Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile scoliosis treatment , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Toolbar alerts you the instant new Mail arrives. > > http://tools.search./toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile scoliosis treatment , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Toolbar alerts you the instant new Mail arrives. > > http://tools.search./toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile scoliosis treatment , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Toolbar alerts you the instant new Mail arrives. > > http://tools.search./toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile scoliosis treatment , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Toolbar alerts you the instant new Mail arrives. > > http://tools.search./toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile_scoliosis , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail arrives. > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile_scoliosis , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail arrives. > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile_scoliosis , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail arrives. > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile_scoliosis , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail arrives. > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile_scoliosis , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail arrives. > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile_scoliosis , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail arrives. > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile_scoliosis , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail arrives. > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 ---Hi Deshea, How is Lucas doing? I have'nt talked to you for awhile. He is getting big.Do you go to Erie anymore since he is done with casting?I'll have to give you a call sometime here soon to catch up. take care, Bridgette, In infantile_scoliosis , " Deshea L. " wrote: > > natalie, > > thanks so much for the update. i had been thinking of you! kylie is > such an inspiration. i wish you guys the best in halo #5 and > surgery. i hope it is a bit more smooth sailing from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's > boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left VEPTR > > looked like it was working it's way off. We learned > > that they both were and the reason for that was that > > her neck was back to the same way it was before Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. Halo > > traction #5! She will hang in traction for 4 weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the kyphosis > > that keeps collapsing. They will keep her VEPTR in to > > control the rest of the spine and to allow growth. She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try to > > develope into the neck. > > > > We can honestly say, we have done everything to put > > off getting to this point. Kylie is 9 yrs. old, and I > > think her doctor has done a damn good job getting her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit sooner > > than in the past. > > > > Take care, > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail arrives. > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 hi bridgette, it's good to " see " you on the group! i hope all is well with you and your family. i'm sure that brooke has grown a lot since i last saw her. how was your last appt at erie? is brooke in a brace at night now? i can't remember to details of your last post . . . lucas is doing well. we aren't going to erie anymore although i do send updates to dr. sanders. we are going to montreal since lucas is now in the spinecor brace. we decided to go that route to build up his trunk muscles, but we knew that since he would be one of the youngest to try this brace, we would go to the inventors. lucas is around 19o/13o standing. his symmetry and back still look really good. we're crossing our fingers just like everyone else! we do need to catch up by phone soon. my best, deshea ---- Original message ---- >Date: Thu, 29 Mar 2007 00:03:14 -0000 > >Subject: Re: New Update on Kylie >infantile scoliosis treatment > > ---Hi Deshea, > How is Lucas doing? I have'nt talked to you for > awhile. > He is getting big.Do you go to Erie anymore since he > is done with > casting?I'll have to give you a call sometime here > soon to catch up. > > take care, > Bridgette, > > In infantile scoliosis treatment , " Deshea L. > " > wrote: > > > > natalie, > > > > thanks so much for the update. i had been thinking > of you! kylie > is > > such an inspiration. i wish you guys the best in > halo #5 and > > surgery. i hope it is a bit more smooth sailing > from then on out. > > > > my best, > > deshea > > > > mom to lucas -- 5 yrs old with infantile scoliosis > diagnosed at > 18 > > mos 68o/45o; spinal detethering due to a > tight/fatty filum at 22 > mos; > > tlso and charleston brace from 18 mos to 2 1/2 yrs > old at > children's > > boston, ma; serial plaster casting from 2 1/2 > until 4 1/2 at > shriners > > in erie, pa; now in a spinecor brace at 19o/13o > from montreal. > > and > > ruby --2 1/2 yrs old and a handful! > > north of boston, ma > > > > > > > > > > > > > Hi All, > > > > > > Kylie finished her Halo traction #4, went into a > Halo > > > brace, and came home on Feb. 23rd. I posted some > > > photo's in her photo album of the Halo brace and > some > > > neck x-rays before and after Halo, if > interested. > > > > > > About 1 1/2 weeks ago I noticed that her left > VEPTR > > > looked like it was working it's way off. We > learned > > > that they both were and the reason for that was > that > > > her neck was back to the same way it was before > Halo > > > #4. Her neck some how found a way, even in a > Halo > > > brace. She will check back into Shriner's today > to > > > have the brace removed and the weights back on. > Halo > > > traction #5! She will hang in traction for 4 > weeks, > > > then on April 24th, she has no other option but > to > > > undergo a partial fusion, C7 to T5, of the > kyphosis > > > that keeps collapsing. They will keep her VEPTR > in to > > > control the rest of the spine and to allow > growth. She > > > will wear the Halo brace again 'til the fusion > has > > > healed, then go into a brace with neck support > to > > > prevent or slow down any new curves that will > try to > > > develope into the neck. > > > > > > We can honestly say, we have done everything to > put > > > off getting to this point. Kylie is 9 yrs. old, > and I > > > think her doctor has done a damn good job > getting her > > > here! He has never given up and neither have we! > > > Kylie has done it all, she has done thing that > have > > > never been done before for kyphoscoliosis. She > is > > > still very possitive about everthing and is > very, very > > > excited to have Halo #5. > > > > > > I will let you all know how she is doing, a bit > sooner > > > than in the past. > > > > > > Take care, > > > > > > > > > > __________________________________________________________ > > > Never miss an email again! > > > Toolbar alerts you the instant new Mail > arrives. > > > > http://tools.search./toolbar/features/mail/ > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Kylie is such a trooper and beautiful person! We wish her and you all the best. You have done such a great job!!!!!! xoxo Abigail and Nadia --------------------------------- 8:00? 8:25? 8:40? Find a flick in no time with the Search movie showtime shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Thanks, Abigail. --- Abigail Schein wrote: > Kylie is such a trooper and beautiful person! We > wish her and you all the best. You have done such a > great job!!!!!! xoxo Abigail and Nadia > > --------------------------------- > 8:00? 8:25? 8:40? Find a flick in no time > with theYahoo! Search movie showtime shortcut. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Expecting? Get great news right away with email Auto-Check. Try the Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/newmail_tools.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Thanks, Abigail. --- Abigail Schein wrote: > Kylie is such a trooper and beautiful person! We > wish her and you all the best. You have done such a > great job!!!!!! xoxo Abigail and Nadia > > --------------------------------- > 8:00? 8:25? 8:40? Find a flick in no time > with theYahoo! Search movie showtime shortcut. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Expecting? Get great news right away with email Auto-Check. Try the Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/newmail_tools.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Thank you, Bridgette. --- murphybridgette wrote: > - > Hi , > Sorry to hear that Kylie has to go back for Halo > #5.She is such a > brave little girl.We will be thinking about her. > > Shes in our prayers, > Bridgette, > > > -- In infantile_scoliosis , > Lether > wrote: > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a > Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and > some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left > VEPTR > > looked like it was working it's way off. We > learned > > that they both were and the reason for that was > that > > her neck was back to the same way it was before > Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today > to > > have the brace removed and the weights back on. > Halo > > traction #5! She will hang in traction for 4 > weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the > kyphosis > > that keeps collapsing. They will keep her VEPTR in > to > > control the rest of the spine and to allow growth. > She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try > to > > develope into the neck. > > > > We can honestly say, we have done everything to > put > > off getting to this point. Kylie is 9 yrs. old, > and I > > think her doctor has done a damn good job getting > her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that > have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, > very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit > sooner > > than in the past. > > > > Take care, > > > > > > > > > > > > > > > > > _____________________________________________________________________ > _______________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail > arrives. > > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > ________________________________________________________________________________\ ____ 8:00? 8:25? 8:40? Find a flick in no time with the Yahoo! Search movie showtime shortcut. http://tools.search.yahoo.com/shortcuts/#news Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Thank you, Bridgette. --- murphybridgette wrote: > - > Hi , > Sorry to hear that Kylie has to go back for Halo > #5.She is such a > brave little girl.We will be thinking about her. > > Shes in our prayers, > Bridgette, > > > -- In infantile_scoliosis , > Lether > wrote: > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a > Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and > some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left > VEPTR > > looked like it was working it's way off. We > learned > > that they both were and the reason for that was > that > > her neck was back to the same way it was before > Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today > to > > have the brace removed and the weights back on. > Halo > > traction #5! She will hang in traction for 4 > weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the > kyphosis > > that keeps collapsing. They will keep her VEPTR in > to > > control the rest of the spine and to allow growth. > She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try > to > > develope into the neck. > > > > We can honestly say, we have done everything to > put > > off getting to this point. Kylie is 9 yrs. old, > and I > > think her doctor has done a damn good job getting > her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that > have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, > very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit > sooner > > than in the past. > > > > Take care, > > > > > > > > > > > > > > > > > _____________________________________________________________________ > _______________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail > arrives. > > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > ________________________________________________________________________________\ ____ 8:00? 8:25? 8:40? Find a flick in no time with the Yahoo! Search movie showtime shortcut. http://tools.search.yahoo.com/shortcuts/#news Quote Link to comment Share on other sites More sharing options...
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