Re: Mycotoxin adducts on human serum albumin: biomarkers of exposure to Stachybotrys

[Guest guest]

Hello all-

I'm looking for info from anyone who has healded/cured/detoxed from

a systemic Stachy mycosis. There is very little info that I can find

about what to do, and conventional medicine doesn't seem to know much

about it. I've been sick for nearly two years following long-term

exposure; it was in the filters of my air conditioner after a

hurricane in 2004. It has ruined my life, and I need to know if it

can be cleared up.

Thanks in advance for any help!

>

> Mycotoxin adducts on human serum albumin: biomarkers of exposure to

> Stachybotrys

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

db=pubmed & cmd=Retrieve & dopt=AbstractPlus & list_uids=16882529 & query_hl=6

& itool=pubmed_docsum

>

> Have some of you tried this biomarker?

>

>

> I dont know if you have already seen these articels I am posting -

> so sorry if ....

>

> Sylgja

>

[Guest guest]

I really appreciate all your work and help here in this group - it is

priceless.

But I am so sorry that I am getting tired to see how some of you here in

respond to s advise - I know that everybody cant live like

him but remember if you are HEALTHY and get your energy back - you CAN do

ANYTHING.

I advise you to use s way to heal - total avoidance with ,,help " from

Dr. Shomakers medicine (questran and/or actos) - changing diet and all your

surroundings(remove ALL toxins and chemicals). I did it without knowing

- I found out myself before I knew about this group.

And the most important thing is to move away from the house you got sick in

- and go as often as you can outside for,,clean " air - not midtown city air.

Once you will begin healing you can tolerate more chemicals - but NEVER

mycotoxins.

If your MCS is coming back stronger - you got hit by mycotoxins.

This is my advise and it totally works - I believe it does for everybody

whatever symptoms you have - of course you are never HEALED - but you can

get your life back.

But as soon as you get exposed you get MCS again and - you loose energy to

even be able to go outside.

This is hard - but worth it.

And if you have kids like me there is NO way I am going to watch them being

sick and miserable because I don't want to leave a moldy house for a small

moldfree apartment or something.

I would live in a trailer if I would have to - but I am lucky to have the

clean air here in Iceland so I don't need to.

I really hope that all of you here in Sickbuildings could experience this

healing process - then you would know - and then you would NEVER accept

anything else than total avoidance.

I have the worst allele HLA and my parents are both with dreaded HLA ( mold

suspetable) but in a different way - so my genes are really bad.

I have been in bed for months - and I have been in the healing process where

I got some days better than others and I thought

OK this is how my life it is going to be since I am also MCS -

I will hopefully have a one good day every week all my life - and I almost

gave up and accepted that.

At that time I was using all the help and medicine I could.

But I moved from my second home to a totally mold free place

-

And my actually HEALING began .

I had all the worst symptoms - a breast tumor, MCR scan (not good),

Fibromyalgia, CFS, all signs of Multiple Sclerosis, sinusitis, headaches and

pain in all my body every day and you can name it - I had it.

(Stachy, Chatemomium, cladosporium, alternaria, fusarium, aspergillus,

mucor, and penisillium in my moldy homewhere I got sick)

Today If I can be in total avoidance from mold and mycotoxins - I have none

of these symptoms and the MCS is almost not there.

I can even work as an mold inspector (I am a biologist with the first mold

info and research company in Iceland)- (if I only stay in a sickbuilding for

a couple of minutes) - I of course get some signs - and the first one is

MCS.

I wish you could experience it -

But you live in USA and I can not go there in the cities without getting

sick - I wish we could all in the world breath in the same outside air.

Unfortunantly there is no ,,one pill " you can take - and heal (At least not

now). You have to detox your system with total avoidance among other things.

-sylgja

Iceland

Hello all-

I'm looking for info from anyone who has healded/cured/detoxed from

a systemic Stachy mycosis. There is very little info that I can find

about what to do, and conventional medicine doesn't seem to know much

about it. I've been sick for nearly two years following long-term

exposure; it was in the filters of my air conditioner after a

hurricane in 2004. It has ruined my life, and I need to know if it

can be cleared up.

Thanks in advance for any help!

>

> Mycotoxin adducts on human serum albumin: biomarkers of exposure to

> Stachybotrys

>

> http://www.ncbi. <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?>

nlm.nih.gov/entrez/query.fcgi?

db=pubmed & cmd=Retrieve & dopt=AbstractPlus & list_uids=16882529 & query_hl=6

& itool=pubmed_docsum

>

> Have some of you tried this biomarker?

>

>

> I dont know if you have already seen these articels I am posting -

> so sorry if ....

>

> Sylgja

>

[Guest guest]

Sylgja,

First let me start off by thanking you for your input, unfortunately

I will have to disagree with some of your statements. People are not

rejecting what is saying per se, it is HOW he says it.

Yes, we all know that avoidance is the first key to getting better,

but why do people assume that because we are sick that we are still

in the contaminated environment. I will speak about my own

situation, even though I know there are many others that fall under

that category also.

The contaminated bldg was my place of employment, my home is safe

for me (it had been throughly tested). I have been out of the bldg

for over 6 years, practice avoidance, where a mask whenever I go

out, am under a doctors protocol, have the " dreaded geneotype " . And

yes, alot of my symptoms have subsided to a point where I can move

about more easily, unfortunately before I was able to get the proper

help the mycotoxins had damaged my organs, including the brain. I

can take a small hit (plume) and get thrown back to almost square

one. It takes me many, many months to get back to the same condition

as before the hit.

I would love to have had just the chronic fatigue and only react to

stachy, unfortunately I was poisoned by 16 different fungi and they

all had their fun in my system.

There are many variables in all our situations. Even Dr.Shoemaker

says that there are some that even his protocol will not help.

Please do not think that I am attacking you, you have not been on

the board a long time and perhaps are unaware of alot of what has

gone on previously.

In closing I will say, it is not the message that people are

objecting to, it's how the message is presented, over and over and

over again.

Sharon C.

> >

> > Mycotoxin adducts on human serum albumin: biomarkers of exposure

to

> > Stachybotrys

> >

> > http://www.ncbi. <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?>

> nlm.nih.gov/entrez/query.fcgi?

>

db=pubmed & cmd=Retrieve & dopt=AbstractPlus & list_uids=16882529 & query_hl=

6

> & itool=pubmed_docsum

> >

> > Have some of you tried this biomarker?

> >

> >

> > I dont know if you have already seen these articels I am

posting -

> > so sorry if ....

> >

> > Sylgja

> >

>

>

>

>

>

>

[Guest guest]

Thank you for your reply

I am so sorry but sometimes it seems like some of you reject what is

saying - maybe I am wrong - sorry again

And of course I know that we all variable in our symptoms and damage - and I

know that Dr. Shoemakers protocol cant work for all I have seen it - I have

close relatives (of course with the worst dreaded genotype) that are older

than me and they can never get back to stage that I was so lucky to get

again - I am not even healed and will probably never be.But his protocol

didn't work for me until I had total avoidance - before that I thought I

was healed.

I know I am and was lucky -

But I am just telling you that my experience is that - and I am not saying

it is the ,,truth " is that when people still get heavy symptoms - they are

still living in some exsposure - I have seen it many times and I have tested

their homes - but no spores - probably just mycotoxins or some of the

bacteria the spore counts are unable to detect. As soon as they move to a

different mold free location the healing begins.

Yes I have been reading your posts and I would just hope that some of you

could experience the affect of total avoidance.

I wish you all the best - and like I said I cant even travel overseas

because I get so sick in other countries with more humid and temperature and

sporecounts - I am SO sensitive.

I was a volunteer in Africa for one year in 1997 - and I think my uploading

of mycotoxins started there - living in a hut :-) At least my first symptoms

started after that.

I haven't been writing for months because I was hit from mold in my home

once again - and I didn't even realize it myself - because I told myself

well this is the damage that is done - and I have to live with that.

But one more time I moved away - and we all got our health back (I have a

husband (also dreaded genotype) and children 2 and 4 years (and you can

imagine their genotypes :-().

So the only thing I would like to point out is that ,,maybe " isn't there a

slight chance that some of you are not sleeping in healthy environment (I

mean totally mycotoxin free).

And maybe it is just the sporecount outside which is bothering you not even

your home.

Like I said before I wish you could breath in the air I have here outside -

I wish you could all experience it

I could sell it in bottles :-)

But I also wish that one day I can come to a beach and enjoy the sun with my

kids without getting so sick I cant stand upright.

Maybe - one day?

Greetings

Sylgja

Sylgja,

First let me start off by thanking you for your input, unfortunately

I will have to disagree with some of your statements. People are not

rejecting what is saying per se, it is HOW he says it.

Yes, we all know that avoidance is the first key to getting better,

but why do people assume that because we are sick that we are still

in the contaminated environment. I will speak about my own

situation, even though I know there are many others that fall under

that category also.

The contaminated bldg was my place of employment, my home is safe

for me (it had been throughly tested). I have been out of the bldg

for over 6 years, practice avoidance, where a mask whenever I go

out, am under a doctors protocol, have the " dreaded geneotype " . And

yes, alot of my symptoms have subsided to a point where I can move

about more easily, unfortunately before I was able to get the proper

help the mycotoxins had damaged my organs, including the brain. I

can take a small hit (plume) and get thrown back to almost square

one. It takes me many, many months to get back to the same condition

as before the hit.

I would love to have had just the chronic fatigue and only react to

stachy, unfortunately I was poisoned by 16 different fungi and they

all had their fun in my system.

There are many variables in all our situations. Even Dr.Shoemaker

says that there are some that even his protocol will not help.

Please do not think that I am attacking you, you have not been on

the board a long time and perhaps are unaware of alot of what has

gone on previously.

In closing I will say, it is not the message that people are

objecting to, it's how the message is presented, over and over and

over again.

Sharon C.

> >

> > Mycotoxin adducts on human serum albumin: biomarkers of exposure

to

> > Stachybotrys

> >

> > http://www.ncbi. <http://www.ncbi.

<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?>

nlm.nih.gov/entrez/query.fcgi?>

> nlm.nih.gov/entrez/query.fcgi?

>

db=pubmed & cmd=Retrieve & dopt=AbstractPlus & list_uids=16882529 & query_hl=

6

> & itool=pubmed_docsum

> >

> > Have some of you tried this biomarker?

> >

> >

> > I dont know if you have already seen these articels I am

posting -

> > so sorry if ....

> >

> > Sylgja

> >

>

>

>

>

>

>

[Guest guest]

-I have not followed this but if anyone has a problem with me, i will

again state that its only eriks arrogance that bothers me, as i said

before i dont dislike him, but like sharon c I am one of the ones

that continue to be very ill, have been exposed to many toxin

produceing molds and a few other toxins. eriks experences and info.

only help those that have not been permanently injured. so it is

wrong for him to claim he has all the answers, his exposure was

limited and I only wish I could be doing that well.-- In

, " tigerpaw2c " <tigerpaw2c@...> wrote:

>

> Sylgja,

>

> First let me start off by thanking you for your input,

unfortunately

> I will have to disagree with some of your statements. People are

not

> rejecting what is saying per se, it is HOW he says it.

>

> Yes, we all know that avoidance is the first key to getting better,

> but why do people assume that because we are sick that we are still

> in the contaminated environment. I will speak about my own

> situation, even though I know there are many others that fall under

> that category also.

>

> The contaminated bldg was my place of employment, my home is safe

> for me (it had been throughly tested). I have been out of the bldg

> for over 6 years, practice avoidance, where a mask whenever I go

> out, am under a doctors protocol, have the " dreaded geneotype " . And

> yes, alot of my symptoms have subsided to a point where I can move

> about more easily, unfortunately before I was able to get the

proper

> help the mycotoxins had damaged my organs, including the brain. I

> can take a small hit (plume) and get thrown back to almost square

> one. It takes me many, many months to get back to the same

condition

> as before the hit.

>

> I would love to have had just the chronic fatigue and only react to

> stachy, unfortunately I was poisoned by 16 different fungi and

they

> all had their fun in my system.

>

> There are many variables in all our situations. Even Dr.Shoemaker

> says that there are some that even his protocol will not help.

>

> Please do not think that I am attacking you, you have not been on

> the board a long time and perhaps are unaware of alot of what has

> gone on previously.

>

> In closing I will say, it is not the message that people are

> objecting to, it's how the message is presented, over and over and

> over again.

>

> Sharon C.

>

>

> > >

> > > Mycotoxin adducts on human serum albumin: biomarkers of

exposure

> to

> > > Stachybotrys

> > >

> > > http://www.ncbi. <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

>

> > nlm.nih.gov/entrez/query.fcgi?

> >

>

db=pubmed & cmd=Retrieve & dopt=AbstractPlus & list_uids=16882529 & query_hl=

> 6

> > & itool=pubmed_docsum

> > >

> > > Have some of you tried this biomarker?

> > >

> > >

> > > I dont know if you have already seen these articels I am

> posting -

> > > so sorry if ....

> > >

> > > Sylgja

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

-sylgja, thank you for e-mailing that link but I still could not

bring it up. was wondering if you could post the article. also, Im

confused by your statement of mcs affects being solely from mycotoxin

exposure. I get these affects with so many things it's immposable to

avoid it all.and I know there not all mycotoxins. they range from

mild to severe but the symptoms are basically the same. some of the

milder ones may be considered allergic type but it also involves mcs

reactions. you have mcs? do you also have allergys and food

allergies? do you think that mcs reactions are only what you were

exposed to, or that you than become sensative to many things. maybe

it depends on the environment that you are in at the time your liver

disfunctions and you get mcs, you know, particles inhaled, weather

toxic,non-toxic, allergenic,pathogenic and just plain old irratants.

by your account of mcs, it seams theres a big verity on its affects,

just like there is on non-mcs effects. i dont know if any of us can

really give anyone good advice because theres such a broad range of

illness,symptoms and effects. I've gotten to where I hate to even try

because its obivous that theres to broad of range and one view does

not fit all. I would hate to give advice and have that person come

back and say, 'I followed that advice and it caused me to get

sicker'. for example, ericks advice on rV living and traveling. for

one thing im not up to traveling and most of the time it's very

unsafe for me to be driving at all. I have vision problems and

traffic polution affects me very bad, even worse if I have to stop

where highway construction is going on or a reck where theres gas,

disel, etc. heavy in the air. with me just avoiding mold plumes is

only the tip of the

iceburg.

-- In

, " sylgja " <sylgja@...> wrote:

>

>

>

> Thank you for your reply

>

>

>

> I am so sorry but sometimes it seems like some of you reject what

is

> saying - maybe I am wrong - sorry again

>

>

>

> And of course I know that we all variable in our symptoms and

damage - and I

> know that Dr. Shoemakers protocol cant work for all I have seen

it - I have

> close relatives (of course with the worst dreaded genotype) that

are older

> than me and they can never get back to stage that I was so lucky to

get

> again - I am not even healed and will probably never be.But his

protocol

> didn't work for me until I had total avoidance - before that I

thought I

> was healed.

>

>

>

> I know I am and was lucky -

>

> But I am just telling you that my experience is that - and I am not

saying

> it is the ,,truth " is that when people still get heavy symptoms -

they are

> still living in some exsposure - I have seen it many times and I

have tested

> their homes - but no spores - probably just mycotoxins or some of

the

> bacteria the spore counts are unable to detect. As soon as they

move to a

> different mold free location the healing begins.

>

>

>

> Yes I have been reading your posts and I would just hope that some

of you

> could experience the affect of total avoidance.

>

> I wish you all the best - and like I said I cant even travel

overseas

> because I get so sick in other countries with more humid and

temperature and

> sporecounts - I am SO sensitive.

>

>

>

> I was a volunteer in Africa for one year in 1997 - and I think my

uploading

> of mycotoxins started there - living in a hut :-) At least my first

symptoms

> started after that.

>

>

>

> I haven't been writing for months because I was hit from mold in my

home

> once again - and I didn't even realize it myself - because I told

myself

> well this is the damage that is done - and I have to live with that.

>

> But one more time I moved away - and we all got our health back (I

have a

> husband (also dreaded genotype) and children 2 and 4 years (and you

can

> imagine their genotypes :-().

>

>

>

> So the only thing I would like to point out is that ,,maybe " isn't

there a

> slight chance that some of you are not sleeping in healthy

environment (I

> mean totally mycotoxin free).

>

>

>

> And maybe it is just the sporecount outside which is bothering you

not even

> your home.

>

>

>

>

>

> Like I said before I wish you could breath in the air I have here

outside -

>

> I wish you could all experience it

>

> I could sell it in bottles :-)

>

>

>

> But I also wish that one day I can come to a beach and enjoy the

sun with my

> kids without getting so sick I cant stand upright.

>

> Maybe - one day?

>

>

>

> Greetings

>

> Sylgja

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Sylgja,

>

> First let me start off by thanking you for your input,

unfortunately

> I will have to disagree with some of your statements. People are

not

> rejecting what is saying per se, it is HOW he says it.

>

> Yes, we all know that avoidance is the first key to getting better,

> but why do people assume that because we are sick that we are still

> in the contaminated environment. I will speak about my own

> situation, even though I know there are many others that fall under

> that category also.

>

> The contaminated bldg was my place of employment, my home is safe

> for me (it had been throughly tested). I have been out of the bldg

> for over 6 years, practice avoidance, where a mask whenever I go

> out, am under a doctors protocol, have the " dreaded geneotype " . And

> yes, alot of my symptoms have subsided to a point where I can move

> about more easily, unfortunately before I was able to get the

proper

> help the mycotoxins had damaged my organs, including the brain. I

> can take a small hit (plume) and get thrown back to almost square

> one. It takes me many, many months to get back to the same

condition

> as before the hit.

>

> I would love to have had just the chronic fatigue and only react to

> stachy, unfortunately I was poisoned by 16 different fungi and they

> all had their fun in my system.

>

> There are many variables in all our situations. Even Dr.Shoemaker

> says that there are some that even his protocol will not help.

>

> Please do not think that I am attacking you, you have not been on

> the board a long time and perhaps are unaware of alot of what has

> gone on previously.

>

> In closing I will say, it is not the message that people are

> objecting to, it's how the message is presented, over and over and

> over again.

>

> Sharon C.

>

>

> > >

> > > Mycotoxin adducts on human serum albumin: biomarkers of

exposure

> to

> > > Stachybotrys

> > >

> > > http://www.ncbi. <http://www.ncbi.

> <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?>

> nlm.nih.gov/entrez/query.fcgi?>

> > nlm.nih.gov/entrez/query.fcgi?

> >

>

db=pubmed & cmd=Retrieve & dopt=AbstractPlus & list_uids=16882529 & query_hl=

> 6

> > & itool=pubmed_docsum

> > >

> > > Have some of you tried this biomarker?

> > >

> > >

> > > I dont know if you have already seen these articels I am

> posting -

> > > so sorry if ....

> > >

> > > Sylgja

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

I am sorry if it didn't come out right- my English is limited so it is my

fault.

but I am just talking about the MCS gets worse when you are exposed to

mycotoxins I am not talking about that only mycotoxins cause MCS - maybe it

is but I don't know. I have MCS and the symptoms and tolerance gets worse

when I am exposed to mycotoxins.

Yes I have had allergies and have allergies.

I am saying

If you have MCS - avoid mycotoxins so your MCS can possibly decline. When

your MCS is worse look for mycotoxins in your environment -

Of course you cant avoid all - in our society. Traffic pollution and

industry toxins.

MCS is of course not only the things you where or are exposed to - when your

body is unable to detoxify you can get sensitive to everything that your

body cant get rid of.

Everything that can stimulate the immune response when toxins are inhaled,

and it seems to be depending on your HLA genotype, which you might call

,,the code for your immune system " .

I am studying immunology to try to understand these things better - but

there is a lot to learn - as we all know.

But I cant see any harm in advising people to avoid the things that make

them sick or sicker.

And so you all know - I didn't know existed until few months ago - and

I was so glad to find someone with the same experience as me and my family.

Like I mentioned before I am so lucky to be living here in Iceland where I

don't have to travel around for fresh air or move between towns.

I will say it once again I just wish you could get my experience.

And I hope we will all keep on giving each other advises

I know that I have learnt a lot from all of you here - and your knowledge

here is priceless.

I know this issue has been brought up many times - but I just thought you

wanted to know my experience - and I am hoping it will help someone.

I know that the more I learn - the more I see how little I do know.

I don't know much - but I think that total avoidance to mycotoxins and

staying as long as you can outside in a clean nature is a key factor in the

healing process.

The symptoms are so diverse and are probably like all other things linked to

our genes - that is - where we are weakest the inflammatory and immune

actions affect the most.

I described it in a article here in Iceland like this in attempt to describe

so everybody could understand how I see it at this moment - maybe I will

have a total different point of view later.

In your genes there is a code for a bottle that can keep toxins.

The code is different in every person - that is the size of the bottle is

varying, some get small but others get big.

So when or if we fill the bottle - we get the toxin symptoms and there is no

way we can empty that bottle again but we can surely try to stop the

overflowing.

And like falling water the overflowing from the bottle will make rivers

where is the weakest foundation.

I hope you can get it visually with my English.

This is how I see it

I am just so fustrated that all of you cant get the clean air I have -

Because I get exposed every other day and I am trying to avoid (ie when my

next door neighbour, these days, opens the door opposite mine I have to

close all my windows and doors)- but if you live in a big city in the

states it is really hard - I think.

I hope I didn't get you all angry by my post - but this is just my

experience.

And please keep on giving advises - we all need them.

Greetings

Sylgja

-sylgja, thank you for e-mailing that link but I still could not

bring it up. was wondering if you could post the article. also, Im

confused by your statement of mcs affects being solely from mycotoxin

exposure. I get these affects with so many things it's immposable to

avoid it all.and I know there not all mycotoxins. they range from

mild to severe but the symptoms are basically the same. some of the

milder ones may be considered allergic type but it also involves mcs

reactions. you have mcs? do you also have allergys and food

allergies? do you think that mcs reactions are only what you were

exposed to, or that you than become sensative to many things. maybe

it depends on the environment that you are in at the time your liver

disfunctions and you get mcs, you know, particles inhaled, weather

toxic,non-toxic, allergenic,pathogenic and just plain old irratants.

by your account of mcs, it seams theres a big verity on its affects,

just like there is on non-mcs effects. i dont know if any of us can

really give anyone good advice because theres such a broad range of

illness,symptoms and effects. I've gotten to where I hate to even try

because its obivous that theres to broad of range and one view does

not fit all. I would hate to give advice and have that person come

back and say, 'I followed that advice and it caused me to get

sicker'. for example, ericks advice on rV living and traveling. for

one thing im not up to traveling and most of the time it's very

unsafe for me to be driving at all. I have vision problems and

traffic polution affects me very bad, even worse if I have to stop

where highway construction is going on or a reck where theres gas,

disel, etc. heavy in the air. with me just avoiding mold plumes is

only the tip of the

iceburg.

-- In

@ <mailto:%40> ,

" sylgja " <sylgja@...> wrote:

>

>

>

> Thank you for your reply

>

>

>

> I am so sorry but sometimes it seems like some of you reject what

is

> saying - maybe I am wrong - sorry again

>

>

>

> And of course I know that we all variable in our symptoms and

damage - and I

> know that Dr. Shoemakers protocol cant work for all I have seen

it - I have

> close relatives (of course with the worst dreaded genotype) that

are older

> than me and they can never get back to stage that I was so lucky to

get

> again - I am not even healed and will probably never be.But his

protocol

> didn't work for me until I had total avoidance - before that I

thought I

> was healed.

>

>

>

> I know I am and was lucky -

>

> But I am just telling you that my experience is that - and I am not

saying

> it is the ,,truth " is that when people still get heavy symptoms -

they are

> still living in some exsposure - I have seen it many times and I

have tested

> their homes - but no spores - probably just mycotoxins or some of

the

> bacteria the spore counts are unable to detect. As soon as they

move to a

> different mold free location the healing begins.

>

>

>

> Yes I have been reading your posts and I would just hope that some

of you

> could experience the affect of total avoidance.

>

> I wish you all the best - and like I said I cant even travel

overseas

> because I get so sick in other countries with more humid and

temperature and

> sporecounts - I am SO sensitive.

>

>

>

> I was a volunteer in Africa for one year in 1997 - and I think my

uploading

> of mycotoxins started there - living in a hut :-) At least my first

symptoms

> started after that.

>

>

>

> I haven't been writing for months because I was hit from mold in my

home

> once again - and I didn't even realize it myself - because I told

myself

> well this is the damage that is done - and I have to live with that.

>

> But one more time I moved away - and we all got our health back (I

have a

> husband (also dreaded genotype) and children 2 and 4 years (and you

can

> imagine their genotypes :-().

>

>

>

> So the only thing I would like to point out is that ,,maybe " isn't

there a

> slight chance that some of you are not sleeping in healthy

environment (I

> mean totally mycotoxin free).

>

>

>

> And maybe it is just the sporecount outside which is bothering you

not even

> your home.

>

>

>

>

>

> Like I said before I wish you could breath in the air I have here

outside -

>

> I wish you could all experience it

>

> I could sell it in bottles :-)

>

>

>

> But I also wish that one day I can come to a beach and enjoy the

sun with my

> kids without getting so sick I cant stand upright.

>

> Maybe - one day?

>

>

>

> Greetings

>

> Sylgja

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Sylgja,

>

> First let me start off by thanking you for your input,

unfortunately

> I will have to disagree with some of your statements. People are

not

> rejecting what is saying per se, it is HOW he says it.

>

> Yes, we all know that avoidance is the first key to getting better,

> but why do people assume that because we are sick that we are still

> in the contaminated environment. I will speak about my own

> situation, even though I know there are many others that fall under

> that category also.

>

> The contaminated bldg was my place of employment, my home is safe

> for me (it had been throughly tested). I have been out of the bldg

> for over 6 years, practice avoidance, where a mask whenever I go

> out, am under a doctors protocol, have the " dreaded geneotype " . And

> yes, alot of my symptoms have subsided to a point where I can move

> about more easily, unfortunately before I was able to get the

proper

> help the mycotoxins had damaged my organs, including the brain. I

> can take a small hit (plume) and get thrown back to almost square

> one. It takes me many, many months to get back to the same

condition

> as before the hit.

>

> I would love to have had just the chronic fatigue and only react to

> stachy, unfortunately I was poisoned by 16 different fungi and they

> all had their fun in my system.

>

> There are many variables in all our situations. Even Dr.Shoemaker

> says that there are some that even his protocol will not help.

>

> Please do not think that I am attacking you, you have not been on

> the board a long time and perhaps are unaware of alot of what has

> gone on previously.

>

> In closing I will say, it is not the message that people are

> objecting to, it's how the message is presented, over and over and

> over again.

>

> Sharon C.

>

>

> > >

> > > Mycotoxin adducts on human serum albumin: biomarkers of

exposure

> to

> > > Stachybotrys

> > >

> > > http://www.ncbi. <http://www.ncbi.

> <http://www.ncbi. <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?>

nlm.nih.gov/entrez/query.fcgi?>

> nlm.nih.gov/entrez/query.fcgi?>

> > nlm.nih.gov/entrez/query.fcgi?

> >

>

db=pubmed & cmd=Retrieve & dopt=AbstractPlus & list_uids=16882529 & query_hl=

> 6

> > & itool=pubmed_docsum

> > >

> > > Have some of you tried this biomarker?

> > >

> > >

> > > I dont know if you have already seen these articels I am

> posting -

> > > so sorry if ....

> > >

> > > Sylgja

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

-no problem at all sylgja. I wish I had your clean outside air too,

that would be great. sounds like you have a good understanding of it

all. it makes perfect sence that we well all search out the lessor of

irratating environments weather we even understand the importance of

advoidence or not, our bodies well tell us, and those environments

well be different for everyone depending on where they live, inside

vs. outside air, etc.my outside air is not great, only in winter with

snow and moisture in the air,it is improved,but wood heating smoke

and highway pollution seams to get worse but clears faster or settles

to the ground faster. so yes, even though I'm not into frezzeing, we

have to make trade off's and that might be one I would be welling to

make. -- In , " sylgja " <sylgja@...>

wrote:

>

>

>

>

>

> I am sorry if it didn't come out right- my English is limited so it

is my

> fault.

>

> but I am just talking about the MCS gets worse when you are exposed

to

> mycotoxins I am not talking about that only mycotoxins cause MCS -

maybe it

> is but I don't know. I have MCS and the symptoms and tolerance gets

worse

> when I am exposed to mycotoxins.

>

>

>

> Yes I have had allergies and have allergies.

>

>

>

> I am saying

>

> If you have MCS - avoid mycotoxins so your MCS can possibly

decline. When

> your MCS is worse look for mycotoxins in your environment -

>

> Of course you cant avoid all - in our society. Traffic pollution and

> industry toxins.

>

> MCS is of course not only the things you where or are exposed to -

when your

> body is unable to detoxify you can get sensitive to everything that

your

> body cant get rid of.

>

> Everything that can stimulate the immune response when toxins are

inhaled,

> and it seems to be depending on your HLA genotype, which you might

call

> ,,the code for your immune system " .

>

>

>

> I am studying immunology to try to understand these things better -

but

> there is a lot to learn - as we all know.

>

>

>

> But I cant see any harm in advising people to avoid the things that

make

> them sick or sicker.

>

>

>

> And so you all know - I didn't know existed until few months

ago - and

> I was so glad to find someone with the same experience as me and my

family.

>

>

>

> Like I mentioned before I am so lucky to be living here in Iceland

where I

> don't have to travel around for fresh air or move between towns.

>

>

>

> I will say it once again I just wish you could get my experience.

>

>

>

> And I hope we will all keep on giving each other advises

>

> I know that I have learnt a lot from all of you here - and your

knowledge

> here is priceless.

>

> I know this issue has been brought up many times - but I just

thought you

> wanted to know my experience - and I am hoping it will help someone.

>

>

>

> I know that the more I learn - the more I see how little I do know.

>

> I don't know much - but I think that total avoidance to mycotoxins

and

> staying as long as you can outside in a clean nature is a key

factor in the

> healing process.

>

>

>

> The symptoms are so diverse and are probably like all other things

linked to

> our genes - that is - where we are weakest the inflammatory and

immune

> actions affect the most.

>

> I described it in a article here in Iceland like this in attempt to

describe

> so everybody could understand how I see it at this moment - maybe I

will

> have a total different point of view later.

>

>

>

> In your genes there is a code for a bottle that can keep toxins.

>

> The code is different in every person - that is the size of the

bottle is

> varying, some get small but others get big.

>

> So when or if we fill the bottle - we get the toxin symptoms and

there is no

> way we can empty that bottle again but we can surely try to stop the

> overflowing.

>

> And like falling water the overflowing from the bottle will make

rivers

> where is the weakest foundation.

>

> I hope you can get it visually with my English.

>

>

>

> This is how I see it

>

> I am just so fustrated that all of you cant get the clean air I

have -

>

> Because I get exposed every other day and I am trying to avoid (ie

when my

> next door neighbour, these days, opens the door opposite mine I

have to

> close all my windows and doors)- but if you live in a big city in

the

> states it is really hard - I think.

>

>

>

>

>

> I hope I didn't get you all angry by my post - but this is just my

> experience.

>

> And please keep on giving advises - we all need them.

>

>

>

> Greetings

>

> Sylgja

>

>

>

>

>

>

>

>

>

>

>

> -sylgja, thank you for e-mailing that link but I still could not

> bring it up. was wondering if you could post the article. also, Im

> confused by your statement of mcs affects being solely from

mycotoxin

> exposure. I get these affects with so many things it's immposable

to

> avoid it all.and I know there not all mycotoxins. they range from

> mild to severe but the symptoms are basically the same. some of the

> milder ones may be considered allergic type but it also involves

mcs

> reactions. you have mcs? do you also have allergys and food

> allergies? do you think that mcs reactions are only what you were

> exposed to, or that you than become sensative to many things. maybe

> it depends on the environment that you are in at the time your

liver

> disfunctions and you get mcs, you know, particles inhaled, weather

> toxic,non-toxic, allergenic,pathogenic and just plain old

irratants.

> by your account of mcs, it seams theres a big verity on its

affects,

> just like there is on non-mcs effects. i dont know if any of us can

> really give anyone good advice because theres such a broad range of

> illness,symptoms and effects. I've gotten to where I hate to even

try

> because its obivous that theres to broad of range and one view does

> not fit all. I would hate to give advice and have that person come

> back and say, 'I followed that advice and it caused me to get

> sicker'. for example, ericks advice on rV living and traveling. for

> one thing im not up to traveling and most of the time it's very

> unsafe for me to be driving at all. I have vision problems and

> traffic polution affects me very bad, even worse if I have to stop

> where highway construction is going on or a reck where theres gas,

> disel, etc. heavy in the air. with me just avoiding mold plumes is

> only the tip of the

> iceburg.

> -- In

> @ <mailto:%40>

,

> " sylgja " <sylgja@> wrote:

> >

> >

> >

> > Thank you for your reply

> >

> >

> >

> > I am so sorry but sometimes it seems like some of you reject what

> is

> > saying - maybe I am wrong - sorry again

> >

> >

> >

> > And of course I know that we all variable in our symptoms and

> damage - and I

> > know that Dr. Shoemakers protocol cant work for all I have seen

> it - I have

> > close relatives (of course with the worst dreaded genotype) that

> are older

> > than me and they can never get back to stage that I was so lucky

to

> get

> > again - I am not even healed and will probably never be.But his

> protocol

> > didn't work for me until I had total avoidance - before that I

> thought I

> > was healed.

> >

> >

> >

> > I know I am and was lucky -

> >

> > But I am just telling you that my experience is that - and I am

not

> saying

> > it is the ,,truth " is that when people still get heavy symptoms -

> they are

> > still living in some exsposure - I have seen it many times and I

> have tested

> > their homes - but no spores - probably just mycotoxins or some of

> the

> > bacteria the spore counts are unable to detect. As soon as they

> move to a

> > different mold free location the healing begins.

> >

> >

> >

> > Yes I have been reading your posts and I would just hope that

some

> of you

> > could experience the affect of total avoidance.

> >

> > I wish you all the best - and like I said I cant even travel

> overseas

> > because I get so sick in other countries with more humid and

> temperature and

> > sporecounts - I am SO sensitive.

> >

> >

> >

> > I was a volunteer in Africa for one year in 1997 - and I think my

> uploading

> > of mycotoxins started there - living in a hut :-) At least my

first

> symptoms

> > started after that.

> >

> >

> >

> > I haven't been writing for months because I was hit from mold in

my

> home

> > once again - and I didn't even realize it myself - because I told

> myself

> > well this is the damage that is done - and I have to live with

that.

> >

> > But one more time I moved away - and we all got our health back

(I

> have a

> > husband (also dreaded genotype) and children 2 and 4 years (and

you

> can

> > imagine their genotypes :-().

> >

> >

> >

> > So the only thing I would like to point out is that ,,maybe "

isn't

> there a

> > slight chance that some of you are not sleeping in healthy

> environment (I

> > mean totally mycotoxin free).

> >

> >

> >

> > And maybe it is just the sporecount outside which is bothering

you

> not even

> > your home.

> >

> >

> >

> >

> >

> > Like I said before I wish you could breath in the air I have here

> outside -

> >

> > I wish you could all experience it

> >

> > I could sell it in bottles :-)

> >

> >

> >

> > But I also wish that one day I can come to a beach and enjoy the

> sun with my

> > kids without getting so sick I cant stand upright.

> >

> > Maybe - one day?

> >

> >

> >

> > Greetings

> >

> > Sylgja

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Sylgja,

> >

> > First let me start off by thanking you for your input,

> unfortunately

> > I will have to disagree with some of your statements. People are

> not

> > rejecting what is saying per se, it is HOW he says it.

> >

> > Yes, we all know that avoidance is the first key to getting

better,

> > but why do people assume that because we are sick that we are

still

> > in the contaminated environment. I will speak about my own

> > situation, even though I know there are many others that fall

under

> > that category also.

> >

> > The contaminated bldg was my place of employment, my home is safe

> > for me (it had been throughly tested). I have been out of the

bldg

> > for over 6 years, practice avoidance, where a mask whenever I go

> > out, am under a doctors protocol, have the " dreaded geneotype " .

And

> > yes, alot of my symptoms have subsided to a point where I can

move

> > about more easily, unfortunately before I was able to get the

> proper

> > help the mycotoxins had damaged my organs, including the brain. I

> > can take a small hit (plume) and get thrown back to almost square

> > one. It takes me many, many months to get back to the same

> condition

> > as before the hit.

> >

> > I would love to have had just the chronic fatigue and only react

to

> > stachy, unfortunately I was poisoned by 16 different fungi and

they

> > all had their fun in my system.

> >

> > There are many variables in all our situations. Even Dr.Shoemaker

> > says that there are some that even his protocol will not help.

> >

> > Please do not think that I am attacking you, you have not been on

> > the board a long time and perhaps are unaware of alot of what has

> > gone on previously.

> >

> > In closing I will say, it is not the message that people are

> > objecting to, it's how the message is presented, over and over

and

> > over again.

> >

> > Sharon C.

> >

> >

> > > >

> > > > Mycotoxin adducts on human serum albumin: biomarkers of

> exposure

> > to

> > > > Stachybotrys

> > > >

> > > > http://www.ncbi. <http://www.ncbi.

> > <http://www.ncbi. <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?>

> nlm.nih.gov/entrez/query.fcgi?>

> > nlm.nih.gov/entrez/query.fcgi?>

> > > nlm.nih.gov/entrez/query.fcgi?

> > >

> >

>

db=pubmed & cmd=Retrieve & dopt=AbstractPlus & list_uids=16882529 & query_hl=

> > 6

> > > & itool=pubmed_docsum

> > > >

> > > > Have some of you tried this biomarker?

> > > >

> > > >

> > > > I dont know if you have already seen these articels I am

> > posting -

> > > > so sorry if ....

> > > >

> > > > Sylgja

> > > >

> > >

> > >

> > >

> > >

> > >

> > >