I pan to ask what her thoughts

are on the degree of correction (if any) she feels Max can achieve.

And I'll ask to expand on why that degree and I'll let you know.

Dr. Sturm did tell me at one point when I asked about how we

determine when/if Max will need surgery. He said there is no magic

number. He said it is determine at the progression rate of the

curve. If it progresses highly very rapidly, then surgery will happen

sooner than later. If casting can slow it down, then surgery may be

delayed or not happen at all. Perhaps this concept is similar to

going from casting to bracing.

Good Luck and keep us posted.

You'll continue to be in our thoguhts and prayers.

PS - I'm so nervous to give Max an ice cream cone. I've never given

him a popsicle. I bought some Go Gurt (Yogurt in a tube, like a

popsicle) and have them in the freezer for frozen yogurt. I'm too

chicken to give it to him. Hey...maybe tomorrow after he gets his

cast cut off!!!!

Aekta

>

> Hi everyone............last Wednesday had his cast removed.

He had a FUN cast free day. Playing in the water, held his 1st ice

cream cones and Popsicles!! He and his brother had a blast. And then

they enjoyed a REAL bubble bath. And I loved the cast free hugs.

His little back " looked " great. His rib hump is almost gone. A

normal person would not have even notice it.

> Thursday we went back to have his 6th cast applied.

> Much to my surprise they also made a mold for a brace that he will

start wearing September 11. So he will be in this cast for 6

weeks. ???? I knew there was a chance, but didn't think it was

time. Especially after seeing the out of cast Xray from Wednesday.

Of course it looks better from when he first started,but it was

measured at 20 degrees.

> Is it just me or is it too soon to start bracing? Shouldn't it be

a lower number?

> The past 3 casts has stayed the same. No improvement. Just

basically held his curve. His doctor feels at his age, 27 months, he

has improved as much as he will and the cast will not do any more. He

stated that if his spine got worse in the brace we may have to cast

for a while, brace for while and go back and forth. Once he starts

wearing the brace he would not be seen for 6 months. Is that a

really long time not to check on his spine?

> Back in March Dr. looked at all of 's films and felt

like we were getting good results. Should I again have him look at

the most recent films and give me his opinion? Would he do that

again?

> Is it too late for the cast to continue to give correction?

Some of you know my highs and lows with his doc. I felt much better

after Dr. looked everything over, but now starting a brace I

am very scared. I don't want to lose what we have achieved by

putting him in a brace too soon.

> Has anyone had experience with bracing too soon?

> ANY thoughts would be very helpful.

> Thanks for your support,

> Tasha

>

>

>

> Tasha

> Mommy of twin boys- and 27mths

> Fort Worth, Texas

>

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>

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Posted
Posted

Hi Tasha,

Wow! is 2, so no major changes may occur...but I never give up

hope. But why 20 degrees for ? Whay that number? Still seems

high? Maybe as you said there hasn't been much improvement in the

past few casts and the doc feels that's the best that can be

achieved.

With Max, Dr. told us our goal is to just get Max to 40

degrees out of cast (currently 60). Then Max will go into a brace.

If the curve progresses again in the brace they would put him back in

cast. If he can hold at 40 degrees out of cast he would not need

growing rod surgery.I know and Max are 2 different children with

2 different curves ('s more classic, Max more unusual). But we

do see Miss Mehta tomorrow morning and I pan to ask what her thoughts

are on the degree of correction (if any) she feels Max can achieve.

And I'll ask to expand on why that degree and I'll let you know.

Dr. Sturm did tell me at one point when I asked about how we

determine when/if Max will need surgery. He said there is no magic

number. He said it is determine at the progression rate of the

curve. If it progresses highly very rapidly, then surgery will happen

sooner than later. If casting can slow it down, then surgery may be

delayed or not happen at all. Perhaps this concept is similar to

going from casting to bracing.

Good Luck and keep us posted.

You'll continue to be in our thoguhts and prayers.

PS - I'm so nervous to give Max an ice cream cone. I've never given

him a popsicle. I bought some Go Gurt (Yogurt in a tube, like a

popsicle) and have them in the freezer for frozen yogurt. I'm too

chicken to give it to him. Hey...maybe tomorrow after he gets his

cast cut off!!!!

Aekta

>

> Hi everyone............last Wednesday had his cast removed.

He had a FUN cast free day. Playing in the water, held his 1st ice

cream cones and Popsicles!! He and his brother had a blast. And then

they enjoyed a REAL bubble bath. And I loved the cast free hugs.

His little back " looked " great. His rib hump is almost gone. A

normal person would not have even notice it.

> Thursday we went back to have his 6th cast applied.

> Much to my surprise they also made a mold for a brace that he will

start wearing September 11. So he will be in this cast for 6

weeks. ???? I knew there was a chance, but didn't think it was

time. Especially after seeing the out of cast Xray from Wednesday.

Of course it looks better from when he first started,but it was

measured at 20 degrees.

> Is it just me or is it too soon to start bracing? Shouldn't it be

a lower number?

> The past 3 casts has stayed the same. No improvement. Just

basically held his curve. His doctor feels at his age, 27 months, he

has improved as much as he will and the cast will not do any more. He

stated that if his spine got worse in the brace we may have to cast

for a while, brace for while and go back and forth. Once he starts

wearing the brace he would not be seen for 6 months. Is that a

really long time not to check on his spine?

> Back in March Dr. looked at all of 's films and felt

like we were getting good results. Should I again have him look at

the most recent films and give me his opinion? Would he do that

again?

> Is it too late for the cast to continue to give correction?

Some of you know my highs and lows with his doc. I felt much better

after Dr. looked everything over, but now starting a brace I

am very scared. I don't want to lose what we have achieved by

putting him in a brace too soon.

> Has anyone had experience with bracing too soon?

> ANY thoughts would be very helpful.

> Thanks for your support,

> Tasha

>

>

>

> Tasha

> Mommy of twin boys- and 27mths

> Fort Worth, Texas

>

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>

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Posted
Posted

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to

brace until the number was lower. I just couldn't remember what exactly it

was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin wrote:

Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given

up hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew there

was a chance, but didn't think it was time. Especially after seeing the out of

cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as much

as he will and the cast will not do any more. He stated that if his spine got

worse in the brace we may have to cast for a while, brace for while and go back

and forth. Once he starts wearing the brace he would not be seen for 6 months.

Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

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Posted
Posted

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to

brace until the number was lower. I just couldn't remember what exactly it

was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin wrote:

Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given

up hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew there

was a chance, but didn't think it was time. Especially after seeing the out of

cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as much

as he will and the cast will not do any more. He stated that if his spine got

worse in the brace we may have to cast for a while, brace for while and go back

and forth. Once he starts wearing the brace he would not be seen for 6 months.

Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

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Posted
Posted

Thanks Aekta.

I don't know what to think. I will wait to hear what Dr. thinks and go

from there.

It seems high to me too. I do know there will be a point that the cast will

only do so much. I just don't think we should stop yet. And it may just be

time to finally change doctors.

Please let me know how things go tomorrow. I know you are anxious to hear what

Ms. Mehta thinks.

You should let Max have ice cream, Popsicles and all the messy stuff tomorrow.

You guys have fun without the cast and get lots of cast free hugs.

I look forward to hearing about the whole ETP and what she thinks about Max's

treatment.

I will be praying.

Take care,

Tasha

babymaxpd wrote: Hi

Tasha,

Wow! is 2, so no major changes may occur...but I never give up

hope. But why 20 degrees for ? Whay that number? Still seems

high? Maybe as you said there hasn't been much improvement in the

past few casts and the doc feels that's the best that can be

achieved.

With Max, Dr. told us our goal is to just get Max to 40

degrees out of cast (currently 60). Then Max will go into a brace.

If the curve progresses again in the brace they would put him back in

cast. If he can hold at 40 degrees out of cast he would not need

growing rod surgery.I know and Max are 2 different children with

2 different curves ('s more classic, Max more unusual). But we

do see Miss Mehta tomorrow morning and I pan to ask what her thoughts

are on the degree of correction (if any) she feels Max can achieve.

And I'll ask to expand on why that degree and I'll let you know.

Dr. Sturm did tell me at one point when I asked about how we

determine when/if Max will need surgery. He said there is no magic

number. He said it is determine at the progression rate of the

curve. If it progresses highly very rapidly, then surgery will happen

sooner than later. If casting can slow it down, then surgery may be

delayed or not happen at all. Perhaps this concept is similar to

going from casting to bracing.

Good Luck and keep us posted.

You'll continue to be in our thoguhts and prayers.

PS - I'm so nervous to give Max an ice cream cone. I've never given

him a popsicle. I bought some Go Gurt (Yogurt in a tube, like a

popsicle) and have them in the freezer for frozen yogurt. I'm too

chicken to give it to him. Hey...maybe tomorrow after he gets his

cast cut off!!!!

Aekta

>

> Hi everyone............last Wednesday had his cast removed.

He had a FUN cast free day. Playing in the water, held his 1st ice

cream cones and Popsicles!! He and his brother had a blast. And then

they enjoyed a REAL bubble bath. And I loved the cast free hugs.

His little back " looked " great. His rib hump is almost gone. A

normal person would not have even notice it.

> Thursday we went back to have his 6th cast applied.

> Much to my surprise they also made a mold for a brace that he will

start wearing September 11. So he will be in this cast for 6

weeks. ???? I knew there was a chance, but didn't think it was

time. Especially after seeing the out of cast Xray from Wednesday.

Of course it looks better from when he first started,but it was

measured at 20 degrees.

> Is it just me or is it too soon to start bracing? Shouldn't it be

a lower number?

> The past 3 casts has stayed the same. No improvement. Just

basically held his curve. His doctor feels at his age, 27 months, he

has improved as much as he will and the cast will not do any more. He

stated that if his spine got worse in the brace we may have to cast

for a while, brace for while and go back and forth. Once he starts

wearing the brace he would not be seen for 6 months. Is that a

really long time not to check on his spine?

> Back in March Dr. looked at all of 's films and felt

like we were getting good results. Should I again have him look at

the most recent films and give me his opinion? Would he do that

again?

> Is it too late for the cast to continue to give correction?

Some of you know my highs and lows with his doc. I felt much better

after Dr. looked everything over, but now starting a brace I

am very scared. I don't want to lose what we have achieved by

putting him in a brace too soon.

> Has anyone had experience with bracing too soon?

> ANY thoughts would be very helpful.

> Thanks for your support,

> Tasha

>

>

>

> Tasha

> Mommy of twin boys- and 27mths

> Fort Worth, Texas

>

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>

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Posted
Posted

10 degrees sounds a lot better than 20, but I can see where you would be nervous

about the brace. I am just anxious to see what Dr. has to say about

's films.

I can't remember........how old is Geneva?

Tasha

llucy007@... wrote:

Hi I'm genevas mom and dr sanders told me that if geneva is 10 or lower he

will put her in a brace. Now I'm not sure I should go with the brace?? Geneva

started @ 23degrees last year in I think july or aug we waited 3 mon and

rechecked and her dr said she got worse he said she was 30degrees by the time we

went to erie dr k said she was 23degrees and she would need 4 casts( she was a

lower curve than I thought) . The first cast she went down to 17degrees then

down to 13 and now I'm waiting to see if she's 10or lower with saying all

that.......I'm not sure about the brace at 10degrees???? I was really excited

now I'm like what to do??

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given up

hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start wearing

September 11. So he will be in this cast for 6 weeks. ???? I knew there was a

chance, but didn't think it was time. Especially after seeing the out of cast

Xray from Wednesday. Of course it looks better from when he first started,but it

was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

My boys turned 2 in April.

has been in casts now for a year. I am not sure about a certain age when

it doesn't work anymore, but I am sure there is a point when it is just harder

to get correction. Every child is different and I think that makes it really

hard.

Maybe someone will chime in and inform us on the age thing.

I am ready for to be in brace, but at a much lower degree.

So when do you guys go back for her next cast change?

Tasha

llucy007@... wrote:

She turned 2 in may. Is there an age where a cast won't work anymore?

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given up

hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start wearing

September 11. So he will be in this cast for 6 weeks. ???? I knew there was a

chance, but didn't think it was time. Especially after seeing the out of cast

Xray from Wednesday. Of course it looks better from when he first started,but it

was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

Hi I'm genevas mom and dr sanders told me that if geneva is 10 or lower he will

put her in a brace. Now I'm not sure I should go with the brace?? Geneva started

@ 23degrees last year in I think july or aug we waited 3 mon and rechecked and

her dr said she got worse he said she was 30degrees by the time we went to erie

dr k said she was 23degrees and she would need 4 casts( she was a lower curve

than I thought) . The first cast she went down to 17degrees then down to 13 and

now I'm waiting to see if she's 10or lower with saying all that.......I'm not

sure about the brace at 10degrees???? I was really excited now I'm like what to

do??

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin <noellesmommy@ <mailto:noellesmommy%40comcast.net>

comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given

up hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew there

was a chance, but didn't think it was time. Especially after seeing the out of

cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

Link to comment
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Posted
Posted

Hi I'm genevas mom and dr sanders told me that if geneva is 10 or lower he will

put her in a brace. Now I'm not sure I should go with the brace?? Geneva started

@ 23degrees last year in I think july or aug we waited 3 mon and rechecked and

her dr said she got worse he said she was 30degrees by the time we went to erie

dr k said she was 23degrees and she would need 4 casts( she was a lower curve

than I thought) . The first cast she went down to 17degrees then down to 13 and

now I'm waiting to see if she's 10or lower with saying all that.......I'm not

sure about the brace at 10degrees???? I was really excited now I'm like what to

do??

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin <noellesmommy@ <mailto:noellesmommy%40comcast.net>

comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given

up hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew there

was a chance, but didn't think it was time. Especially after seeing the out of

cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

She turned 2 in may. Is there an age where a cast won't work anymore?

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given

up hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew there

was a chance, but didn't think it was time. Especially after seeing the out of

cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

With 's current doctor we are scheduled to go back September 11. Have the

cast removed and start wearing the brace. BUT I am sending 's most recent

films to Dr. to see what he thinks and depending on that we may be going

to Erie. So right now I wait. I don't wait patiently either.

Well I pray Geneva's spine is ready for a brace. You will be nervous, but I

am sure Dr. would not take that step if he didn't think she was ready.

Keep us posted.

Tasha

llucy007@... wrote:

We go aug. 21 . She will get her cast removed on the 21st and on the 22nd I

will know if she will get the brace! When do you go back?

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given up

hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start wearing

September 11. So he will be in this cast for 6 weeks. ???? I knew there was a

chance, but didn't think it was time. Especially after seeing the out of cast

Xray from Wednesday. Of course it looks better from when he first started,but it

was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

Link to comment
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Posted
Posted

With 's current doctor we are scheduled to go back September 11. Have the

cast removed and start wearing the brace. BUT I am sending 's most recent

films to Dr. to see what he thinks and depending on that we may be going

to Erie. So right now I wait. I don't wait patiently either.

Well I pray Geneva's spine is ready for a brace. You will be nervous, but I

am sure Dr. would not take that step if he didn't think she was ready.

Keep us posted.

Tasha

llucy007@... wrote:

We go aug. 21 . She will get her cast removed on the 21st and on the 22nd I

will know if she will get the brace! When do you go back?

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given up

hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start wearing

September 11. So he will be in this cast for 6 weeks. ???? I knew there was a

chance, but didn't think it was time. Especially after seeing the out of cast

Xray from Wednesday. Of course it looks better from when he first started,but it

was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

Link to comment
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Posted
Posted

With 's current doctor we are scheduled to go back September 11. Have the

cast removed and start wearing the brace. BUT I am sending 's most recent

films to Dr. to see what he thinks and depending on that we may be going

to Erie. So right now I wait. I don't wait patiently either.

Well I pray Geneva's spine is ready for a brace. You will be nervous, but I

am sure Dr. would not take that step if he didn't think she was ready.

Keep us posted.

Tasha

llucy007@... wrote:

We go aug. 21 . She will get her cast removed on the 21st and on the 22nd I

will know if she will get the brace! When do you go back?

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given up

hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start wearing

September 11. So he will be in this cast for 6 weeks. ???? I knew there was a

chance, but didn't think it was time. Especially after seeing the out of cast

Xray from Wednesday. Of course it looks better from when he first started,but it

was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

Link to comment
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Posted
Posted

We go aug. 21 . She will get her cast removed on the 21st and on the 22nd I will

know if she will get the brace! When do you go back?

Sent via BlackBerry from T-Mobile

Re: 6th cast/brace? Too soon I think??

,

You did help. Thank you. I knew that Dr. Khoury and Dr. waited to brace

until the number was lower. I just couldn't remember what exactly it was.

I wouldn't say we are still getting correction with this style of cast. It is

just holding it. A question I have for Dr. is does he think at this

point he would able to get more correction than what his current doctor has

achieved. We'll see what he thinks.

I too would rather be conservative and recast than go ahead with the brace.

Tasha

Claflin comcast.net> wrote: Tasha,

Ian remained at 10 degrees for almost 6 months and Dr. K had just about given

up hope that we would obtain more correction and we planned to go to a brace.

Surprisingly, when that last cast came off he had achieved more correction. Dr.

S didn't give me an exact number, but he said much less than 10 degrees and

essentially straight.

Dr. K had told me normally he didn't go to a brace until 5 degrees or less

because he had had two children who were 10 degrees get worse when they went to

a brace. Ian was going to be an exception only because he had remained at a

constant 10 degrees for so long.

As it is, I am nervous that he isn't doing well in his brace, but I am sure we

all probably get nervous making the transition.

If you are still getting correction, I would ask to continue getting casted. I

dunno...tough call. Just knowing that some kids got worse when they moved to a

brace at 10 degrees makes me nervous...even with Ian who was less than 10. I

guess I lean towards being more conservative.

I don't know if I was any help or not, lol!!

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a FUN

cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL bubble

bath. And I loved the cast free hugs. His little back " looked " great. His rib

hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew there

was a chance, but didn't think it was time. Especially after seeing the out of

cast Xray from Wednesday. Of course it looks better from when he first

started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically held

his curve. His doctor feels at his age, 27 months, he has improved as much as he

will and the cast will not do any more. He stated that if his spine got worse in

the brace we may have to cast for a while, brace for while and go back and

forth. Once he starts wearing the brace he would not be seen for 6 months. Is

that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we were

getting good results. Should I again have him look at the most recent films and

give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr. looked

everything over, but now starting a brace I am very scared. I don't want to lose

what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

It starts to slow down once you are over two, but you can still get

correction. Deshea's Lucas started casting at 2 and they got good results.

Noelle (12-2-01)

Ian (8-15-04)

6th cast/brace? Too soon I think??

>

> Hi everyone............last Wednesday had his cast removed. He had a

> FUN cast free day. Playing in the water, held his 1st ice cream cones and

> Popsicles!! He and his brother had a blast. And then they enjoyed a REAL

> bubble bath. And I loved the cast free hugs. His little back " looked "

> great. His rib hump is almost gone. A normal person would not have even

> notice it.

> Thursday we went back to have his 6th cast applied.

> Much to my surprise they also made a mold for a brace that he will start

> wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

> there was a chance, but didn't think it was time. Especially after seeing

> the out of cast Xray from Wednesday. Of course it looks better from when

> he first started,but it was measured at 20 degrees.

> Is it just me or is it too soon to start bracing? Shouldn't it be a lower

> number?

> The past 3 casts has stayed the same. No improvement. Just basically

> held his curve. His doctor feels at his age, 27 months, he has improved as

> much as he will and the cast will not do any more. He stated that if his

> spine got worse in the brace we may have to cast for a while, brace for

> while and go back and forth. Once he starts wearing the brace he would not

> be seen for 6 months. Is that a really long time not to check on his

> spine?

> Back in March Dr. looked at all of 's films and felt like we

> were getting good results. Should I again have him look at the most recent

> films and give me his opinion? Would he do that again?

> Is it too late for the cast to continue to give correction? Some of

> you know my highs and lows with his doc. I felt much better after Dr.

> looked everything over, but now starting a brace I am very scared.

> I don't want to lose what we have achieved by putting him in a brace too

> soon.

> Has anyone had experience with bracing too soon?

> ANY thoughts would be very helpful.

> Thanks for your support,

> Tasha

>

> Tasha

> Mommy of twin boys- and 27mths

> Fort Worth, Texas

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

>

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Posted
Posted

hi!

as jennifer mentioned (hi jennifer!), my son lucas did undergo casting with dr.

sanders from the time he was 2 1/2 yrs old to 4 1/2 yrs old. my son's degree

was much worse than your daughter's. he was in a total of 7 casts each lasting

between 3-4 months between changes. it is my understanding that it is best to

cast (to get correction) under 2 when children are growing at their fastest, but

up to 5 is also done. over 5, i believe that it is more the maintain and

avoid/delay surgery than to correct since growth is much reduced.

if you would like to see some of lucas' pictures, they are under the photos

section in the folder lucas. we decided against going into a normal tlso brace

from erie at the end of the casting process last summer. we still keep in

contact with dr. sanders and the folks at erie. it was like our second home for

2 years. lucas still thinks it was a vacation even with the anesthesia and

casting! he just loved the playroom.

i know i'm not as active on this board, but feel free to ask questions, and i

would be happy to answer them as best as i can.

deshea

---- Original message ----

>Date: Wed, 8 Aug 2007 09:49:57 -0400

>

>Subject: Re: 6th cast/brace? Too soon I think??

>To: <infantile_scoliosis >

>

>It starts to slow down once you are over two, but you can still get

>correction. Deshea's Lucas started casting at 2 and they got good results.

>

>

>Noelle (12-2-01)

>Ian (8-15-04)

> 6th cast/brace? Too soon I think??

>>

>> Hi everyone............last Wednesday had his cast removed. He had a

>> FUN cast free day. Playing in the water, held his 1st ice cream cones and

>> Popsicles!! He and his brother had a blast. And then they enjoyed a REAL

>> bubble bath. And I loved the cast free hugs. His little back " looked "

>> great. His rib hump is almost gone. A normal person would not have even

>> notice it.

>> Thursday we went back to have his 6th cast applied.

>> Much to my surprise they also made a mold for a brace that he will start

>> wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

>> there was a chance, but didn't think it was time. Especially after seeing

>> the out of cast Xray from Wednesday. Of course it looks better from when

>> he first started,but it was measured at 20 degrees.

>> Is it just me or is it too soon to start bracing? Shouldn't it be a lower

>> number?

>> The past 3 casts has stayed the same. No improvement. Just basically

>> held his curve. His doctor feels at his age, 27 months, he has improved as

>> much as he will and the cast will not do any more. He stated that if his

>> spine got worse in the brace we may have to cast for a while, brace for

>> while and go back and forth. Once he starts wearing the brace he would not

>> be seen for 6 months. Is that a really long time not to check on his

>> spine?

>> Back in March Dr. looked at all of 's films and felt like we

>> were getting good results. Should I again have him look at the most recent

>> films and give me his opinion? Would he do that again?

>> Is it too late for the cast to continue to give correction? Some of

>> you know my highs and lows with his doc. I felt much better after Dr.

>> looked everything over, but now starting a brace I am very scared.

>> I don't want to lose what we have achieved by putting him in a brace too

>> soon.

>> Has anyone had experience with bracing too soon?

>> ANY thoughts would be very helpful.

>> Thanks for your support,

>> Tasha

>>

>> Tasha

>> Mommy of twin boys- and 27mths

>> Fort Worth, Texas

>>

>> ---------------------------------

>> Got a little couch potato?

>> Check out fun summer activities for kids.

>>

>>

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Posted
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Hi Tasha:

My son had his 1st back brace at 29 months. They didn't have the casting

technique back then, but it sounds like you have a fairly good plan. The

purpose of the brace is only to stop the curve from progressing while

grows. Most Dr's will suggest that the kids wear a brace at 20 degrees. If

his little back were a lower number (under 20 deg) they would use the " wait

and see " approach, to see if his back gets worse and then start to brace at

20 degrees. Every 6 mos. is " standard " when wearing a brace. I felt the

same thing! It was an Emergency to get my son seen, then they put him in a

brace and said... " we'll see you in 6 mos!! " Crazy, isn't it. Just monitor

his little back. We did some nuero-muscular therapy (massage therapy).

Swimming has been awesome for my son's back!!! (We've had the most

improvement after the summer swim team). The beauty of the back brace

is...you can take it off and get your hugs... it's amazing how they adapt.

It is harder for the moms. Good luck, take care and email if you have any

questions...this part, I have lots of experience with 11 or 12 back braces

later and still losing count!

Jen

(Connor 10- scoliosis and -8)

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a

FUN cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL

bubble bath. And I loved the cast free hugs. His little back " looked " great.

His rib hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

there was a chance, but didn't think it was time. Especially after seeing

the out of cast Xray from Wednesday. Of course it looks better from when he

first started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as

much as he will and the cast will not do any more. He stated that if his

spine got worse in the brace we may have to cast for a while, brace for

while and go back and forth. Once he starts wearing the brace he would not

be seen for 6 months. Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we

were getting good results. Should I again have him look at the most recent

films and give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr.

looked everything over, but now starting a brace I am very scared. I don't

want to lose what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

Hi Tasha:

After reading a little more...it sounds like they do brace when the curve is

really low after the casting. I wonder if he thinks this is all the better

it can get? Regardless...in the last 8 years my son's curve (without

casting and with wearing a TLSO brace and other non-traditional things) his

curve has been as high at 59 and 53 degrees and as low as 19 and 15 degress.

He was 2 when diagnosed and is now 10 years old and 5 feet 5 inches tall, so

there has been a bunch of growth. If there wasn't any improvement maybe

take a short break...have him swim, swim and swim some more...lessons, etc.

Then maybe try and cast him again to see if you can get more correction.

The Dr's drive me crazy sometimes...great job getting more opinions! I may

actually see about casting??

Jen

Infinity Group Real Estate Services, LLC

706 S. College Avenue, Suite 207

Fort , Co. 80524

Cell ~ Fax

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a

FUN cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL

bubble bath. And I loved the cast free hugs. His little back " looked " great.

His rib hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

there was a chance, but didn't think it was time. Especially after seeing

the out of cast Xray from Wednesday. Of course it looks better from when he

first started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as

much as he will and the cast will not do any more. He stated that if his

spine got worse in the brace we may have to cast for a while, brace for

while and go back and forth. Once he starts wearing the brace he would not

be seen for 6 months. Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we

were getting good results. Should I again have him look at the most recent

films and give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr.

looked everything over, but now starting a brace I am very scared. I don't

want to lose what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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Posted
Posted

Jen,

Thank you for sharing your experiences. I am glad your son's spine has done

well with the brace. I have heard that swimming helps tremendously for the

spine. I can't wait for to wear a brace and be able to enjoy water. At

what degree is your son's curve these days?

Casting is all we know at this point. I still feel could achieve more

correction if casting was continued. We had success with his first 2 casts and

then basically nothing. Right now I feel it is time to move on.............as

in change doctors. Ms. Mehta's techniques and the AMIL frame have proven to

help young children. deserves to be one of those children.

Our doctor now is not Mehta trained.

Again thanks for sharing.

Take care,

Tasha

Family wrote:

Hi Tasha:

After reading a little more...it sounds like they do brace when the curve is

really low after the casting. I wonder if he thinks this is all the better

it can get? Regardless...in the last 8 years my son's curve (without

casting and with wearing a TLSO brace and other non-traditional things) his

curve has been as high at 59 and 53 degrees and as low as 19 and 15 degress.

He was 2 when diagnosed and is now 10 years old and 5 feet 5 inches tall, so

there has been a bunch of growth. If there wasn't any improvement maybe

take a short break...have him swim, swim and swim some more...lessons, etc.

Then maybe try and cast him again to see if you can get more correction.

The Dr's drive me crazy sometimes...great job getting more opinions! I may

actually see about casting??

Jen

Infinity Group Real Estate Services, LLC

706 S. College Avenue, Suite 207

Fort , Co. 80524

Cell ~ Fax

6th cast/brace? Too soon I think??

Hi everyone............last Wednesday had his cast removed. He had a

FUN cast free day. Playing in the water, held his 1st ice cream cones and

Popsicles!! He and his brother had a blast. And then they enjoyed a REAL

bubble bath. And I loved the cast free hugs. His little back " looked " great.

His rib hump is almost gone. A normal person would not have even notice it.

Thursday we went back to have his 6th cast applied.

Much to my surprise they also made a mold for a brace that he will start

wearing September 11. So he will be in this cast for 6 weeks. ???? I knew

there was a chance, but didn't think it was time. Especially after seeing

the out of cast Xray from Wednesday. Of course it looks better from when he

first started,but it was measured at 20 degrees.

Is it just me or is it too soon to start bracing? Shouldn't it be a lower

number?

The past 3 casts has stayed the same. No improvement. Just basically

held his curve. His doctor feels at his age, 27 months, he has improved as

much as he will and the cast will not do any more. He stated that if his

spine got worse in the brace we may have to cast for a while, brace for

while and go back and forth. Once he starts wearing the brace he would not

be seen for 6 months. Is that a really long time not to check on his spine?

Back in March Dr. looked at all of 's films and felt like we

were getting good results. Should I again have him look at the most recent

films and give me his opinion? Would he do that again?

Is it too late for the cast to continue to give correction? Some of you

know my highs and lows with his doc. I felt much better after Dr.

looked everything over, but now starting a brace I am very scared. I don't

want to lose what we have achieved by putting him in a brace too soon.

Has anyone had experience with bracing too soon?

ANY thoughts would be very helpful.

Thanks for your support,

Tasha

Tasha

Mommy of twin boys- and 27mths

Fort Worth, Texas

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.

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