Guest guest Posted March 1, 1999 Report Share Posted March 1, 1999 LOL Oh dear Daryl, what a confession, two more CHOCOHOLICS for the group !!! <big grin> Guess what, we've got lots of them (me included) and a cookie police who will 'getcha' if you're not careful!! Seriously though the diet does look daunting but one can just ease slowly into it and all of a sudden you'll eat something sweet and think YUK!! Well......maybe that's a slight exaggeration, but it gets better as you go along, I promise. It's just a matter of getting your taste buds to change and they do <smile> I have had quite a spectacular success with the diet so I'm a fan for eating 'right' which lets face it we all know is the correct thing to do. I get side effects as one does from a drug when I eat something I shouldn't and boy does that give me the incentive to be good. Being good does not come naturally to me !!grin> All this stuff is a bit overwhelming to start with I know and we don't want to feel stressed over anything either <caring hng> Right now you're focusing in the right direction with getting a good doctor sorted out, time enough to look at other things later.. Here's the one Nashville in for you to put on file just in case :-) E. , M.D. PO Box 110519, Nashville TN 37222-0519. 615-781-2170. And I DO eat chocolate still (just once in a while) even though I'm pretty strict with my diet, I can only be 'good' for so long before it gets to me and I break out <grin> hugs, lisbeth PS has made great progress with her drug reduction, do tell her " well done' from me.<warm smile) I'll leave the questions for those more qualified than I to answer. From: Daryl <dflewis@...> arthritis group <rheumaticonelist> Date: Monday, 1 March 1999 16:40 Subject: rheumatic More Questions Thanks to all of you so much for your responses! I have been so busy trying to read all the email that I have been unable to get in my head what I need to ask about. My wife's name is but right now she's a little computer shy and also the " diet " talk has scared her as she (and I) has a chocolate sweet tooth I believe. We both tried the Protein Power diet (low carb diet) over the past summer and both lost some weight and felt better but have relented quite a bit lately. Someone mentioned a doctor in Nashville, TN as a possibility. That wouldn't be too bad (about 3.5 hours away). We want to check with our local doctor first to see if he would be willing to prescribe the antibotics for us and monitor progress. I doubt if her " rheumy " will approve of the AP either or he wouldn't have her on Plaquenil now but I thought we should give him a try first. Current medication is Naproxen 500mg twice a day, Predisone 2 mg once a day, and Plaquenil 200 mg twice a day (prescribed but she has cut back to 100 mg every other day). Two questions: 1. Should she get off the Plaquenil immediately in anticipation of starting the AP or taper off gradually? 2. Several of you mentioned the Protocol - Is this Dr. 's or does the doctor(s) the group has access to developed one which someone could send us? Again thanks for the encouragement and may God Bless You. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 1999 Report Share Posted March 1, 1999 Daryl, you will find two protocols on http://www.rheumatic.org Dr. ph Mercola's (Schaumburg, IL) written more for the physician, and Dr. 's (Plano, TX) written as a handout for her patients. The Frequently Asked Questions section also gives the protocol. While Dr. Brown always took any patient on DMARDS off the drug and waited six weeks before starting antibiotic therapy, there are physicians who don't take the patient off the DMARD until the antibiotic 'kicks in.' Ethel > Daryl wrote: > > Thanks to all of you so much for your responses! I have been so > busy trying to read all the email that I have been unable to get in my > head what I need to ask about. My wife's name is but right now > she's a little computer shy and also the " diet " talk has scared her as > she (and I) has a chocolate sweet tooth I believe. We both tried the > Protein Power diet (low carb diet) over the past summer and both lost > some weight and felt better but have relented quite a bit lately. > Someone mentioned a doctor in Nashville, TN as a possibility. That > wouldn't be too bad (about 3.5 hours away). We want to check with our > local doctor first to see if he would be willing to prescribe the > antibotics for us and monitor progress. I doubt if her " rheumy " will > approve of the AP either or he wouldn't have her on Plaquenil now but > I thought we should give him a try first. Current medication is > Naproxen 500mg twice a day, Predisone 2 mg once a day, and Plaquenil > 200 mg twice a day (prescribed but she has cut back to 100 mg every > other day). Two questions: 1. Should she get off the Plaquenil > immediately in anticipation of starting the AP or taper off > gradually? 2. Several of you mentioned the Protocol - Is this Dr. > 's or does the doctor(s) the group has access to developed > one which someone could send us? Again thanks for the encouragement > and may God Bless You. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 1999 Report Share Posted March 1, 1999 Daryl, My Rheum also put me on Plaquenil immediately after I was diagnosed and mentioned nothing about AP. I found out about AP one month after starting the Plaquenil, went back to my Rheum and insisted on a prescription. He wasn't supportive of the AP working but he gave me a prescription. I get the rest of my information for this group and a local support group. I'm still taking the Plaquenil as it was recommended I not jump off it too quickly as the anti-inflamatory aspects of the Plaquenil may help the AP to work. I was told that Ethel was the best authority on when to get off the Plaquenil so I'm planning to pester her soon to get her opinion. I would strongly urge you and your wife to go back to her doctor to see if he'll give the AP a try. I printed off alot of the info from the website, including the protocol, and took it to my doctor when I made my request. He had a hard time refuting all the research so maybe this would help to convince your Rheum to give it a try. Good luck, a rheumatic More Questions Thanks to all of you so much for your responses! I have been so busy trying to read all the email that I have been unable to get in my head what I need to ask about. My wife's name is but right now she's a little computer shy and also the " diet " talk has scared her as she (and I) has a chocolate sweet tooth I believe. We both tried the Protein Power diet (low carb diet) over the past summer and both lost some weight and felt better but have relented quite a bit lately. Someone mentioned a doctor in Nashville, TN as a possibility. That wouldn't be too bad (about 3.5 hours away). We want to check with our local doctor first to see if he would be willing to prescribe the antibotics for us and monitor progress. I doubt if her " rheumy " will approve of the AP either or he wouldn't have her on Plaquenil now but I thought we should give him a try first. Current medication is Naproxen 500mg twice a day, Predisone 2 mg once a day, and Plaquenil 200 mg twice a day (prescribed but she has cut back to 100 mg every other day). Two questions: 1. Should she get off the Plaquenil immediately in anticipation of starting the AP or taper off gradually? 2. Several of you mentioned the Protocol - Is this Dr. 's or does the doctor(s) the group has access to developed one which someone could send us? Again thanks for the encouragement and may God Bless You. << File: ATT00034.htm >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 1999 Report Share Posted March 2, 1999 a my gp told me to stop taking the Plaquinel and I just quit cold turkey and didn't have any side effects. This was at the same time I started the AP. I hated the idea of having to have my eyes checked every 6 months. And with the Metho I had to get my blood checked for liver damage every month. No more eye exams and blood tests now. And I feel better mentally knowing I'm not taking these meds. Take care Bev rheumatic More Questions > > Thanks to all of you so much for your responses! I have been so busy >trying to read all the email that I have been unable to get in my head what >I need to ask about. My wife's name is but right now she's a little >computer shy and also the " diet " talk has scared her as she (and I) has a >chocolate sweet tooth I believe. We both tried the Protein Power diet (low >carb diet) over the past summer and both lost some weight and felt better >but have relented quite a bit lately. > Someone mentioned a doctor in Nashville, TN as a possibility. That >wouldn't be too bad (about 3.5 hours away). We want to check with our local >doctor first to see if he would be willing to prescribe the antibotics for >us and monitor progress. I doubt if her " rheumy " will approve of the AP >either or he wouldn't have her on Plaquenil now but I thought we should >give him a try first. Current medication is Naproxen 500mg twice a day, >Predisone 2 mg once a day, and Plaquenil 200 mg twice a day (prescribed >but she has cut back to 100 mg every other day). Two questions: 1. Should >she get off the Plaquenil immediately in anticipation of starting the AP or >taper off gradually? 2. Several of you mentioned the Protocol - Is this >Dr. 's or does the doctor(s) the group has access to developed >one which someone could send us? Again thanks for the encouragement and >may God Bless You. > << File: ATT00034.htm >> > >------------------------------------------------------------------------ >Ta Da! Come see our new web site! > >Onelist: A free email community service > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 1999 Report Share Posted March 2, 1999 Bev, Good for you for getting off all that junk. I'm still taking the Plaquenil because I had a few people tell me to be careful about going off it too fast as it could trigger a regression. If I didn't have to work, I'd be more brave about just getting off it and waiting out the flare but I have to be somewhat functional so I'm playing it more cautiously. I'm also having trouble getting my doctor to run any tests so I don't have any numbers yet on which to base a decision. I gather it's wise to have normal test results for about 6 months before going off the Plaquenil but I need to get some tests first to find out where I stand. I plan to hit him up again at my next appointment, failing which I might go back to my gp to get some run. In the meantime, I'm still taking it and worrying about it. Decisions, decisions. Hugs, a rheumatic Re: More Questions From: " Briarwood " <briarwood@...> a my gp told me to stop taking the Plaquinel and I just quit cold turkey and didn't have any side effects. This was at the same time I started the AP. I hated the idea of having to have my eyes checked every 6 months. And with the Metho I had to get my blood checked for liver damage every month. No more eye exams and blood tests now. And I feel better mentally knowing I'm not taking these meds. Take care Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 1999 Report Share Posted March 3, 1999 a I gave up on the tests and just go on what I feel. Our small community clinic has two gps for 7,000 people and tests aren't high on their priorities it seems. I will have to see my gp now because it is my third prescription renewal and he wants to see me before I get another refill of Minocin. I wonder how long it takes metho to get out of your system. I started easing off it Dec. 23rd. My gp thought I had quit it but I hadn't cuz my RD told me not too. Confusing. Mr gp prescribes AP but my rheumy doesn't. My RD tells me not to go off the Metho but my gp tells me to stop taking it. My gp told me to just stop taking Plaquinel. I just quit and had no side effects from stopping. One good thing about stopping the plaquinel is you don't need to have your eyes checked every 6 months. I hope you can get off it a. But you have to time it to when you feel comfortable doing it. :>) Take care now Love Bev rheumatic Re: More Questions > >From: " Briarwood " <briarwood@...> > >a my gp told me to stop taking the Plaquinel and I just quit cold >turkey >and didn't have any side effects. This was at the same time I started the >AP. I hated the idea of having to have my eyes checked every 6 months. >And with the Metho I had to get my blood checked for liver damage every >month. No more eye exams and blood tests now. And I feel better mentally >knowing I'm not taking these meds. > >Take care >Bev > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 Shona, Dr. G mentioned to me once that 40% of children who cannot tolerate milk protein also cannot tolerate soy protein. My son also can't tolerate soy (it's actually worse than milk). There are a lot of us in the same boat! It sounds like you are on the right track. Sharon :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Hey Shona. My boys cannot tolerate soy at all - worse than milk. It's subtle - takes a few days to show, but he gets a crazed look in his eyes, becomes aggressive, and his anxiety level goes through the roof. And the worst culprit is anything that contains soy lecithen. It's wierd, but he doesn't always react to it on the first time - takes a short time to " build up " . Getting enough protein has been a struggle here too, but my best mainstay is meatballs and gravy - I'll post the recipe for them if you'd like. They're gfcf. The meatballs are really good, and the gravy is okay, and my kids love them. They're soft and easy to eat. If you make a big batch, and make your gravy pretty thin, then they reheat pretty well too. And occasionally, when I forget to add onions, and Garrett won't eat them, then I just run them through the blender with the gravy (thin it up) and pour it over the rice, and he'll gobble it up. I haven't tried that often - just discovered I can do it, but it hasn't failed yet! It's also a good meal to pack for preschool lunch - a thermos of rice, gravy and meatballs keeps well enough - he eats every bit of it. I don't have any measurements, but basically they're made from ground chuck, one egg or replacer, instant mashed potatoes, a little rice flour, maybe some potato starch flour (not sure if it matters), finely chopped onion, onion powder, garlic powder (tons), and a little rice or potato milk, salt and generous pepper, make little balls, and brown well. For gravy, remove the meatballs, brown some rice flour in the fat, add water, salt, pepper, onion powder and garlic powder to taste (I'm pretty generous), stir till thickened (adjusting to your preference), add back the meatballs and cook for a while. Serve with rice or mashed or baked potatoes, etc. I even put a little gravy over broccoli, and they eat that too. I used to put rice or potato milk in the gravy, but I've found it's probably a little better with just water and sufficient spicing. When I cook it tonight, I'll try to get some close measurements and repost it if you'd like. Are the chicken strips your daughter likes milk free or gfcf? I have a decent recipe for those too, except my son has recently started snubbing them, so maybe you wouldn't want that one. Does she like chicken and dumplings? I've made some that were really good, even though they're gfcf, we adults loved them, but my little ones only liked them the first time - they won't eat them anymore. Good luck! It took me about 3 months to actually get the hang of the diet. We saw improvements within the first few days, but as improvements leveled off, we'd make adjustments. He just kept improving every time I figured out a trigger. So hang in there - it's often stressful, but as you focus on goals (like increasing protein), it just takes time to get to where you need to be, but you will get there. Learning too.. --- Shona Jordan <chaia98@...> wrote: > Hi everyone! This group has been so helpful in the > past two months > that I am again seeking your help! We're still > struggling with diet > as we await our December 10th visit. I believe that > my 2 1/2 year > old son cannot tolerate soy products. He was > drinking three or four > cups a day of soy milk and not responding well to > the diet changes. > In the past two weeks we've removed the soy and he > is now making eye > contact with us several times each day. He's > manipulating people to > get what he wants and other interesting behaviors. > He's still > nonverbal, but these are definite improvements for > us. Has anyone > else out here not been able to tolerate soy > products? If so, what > all has soy in it? We're doing the Dr. G's do's and > don'ts of diet. > We are completely casein free and have very little > sugar. I'm also > still struggling to get my 4 year old daughter to > eat enough > protein. She doesn't like anything but chicken > strips and the > occasional piece of grilled chicken. Any > suggestions you have would > be appreciated. > > Thanks! > > Shona Jordan > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 Thanks . The chicken strips are not GF, but don't contain casein. She loves them. I'd love to have the exact recipe for the meatballs. Anything new would be a blessing! Her improvements have leveled off in the past week, but she's been eating several grilled cheese sandwiches also. I just discovered that the lactose free cheese has casein in it. any ideas for a replacement? Shona > > Wrom: FMYXOEAIJJPHSCRTNHGSWZIDREXCAXZOWCONEUQZ > Date: 2002/11/11 Mon AM 11:11:04 EST > > Subject: Re: more questions > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 Try goat's milk. I like it because it has alot of protein and is low in sugar. Suzanne From: " Shona Jordan " <chaia98@...> Reply- Subject: more questions Date: Mon, 11 Nov 2002 02:22:49 -0000 Hi everyone! This group has been so helpful in the past two months that I am again seeking your help! We're still struggling with diet as we await our December 10th visit. I believe that my 2 1/2 year old son cannot tolerate soy products. He was drinking three or four cups a day of soy milk and not responding well to the diet changes. In the past two weeks we've removed the soy and he is now making eye contact with us several times each day. He's manipulating people to get what he wants and other interesting behaviors. He's still nonverbal, but these are definite improvements for us. Has anyone else out here not been able to tolerate soy products? If so, what all has soy in it? We're doing the Dr. G's do's and don'ts of diet. We are completely casein free and have very little sugar. I'm also still struggling to get my 4 year old daughter to eat enough protein. She doesn't like anything but chicken strips and the occasional piece of grilled chicken. Any suggestions you have would be appreciated. Thanks! Shona Jordan _________________________________________________________________ Add photos to your e-mail with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 We have not gone gluten free, although we have cut way back on wheat and are avoiding whole grains. The dairy-free cheese I bought to make grill cheese on dairy-free, egg-free, refined flour bread with GFCF butter was not well received -- ended up on the floor -- but I have had great success with kosher foods because you are guaranteed that there is absolutely no dairy in the food or anywhere in the plant where the food is made (i.e. no cross-contamination). Loblaws (in Canada) has a kosher butcher and kosher section in a few of its stores. I have had great success with kosher hotdogs, chicken dogs and chicken balls in sauce. There are a lot of other products (fresh, frozen, pre-made, boxed) but I have just started out so haven't had a chance to check out a lot. The only thing he wouldn't eat was the pre-made chicken liver and onions (I was hoping he would go for it to help with the iron). The butcher gave me a tour of the whole kosher section and was extremely helpful. I don't know if they have anything like this in any of the big supermarkets in the U.S. but I would think there would be somewhere to buy kosher products in most small- to medium-sized cities. Hope this helps. Rhoda Re: more questions > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Hi all-sorry about the itchy trigger finger...this time I'll include my question! I want to write a lovely thank you to all who responded to my newbie questions. You are a wonderful bunch of people. Do any of you know if tendonitis commonly accompanies RA? I now have the joy of bilateral rotator cuff tendonitis in addition to my RA symptoms. I have had some rotator cuff probs in the past when I was an emergency vet tech-too much big dog wrestling!! But never this bad and in both shoulders at the same time...so I was wondering if it could be brought on by the RA. Thanks again! cary the il rn! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 Cary, shoulder problems are very common in RA. I don't have a solid RA diagnosis, but I have had a bad time with my shoulders. My right one is the worst, but I have babied it over the last couple of years and it is much better. At first, my rheumatologist said it was tendinitis (although I told him that I actually heard of series of pops before the severe pain). Later, I had PT that did not help at all and finally an MRI that showed a torn rotator cuff. It was difficult to sleep, but an injection of cortisone helped for a couple of months. Rockford Orthopedic Associates on shoulder arthritis: http://www.rockfordortho.com/anatomy/shoulder/shoulder_arthritis.htm On shoulder surgery (and shoulder problems) from the American Academy of Orthopaedic Surgeons: http://orthoinfo.aaos.org/booklet/thr_report.cfm?Thread_ID=11 & topcategory=Should\ er " Shoulder Pain " from FamilyPracticeNotebook.com: http://www.fpnotebook.com/ORT344.htm " Rheumatoid Arthritis of the Shoulder " from GPnotebook.com http://www.gpnotebook.co.uk/cache/449839132.htm Hope you get some answers and relief soon! Re: [ ] More questions > Hi all-sorry about the itchy trigger finger...this time I'll include my > question! > > I want to write a lovely thank you to all who responded to my newbie > questions. You are a wonderful bunch of people. > > Do any of you know if tendonitis commonly accompanies RA? I now have the joy > of bilateral rotator cuff tendonitis in addition to my RA symptoms. I have > had some rotator cuff probs in the past when I was an emergency vet tech-too > much big dog wrestling!! But never this bad and in both shoulders at the > same time...so I was wondering if it could be brought on by the RA. > > Thanks again! cary the il rn! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 The irritability is often associated with fungal stuff but can also often be due to reactions to various foods and other things in the environment the body can't handle. Taking milk out of my son's diet was much more dramatic than gluten but gluten removal also helped. It was much more subtle but then more obvious when we tried to add it back after he was off of it for several months. We had done several week rounds off it about five times and had kind of noticed subtle improvement but not dramatic. When we finally took it out for about five months and then retried it, he had abdominal discomfort, diahhria and went a bit looney. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Thanks so much for the responses, I have lots more questions! thank you everyone. Maybe sheetrock is the wrong word for what the walls are made out of. It's more like a solid cement wall with no hollow space. I'll ask my husband what it's called, maybe he will know. I really appreciate what you are saying but I don't think we will be able to leave right away unfortunately because we just renewed a two-year lease two months ago and we have no cash on hand for a deposit somewhere else. Plus I don't want to just up and leave without knowing what is going on -- what if it is my cat that is causing the problems or the ammonia from his urine or something else like a product we are using or something that we own that we would take with us? We might be able to move into another apartment in another area of our complex -- I just don't know if that will help or not. In terms of an air conditioner, how would I find if there is mold in my air conditioner and what do I do if there is? Do I throw it out and buy another one? Can it be serviced? I will look into the Texas Tech tests, thank you for that referral. I looked on their web site and it is a bit confusing to a newbie. I don't know what mycotoxin testing is. Is that a blood test? Can my doctor order that test as well? I have a pretty progressive doctor who is an integrative medicine specialist. Is the spore trap or the tape test better? I am not clear if it is $25.00 per tape lift or how you do it. I don't even know where I would take samples since we can't really see anything to take samples of. I am taking ALA and N-acetylcystine. They are part of the UltraInflamX formulation. That is an amazing powder that I have found so helpful in the past and it will probably help with this current situation as well, but now that it seems to me there is something here bothering me I want to eliminate that rather than just treating the symptoms. How can I tell whether it is an indoor or outdoor allergen? Sorry for so many questions. Thanks for everything Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 I can't recall the details of your apartment. I guess you can't see any mold. Do you feel better when you leave your apartment? That was my first indication of something in my apartment. Do you smell something when you return. I usually didn't notice an odor unless I was away from the apartment for about 4 or 5 hours. Do you feel better when the ac if off? You really have to be a detective. I had never heard of mold illness back nine years ago. I could just tell that I was very ill one spring. I was okay in the winter, then in the spring again the same thing happened. So I started looking around to see if I could detect anything. I finally had the Health Department come and they found the mold. But that was in a house in the basement, and I think you have to see some mold before they come and they don't really do anything but they did find the mold for me. You would think you could see some water stains, brown spots or something somewhere if it is mold--but not necessarily. > > Thanks so much for the responses, I have lots more questions! thank you everyone. > > Maybe sheetrock is the wrong word for what the walls are made out of. It's more like a solid cement wall with no hollow space. I'll ask my husband what it's called, maybe he will know. > > I really appreciate what you are saying but I don't think we will be able to leave right away unfortunately because we just renewed a two-year lease two months ago and we have no cash on hand for a deposit somewhere else. Plus I don't want to just up and leave without knowing what is going on -- what if it is my cat that is causing the problems or the ammonia from his urine or something else like a product we are using or something that we own that we would take with us? We might be able to move into another apartment in another area of our complex -- I just don't know if that will help or not. > > In terms of an air conditioner, how would I find if there is mold in my air conditioner and what do I do if there is? Do I throw it out and buy another one? Can it be serviced? > > I will look into the Texas Tech tests, thank you for that referral. I looked on their web site and it is a bit confusing to a newbie. I don't know what mycotoxin testing is. Is that a blood test? Can my doctor order that test as well? I have a pretty progressive doctor who is an integrative medicine specialist. Is the spore trap or the tape test better? I am not clear if it is $25.00 per tape lift or how you do it. I don't even know where I would take samples since we can't really see anything to take samples of. > > I am taking ALA and N-acetylcystine. They are part of the UltraInflamX formulation. That is an amazing powder that I have found so helpful in the past and it will probably help with this current situation as well, but now that it seems to me there is something here bothering me I want to eliminate that rather than just treating the symptoms. How can I tell whether it is an indoor or outdoor allergen? > > Sorry for so many questions. Thanks for everything > > Lori > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2010 Report Share Posted May 28, 2010 Sorry for my endless questions ( When mixing up MMS to use as a skin spray (activated, then mixed into water as per Tom's directions), do I need to just mix up what is to be used immediately or does it keep? How long does it keep for? Carole in OzEideann & Fionn (Tristania GSDs)carole@...www.berigorafarm.com.au __________ Information from ESET Smart Security, version of virus signature database 4580 (20091106) __________ The message was checked by ESET Smart Security. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2010 Report Share Posted May 29, 2010 Hello Carole, I end up using mine up in a couple of weeks, but I believe it will keep for about 8 weeks. Tom --- In , " Carole " <carole@...> wrote: > > Sorry for my endless questions ( > > When mixing up MMS to use as a skin spray (activated, then mixed into water as per Tom's directions), do I need to just mix up what is to be used immediately or does it keep? How long does it keep for? > > Carole in Oz > Eideann & Fionn (Tristania GSDs) > carole@... > www.berigorafarm.com.au > > > > __________ Information from ESET Smart Security, version of virus signature database 4580 (20091106) __________ > > The message was checked by ESET Smart Security. > > http://www.eset.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2010 Report Share Posted May 29, 2010 Wow 8 weeks, totally different than the writings I have followed. I beleive for my skin lesions and lyme I would want to use the writings and be more aggressive with 28% solution and maximum of 3 days for an old solution. http://jimhumble.biz/biz-skin.htm THE FORMULA: I take an empty 2 ounce spray bottle and add 20 drops of MMS and 100 drops of 10% citric acid solution (you could use lemon juice filtered through a coffee filter). I wait the customary 3 minutes and then fill the bottle with water. (Could be distilled water, but then any clean water would do). This bottle of MMS will stay activated for about 3 days. That's because of the extra strong mixture. > > > Hello Carole, > > I end up using mine up in a couple of weeks, but I believe it will keep for about 8 weeks. > > Tom > > > --- In , " Carole " <carole@> wrote: > > > > Sorry for my endless questions ( > > > > When mixing up MMS to use as a skin spray (activated, then mixed into water as per Tom's directions), do I need to just mix up what is to be used immediately or does it keep? How long does it keep for? > > > > Carole in Oz > > Eideann & Fionn (Tristania GSDs) > > carole@ > > www.berigorafarm.com.au > > > > > > > > __________ Information from ESET Smart Security, version of virus signature database 4580 (20091106) __________ > > > > The message was checked by ESET Smart Security. > > > > http://www.eset.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2010 Report Share Posted May 29, 2010 Hello Healinghope, I may agree with Jim Humble on that one. If you mix using the ratios he recommends, it probably will only last a few days. The ratio he uses results in a solution with lots of impurities. These impurities weaken the effectiveness of the solution. Industry has done a lot of testing on this and offers sanitizers with documented results showing pathogen kill success over a wide range of pathogens. They use a ratio that is effective, and allows for longer storage times. I mix up 500 ml at a time and end up using it in 2 - 3 weeks. I have never run a test to verify the 8 week storage time, but I should do that. I have tested the general disinfectant solution after 3 weeks and it is still going strong. I have some activated solutions that I am experimenting with that are still working as designed after 6 months on the shelf. While this is a non typical activation, it does demonstrate that these solutions can remain viable for long periods of time. On the other hand, if you take any of the activated solutions and put them in sunlight, they will be neutralized in less than an hour. When applying an oxidizer to your skin, it is a good idea to pay attention to the PH of the solution. These chlorous acid solutions come in at around PH 3 and that may be low enough to cause skin irritation. When treating lesions, I buffer the chlorous acid to a PH of 5 and that seems to eliminate skin sensitivity. Better yet, dissolve some chlorine dioxide in water and it will have a neutral PH and no impurities. Tom --- In , " healinghope " <mfrreman@...> wrote: > > Wow 8 weeks, totally different than the writings I have followed. I beleive for > my skin lesions and lyme I would want to use the writings and be more aggressive > with 28% solution and maximum of 3 days for an old solution. > http://jimhumble.biz/biz-skin.htm > THE FORMULA: I take an empty 2 ounce spray bottle and add 20 drops of MMS and > 100 drops of 10% citric acid solution (you could use lemon juice filtered > through a coffee filter). I wait the customary 3 minutes and then fill the > bottle with water. (Could be distilled water, but then any clean water would > do). This bottle of MMS will stay activated for about 3 days. That's because of > the extra strong mixture. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010 Tom When activated sodium chlorite or chlorine dioxide is exposed to the sun is it inactivated or chemically changed? I know when hypochlorous acid or mms2 is exposed to sunlight the reaction is such. In the presence of sunlight, hypochlorous acid decomposes into hydrochloric acid and oxygen. > > > Hello Healinghope, > > I may agree with Jim Humble on that one. If you mix using the ratios he recommends, it probably will only last a few days. The ratio he uses results in a solution with lots of impurities. These impurities weaken the effectiveness of the solution. > > Industry has done a lot of testing on this and offers sanitizers with documented results showing pathogen kill success over a wide range of pathogens. They use a ratio that is effective, and allows for longer storage times. > > I mix up 500 ml at a time and end up using it in 2 - 3 weeks. I have never run a test to verify the 8 week storage time, but I should do that. I have tested the general disinfectant solution after 3 weeks and it is still going strong. I have some activated solutions that I am experimenting with that are still working as designed after 6 months on the shelf. While this is a non typical activation, it does demonstrate that these solutions can remain viable for long periods of time. > > On the other hand, if you take any of the activated solutions and put them in sunlight, they will be neutralized in less than an hour. > > When applying an oxidizer to your skin, it is a good idea to pay attention to the PH of the solution. These chlorous acid solutions come in at around PH 3 and that may be low enough to cause skin irritation. When treating lesions, I buffer the chlorous acid to a PH of 5 and that seems to eliminate skin sensitivity. Better yet, dissolve some chlorine dioxide in water and it will have a neutral PH and no impurities. > > Tom > > > > --- In , " healinghope " <mfrreman@> wrote: > > > > Wow 8 weeks, totally different than the writings I have followed. I beleive for > > my skin lesions and lyme I would want to use the writings and be more aggressive > > with 28% solution and maximum of 3 days for an old solution. > > http://jimhumble.biz/biz-skin.htm > > THE FORMULA: I take an empty 2 ounce spray bottle and add 20 drops of MMS and > > 100 drops of 10% citric acid solution (you could use lemon juice filtered > > through a coffee filter). I wait the customary 3 minutes and then fill the > > bottle with water. (Could be distilled water, but then any clean water would > > do). This bottle of MMS will stay activated for about 3 days. That's because of > > the extra strong mixture. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2010 Report Share Posted May 31, 2010 Hello Healinghope, When sodium chlorite is activated it forms chlorous acid. The chlorous acid tries to maintain the balance of available chlorine dioxide and free chlorine dioxide that occurred during activation. As the free chlorine dioxide is used up the reaction continues to form more free chlorine dioxide, until all of the available chlorine dioxide is depleted. In a body chlorine dioxide only exists for a few seconds to maybe minutes. It quickly breaks down to mostly chlorite and some chlorate and chloride. This puts the chlorous acid in a position that is unstable as it is constantly trying to break down to get the balance of available and free chlorine dioxide balanced. Outside the body this reaction takes place over a variable amount of time depending on the load placed upon the free chlorine dioxide. This reaction has not been studied inside the body. When chlorous acid and hypochlorous acid are exposed to UV light, they break down and release chlorine gas. The chlorine gas reacts with hydrogen to form hydrochloric acid and it also reacts with other elements in the air forming other compounds. When chlorine dioxide is exposed to UV light, it breaks down to chlorine gas which then reacts with hydrogen to form hydrochloric acid and other compounds. There is also oxygen released in these reactions. The bottom line is that these compounds are " used up " through chemical reactions in which UV light acts as a catalyst. Tom --- In , " healinghope " <mfrreman@...> wrote: > > Tom When activated sodium chlorite or chlorine dioxide is exposed to the sun is it inactivated or chemically changed? > I know when hypochlorous acid or mms2 is exposed to sunlight the reaction is such. > In the presence of sunlight, hypochlorous acid decomposes into hydrochloric acid and oxygen. > Quote Link to comment Share on other sites More sharing options...
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