Re: prophlatic antibiotics for PANDAS

[Guest guest]

Hi a,

Does your daughter stay on the antibiotic, or does she take it with

sore throat symptoms? I just read a recent article that says strep A

(implicated in OCD) does not present with swollen glands or discharge

so often is not cultured. I don't remember if PANDAS usually refers

to strep B.

My daughter has had recurring sore throats(among other " somatic "

symptoms) that were never cultured for those reasons, until one

incident with sore throat and delusions, which did not detect strep,

but maybe they did not do the 3 day culture. This article stated too,

that the untreated effects of strep A can build up leading to OCD

symptoms over time, so it is best to treat at the first incidence of

possible strep A (which would seem to mean you would have to have a

suspicion of predisposition to OCD in the child-maybe mild OCD or

other anxiety symptoms?). I don't have the link, someone posted it at

the pickaderms e-list, which I visit b/c my daughter with

OCD/BDD has skin picking.

She just today complained of aching cramping legs, after a hiatus in

those symptoms, and tonight had a relapse of BDD after nearly 4 good

weeks.(Suddenly decided she would not leave the car unless I took her

home to change clothes, panic attack, is refusing to go to school

tomorrow) and too, she has been off her antibiotic for nearly two

weeks (minocyclin for acne- however she does not really have acne,

just a spot or two which she exacerbates with picking), since she did

not tell me she had run out, and I did not go to refill the

prescription quickly. I started to wonder in Nov.if the antibiotic

had a beneficial side effect on her physical symptoms (constant

fatigue, sore muscles and joints, mild sore throats, headaches,

extreme exhaustion with exertion) when she started doing so much

better (we had just had a 1st appt with a new therapist, but no ERP

homework yet) and thus helped her OCD too. I know it is all very

speculative, since she has not been cultured for strep A, and she is

not taking an antibiotic for OCD, but for " acne " .

I wonder if there can be other auto immune conditions that act like

strep A (exacerbating OCD)since lupus, fibromyalgia and colitis are

in my family (she was tested for lupus last year, but it can be

difficult to diagnose) and those persons also seem to be afflicted

with anxiety disorders.

Grace

> Is anyone out there on prophlatic antibiotics for PANDAS? My

daughter

> Kendall is doing remarkably well 9 weeks post Strep and severe,

acute

> exacerbations of OCD. I want to protect her health and keep her

this way.

> We're almost back to " normal " WHAT BLISS...erica cronin

>

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