Re: 1 year into biomed ..long and not sure !

[Guest guest]

I'm only at this for 12 monts as well, so there are others who could

probably offer better advice.

For me, getting yeast and bacteria in order was key. I didn't want

to start chelating until we got this under control. Prescription

anti-fungals worked well, but only while he was on them. We spent

all year trying to get him in shape for chelation. Never happened.

In the end, I took Mandi's advice and chelated anyway. I also

swiched over to Heuston enzymes HNzyme product at the same time. We

also went up a gear on our herbal anti-fungals (rotate oregano,

Yeast Aid, Capryllic acid, Lauricidin, OLE, GSE, Biocidin and

others). Oxypowder dosing increased a bit too to ensure he was

clearing out his system.

Could be just co-incidence or any of the above, but since then we've

started seeing some changes. His mood improved. His yeast went into

remission. And we're seeing receptive language improve in his ABA

programme. He's sleeping through the night (most nights) and when he

does wake up during the night, he is in good form and usually

settles back to sleep in ~ 10 minutes.

All small improvements, but very welcome.

Especialy the extra sleep.

I wouldn't let a cold stop me from chelating him now, where it would

have stopped me six months ago. My kid will always be sick and have

problems with his health until I get the toxic metals out of him.

Liam

PS, Was it you that warned me about an ABA organisation called ISADD

that we were working with. I've dumped them and hired new people.

Best move ever!

>

> Dear all,

>

> We have been doing biomed for a year now with a DAN Dr in US, but

> mostly through phone consult.

>

> The problem is I am not sure if we are in the right track. New

> negative things turned up and good gains didn't stay..

>

> We are doing MB12 shots, DMG/folinic, gfcfsf + food allergen diet,

TD

> glutathione/NAC, digestive enzyme, probiotics, CLO,

> multivits/minerals, Zinc, Se..Did LDN, nystatin, diflucan.

>

> First visit, tested for RBC and minerals were good except low Se.

>

> Prepared for chelation but then everything seemed falling apart !

>

> Chelation was postponed as my DD Kaysa was having a constant runny

> nose (thick yellow greenish mucose). This has been going for 6

> months..until now.

> Tried Zytromax, Cefuroxime..only good for short time! !

>

> Recently tried Zyrtec..was good for few days then back again!!

>

> She did have gains.. Increase awareness in her surroundings, able

to

> put 2 words together (part of labelling still, limited in use) and

> had big progress in toilet training.

>

> However..attention span is WORST, and eye contact is not good.

> She had great eye contact when we first tried enzyme (Kirkman) but

it

> didn't stay.

>

> I felt the past one year was like fire fighting and no plan. Runny

> nose and sleep issues are still UNRESOLVED. Not to mention the up

and

> down irritability,OCD and anxiety..

>

> QUESTION..Is this expected?

>

> Sorry for such a long note and thanks for your care to read this.

>

> I would appreciate any comments, ideas and views..so that I can do

> better!

>

> Tetty

> Mom to Kaysa 3 y 3 mths ..

>

[Guest guest]

Many, many kids do not tolerate folinic, some even dmg. Folinic (in a

multivitamin formula) made my son lot more autistic and lost what little

eye contact he had at the time. Also did not react well to nystatin or

NAC.

Any of those things you listed could be a problem, but I would first try

dropping the ones above.

I seriously believe that were we to listen blindly and to just keep

giving everything that was recommended, ds would be worse than when we

started biomed.

Natasa

>

> Dear all,

>

> We have been doing biomed for a year now with a DAN Dr in US, but

> mostly through phone consult.

>

> The problem is I am not sure if we are in the right track. New

> negative things turned up and good gains didn't stay..

>

> We are doing MB12 shots, DMG/folinic, gfcfsf + food allergen diet, TD

> glutathione/NAC, digestive enzyme, probiotics, CLO,

> multivits/minerals, Zinc, Se..Did LDN, nystatin, diflucan.

>

> First visit, tested for RBC and minerals were good except low Se.

>

> Prepared for chelation but then everything seemed falling apart !

>

> Chelation was postponed as my DD Kaysa was having a constant runny

> nose (thick yellow greenish mucose). This has been going for 6

> months..until now.

> Tried Zytromax, Cefuroxime..only good for short time! !

>

> Recently tried Zyrtec..was good for few days then back again!!

>

> She did have gains.. Increase awareness in her surroundings, able to

> put 2 words together (part of labelling still, limited in use) and

> had big progress in toilet training.

>

> However..attention span is WORST, and eye contact is not good.

> She had great eye contact when we first tried enzyme (Kirkman) but it

> didn't stay.

>

> I felt the past one year was like fire fighting and no plan. Runny

> nose and sleep issues are still UNRESOLVED. Not to mention the up and

> down irritability,OCD and anxiety..

>

> QUESTION..Is this expected?

>

> Sorry for such a long note and thanks for your care to read this.

>

> I would appreciate any comments, ideas and views..so that I can do

> better!

>

> Tetty

> Mom to Kaysa 3 y 3 mths ..

>

[Guest guest]

hi

i totally agree with the folinic if youre not already doing it. my dd

just helped me to separate TMG and folibic acid has made potential

difference in both of the boys.

are you also corn/maize free. that is anther opoid.

> She had great eye contact when we first tried enzyme (Kirkman) but it

> didn't stay.

try the housten enzymes instead if the kirkmans are showing no difference.

also have you tryed TMG instead of DMG?

yoouv just started NCD so that good

regards nasreen

> >

> > Dear all,

> >

> > We have been doing biomed for a year now with a DAN Dr in US, but

> > mostly through phone consult.

> >

> > The problem is I am not sure if we are in the right track. New

> > negative things turned up and good gains didn't stay..

> >

> > We are doing MB12 shots, DMG/folinic, gfcfsf + food allergen diet, TD

> > glutathione/NAC, digestive enzyme, probiotics, CLO,

> > multivits/minerals, Zinc, Se..Did LDN, nystatin, diflucan.

> >

> > First visit, tested for RBC and minerals were good except low Se.

> >

> > Prepared for chelation but then everything seemed falling apart !

> >

> > Chelation was postponed as my DD Kaysa was having a constant runny

> > nose (thick yellow greenish mucose). This has been going for 6

> > months..until now.

> > Tried Zytromax, Cefuroxime..only good for short time! !

> >

> > Recently tried Zyrtec..was good for few days then back again!!

> >

> > She did have gains.. Increase awareness in her surroundings, able to

> > put 2 words together (part of labelling still, limited in use) and

> > had big progress in toilet training.

> >

> > However..attention span is WORST, and eye contact is not good.

> > She had great eye contact when we first tried enzyme (Kirkman) but it

> > didn't stay.

> >

> > I felt the past one year was like fire fighting and no plan. Runny

> > nose and sleep issues are still UNRESOLVED. Not to mention the up and

> > down irritability,OCD and anxiety..

> >

> > QUESTION..Is this expected?

> >

> > Sorry for such a long note and thanks for your care to read this.

> >

> > I would appreciate any comments, ideas and views..so that I can do

> > better!

> >

> > Tetty

> > Mom to Kaysa 3 y 3 mths ..

> >

>

[Guest guest]

Hi,

Thanks for your reply and advices.

I believe that doing biomed is really good for us but I found working

with a DAN Dr is not as easy as I thought.

I now have a new DAN Dr who are more open minded..the previous one

didn't want us to use Houston enzyme!

Tetty

P.S

Liam, good that you dumped ISAAD!

They should learn to respect the client's choices and dealing with

autism is not only through their way!!

>

> Dear all,

>

> We have been doing biomed for a year now with a DAN Dr in US, but

> mostly through phone consult.

>

> The problem is I am not sure if we are in the right track. New

> negative things turned up and good gains didn't stay..

>

> We are doing MB12 shots, DMG/folinic, gfcfsf + food allergen diet,

TD

> glutathione/NAC, digestive enzyme, probiotics, CLO,

> multivits/minerals, Zinc, Se..Did LDN, nystatin, diflucan.

>

> First visit, tested for RBC and minerals were good except low Se.

>

> Prepared for chelation but then everything seemed falling apart !

>

> Chelation was postponed as my DD Kaysa was having a constant runny

> nose (thick yellow greenish mucose). This has been going for 6

> months..until now.

> Tried Zytromax, Cefuroxime..only good for short time! !

>

> Recently tried Zyrtec..was good for few days then back again!!

>

> She did have gains.. Increase awareness in her surroundings, able

to

> put 2 words together (part of labelling still, limited in use) and

> had big progress in toilet training.

>

> However..attention span is WORST, and eye contact is not good.

> She had great eye contact when we first tried enzyme (Kirkman) but

it

> didn't stay.

>

> I felt the past one year was like fire fighting and no plan. Runny

> nose and sleep issues are still UNRESOLVED. Not to mention the up

and

> down irritability,OCD and anxiety..

>

> QUESTION..Is this expected?

>

> Sorry for such a long note and thanks for your care to read this.

>

> I would appreciate any comments, ideas and views..so that I can do

> better!

>

> Tetty

> Mom to Kaysa 3 y 3 mths ..

>

[Guest guest]

Tetty,

Sorry this is so late. My original response seems to be lost.

This is from the supplement file: " Adrenal Cortex Extract is a

supplement that can help support stressed adrenals, a problem quite

common in autistic children. Adrenal stress can be debilitating and

will likely only worsen over time if not addressed. Some signs of

poor adrenal function are " anxiety with OCD, poor task switching,

sensory integration problems " (per Andy Cutler), and avoidance of

other activities by engaging in things such as repetitive movie

watching. One trusted brand is Nutricology Organic Adrenal Cortex

Extract. "

I thought it might apply to your daughter.

Also, you may want to consider supporting the immune system. As I've

said before, I am a big fan of Epicor. You can read about all it

does here:

http://www.vrp.com/art/1887.asp?

c=1172675871875 & k=/epicor/index.asp & m=/includes/vrp.css & p=no & s=0 It

seems to me that your daughter may have a long term sinus infection.

If so, supporting the immune system might help with that. You may

also have to deal with yeast and bacteria more aggressively.

Something that deals with a lot at the same time like Oil of Oregano

may be worth trying. My son's long term sinus infection went away

with a viral protocol and OoO has antiviral properties as well.

A few of your supps are ones that many kids have trouble with.

Glutathione and NAC come to mind besides the others mentioned.

Sometimes is is a good idea to take a supp break and start from the

beginning to see what happens to your child.

Anita

>

> Dear all,

>

> We have been doing biomed for a year now with a DAN Dr in US, but

> mostly through phone consult.

>

> The problem is I am not sure if we are in the right track. New

> negative things turned up and good gains didn't stay..

>

> We are doing MB12 shots, DMG/folinic, gfcfsf + food allergen diet,

TD

> glutathione/NAC, digestive enzyme, probiotics, CLO,

> multivits/minerals, Zinc, Se..Did LDN, nystatin, diflucan.

>

> First visit, tested for RBC and minerals were good except low Se.

>

> Prepared for chelation but then everything seemed falling apart !

>

> Chelation was postponed as my DD Kaysa was having a constant runny

> nose (thick yellow greenish mucose). This has been going for 6

> months..until now.

> Tried Zytromax, Cefuroxime..only good for short time! !

>

> Recently tried Zyrtec..was good for few days then back again!!

>

> She did have gains.. Increase awareness in her surroundings, able

to

> put 2 words together (part of labelling still, limited in use) and

> had big progress in toilet training.

>

> However..attention span is WORST, and eye contact is not good.

> She had great eye contact when we first tried enzyme (Kirkman) but

it

> didn't stay.

>

> I felt the past one year was like fire fighting and no plan. Runny

> nose and sleep issues are still UNRESOLVED. Not to mention the up

and

> down irritability,OCD and anxiety..

>

> QUESTION..Is this expected?

>

> Sorry for such a long note and thanks for your care to read this.

>

> I would appreciate any comments, ideas and views..so that I can do

> better!

>

> Tetty

> Mom to Kaysa 3 y 3 mths ..

>

[Guest guest]

I'm sorry to jump in in here! Can someone tell me how OoO is given, how

much and when is the best time?

TIA

emily

> >

> > Dear all,

> >

> > We have been doing biomed for a year now with a DAN Dr in US, but

> > mostly through phone consult.

> >

> > The problem is I am not sure if we are in the right track. New

> > negative things turned up and good gains didn't stay..

> >

> > We are doing MB12 shots, DMG/folinic, gfcfsf + food allergen diet,

> TD

> > glutathione/NAC, digestive enzyme, probiotics, CLO,

> > multivits/minerals, Zinc, Se..Did LDN, nystatin, diflucan.

> >

> > First visit, tested for RBC and minerals were good except low Se.

> >

> > Prepared for chelation but then everything seemed falling apart !

> >

> > Chelation was postponed as my DD Kaysa was having a constant runny

> > nose (thick yellow greenish mucose). This has been going for 6

> > months..until now.

> > Tried Zytromax, Cefuroxime..only good for short time! !

> >

> > Recently tried Zyrtec..was good for few days then back again!!

> >

> > She did have gains.. Increase awareness in her surroundings, able

> to

> > put 2 words together (part of labelling still, limited in use) and

> > had big progress in toilet training.

> >

> > However..attention span is WORST, and eye contact is not good.

> > She had great eye contact when we first tried enzyme (Kirkman) but

> it

> > didn't stay.

> >

> > I felt the past one year was like fire fighting and no plan. Runny

> > nose and sleep issues are still UNRESOLVED. Not to mention the up

> and

> > down irritability,OCD and anxiety..

> >

> > QUESTION..Is this expected?

> >

> > Sorry for such a long note and thanks for your care to read this.

> >

> > I would appreciate any comments, ideas and views..so that I can do

> > better!

> >

> > Tetty

> > Mom to Kaysa 3 y 3 mths ..

> >

>

[Guest guest]

I'm not an expert in this , but I did try to give the OoO on a

relatively empty stomach. I also tried to dose 3 times a day. I

would start low (one drop) and build up from there. My son had signs

of die off at 7 X 3 drops a day. OoO tastes awful and I would put the

drops into the smallest capsule I had (cut even smaller) and then he

would take it with a bit of yogurt (no chewing!).

Anita

-- In Autism Treatment , " Scorer "

wrote:

>

>

> I'm sorry to jump in in here! Can someone tell me how OoO is

given, how

> much and when is the best time?

>

> TIA

>

> emily

>

>

[Guest guest]

Thanks Anita.

> >> > > > I'm sorry to jump in in here! Can someone tell me how OoO is > given, how> > much and when is the best time?> > > > TIA> > > > emily> > > >>

[Guest guest]

Hi Anita,

Better late than never:-) Thank you so much, I will dig into this!

Cheers

Tetty

> >

> > Dear all,

> >

> > We have been doing biomed for a year now with a DAN Dr in US, but

> > mostly through phone consult.

> >

> > The problem is I am not sure if we are in the right track. New

> > negative things turned up and good gains didn't stay..

> >

> > We are doing MB12 shots, DMG/folinic, gfcfsf + food allergen

diet,

> TD

> > glutathione/NAC, digestive enzyme, probiotics, CLO,

> > multivits/minerals, Zinc, Se..Did LDN, nystatin, diflucan.

> >

> > First visit, tested for RBC and minerals were good except low Se.

> >

> > Prepared for chelation but then everything seemed falling apart !

> >

> > Chelation was postponed as my DD Kaysa was having a constant

runny

> > nose (thick yellow greenish mucose). This has been going for 6

> > months..until now.

> > Tried Zytromax, Cefuroxime..only good for short time! !

> >

> > Recently tried Zyrtec..was good for few days then back again!!

> >

> > She did have gains.. Increase awareness in her surroundings, able

> to

> > put 2 words together (part of labelling still, limited in use)

and

> > had big progress in toilet training.

> >

> > However..attention span is WORST, and eye contact is not good.

> > She had great eye contact when we first tried enzyme (Kirkman)

but

> it

> > didn't stay.

> >

> > I felt the past one year was like fire fighting and no plan.

Runny

> > nose and sleep issues are still UNRESOLVED. Not to mention the up

> and

> > down irritability,OCD and anxiety..

> >

> > QUESTION..Is this expected?

> >

> > Sorry for such a long note and thanks for your care to read this.

> >

> > I would appreciate any comments, ideas and views..so that I can

do

> > better!

> >

> > Tetty

> > Mom to Kaysa 3 y 3 mths ..

> >

>