Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi All, Kylie finished her Halo traction #4, went into a Halo brace, and came home on Feb. 23rd. I posted some photo's in her photo album of the Halo brace and some neck x-rays before and after Halo, if interested. About 1 1/2 weeks ago I noticed that her left VEPTR looked like it was working it's way off. We learned that they both were and the reason for that was that her neck was back to the same way it was before Halo #4. Her neck some how found a way, even in a Halo brace. She will check back into Shriner's today to have the brace removed and the weights back on. Halo traction #5! She will hang in traction for 4 weeks, then on April 24th, she has no other option but to undergo a partial fusion, C7 to T5, of the kyphosis that keeps collapsing. They will keep her VEPTR in to control the rest of the spine and to allow growth. She will wear the Halo brace again 'til the fusion has healed, then go into a brace with neck support to prevent or slow down any new curves that will try to develope into the neck. We can honestly say, we have done everything to put off getting to this point. Kylie is 9 yrs. old, and I think her doctor has done a damn good job getting her here! He has never given up and neither have we! Kylie has done it all, she has done thing that have never been done before for kyphoscoliosis. She is still very possitive about everthing and is very, very excited to have Halo #5. I will let you all know how she is doing, a bit sooner than in the past. Take care, ________________________________________________________________________________\ ____ Never miss an email again! Toolbar alerts you the instant new Mail arrives. http://tools.search./toolbar/features/mail/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 , So sorry to hear that even the halo brace didn't working. Like I said before that spine has a mind of it’s own, hopefully the fusion will hold it in place. I think after all this is all done and I mean all done when her spine is finally stabilize you guys deserve a major trip or something just to have fun and not have any worries. Just an idea. Lol Betty -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.446 / Virus Database: 268.18.18/734 - Release Date: 3/26/2007 2:31 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi , Thanks for the update. Kylie certainly makes the docs earn their keep. She keeps them on their toes for sure. Sending our best to you with halo #5 and surgery next month. We'll stop by to visit one of these days. Silly kid needs to do something to make life interesting. Good luck and thanks for the call the other day. Great talking with you! Carmell Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, GERD, and Braydon 11, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient #137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies, missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96, 1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, pes cavus, SUA, GERD, Gastroparesis, etc. http://carmellb-ivil.tripod.com/myfamily/ Congenital scoliosis support group http://health./group/CongenitalScoliosisSupport/ ________________________________________________________________________________\ ____ Get your own web address. Have a HUGE year through Small Business. http://smallbusiness./domains/?p=BESTDEAL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 natalie, thanks so much for the update. i had been thinking of you! kylie is such an inspiration. i wish you guys the best in halo #5 and surgery. i hope it is a bit more smooth sailing from then on out. my best, deshea mom to lucas -- 5 yrs old with infantile scoliosis diagnosed at 18 mos 68o/45o; spinal detethering due to a tight/fatty filum at 22 mos; tlso and charleston brace from 18 mos to 2 1/2 yrs old at children's boston, ma; serial plaster casting from 2 1/2 until 4 1/2 at shriners in erie, pa; now in a spinecor brace at 19o/13o from montreal. and ruby --2 1/2 yrs old and a handful! north of boston, ma > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > __________________________________________________________ > Never miss an email again! > Toolbar alerts you the instant new Mail arrives. > http://tools.search./toolbar/features/mail/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 , Kylie is one of kind, and so are you. No one else on the planet could deal with 5 halos...You have stood by her side throughout it all. Many wouldnt make the decisions or sacrifices you have made to prolong the inevitable, fusion. You, your family, and Kylies doc have done an unbelievable job in getting her to the size she is! Not, to mention the outlook she has on life! Its amazing, and we could all learn a lesson from her. I know that her doc has done his best, and I know that you trust him, wholeheartedly. He knows that this is the next step, and that its in her best interest. You are an amazing mom, . I am so glad that we were able to spend time together. You guys make our visits so much easier! Love. ~HRH RE: New Update on Kylie Hi All, Kylie finished her Halo traction #4, went into a Halo brace, and came home on Feb. 23rd. I posted some photo's in her photo album of the Halo brace and some neck x-rays before and after Halo, if interested. About 1 1/2 weeks ago I noticed that her left VEPTR looked like it was working it's way off. We learned that they both were and the reason for that was that her neck was back to the same way it was before Halo #4. Her neck some how found a way, even in a Halo brace. She will check back into Shriner's today to have the brace removed and the weights back on. Halo traction #5! She will hang in traction for 4 weeks, then on April 24th, she has no other option but to undergo a partial fusion, C7 to T5, of the kyphosis that keeps collapsing. They will keep her VEPTR in to control the rest of the spine and to allow growth. She will wear the Halo brace again 'til the fusion has healed, then go into a brace with neck support to prevent or slow down any new curves that will try to develope into the neck. We can honestly say, we have done everything to put off getting to this point. Kylie is 9 yrs. old, and I think her doctor has done a damn good job getting her here! He has never given up and neither have we! Kylie has done it all, she has done thing that have never been done before for kyphoscoliosis. She is still very possitive about everthing and is very, very excited to have Halo #5. I will let you all know how she is doing, a bit sooner than in the past. Take care, __________________________________________________________ Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. http://tools.search.yahoo.com/toolbar/features/mail/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 , Kylie is one of kind, and so are you. No one else on the planet could deal with 5 halos...You have stood by her side throughout it all. Many wouldnt make the decisions or sacrifices you have made to prolong the inevitable, fusion. You, your family, and Kylies doc have done an unbelievable job in getting her to the size she is! Not, to mention the outlook she has on life! Its amazing, and we could all learn a lesson from her. I know that her doc has done his best, and I know that you trust him, wholeheartedly. He knows that this is the next step, and that its in her best interest. You are an amazing mom, . I am so glad that we were able to spend time together. You guys make our visits so much easier! Love. ~HRH RE: New Update on Kylie Hi All, Kylie finished her Halo traction #4, went into a Halo brace, and came home on Feb. 23rd. I posted some photo's in her photo album of the Halo brace and some neck x-rays before and after Halo, if interested. About 1 1/2 weeks ago I noticed that her left VEPTR looked like it was working it's way off. We learned that they both were and the reason for that was that her neck was back to the same way it was before Halo #4. Her neck some how found a way, even in a Halo brace. She will check back into Shriner's today to have the brace removed and the weights back on. Halo traction #5! She will hang in traction for 4 weeks, then on April 24th, she has no other option but to undergo a partial fusion, C7 to T5, of the kyphosis that keeps collapsing. They will keep her VEPTR in to control the rest of the spine and to allow growth. She will wear the Halo brace again 'til the fusion has healed, then go into a brace with neck support to prevent or slow down any new curves that will try to develope into the neck. We can honestly say, we have done everything to put off getting to this point. Kylie is 9 yrs. old, and I think her doctor has done a damn good job getting her here! He has never given up and neither have we! Kylie has done it all, she has done thing that have never been done before for kyphoscoliosis. She is still very possitive about everthing and is very, very excited to have Halo #5. I will let you all know how she is doing, a bit sooner than in the past. Take care, __________________________________________________________ Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. http://tools.search.yahoo.com/toolbar/features/mail/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 , Your sweet family needs a vacation once Kylie is all settled!!! You guys have been through so much. I just couldn't applaude you enough for your determination to do whatever it takes for your girl. You are a wonderful Mom. I will be praying the halo application and these next four weeks go well. April 24th is marked on my calendar. Kylie is obviously a remarkable girl. I hope we can all meet someday. I also hope all that has happened with her can better prepare her doctors for any other kids they might meet with similar challenges. Please keep us updated on everything. Shellie Grant Lether wrote: Hi All, Kylie finished her Halo traction #4, went into a Halo brace, and came home on Feb. 23rd. I posted some photo's in her photo album of the Halo brace and some neck x-rays before and after Halo, if interested. About 1 1/2 weeks ago I noticed that her left VEPTR looked like it was working it's way off. We learned that they both were and the reason for that was that her neck was back to the same way it was before Halo #4. Her neck some how found a way, even in a Halo brace. She will check back into Shriner's today to have the brace removed and the weights back on. Halo traction #5! She will hang in traction for 4 weeks, then on April 24th, she has no other option but to undergo a partial fusion, C7 to T5, of the kyphosis that keeps collapsing. They will keep her VEPTR in to control the rest of the spine and to allow growth. She will wear the Halo brace again 'til the fusion has healed, then go into a brace with neck support to prevent or slow down any new curves that will try to develope into the neck. We can honestly say, we have done everything to put off getting to this point. Kylie is 9 yrs. old, and I think her doctor has done a damn good job getting her here! He has never given up and neither have we! Kylie has done it all, she has done thing that have never been done before for kyphoscoliosis. She is still very possitive about everthing and is very, very excited to have Halo #5. I will let you all know how she is doing, a bit sooner than in the past. Take care, __________________________________________________________ Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. http://tools.search.yahoo.com/toolbar/features/mail/ --------------------------------- No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 , Your sweet family needs a vacation once Kylie is all settled!!! You guys have been through so much. I just couldn't applaude you enough for your determination to do whatever it takes for your girl. You are a wonderful Mom. I will be praying the halo application and these next four weeks go well. April 24th is marked on my calendar. Kylie is obviously a remarkable girl. I hope we can all meet someday. I also hope all that has happened with her can better prepare her doctors for any other kids they might meet with similar challenges. Please keep us updated on everything. Shellie Grant Lether wrote: Hi All, Kylie finished her Halo traction #4, went into a Halo brace, and came home on Feb. 23rd. I posted some photo's in her photo album of the Halo brace and some neck x-rays before and after Halo, if interested. About 1 1/2 weeks ago I noticed that her left VEPTR looked like it was working it's way off. We learned that they both were and the reason for that was that her neck was back to the same way it was before Halo #4. Her neck some how found a way, even in a Halo brace. She will check back into Shriner's today to have the brace removed and the weights back on. Halo traction #5! She will hang in traction for 4 weeks, then on April 24th, she has no other option but to undergo a partial fusion, C7 to T5, of the kyphosis that keeps collapsing. They will keep her VEPTR in to control the rest of the spine and to allow growth. She will wear the Halo brace again 'til the fusion has healed, then go into a brace with neck support to prevent or slow down any new curves that will try to develope into the neck. We can honestly say, we have done everything to put off getting to this point. Kylie is 9 yrs. old, and I think her doctor has done a damn good job getting her here! He has never given up and neither have we! Kylie has done it all, she has done thing that have never been done before for kyphoscoliosis. She is still very possitive about everthing and is very, very excited to have Halo #5. I will let you all know how she is doing, a bit sooner than in the past. Take care, __________________________________________________________ Never miss an email again! Yahoo! Toolbar alerts you the instant new Mail arrives. http://tools.search.yahoo.com/toolbar/features/mail/ --------------------------------- No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Shellie, Thank you so much! We really hope this all will work out for her. She needs a break! We are so happy Moriah is doing so wonderful. We would love to meet you to. Maybe some day. I will let you know how she is doing. Take Care, --- Shellie Grant wrote: > , > Your sweet family needs a vacation once Kylie is > all settled!!! You guys have been through so much. > I just couldn't applaude you enough for your > determination to do whatever it takes for your girl. > You are a wonderful Mom. I will be praying the > halo application and these next four weeks go well. > April 24th is marked on my calendar. Kylie is > obviously a remarkable girl. I hope we can all meet > someday. I also hope all that has happened with her > can better prepare her doctors for any other kids > they might meet with similar challenges. Please > keep us updated on everything. > > Shellie Grant > > Lether wrote: > Hi All, > > Kylie finished her Halo traction #4, went into a > Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and > some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in > to > control the rest of the spine and to allow growth. > She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and > I > think her doctor has done a damn good job getting > her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, > very > excited to have Halo #5. > > I will let you all know how she is doing, a bit > sooner > than in the past. > > Take care, > > > __________________________________________________________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail > arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > --------------------------------- > No need to miss a message. Get email on-the-go > with Yahoo! Mail for Mobile. Get started. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Finding fabulous fares is fun. Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. http://farechase.yahoo.com/promo-generic-14795097 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Shellie, Thank you so much! We really hope this all will work out for her. She needs a break! We are so happy Moriah is doing so wonderful. We would love to meet you to. Maybe some day. I will let you know how she is doing. Take Care, --- Shellie Grant wrote: > , > Your sweet family needs a vacation once Kylie is > all settled!!! You guys have been through so much. > I just couldn't applaude you enough for your > determination to do whatever it takes for your girl. > You are a wonderful Mom. I will be praying the > halo application and these next four weeks go well. > April 24th is marked on my calendar. Kylie is > obviously a remarkable girl. I hope we can all meet > someday. I also hope all that has happened with her > can better prepare her doctors for any other kids > they might meet with similar challenges. Please > keep us updated on everything. > > Shellie Grant > > Lether wrote: > Hi All, > > Kylie finished her Halo traction #4, went into a > Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and > some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in > to > control the rest of the spine and to allow growth. > She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and > I > think her doctor has done a damn good job getting > her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, > very > excited to have Halo #5. > > I will let you all know how she is doing, a bit > sooner > than in the past. > > Take care, > > > __________________________________________________________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail > arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > --------------------------------- > No need to miss a message. Get email on-the-go > with Yahoo! Mail for Mobile. Get started. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Finding fabulous fares is fun. Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. http://farechase.yahoo.com/promo-generic-14795097 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Thank you Deshea! Take Care, --- " Deshea L. " wrote: > natalie, > > thanks so much for the update. i had been thinking > of you! kylie is > such an inspiration. i wish you guys the best in > halo #5 and > surgery. i hope it is a bit more smooth sailing > from then on out. > > my best, > deshea > > mom to lucas -- 5 yrs old with infantile scoliosis > diagnosed at 18 > mos 68o/45o; spinal detethering due to a tight/fatty > filum at 22 mos; > tlso and charleston brace from 18 mos to 2 1/2 yrs > old at children's > boston, ma; serial plaster casting from 2 1/2 until > 4 1/2 at shriners > in erie, pa; now in a spinecor brace at 19o/13o from > montreal. > and > ruby --2 1/2 yrs old and a handful! > north of boston, ma > > > > > > > Hi All, > > > > Kylie finished her Halo traction #4, went into a > Halo > > brace, and came home on Feb. 23rd. I posted some > > photo's in her photo album of the Halo brace and > some > > neck x-rays before and after Halo, if interested. > > > > About 1 1/2 weeks ago I noticed that her left > VEPTR > > looked like it was working it's way off. We > learned > > that they both were and the reason for that was > that > > her neck was back to the same way it was before > Halo > > #4. Her neck some how found a way, even in a Halo > > brace. She will check back into Shriner's today to > > have the brace removed and the weights back on. > Halo > > traction #5! She will hang in traction for 4 > weeks, > > then on April 24th, she has no other option but to > > undergo a partial fusion, C7 to T5, of the > kyphosis > > that keeps collapsing. They will keep her VEPTR in > to > > control the rest of the spine and to allow growth. > She > > will wear the Halo brace again 'til the fusion has > > healed, then go into a brace with neck support to > > prevent or slow down any new curves that will try > to > > develope into the neck. > > > > We can honestly say, we have done everything to > put > > off getting to this point. Kylie is 9 yrs. old, > and I > > think her doctor has done a damn good job getting > her > > here! He has never given up and neither have we! > > Kylie has done it all, she has done thing that > have > > never been done before for kyphoscoliosis. She is > > still very possitive about everthing and is very, > very > > excited to have Halo #5. > > > > I will let you all know how she is doing, a bit > sooner > > than in the past. > > > > Take care, > > > > > > > __________________________________________________________ > > Never miss an email again! > > Yahoo! Toolbar alerts you the instant new Mail > arrives. > > > http://tools.search.yahoo.com/toolbar/features/mail/ > > > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Expecting? Get great news right away with email Auto-Check. Try the Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/newmail_tools.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Thanks Betty, I agree with you about the trip! Take Care, --- Betty Hicks wrote: > , > > So sorry to hear that even the halo brace didn't > working. Like I said > before that spine has a mind of it’s own, hopefully > the fusion will hold it > in place. > > I think after all this is all done and I mean all > done when her spine is > finally stabilize you guys deserve a major trip or > something just to have > fun and not have any worries. > > Just an idea. Lol > > Betty > > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.5.446 / Virus Database: 268.18.18/734 - > Release Date: 3/26/2007 > 2:31 PM > > > > [Non-text portions of this message have been > removed] > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile scoliosis treatment , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Toolbar alerts you the instant new Mail arrives. > http://tools.search./toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile scoliosis treatment , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Toolbar alerts you the instant new Mail arrives. > http://tools.search./toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile scoliosis treatment , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Toolbar alerts you the instant new Mail arrives. > http://tools.search./toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 - Hi , Sorry to hear that Kylie has to go back for Halo #5.She is such a brave little girl.We will be thinking about her. Shes in our prayers, Bridgette, -- In infantile_scoliosis , Lether wrote: > > Hi All, > > Kylie finished her Halo traction #4, went into a Halo > brace, and came home on Feb. 23rd. I posted some > photo's in her photo album of the Halo brace and some > neck x-rays before and after Halo, if interested. > > About 1 1/2 weeks ago I noticed that her left VEPTR > looked like it was working it's way off. We learned > that they both were and the reason for that was that > her neck was back to the same way it was before Halo > #4. Her neck some how found a way, even in a Halo > brace. She will check back into Shriner's today to > have the brace removed and the weights back on. Halo > traction #5! She will hang in traction for 4 weeks, > then on April 24th, she has no other option but to > undergo a partial fusion, C7 to T5, of the kyphosis > that keeps collapsing. They will keep her VEPTR in to > control the rest of the spine and to allow growth. She > will wear the Halo brace again 'til the fusion has > healed, then go into a brace with neck support to > prevent or slow down any new curves that will try to > develope into the neck. > > We can honestly say, we have done everything to put > off getting to this point. Kylie is 9 yrs. old, and I > think her doctor has done a damn good job getting her > here! He has never given up and neither have we! > Kylie has done it all, she has done thing that have > never been done before for kyphoscoliosis. She is > still very possitive about everthing and is very, very > excited to have Halo #5. > > I will let you all know how she is doing, a bit sooner > than in the past. > > Take care, > > > > > > > > _____________________________________________________________________ _______________ > Never miss an email again! > Yahoo! Toolbar alerts you the instant new Mail arrives. > http://tools.search.yahoo.com/toolbar/features/mail/ > Quote Link to comment Share on other sites More sharing options...
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