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We are just starting to switch from traditional ABA to VB. We are working on

manding with signs (my 5 yr old son is completely nonverbal), receptive

lang.,gross motor imitations, matching (he does well), and a separate time

for working on fine motor skills. My son has lost a lot of the vocal

imitations that he had when he was younger. Last year he could imitate hug

and go and sometimes cookie. Now he cannot. My question is this: should we

be working on echoic? can we somehow get him to make these sounds on demand

again? He is making progress in all other areas. we try to get him to say

things but dont force him because I dont want to frustrate him. Reinforcers

work for other things but not for talking. I sometimes wonder if he just has

to be pushed harder. He wouldnt do anything if we didnt make him so maybe he

isnt imitating sounds because we dont push him enough. What do you think? He

does babble but only certain sounds. I cant tell if we need to work harder at

it or if he is apraxic and just cant do it. any help is appreciated.

karen w

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  • 7 months later...

Margaret,

Call the office to be sure, but I think Dr. G would probably see your child.

I understood what he said to be that he would not treat patients doing

chelation while under his treatment protocol (for understandable reasons).

As far as I know, as long as you are not currently chelating, he will still

take the child.

Sharon

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He may take it on a case by case basis but he will see children who have done

chelation. As I understand it, the main concern is that children do not do

chelation while on the protocol which makes a lot of sense.

Gaylen

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  • 2 years later...

Andy,

Getting a prescription is definitely possible with or without a definite

diagnosis. At the same time, I just got off the phone with someone here in Utah

who just bought Mexican Revia (50 mg naltrexone tablets from Mexico) without a

prescription to take as a preventative against cancer. This lady is taking it

for Rheumatoid Arthritis and a naturopathic physician she sees prescribed it.

The Doctor also prescribed the LDN transdermal cream for her child with Autism.

Her husband is the one who ordered it from Mexico before they saw their doctor.

All this to say, my doctor prescribed it but I was prepared to get it from

Mexico if he did not and told him as much. I came away from my appointment with

my doctor having a new appreciation for him as I saw, for the first time, a more

flexible side of him.

About myself, briefly. I am 32 and was DX " definite MS " in May, 2004 after

experiencing tingling and numbness in my face followed by an MRI

(www.kennardfamily.org/brain/MyBrain.html) showing " innumerable lesions in both

hemispheres " . Looking back I was able to identify many symptoms characteristic

of MS over at least the previous 5 years. I hated taking Copaxone for the year

before I began LDN in June, 2005. I encourage you in your efforts to get and

take LDN. The drug is great.

[low dose naltrexone] Need Advice

> Hello, my name is Andy. I'm new to the forum so please bare with me.

> Here's a little background info about me. I'm 34 years old and started

> experiencing symptoms of fatigue, tingling sensations in my arms and

> legs, and electric shock like feelings when I bend my neck forward.

> This all occurred last summer and I went to see a neuro in September

> 2004. Had an MRI done on my brain and cervical spinal cord and results

> were negative. Had a follow up with neuro and we discussed MS based on

> my presenting symptoms. I asked him since I had a clean MRI does this

> rule out MS. He said for now yes but if I could come back in the

> future things could be different. In a nutshell, he said MS is

> difficult to diagnose and in some people it takes time. Anyhow, a year

> has passed and I feel myself getting worse. I experience stiffness in

> my arms and legs almost everyday. I also have weakness and lower back

> pain that comes and goes. I've researched LDN and have read about its

> effectiveness. I would like to start taking it now before things start

> really getting worse. Is it possible to get a prescription for it

> without having a definitive MS diagnosis? I live in Arizona. Any

> information is greatly appreciated. Sorry for the long post.

>

>

>

>

>

>

>

>

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  • 9 months later...
Guest guest

Hi all

I left my moldy NYC apt in April and the only thing I saved from my moldy

closets were my

photo albums and negatives. These are very sentimental items...20 years of fine

art

photography, plus childhood photos, and photos from my travels around the world

(which I

am no longer able to do). I put it all in climate controlled storage, which is

very expensive

and I cannot continue. I put them in hard plastic bins but left it all open so

it could air out. So

for 3 months it has been in storage. My question is, is it saveable or should I

cut my losses

and dump it all now? I don't want to contaminate my current new apt and can't

afford to keep

the storage unit. Not sure what to do. It's such a final act.

Thanks for any advice

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Guest guest

, can you scan the photo's into your computer? Then you won't have to

lose them and can save them on a CD or USB.

Lourdes " Sal " Salvador, salvadorlourdes@...

[] need advice

> Hi all

> I left my moldy NYC apt in April and the only thing I saved from my moldy

> closets were my

> photo albums and negatives. These are very sentimental items...20 years of

> fine art

> photography, plus childhood photos, and photos from my travels around the

> world (which I

> am no longer able to do). I put it all in climate controlled storage,

> which is very expensive

> and I cannot continue. I put them in hard plastic bins but left it all

> open so it could air out. So

> for 3 months it has been in storage. My question is, is it saveable or

> should I cut my losses

> and dump it all now? I don't want to contaminate my current new apt and

> can't afford to keep

> the storage unit. Not sure what to do. It's such a final act.

>

> Thanks for any advice

>

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

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Guest guest

Hi , if they dont have actual mold growth on them i think there

worth trying to save. if its dry mold dust, take a very fine cloth

and very,very lightly wipe them off. do it outside. I had some that

had mold growing and had to throw them away. tried to save a few of

them but theres no way to wipe off the mold without damageing the

pictures. there worth trying to save. good luck. those dust cloths

they make that hold the dust works good, cant remember the name of

them.

>

> Hi all

> I left my moldy NYC apt in April and the only thing I saved from my

moldy closets were my

> photo albums and negatives. These are very sentimental items...20

years of fine art

> photography, plus childhood photos, and photos from my travels

around the world (which I

> am no longer able to do). I put it all in climate controlled

storage, which is very expensive

> and I cannot continue. I put them in hard plastic bins but left it

all open so it could air out. So

> for 3 months it has been in storage. My question is, is it saveable

or should I cut my losses

> and dump it all now? I don't want to contaminate my current new apt

and can't afford to keep

> the storage unit. Not sure what to do. It's such a final act.

>

> Thanks for any advice

>

>

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Guest guest

,

I don't post much but this caught my eye as I am struggling with a

similar issue. I was a researcher and have mounds of papers, books,

journals, etc. This is a difficult choice for me because there is too

much to scan.

However, photos are a different matter. If the prints have mold they

can not be saved. On the other hand, the negatives should wash up

easily and be salvageable, as they are not very porous. And there are

negative scanners, so you can get good quality digital images from them.

You might want to check first and make sure the negatives are still

good, but assuming they are, you could probably dispose of the prints

and scan the negatives.

But older photos without negatives are a problem. Definitely I would

try to scan them, but not in the new apt. Do you have a friend maybe

who would let you scan them in their house/apt, or maybe garage?

And why not scan and then post the best prints on your new website?

--Kurt

[] need advice

Hi all

I left my moldy NYC apt in April and the only thing I saved from my

moldy closets were my

photo albums and negatives. These are very sentimental items...20 years

of fine art

photography, plus childhood photos, and photos from my travels around

the world (which I

am no longer able to do). I put it all in climate controlled storage,

which is very expensive

and I cannot continue. I put them in hard plastic bins but left it all

open so it could air out. So

for 3 months it has been in storage. My question is, is it saveable or

should I cut my losses

and dump it all now? I don't want to contaminate my current new apt and

can't afford to keep

the storage unit. Not sure what to do. It's such a final act.

Thanks for any advice

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Guest guest

, " Kurt R " <kurt@...> wrote:

> However, photos are a different matter. If the prints have mold

they can not be saved.

Photos/Mal

Sun Feb 6, 2005 11:11 am

> malibu805@a... wrote: Yu know, I have

> often wondered whether we could have saved some of the precious

lost family photos by dipping in marine varnish. At the time, we

were so sick, I was in no

> condition to even consider it. Has anyone figured out a way to

preserve them

> that seals in the mold and keeps the photo in decent condition? Mal

As I've been telling people ever since Melinda Ballard described how

she was going to have to throw away the picture of her and husband

with President Clinton on " 48 Hours " ,

Don't just toss things that cannot be replaced - you never know!

The things that I put in storage during the 1994 Lillehammer Olympics

(I was watching the Tonya and Show when I got Lille-Hammered!)

died down over time and after about five years or so, things that I

thought would kill me if I ever touched them again don't bother me

much at all.

-

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Guest guest

Thanks Kurt

Luckily, I scanned some of my fine art work a few years ago so already have them

posted

on my site! :-) But I am confused by everyone's responses. I was under the

impression that

you have to be VERY careful of cross-contamination. I would never want to expose

someone's computer/scanner to the mold. This stuff was sitting in a moldy closet

for

about 9 months minimum, but up to over 2 years of mold growth. But it is

definitely NOT

visible. I would also be concerned about bringing negatives to a place to have

prints made

and then having them cross contaminate by handling both together. I am bound

into this

lease for a year so if something were to make the apartment unlivable I don't

know what I

would do.

I found some of my travel negatives in a drawer the other day, never exposed to

the mold.

Was so happy. But still, I have a ton from 6 months in Southeast Asia and 2

months in

Morocco. Plus all the other photos...

I think I am going to keep it in the storage space for another month and try to

go there

and go through the negatives and throw out as much as I can.

It would be helpful to hear from someone who actually has been through this

before and

succeeded in keeping stuff...how did you do it?

Thanks all, for responding so quickly!!

www.PlanetThrive.com

>

> ,

> I don't post much but this caught my eye as I am struggling with a

> similar issue. I was a researcher and have mounds of papers, books,

> journals, etc. This is a difficult choice for me because there is too

> much to scan.

>

> However, photos are a different matter. If the prints have mold they

> can not be saved. On the other hand, the negatives should wash up

> easily and be salvageable, as they are not very porous. And there are

> negative scanners, so you can get good quality digital images from them.

> You might want to check first and make sure the negatives are still

> good, but assuming they are, you could probably dispose of the prints

> and scan the negatives.

>

> But older photos without negatives are a problem. Definitely I would

> try to scan them, but not in the new apt. Do you have a friend maybe

> who would let you scan them in their house/apt, or maybe garage?

>

> And why not scan and then post the best prints on your new website?

> --Kurt

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Guest guest

" lunagirl32002 " <j_genser@...> wrote:

>

> Thanks Kurt

But I am confused by everyone's responses.

It would be helpful to hear from someone who actually has been

through this before and succeeded in keeping stuff...how did you do

it?

>

> www.PlanetThrive.com

Sun Dec 12 2004

Re: Family's Home Destroyed Because Of Toxic Mold

Once again, I'm amazed to see how unwilling people can be to just try

putting Heirlooms and irreplaceable stuff in storage for a few years

to see if it can be remediated and reclaimed at some later date.

It took five years of Nevada desert heat for some of my stuff, but

all of the " hard objects " don't bother me at all. The " soft " stuff

like cardboard phonograph covers, books are OK and these aren't

things that I would have extremely close to my face.

Furniture, pillows I would never trust again no matter how benign

they felt, but there are many objects that just don't have to be

trashed in the wholesale manner that people may learn later to

be " not quite necessary " .

-

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Guest guest

supply him with a pair of vinyl gloves like they use at the dentist. I have

found that if you say it is because a chid is sick, people will bend over

backwards to accomodate you. Do you have chilodren???

lunagirl32002 <j_genser@...> wrote: But

what about the technician who handles all my photos and negs and then touches my

disks that I then take into my home? Am I being too paranoid? I don't want to

get sick

again and be homeless!

>

> >My question is, is it saveable or should I cut my losses

> >and dump it all now? I don't want to contaminate my current new apt and

can't afford

to keep

> >the storage unit. Not sure what to do. It's such a final act.

>

---------------------------------

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  • 7 months later...
Guest guest

Teri,

Of course he doesn't " do " disability. It is not the doc's job to give

a " disability diagnosis " . The Functional Analysis will be more

accurate and present what you are able to do and not able to do in an

employment situation.

SSA will contact ALL your docs for medical records anyway, as it is

the SSA/Commissioner's role to find you disabled under

their 'guidelines'. I believe I have previously posted several links

for this.

~ Gretchen

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