Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Hi again - I forgot to add in my earlier post that age does help quite a bit. Annie used to not be able to tolerate all kinds of clothes. I think age has helped that more than anything, and I think that's only partly due to wanting to dress " cool " . It has decreased to the point where I forgot to include it in my post - that says A LOT. The only clothing issue now is not wanting to wear socks or any shoes that tie (but that may be more OCD - an evenness issue) or any pajamas at night. Hey, she even WANTS to wear a bra. And this from a kid who couldn't handle anything around her waist for years! So hang in there, all of you with six year olds. By eight things were better. By nine, clothing isn't even an issue. I just say every morning, " go back up and put on socks " without even looking at her because I know she will try not to wear any. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Hi again - I forgot to add in my earlier post that age does help quite a bit. Annie used to not be able to tolerate all kinds of clothes. I think age has helped that more than anything, and I think that's only partly due to wanting to dress " cool " . It has decreased to the point where I forgot to include it in my post - that says A LOT. The only clothing issue now is not wanting to wear socks or any shoes that tie (but that may be more OCD - an evenness issue) or any pajamas at night. Hey, she even WANTS to wear a bra. And this from a kid who couldn't handle anything around her waist for years! So hang in there, all of you with six year olds. By eight things were better. By nine, clothing isn't even an issue. I just say every morning, " go back up and put on socks " without even looking at her because I know she will try not to wear any. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Hi again - I forgot to add in my earlier post that age does help quite a bit. Annie used to not be able to tolerate all kinds of clothes. I think age has helped that more than anything, and I think that's only partly due to wanting to dress " cool " . It has decreased to the point where I forgot to include it in my post - that says A LOT. The only clothing issue now is not wanting to wear socks or any shoes that tie (but that may be more OCD - an evenness issue) or any pajamas at night. Hey, she even WANTS to wear a bra. And this from a kid who couldn't handle anything around her waist for years! So hang in there, all of you with six year olds. By eight things were better. By nine, clothing isn't even an issue. I just say every morning, " go back up and put on socks " without even looking at her because I know she will try not to wear any. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 My daughter had very minimal improvement in S.I.D. symptoms with brushing therapy. Her O.T. says she sees about 50/50 results. Stephany Mom to age 6 with OCD, BP, and ADHD on zoloft and risperdal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi Judy, I have tried brushing as well as a variety of proprioceptive and vestibular work for Carly's SI and have seen absolutely no improvement. These were prescribed by her OT. The current OT that I am working with says that perhaps the ingredient of OCD mixed with Carly's SI makes the normally very effective treatment less effective. Carly's talk doc says that SI is much more common amongst children with autism. I am back to believing that no one really knows a darned thing and that maybe twenty years from now there might be some real answers. In the meanwhile our children are the guinea pigs in the " practice of medicine " . It saddens me to hear that your son at sixteen years old is still plagued by tactile defensiveness. I hope to hear that it improves for him soon. Hang in there!! Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Thanks, Stephany. I will probably try something else, since brushing made llittle difference to . Dan's SID got worse recently about the time I saw some of his OCD symptoms return. I hope we don't have to change medications again--he's been on Celexa for over a year now, with very good effect. Judy Re: S.I. and meds again My daughter had very minimal improvement in S.I.D. symptoms with brushing therapy. Her O.T. says she sees about 50/50 results. Stephany Mom to age 6 with OCD, BP, and ADHD on zoloft and risperdal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 FWIW, we've recently had a success with bribery with my son, Ian (10) and his SID issues around his socks and shoes. In the last 6 months, he's outgrown his seamless socks and switched to tie shoes from the Velcro ones he'd worked with in erp therapy so we were back to mornings in hell. My husband, who usually stays out of these issues, offered him $20 if he could manage his own shoes and socks without complaint or assistance for a week. To my amazement, it worked! We had tried money incentives in the past as part of erp therapy with no luck. I'm guessing it worked this time because the offer came from Dad. I'm hoping this success will motivate both of them! My heartfelt sympathy and best wishes go out to you, I am so familiar with your battles! C in TX S.I. and meds again Well then, I sure won't spend the time and money on the OT version of therapy. I'm wondering whether bribery and/or ERP might be effective. I guess I will try them both. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Judy, IMO I think the ERP therapy is probably the best route to go for tactile stuff. Brushing therapy is probably sort of an " individual " thing. We tried it for but, lazy me or busy me didn't follow through at home daily like I should have. I know of some parents that have got great results with their young kids though. Our OT said it could be 3 mo. before we noticed it working but other parents have noticed results sooner. There's also auditory...aww shoot, can't think of the word, had it on the tip of my tongue...maybe " integration. " Our OT mentioned this to us also. I've read up some on it and this too has good results with some people. But as I said above, if your son's willing, I'd do the ERP first. 's twin has some tactile problems but not enough to drive us crazy. Gets the " shivers " from some materials, cuts tags out (not as much now as before), picky about socks but will wear with seams (tho I've noticed he's tried to cut some seams where the edge is sort of sewn up in a sort of bump). Anyway, he has gotten better over the years (will be 13 in January) or maybe he's just better with dealing with it. There were some work/garden gloves he really wanted last summer that gave him the " shivers " but he got them and learned to wear them; I'd asked him why he picked those out if he couldn't stand the feel of them and he said he really wanted them. Let us know how everything goes! P.S. re the brushing. didn't mind it. wanted to be brushed sometimes. But older brother Randall had me try him and he could not stand the feel of it! He acted like it gave HIM the shivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi Robin: Thanks for the update on Carly. I am sorry to hear her SID is really interfering in her life and understand your concern about using medication on your child. I felt the same with our beloved Steve but now I am so grateful for how medication has literally saved his life. He too struggles with depression and meds have helped so much with this and also with helping him feel the determination to fight back against his other alphabet soup. Deciding to try medications is not easy but can be a turning point for many of our kids, even the very young. It can take the edge of their symptoms so other treatments will be more effective. Good luck to you and Carly, take care, aloha, kathy (h) kathyh@... > Hi Judy, > > I have tried brushing as well as a variety of proprioceptive and vestibular > work for Carly's SI and have seen absolutely no improvement. These were > prescribed by her OT. The current OT that I am working with says that > perhaps the ingredient of OCD mixed with Carly's SI makes the normally very > effective treatment less effective. Carly's talk doc says that SI is much > more common amongst children with autism. I am back to believing that no one > really knows a darned thing and that maybe twenty years from now there might > be some real answers. In the meanwhile our children are the guinea pigs in > the " practice of medicine " . It saddens me to hear that your son at sixteen > years old is still plagued by tactile defensiveness. I hope to hear that it > improves for him soon. Hang in there!! Robin Quote Link to comment Share on other sites More sharing options...
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