: Re: GABA - Sara and Anita

[Guest guest]

Hello ,

I thought I should let you know that my son has had seizures. I

thought they had stopped, but now they've started again. No doctor

has described them as seizures yet, but if they are something else I

cannot figure out what. Andy Cutler responded at a-m to my post

about my son's lack of progress. He suggested that seizures might be

playing a big role in that and that I should consider a trial of anti-

seizure medications.

I would dearly like to know the reason my son hasn't progressed much

at all in two years, but I really don't want the answer to be

seizures. I really do believe that at least a part of my son's

energy level problems are a reflection of his nutritional levels. He

was very low in aminos and some specific pieces (like AKA) were

almost non-existant, disrupting the cycles. Also, I should mention,

that I believe that somehow my son's seizures are viral-related, at

least in part. Both times we have seen the visible seizures start we

were using anti-virals. I also know his adrenals are struggling, and

it makes sense to me that his feeling overwhelmed by the smallest

things contributes to his need to zone out.

I will soon be getting my son an EEG and if I find anything that

relates to this thread, I'll be sure to post it here.

I'm not sure if anything of this might relate to what you're seeing

, but I thought I'd share it.

Anita

>

>

> Hi Sara and Anita,

>

> What you're describing your dear children here sounds so close to

what

> my son is like.

>

> Until now, I always attributed Norman's " almost continuous lethargy

with

> little windows of energy " to his Epilepsy. Norman has had epilepsy

> since the age of 3yrs and he is 12 yrs now but although his

seizures are

> so much more reduced now and (appear to be responding to Vitamin

B6),

> his energy levels do not seem to pick up at all. As you've said

Anita

> " as if he wants to play like a regular kid, but cannot sustain it " ,

> Norman is like this sometimes and tries so hard to get up and play

but

> just seems to give up so easily.

>

> I wonder now whether this is something that could help him? Would

> anyone know what effect this would have on epilepsy? I'd like to

find

> out more information and then perhaps discuss with our consultant.

>

> Cheers

>

> emily

>

>