Anyone shown Mercury poisoning results to GP? Vaccine compensation?

[Guest guest]

Dear all,

Eddie's porphyrin test results showed him to have " remarkable "

mercury toxicity. We were expecting toxicity but not so *extremely*

high. I have searched the autism mercury group and only found one

much older boy with a result higher than Eddie's (Eddie is only 3).

I am wondering if I should show these to our new GP? We think we are

going to apply for vaccine damage - so we should probably at least

show the GP.

http://www.direct.gov.uk/DisabledPeople/FinancialSupport/OtherBenefits

AndSupport/OtherBenefitsArticles/fs/en?CONTENT_ID=10026664 & chk=yqnZNb

We would be interested to hear from anyone who has advice. We are as

sure as we can be that Eddie was vaccine damaged and that his mercury

load came from his vaccinations.

We felt the need to test ourselves to rule things out and we were

both only mildly toxic.

With best wishes,

Sandy

[Guest guest]

This might not be at all helpful, but I have been operating under the

assumption that we are not supposed to put much stock in the degree

of severity of toxicity indicated by the porphyrin test, but only in

the indication of toxicity. Am I mistaken? There is a database on

CK2 which suggests that many kids with higher toxicity per the

porphyrin testing are in fact higher functioning than the lower

toxicity kids. This could certainly be a result of other issues

(immune system dysfunction comes to mind)...... So, in fact, I guess

this is really not a helpful response, but a search for input on

understanding the porphyrin testing in hopes of flushing this out a

bit.....

Anne

>

> Dear all,

>

> Eddie's porphyrin test results showed him to have " remarkable "

> mercury toxicity. We were expecting toxicity but not so

*extremely*

> high. I have searched the autism mercury group and only found one

> much older boy with a result higher than Eddie's (Eddie is only 3).

>

> I am wondering if I should show these to our new GP? We think we

are

> going to apply for vaccine damage - so we should probably at least

> show the GP.

>

http://www.direct.gov.uk/DisabledPeople/FinancialSupport/OtherBenefits

> AndSupport/OtherBenefitsArticles/fs/en?

CONTENT_ID=10026664 & chk=yqnZNb

> We would be interested to hear from anyone who has advice. We are

as

> sure as we can be that Eddie was vaccine damaged and that his

mercury

> load came from his vaccinations.

>

> We felt the need to test ourselves to rule things out and we were

> both only mildly toxic.

>

> With best wishes,

> Sandy

>

[Guest guest]

That's fascinating, how you go about getting tested for mercury / or

any toxins? I would love to know, my boy has jsut turned 4, he was born

with depleted immunity due to an interuterine virus. He had first mmr

& vaccines (much to my regret) he is v bright & can read fluently. I

would like to know the level of toxins he has, so that i can bio

medically treat him with any thing else that would help.

Also can anyone tell me how he can be tested for yeast ? I have asked

my pead & G.P - ha ha ha. Not a chnace.

thank you

Lara

[Guest guest]

Sandy,

I just had a long email exchange about this with a dear internet

friend who is on this board. She noted that the porphyrin test

results only indicate liver toxicity, which makes sense. It gives

no indication of brain burden, etc. You certainly picked up on this

earlier than I!

It sounds like Eddie is making good progress, and that is very

encouraging! Hard to remember sometimes the adage about this being

a marathon not a sprint....

Best,

Anne

> > >

> > > Dear all,

> > >

> > > Eddie's porphyrin test results showed him to have " remarkable "

> > > mercury toxicity. We were expecting toxicity but not so

> > *extremely*

> > > high. I have searched the autism mercury group and only found

one

> > > much older boy with a result higher than Eddie's (Eddie is

only 3).

> > >

> > > I am wondering if I should show these to our new GP? We think

we

> > are

> > > going to apply for vaccine damage - so we should probably at

least

> > > show the GP.

> > >

> >

http://www.direct.gov.uk/DisabledPeople/FinancialSupport/OtherBenefit

s

> > > AndSupport/OtherBenefitsArticles/fs/en?

> > CONTENT_ID=10026664 & chk=yqnZNb

> > > We would be interested to hear from anyone who has advice. We

are

> > as

> > > sure as we can be that Eddie was vaccine damaged and that his

> > mercury

> > > load came from his vaccinations.

> > >

> > > We felt the need to test ourselves to rule things out and we

were

> > > both only mildly toxic.

> > >

> > > With best wishes,

> > > Sandy

> > >

> >

>

[Guest guest]

Hi Lara,

I agree with Lara. We have done a lot of all 1-4. Yeast is so very

common - and so very persistent - we have been treating it constantly

in one way or another.

We found the comprehensive stool test and parasitology really useful

early on - the organix urine test was handy too because we identified

clostridia from it. However, we could have just followed the DAN

recommendations on general gut bug treatments - basically cycling and

rotating them in turn and watching for die off.

BTW - our GP did attempt to help us test Eddie for yeast but we found

the NHS tests were utterly useless - we even had to rush one sample to

the hospital within the hour. We paid about £240 for the stool test -

there is at least one cheaper version.

We use Muscroft the nutritionist in Cheshire (who we have the

greatest respect for). Consultations with her are a fraction of the

cost we spent on two private consultant pediatrians from the children's

hospital (and which were extremely disappointing in terms of the

accuracy of the advise).

If you like I will email you a copy of one of Eddie's results so you

can see what you get with these tests?

Best wishes,

Sandy

>

> That's fascinating, how you go about getting tested for mercury / or

> any toxins? I would love to know, my boy has jsut turned 4, he was

born

> with depleted immunity due to an interuterine virus. He had first

mmr

> & vaccines (much to my regret) he is v bright & can read fluently. I

> would like to know the level of toxins he has, so that i can bio

> medically treat him with any thing else that would help.

>

> Also can anyone tell me how he can be tested for yeast ? I have asked

> my pead & G.P - ha ha ha. Not a chnace.

>

> thank you

>

> Lara

>

[Guest guest]

Geir,

Thanks for futhering this discussion! Do you think there is an

optimum period of time after chelating (a three day round, say) to

run a porphyrins test?

Anne

>

> 2007/1/10, anneecbrynn :

> > Sandy,

> the porphyrin test results only indicate liver toxicity,

>

> No

> It tells about the kidney / renal metal load, as the porphyrins are

> " made " there.

>

> > It gives

> > no indication of brain burden, etc. > Best,

>

> Well it gives some clue,

> ususally ther will in long term be equilibration of metals

everywher

> in the body, if high in brain, then also high in kindneys - and

vice

> versa..

> Onøy when interrupting by new toxic load, the porphyrins will

increase

> faster than brain accumulate metals,

> and when chelating,

> kidneys will loose metals faster, and will show less porphyrins

than expected...

>

[Guest guest]

>Do you think there is an

> optimum period of time after chelating (a three day round, say) to

> run a porphyrins test?

I know I did it after 3 weeks break and Dr Nataf (from the French lab)

told me it is OK.

Liora

[Guest guest]

Forgot some details:

The chelation was 10 months of TD DMPS, than stoped for 3 weeks,

then did the porphyrins (the results sow considerably less toxicity

then previous test)

Liora

>

> >Do you think there is an

> > optimum period of time after chelating (a three day round, say)

to

> > run a porphyrins test?

>

> I know I did it after 3 weeks break and Dr Nataf (from the French

lab)

> told me it is OK.

>

> Liora

>