Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 Hi Kate, I tried the antibiotic and it didn't work for me. My advice is to try it yourself to see. Hopefully, it will work for you. Good luck, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2001 Report Share Posted February 5, 2001 Please group can someone give me doctors in northwest Oregan for please Attached is her letter to me. she is having a problem finding a doctor for her daughter who will prescribe antibiotics June Hi June, I just read your post about your experience with antibiotic treatment. I am having a very difficult time finding a Doctor that is willing to even look into it. Could you give me more details on what you are doing and how it is working.(how much, how often,ect) Also what diet changes you have made. We are going in to Camarie's Doctor on Thursday and I am going to bounce a few questions off her. She said she is also willing to speak with other Doctors that have tried the antibiotic treatments. Would you be willing to share the name of your Doctor and where you recieved your treatment? I'm sorry if this is too invasive, my daughter is rapidly going down hill and niethor sulfa drugs or the diet seem to be helping much. I don't want her to have to be on Prednisone on a regular basis. If I can find a Doc willing to share thier ideas with my Doctor it will give us a protocall or something to base our decisions on. Thanks so much! Card (Camarie's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2001 Report Share Posted February 5, 2001 Hi June, I've sent our latest list - there are a few in Oregon so I hope one is close enough to them. Chris. > > ><HTML><FONT FACE=arial,helvetica><FONT SIZE=2>Please group can someone give me doctors in northwest Oregan for please ><BR>Attached is her letter to me. she is having a problem finding a doctor for ><BR>her daughter who will prescribe antibiotics ><BR>June</FONT> ><br> > ><!-- |**|begin egp html banner|**| --> > ><table border=0 cellspacing=0 cellpadding=2> ><tr bgcolor=#FFFFCC> ><td align=center><font size= " -1 " color=#003399><b> Sponsor</b></font></td> ></tr> ><tr bgcolor=#FFFFFF> ><td width=470><form method= " get " action= " http://rd./M=176325.1307935.2900315.1248727/D=egroupmail/S=1700\ 061589:N/A=567159/R=0/*http://whois.domains./domains_wresults.html " ><in\ put type= " hidden " name= " action " value= " 1 " > <input type= " hidden " name= " property " value= " domains " ><table border=0 cellpadding=0 cellspacing=0 bgcolor= " #ccffff " width= " 468 " ><tr><td rowspan=2><a href= " http://rd./M=176325.1307935.2900315.1248727/D=egroupmail/S=170006\ 1589:N/A=567159/R=1/*http://domains. " > ></tr> ><tr><td><img alt= " " width=1 height=1 src= " http://us.adserver./l?M=176325.1307935.2900315.1248727/D=egroupmai\ l/S=1700061589:N/A=567159/rand=375408790 " ></td></tr> ></table> > ><!-- |**|end egp html banner|**| --> > > ><br> ><tt> >To unsubscribe, email: rheumatic-unsubscribeegroups<BR> ></tt> ><br> > ></HTML> > > > >Return-Path: <carriegary@...> >Received: from rly-yd01.mx.aol.com (rly-yd01.mail.aol.com [172.18.150.1]) by air-yd02.mail.aol.com (v77_r1.21) with ESMTP; Mon, 05 Feb 2001 10:49:56 -0500 >Received: from web-2.star2.net (web-2.star2.net [207.192.119.10]) by rly-yd01.mx.aol.com (v77.27) with ESMTP; Mon, 05 Feb 2001 10:49:32 -0500 >Received: from card (clat2-82.transport.com [209.51.91.82]) by web-2.star2.net > (Vircom SMTPRS 4.5.185) with SMTP id <B0001199763@...> for <psy333che@...>; > Mon, 5 Feb 2001 10:57:58 -0500 >Message-ID: <013301c08f8c$175ae480$a14d33d1@card> >From: " carriegary " <carriegary@...> ><psy333che@...> >Subject: Antibiotic Treatment >Date: Mon, 5 Feb 2001 07:55:36 -0800 >MIME-Version: 1.0 >Content-Type: multipart/alternative; > boundary= " ----=_NextPart_000_0130_01C08F49.0690A060 " >X-Priority: 3 >X-MSMail-Priority: Normal >X-Mailer: Microsoft Outlook Express 5.50.4522.1200 >X-MimeOLE: Produced By Microsoft MimeOLE V5.50.4522.1200 > > ><!DOCTYPE HTML PUBLIC " -//W3C//DTD HTML 4.0 Transitional//EN " > ><HTML><HEAD> ><META http-equiv=Content-Type content= " text/html; charset=iso-8859-1 " >> ><META content= " MSHTML 5.50.4522.1800 " name=GENERATOR> ><STYLE></STYLE> ></HEAD> ><BODY bgColor=#ffffff> ><DIV><FONT face= " Lucida Casual " color=#800080>Hi June,</FONT></DIV> ><DIV><FONT face= " Lucida Casual " color=#800080>I just read your post abo>ut your >experience with antibiotic treatment. I am having a very difficult ti>me >finding a Doctor that is willing to even look into it. Could you give> me >more details on what you are doing and how it is working.(how much, how >often,ect) Also what diet changes you have made. We are going i>n to >Camarie's Doctor on Thursday and I am going to bounce a few questions off >her. She said she is also willing to speak with other Doctors that ha>ve >tried the antibiotic treatments. Would you be willing to share the na>me of >your Doctor and where you recieved your treatment? I'm sorry if this >is >too invasive, my daughter is rapidly going down hill and niethor sulfa drug>s or >the diet seem to be helping much. I don't want her to have to be on >Prednisone on a regular basis. If I can find a Doc willing to share t>hier >ideas with my Doctor it will give us a protocall or something to base our >decisions on. Thanks so much!</FONT></DIV> ><DIV><FONT face= " Lucida Casual " color=#800080> Card</FONT></DIV> ><DIV><FONT face= " Lucida Casual " color=#800080>(Camarie's mom)</FONT></D>IV> ><DIV><FONT face= " Lucida Casual " color=#800080></FONT> </DIV> ><DIV><FONT face= " Lucida Casual " color=#800080></FONT> </DIV> ><DIV> </DIV> ><DIV><FONT face= " Lucida Casual " color=#800080></FONT> </DIV></BODY>></HTML> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2001 Report Share Posted February 5, 2001 , et al., In terms of the antibiotic therapy, I am including here some more information for your use. I'm including within this email a portion of a list maintained by the Road Back Foundation. Unfortunately, we do not interview the doctors ourselves, but rely upon the input of others, so some of these doctors may only be "curious", but not fully implement the AP. For example, Dr. Sultany is listed here, and from personal experience he does not believe in the infectious theory nor does he treat with the antibiotic protocol. But, before the doctor lists, I've information I typically include with all emails. So, sorry, this is long. If you are truly serious about the Antibiotic Protocol, you should first be tested to see if you are infected, and by which species; Rick Marinelli should be more than willing to write the prescription to have you tested. Yes, you can be infected by multiple species; my wife is positive for M. Fermentans and C. Pneumonaie. To be tested, I suggest using the PCR test (Polymyraise Chain Reaction). This test specifically looks to find the bacteria's DNA, it does not look for the ghost antibodies, as most other tests do. The best place to get information about this test, and to send blood is Garth Nicholson's "The Institute for Molecular Medicine", and their web site is http://www.immed.org. Actually, this is his research and not-for-profit arm. The testing lab is called "International Molecular Diagnostics, Inc." and their web site is http://www.imd-lab.com. The people at the lab are quite knowledgeable, and may be able to direct you to exactly which species should be tested for given your diagnosis and symptoms. PLEASE NOTE that what you have been diagnosed with is a collection of symptoms, which have been given a disease name to classify that collection of symptoms. The complete symptomology of your condition may help better determine what species to be tested for than just the disease name. If you test positive for the infections, you will have better luck with your insurance company paying for antibiotic treatment, not to mention obtaining treatment from a non-AP-sympathetic physician. For more reading, the US CDC (United States Center for Disease Control) has articles linking Mycoplasma and non-STD Chlamydia to autoimmune diseases, which have been published in their journal "Emerging Infectious Diseases". They do not have any publications referencing studies listed there on the AP. However, if you can convince your doctor to test for the microbes listed above (most preferably by PCR) and you test positive, she/he would then be able to follow the AP for treatment of the underlying systemic infection. I suggest going to their site and doing a search on mycoplasma and chlamydia. However, I've done this for you. For the below listed articles, you will need Adobe Acrobat Reader. "Mycoplasmas: Sophisticated, Reemerging, and Burdened by Their Notoriety" B. Baseman and ph G. Tullyftp://ftp.cdc.gov/pub/EID/vol3no1/adobe/baseman.pdf "Chlamydia pneumoniae and Cardiovascular Disease"Lee Ann , Cho-Chou Kuo, and J. Graystonhttp://www.cdc.gov/ncidod/eid/vol4no4/adobe/campbell.pdf "Infectious Causes of Chronic Inflammatory Diseases and Cancer"Gail H. Cassellftp://ftp.cdc.gov/pub/EID/vol4no3/adobe/cassell.pdf "Lack of Association between First Myocardial Infarction and Past Use of Erythromycin, Tetracycline, or Doxycycline" A. , et alhttp://www.cdc.gov/ncidod/eid/vol5no2/pdf/jackson.pdf "Chlamydiae as Pathogens: New Species and New Issues"nna W. Peeling and C. Brunhamftp://ftp.cdc.gov/pub/EID/vol2no4/adobe/peeling.pdf "Explaining the Unexplained in Clinical Infectious Diseases: Looking Forward"Bradley A. Perkins and Relmanftp://ftp.cdc.gov/pub/EID/vol4no3/adobe/perkins.pdf "Infectious Diseases and Immunity: Special Reference to Major Histocompatibility Complex"Neeloo Singh, S. Agrawal, and A.K. Rastogiftp://ftp.cdc.gov/pub/EID/vol3no1/adobe/singh.pdf "Mycoplasma penetrans Bacteremia and Primary Antiphospholipid Syndrome"Antonia Yanez et alhttp://www.cdc.gov/ncidod/eid/vol5no1/pdf/yanez.pdf The above listed sites are really meant for persons within the medical community. If you are going to give your doctor some good reading, start there. For yourself, I would suggest browsing the following sites. This is where I got my start when I began doing research months ago. http://www.folkarts.com/idef/characteristics.htm http://www.folkarts.com/idef/cwd.htm http://www.folkarts.com/idef/mycoplasma.htm http://garynull.com/Documents/Arthritis/free-living_amoeba.htm http://www.folkarts.com/idef/herxheimer.htm http://www.folkarts.com/idef/pencillin.htm http://www.folkarts.com/idef/testing.htm http://www.arthritistrust.org http://www.mercolla.com This should give you a good start. OREGON Mark Bajorek,Portland, OR.503-494-9992email bajorekm@... Brogan, D.O.,565 A. St.,Ashland OR 97520.541-482-7007 Sidney Cassell,132 E. Broadway,Suite 830,Eugene OR 97401.541-687-0816. M. Depper, M.D.,Allergy, Asthma and Rheumatic Disease,Red Oaks Square,1250 N.E. Third St., Suite B-100,Bend, OR 97701.541-317-1700, Toll-free 1-800-317-1750. J.W. Fitzsimmons (IV and oral)Environmental Medicine,591 Hidden Valley Rd.,Grant's Pass, OR 97527.541-474-7423 A. Kruzel N.D.,800 SE 181st Ave.,nr. Rockford,Portland, OR 97233.503-667-1961. Ruth Lowengart,Orthopedic Medicine & Occupational Medicine,786 State St.,Medford OR.541-776-5111 Maier,1162, Willamette St.,Eugene, OR 97401.541-687-6041 Rick Marinelli, N.D. L.A.C.2445 SW Cedar Hills Blvd,Beaverton OR 97005.503-644-4446 Gerald S. Schoepflin,10000 SE Main, Suite 208,Portland OR 97216-2442.503-255-5187. Dr. Sultany,St. 's Hospital,Highway 217, West Side,Portland, OR. I wish you luck, and please keep in touch. We do like to know how people are doing. Creighton E. & Tina M. Burgher Road Back Foundation - Portland, Oregon -----Original Message-----From: psy333che@... [mailto:psy333che@...]Sent: Monday, February 05, 2001 8:24 AMrheumatic Subject: rheumatic Fwd: Antibiotic TreatmentPlease group can someone give me doctors in northwest Oregan for please Attached is her letter to me. she is having a problem finding a doctor for her daughter who will prescribe antibiotics June To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 Would you keep us posted on your daughters progress with the antibiotic treatment? I have read Dr. Browns book and have considered trying the treatment too. Just have to convince my doctor to try it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 Yeah!!!! I had no idea that was there either but I'm so glad it is. Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 At 18.21 09/12/02, you wrote: >I hope someone can help me. About a year ago I stared to take >Minocycline along with Naprolan. I was a new man after a little >time. I could do things that I was not able to do for a long time. >I am now back to my old self prior to the treatment. My wrists are >getting worse. I also am getting the sausage effect. If I stay >still to long I hurt. My Rhumy wants to put me on MTX or Enbrel. I >asked about changing from Mino. to another antibiotic like I have >read in the past. But he says that there is no study's on it and >still suggests the other two. For now I am kind of scared to do >either. I don't understand how when I started with the antibiotic it >worked like a miracle and now it does little effect for me. I would write to the rheumatic mailing list for help--I have not started antibiotics myself, but apparently many people have been through similar situations and have had success by making changes (diet, but especially changing antibiotic). AP does not work for everybody, but if it worked for you once, it may be worth insisting, and I truly believe, based on 20 years of PA, that taking medicine is not enough, the diet, for example, must be _excellent_. You of course have to be very careful to avoid damage in the meantime--perhaps rather than fighting with your rheumy, who is only trying to protect your joints as best he can, you should get yourself to a an AP doctor with a lot of experience if you want to continue that route. By the way, antibody testing (not PCR testing) for mycoplasma apparently works better _after_ you have been taking antibiotics. You might want to try that. The >only change that I have made was to stop drinking alcohol. I have >not touched the stuff, with the exception of a non-alcoholic drink >beer every now and than, for over a year. That may have been a huge stress in itself, both physically and mentally. Getting tested for yeast may be worthwhile as well. For those about to start medicines: I returned from non-functional to functional and nearly pain-free this year with only diet and lifestyle changes. I'm certainly not saying it will be enough for everyone, nor that anyone should risk damage by avoiding treatment (!!!), but for a limited period of time it is certainly worth a very serious try! If I had started sulfasalazine or AP, I would have given those the credit, my improvement was so dramatic. I follow Dr. Mercol's guidelines VERY loosely. (low carbs, _no_ sugar, lots of veggies and protein, omega 3's, daily probiotics, lots of water, NO JUNK.) If you find it very hard to give up sugar you should be suspicious of a yeast infection. (That goes for the woman who drinks soda all day too:-))! Also, diet soda will mess up a lot of systems.) The diet is not that easy at first, but it is a piece of cake ;-) when I think of the possible alternatives. I am very sorry I do not have more time to follow this list--though maybe I shouldn't be, because it would mean that I could not work anymore;-)). I hope to design a poll about antibiotics together with Ron D. What do you say, Ron? BTW, I think Meghan's note is quite sensibile, but I would add the other alternative of seeking out a qualified AP doctor, and possibly getting or staying on some other medication while waiting for it to kick in, to prevent damage. (cortisone?) I suppose it also depends on whether one subscribes to the idea that germs are being fought or whether you just think of AP as another immunomodulator (as most rheumies hold) for a mixed up immune system. Personally the mycoplasma theory makes more sense to me--my theory is that the psoriasis (internal?) makes us more vulnerable to infection, just as I used to get herpes infections in the eyes apparently because of the P. (the eye doc told me the healed part kept sloughing off...) My best wishes to you all, Maureen in Italy And hang in there, Gordon--we are all thinking of you! >[Meghan's note: The antibiotic treatment may be helpful for some people >and it may be helpful to other for only a short time. Unfortunately, >no medication is certain and no medication is guaranteed to work >forever on arthritis sufferers. It may be time to move on to MTX and >Enbrel. MTX is typically pretty safe and the regular blood tests are >a good assurance that you are doing ok with it (or not). Enbrel is a >newer drug, but it has been incredibly helpful to so many people. > >I know how hard it is to move from a less threatening drug to these >others but if your immune system is starting to go haywire again, you >should consider whether you can afford to lose the function. On the >up note, maybe eventually your immune system will settle down again >after going on these medications for a while and you can ween yourself >off. Hope this is helpful and I know others will offer their insights >as well! Best wishes!] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 > " ...I hope to design a poll about antibiotics together with Ron D. " Hi Maureen. I would be very interested in such a poll. Here are some suggestions for questions: - Have you tried tetracycline antibiotics for PA. If so: -What kind (e.g. minocyclin, tetracycline, dioxcycline(sp?) ? -In what dosage? -For how long did you take the antibiotics? -If the antibiotic worked, how long did it take to notice improvement in the PA? -To what extent did the antibiotic relieve PA symptoms? -did it become less effective over time? -Was a DMARD used concurrently? If so, how long was it before the DMARD was stopped or reduced? -Did you have difficulty finding a rheumatologist to administer the treatment? Sharon [Moderator's note: Hi Sharon. Why don't you and Maureen correspond privately to decide upon the wording of the poll that you'd like, and I will be happy to post it for you. I would not be a good person to help in putting the questions together however, because as I've said before - I think antibiotics are a waste of time for treating PA. Even worse, I think antibiotics are a red herring that can distract people from taking more effective drugs for PA. Take a look at some of the existing polls to get an idea of how they work. Polls are limited to 25 " check-boxes " (or fewer), and you can restrict answers to a single choice, or to multiple choices. Ron] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 > > > " ...I hope to design a poll about antibiotics together with Ron D. " > Check out the Pools at: rheumatic/ And http://www.remedyfind.com/hc-Rheumatoid-Arthritis.asp The results speak for themselves. (Notice that Minocin works and tetracycline did not) Hank Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Hi Simon, The antibiotic treatment like any other treatment does not work for all. l have been on it for over 5 years and it really has not done very much for me. l am one of the unlucky ones. There are those that have success. What type of arthritis do you have. Rheumatoid? Reactive? Do you have a rheumatoid factor? ls it negative or positive? This all has to do with the outcome of the treatment. Please read Dr. Browns chapter 31 and he makes it clear in the beginning of the chapter that people with negative rheumatoid factors due better than those with positive ones. The only one that can really help you is your doctor and of course you have to make the decision for yourself. Most of the drugs have bad side effects including antibiotics if you are allergic. lt is a tough decision and there are no guarantees. But anything is worth a try. Hope this has helped. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 In a message dated 7/20/2003 7:40:37 AM Pacific Daylight Time, longstaff@... writes: > Does it work ? > If it does, then why is it not used in 'main stream' medicine ?- > Hi Simon, and welcome to the mailing list. You can read my story of the antibiotics below my name. Why can be answered easily I think. Doxycycline, which is what I used costs 65 cents a day. The leading treatment the FDA is trying to tote costs 1600 a month. Does it work? Yes. Takes time but it does work. I don't take Anti inflamatories, nor steroids, nor special supplements, nor am I over mindful of my diet. If your doctor will not prescribe the medicine for you remember you can buy antibiotics in a feed store, and if I understand it right some members of this list have bought them from an online pharmacy with no ill effects or arrests. I hope you are feeling better in about 6 moths to a year. It was the difference between life and death for me. As an aside I did take sulphasalizine for 6 months and it did help but I understand that is a rariaty like 1 in 40. The doctors told me it was an antibiotic and Stupid me believed them . Best of luck to you and also I see you are in England so for pain go get some codeine off the shelf (I am a great admirer of the fact the English countries can get codeine off the shelf ) Ann Pritchard " Deep in the center of our beings is an infinite wealth of love " <A HREF= " http://www.rheumatic.org/medhist.htm " >http://www.rheumatic.org/medhist.htm\ </A> < latest published work. <A HREF= " http://groups.msn.com/TyroMedia/pictures " >http://groups.msn.com/TyroMedia/\ pictures</A> < latest photos <A HREF= " http://melungeon_music.tripod.com/melungeonmusic/ " >Melungeon Music</A> < 's Web Site Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 I had a high rheumatoid factor and have done extremely well on AP so don't let that discourage anyone. Regards, Dee Re: rheumatic Antibiotic Treatment > Hi Simon, > The antibiotic treatment like any other treatment does not work for all. l > have been on it for over 5 years and it really has not done very much for me. l > am one of the unlucky ones. There are those that have success. > > What type of arthritis do you have. Rheumatoid? Reactive? Do you have a > rheumatoid factor? ls it negative or positive? This all has to do with the > outcome of the treatment. Please read Dr. Browns chapter 31 and he makes it > clear in the beginning of the chapter that people with negative rheumatoid factors > due better than those with positive ones. > The only one that can really help you is your doctor and of course you have > to make the decision for yourself. Most of the drugs have bad side effects > including antibiotics if you are allergic. lt is a tough decision and there are > no guarantees. > But anything is worth a try. > Hope this has helped. > > Lee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Simon............Does this treatment work!!! You bet it does....and it did for me. Why does mainstream medicine not use it, I can think of many reasons and most of them do not reflect well on our current medical profession. The nicest reason would be that it is very difficult for a doctor to fly in the face of his colleagues with an alternative therapy. At best they can ostracize and criticize him or her, at worst make practising medicine most difficult when he needs to renue his license. I read Dr Browns book almost 10 years ago. My doctor said it would not work and so I went along for eight painful years, joints slowly deteriorating, never really pain free. I tried diets, supplements, and the standard arthritis drugs. When I realized how bad I was after eight years of " the best " drugs, I wanted to cry. I decided I had nothing to lose and became determined to try Minocin. I knew that within a very short time with the regular meds I would be in a wheelchair. I found a doctor and after an initial period of grumbling that I could tell no difference, woke up one day to ....NO PAIN!! Could not believe it, slowly, very slowly my joints had been healing. I have been pain free for almost two years now. I certainly would have been headed for a nursing home had I stayed with my old doctor. Is this worth a try...........only if you want a chance of getting well!! Just one ladys thoughts on the subject. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi Simon, I am marge and welcome to the group! I ave been on Minocin for almost 7years and yes it works very well. I had been sick a while whne I did find out so you are better off. I am back to feeling good again and last week while on a fanmily trip went kyacking for 90min . I as well have RA and Lupus. I need no othr rheumatic drugs. You need to read everything here on the rheuamtic.org site.This is very imporatnt.The Frequently asked qQuestions are excellent. Print yhem out for your family doc. You aksed about mainstream,. ell, this appraoch has not been givenmuch credit as there is one major flaw...theory. In our camp we believe there is an infection present. The antibiotics are used to combat this.( mycoplasma infection) The rheumos belive your immune sytem is attacking you and went haywire. Well, it may have but we feel one of the causes is an infection. Many of us here have attained a really good quality of life with this therapy. I use supplements and a little chorpratic to supplememnt and whatever is needed when ever. Read and then appraoch your doc with the studies and protocol from this site. However, we have physicians who have expertise in this therapy and I went that route as I wanted good results..I got them Keep the faith! Marge > I have recently been diagnosed with rheumatism. I am under 50 years > and have ground to a halt with severe neck, arm, shoulder and back > pains. > Last year I was going to keep fit classes 3 to 4 times a week, now I > can hardly lift my arms to wash my hair. > My consultant rheumatologist wants to use sulphasalazine, but after > reading about the side effects I've refused. At present I am just > taking anti inlammatory and pain killing drugs. > After reading about the 'McPherson Brown' treatment I have been given > a glimmer of hope. > Does it work ? > If it does, then why is it not used in 'main stream' medicine ?- > surely 'best practice' would indicate it's use if so successful. > Having read many books on the dietry approach, tried them for many > months, been extremely disapointed with the results I am natrually > sceptical about fringe medicine, particularly if someone is making a > living from the commercial aspect of clinics, drugs, books etc. > Living in the UK only NHS approved treatments which offer value for > money etc. would be considered. > My consultant was dismissive of the antibiotic route when I mentioned > it to him. > I would appreciate comments on this approach before I start throwing > money and 600 mile round trips in the desperate search for hope. > Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi Simon! Geoff here. You asked: > After reading about the 'McPherson Brown' treatment I have been given > a glimmer of hope. Does it work ? Purportedly for the vast majority of people, when done correctly, yes. > If it does, then why is it not used in 'main stream' medicine ?- > surely 'best practice' would indicate it's use if so successful. Money. Never forget, medicine is a business. He who forgets or ignores that fact is fair game. All acts and omissions of medicine must be viewed through that lens if one seeks reality and truth in health care. " Best practice " infers using that which accomplishes an acknowledged goal in the most efficient, safest and cost-effective way possible. To understand 'best practice' in medicine you must understand the goal; the goal YOU have (being cured) may not be the goal THEY have (treating the disease) and in fact the two may be at-odds. My personal estimate of the cost of " treatment " of a victim of RA laid out at age 50 with a life span of 70 using todays methods is roughly $423,000 per patient. Each patient is worth about $36,000 USD to the treating physician, $369,000 USD to the pharmaceutical companies for Rx medications, $9,000 USD to laboratories for recommended and CYA testing, etc. Contrast this to " curing " estimate of the antibiotic protocol: $7,860 per patient. Each patient is only worth $4,500 USD to the treating physician, $1,560 to the pharamaceutical companies for Rx medications (assuming 100 mg BID MWF Minocycline @ $1/pill for 5 years) and $1,800 USD in recommended lab tests. *If* your version of best practice is making money, " treatment " is far more adventageous to your pocketbook than AP. *If* your version is to be cured, the latter is in conflict with the former. > Having read many books on the dietry approach, tried them for many > months, been extremely disapointed with the results I am natrually > sceptical about fringe medicine, particularly if someone is making a > living from the commercial aspect of clinics, drugs, books etc. Define " fringe " . If anything other than allopathy (traditional Western medicine) is " fringe " you may want to re-examine your thinking. The British Royals use Homeopathy, as do the royals of other Eurpoean states. That should speak volumes. Homeopathy invented and used the DBPC (double-blind placebo-controlled) study to populate its Materia Medica. Allopathy has only recently got into the use of DBPC studies and their accuracy is routinely suspect. Allopathy has only been around a short time and over its life has anything but resounding success in all places EXCEPT politics and law making. I'm not saying it is of no use, I am saying it is routinely and widely over-used and as-such is commonly abusive to the patient. Today Hippocrates would be called an Herbalist and/or Naturopath. > Living in the UK only NHS approved treatments which offer value for > money etc. would be considered. Even in the UK you are free to pay for your own treatment and make your own decisions about your health if you are willing to step outside the NHS. But if you want to leave YOUR life, health and well-being in the hands of a bureaucrat, then you are at the bureaucrat's mercy... a risk-laden concept at best. HTH provide a new paradigm for your thinking. Best wishes to you. Geoff soli Deo gloria www.HealingYou.org - Your nonprofit source for remedies and aids in fighting these diseases, information on weaning from drugs, and nutritional kits for repairing adrenal damage; 100% volunteer staffed. (Courtesy: Captain Cook's www.800-800-cruise.com) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Hi group, Please could some of you with lupus please contact Laurie? Thanks, Chris. Begin forwarded message: > From: LLSchissel1@... > Date: 10 August 2005 8:01:17 AM > cadlard@... > Subject: antibiotic treatment > > > > I have lupus and have been on antibiotic pulse doses for around 5 > years. Do you know of any females that also have lupus that I could > discuss flares with? I seem to flare at a certain time of the month. > I have asked all my doctors and no one seems to have any answers. I > am alittle shy about going on a chat line to discuss this. Thank you > for your help. > Laurie Schissel > llschissel1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 lately there has been quite a few mentionings of antibiotic treatment on the news, glad to see it. they were just talking about doctors now useing a wait and see for a few days before giveing children antibiotics based on a study done where the antibiotics were held back with certain illnesses and the children got better without it. they held back on antibiotics and just gave them tylanol. Quote Link to comment Share on other sites More sharing options...
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