Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 How do these people afford to keep testing everything? I've been repeatedly told my insurance wouldn't cover it and they are all very expensive. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 LiveSimply <quackadillian@...> wrote: > > How do these people afford to keep testing everything? > > I've been repeatedly told my insurance wouldn't cover it and they are > all very expensive. That is too ironic! Testing and medical bills broke me. And when Dr finally told me " You are at a point where most people with CFS commit suicide " and that the impossibly expensive ampligen was my only hope, but that it was financially out of reach, I went all-out concentrating on doing my own testing to determine just how much how mycotoxins were affecting me. It wasn't until I performed my own simple tests and acted in accordance with the results that I finally managed to crawl out of what appeared to be an impossibly deep hole. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 kathryn miller wrote: > > - Do you remember the type of test that is performed to find mycotoxins in the tissue from a biopsy? Thanks Kathie > No, I sure don't. Years ago the test was horribly expensive and only indicated the presence, but did not quantify levels. And the doctors did not recognize any mycotoxin standards for toxicity so you still couldn't use it to support your case or get treatment. So I didn't bother. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 Haley, it's just the urine mycotoxin test that Dr Croft does, sent directly to him. He legite, does testing for Dr Rea on certain things. --- Haley <myhaze@...> wrote: > Hmmmm. I have yet to see a mycotoxin test that > is only $100... My neighbor spent upwards of > $3K finding out which toxin killed her son. > I've spent several hundred ruling things out > but haven't yet found what I've got... > > ~Haley > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 I believe dr. hooper does dr. rea's testing now. they are in the same complex. bbw <barb1283@...> wrote: Haley, it's just the urine mycotoxin test that Dr Croft does, sent directly to him. He legite, does testing for Dr Rea on certain things. --- Haley <myhaze@...> wrote: > Hmmmm. I have yet to see a mycotoxin test that > is only $100... My neighbor spent upwards of > $3K finding out which toxin killed her son. > I've spent several hundred ruling things out > but haven't yet found what I've got... > > ~Haley > --------------------------------- Groups are talking. We & acute;re listening. Check out the handy changes to Groups. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Hi Leigh, I don't know for certain but Dr Croft just does certain types of tests. I think Rea uses Dr Croft. From what I have heard from other people that go there Dr Rea uses a number of resources, people, sends things out to other places, etc. --- Leigh McCall-Alton <mccallalton@...> wrote: > I believe dr. hooper does dr. rea's testing > now. they are in the same complex. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Leigh, This is really unimportant to the topic. I was just telling person where she can get urine test for one hundred dollars for mycotoxins and that is Dr Croft. Someone thought that was too cheap for valid mycotoxin test, so I mentioned he is/was used by Dr Rea to validate his competence in spite of inexpensive price. Whether he is doing them now or not isn't important. However, since it has become a topic at the moment, hopefully short one, I just talked to the Center just a couple of weeks ago regarding an appointment for myself and a test I wanted and she said he would sent that out to be done and so I should not expect results to be available while I am there, so all tests are not done there. So if Hooper, whoever he is, is at the center, then he does not do all the testing. Mycotoxin urine test many people have taken for one hundred dollars is done by Dr Croft in Wisconsin, at address already posted. If Dr Rea doesn't use him now, he used to. He also does mycotoxin testing for WI allergy clinic many go to. I just don't think the test is that helpful in that you do not know if mycotoxins you have are from old exposure or new one since they hang around so long. However if you want to know, it easy to have done. No prescription is required. He is a research phd in mycotoxicology and other fungal related things. --- Leigh McCall-Alton <mccallalton@...> wrote: > lately, it is hooper. > > bbw <barb1283@...> wrote: > Hi Leigh, I don't know for > certain but Dr Croft > just does certain types of tests. I think Rea > uses Dr Croft. From what I have heard from > other > people that go there Dr Rea uses a number of > resources, people, sends things out to other > places, etc. > > --- Leigh McCall-Alton <mccallalton@...> > wrote: > > > I believe dr. hooper does dr. rea's testing > > now. they are in the same complex. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Dr. Hooper has done urine testing for me, but generally they do one mycotoxin group at a time... If Dr. Croft can do all mycotoxins for under a hundred, that's a bargain, but, I kinda don't think it works that way. For instance, I've had separate tests for Trichothecene and Aftlotoxins - ~Haley Leigh McCall-Alton <mccallalton@...> wrote: I believe dr. hooper does dr. rea's testing now. they are in the same complex. bbw <barb1283@...> wrote: Haley, it's just the urine mycotoxin test that Dr Croft does, sent directly to him. He legite, does testing for Dr Rea on certain things. --- Haley <myhaze@...> wrote: > Hmmmm. I have yet to see a mycotoxin test that > is only $100... My neighbor spent upwards of > $3K finding out which toxin killed her son. > I've spent several hundred ruling things out > but haven't yet found what I've got... > > ~Haley > --------------------------------- Groups are talking. We & acute;re listening. Check out the handy changes to Groups. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 I don't doubt Dr. Croft is totally legit - he developed the urine tests and all. But which specific mycotoxins can be identified through this test/series of tests? My point is simply that I haven't heard of one test looking for a full range of mycotoxins. ~Haley bbw <barb1283@...> wrote: Haley, it's just the urine mycotoxin test that Dr Croft does, sent directly to him. He legite, does testing for Dr Rea on certain things. --- Haley <myhaze@...> wrote: > Hmmmm. I have yet to see a mycotoxin test that > is only $100... My neighbor spent upwards of > $3K finding out which toxin killed her son. > I've spent several hundred ruling things out > but haven't yet found what I've got... > > ~Haley > ~Haley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 exactly. Haley <myhaze@...> wrote: Dr. Hooper has done urine testing for me, but generally they do one mycotoxin group at a time... If Dr. Croft can do all mycotoxins for under a hundred, that's a bargain, but, I kinda don't think it works that way. For instance, I've had separate tests for Trichothecene and Aftlotoxins - ~Haley Leigh McCall-Alton <mccallalton@...> wrote: I believe dr. hooper does dr. rea's testing now. they are in the same complex. bbw <barb1283@...> wrote: Haley, it's just the urine mycotoxin test that Dr Croft does, sent directly to him. He legite, does testing for Dr Rea on certain things. --- Haley <myhaze@...> wrote: > Hmmmm. I have yet to see a mycotoxin test that > is only $100... My neighbor spent upwards of > $3K finding out which toxin killed her son. > I've spent several hundred ruling things out > but haven't yet found what I've got... > > ~Haley > --------------------------------- Groups are talking. We & acute;re listening. Check out the handy changes to . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Could someone post Dr. Croft's address and whatever info one needs to send with the sample? If anyone has a sample report they could photograph or scan too, I;d really like to see it. (you can remove any identifying information) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 A. Croft Environmental Diagnostics Group, Inc. N. 9178 County Rd. A Crivitz, WI 54114 715-757-3756 doccroft@... http://www.mold-survivor.com/fungalexposure.html --- In , LiveSimply <quackadillian@...> wrote: > > Could someone post Dr. Croft's address and whatever info one needs to > send with the sample? > > If anyone has a sample report they could photograph or scan too, I;d > really like to see it. (you can remove any identifying information) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 as far as i know, dr. crofts urine test is for trichathecene mycotoxins, i cant say what the cost is for sure. i do know he either is in the prosses of, or has a patent on it, and to my lastest knowledge, he still works closely with dr. Rea > > > > Could someone post Dr. Croft's address and whatever info one needs to > > send with the sample? > > > > If anyone has a sample report they could photograph or scan too, I;d > > really like to see it. (you can remove any identifying information) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Here are excerpts from 2 emails I received from Dr. Croft. I never did this because I was specifically interested in T-2 toxin, not trichothecenes in general. As far as I know, he does not break the trichothecenes down into specific ones and it only shows if you have been exposed within the last 40 hours. Since these are old, I don't know if the cost has changed. April 7, 2004 The urine test and the detection of trichothecene mycotoxins within your urine dates the exposure to the last 40 hours. Dr. Croft --------------------------------------------------------------------------------\ ----------------------------------------- July 15th, 2005 Here is what I believe you should do, send me a urine assay, collect 1 liter of urine, label date of collection and your name on it. Write me a note asking me to assay the urine for Trichothecene Mycotoxins and place sample into a water bottle that does not leak. Send to Dr. A. Croft, N9178 County Road A., Crivitz, WI 54114. Please enclose a check for $250.00. You can send over night via FedEX. Dr. Croft --------------------------------- Music Unlimited - Access over 1 million songs.Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Dr Crofts tests: I pulled out test results from him. He only tests for Trichothecene mycotoxins OR that is all he tested for me. It was a 24 hour collection. He also tested for bacteria of which there was none. He said in results I scored an 8 out of a possible 18. In conclusion he writes that " There is no safe level of Tricothecene mycotoxins. The central nervous system including the brain and spinal cord, and lungs are primary target organs. This mycotoxin can affect every cell in the body, with the brain, lungs, immune sysem, gastrointestinal and reproductive organs being the most vulnerable. The health effects are cumulative in their effects on the body and exposure should be avoided at all costs. ...It goes on. You can call Dr Hooper and ask if he will do urine test for you without a Rx or see if your doctor will order one if you want to know about other mycotoxins. I just suggested Dr Croft only in the light that no Rx was necessary and cost is reasonable, in response to post about expenses of testing. I don't know if he tests for aflatoxin. After Dr Hooper does tests, what are some suggestions as to how to get rid of them? I know they do saunas down there. Is that the main way he recommends? --- Haley <myhaze@...> wrote: > Dr. Hooper has done urine testing for me, but > generally they do one mycotoxin group at a > time... If Dr. Croft can do all mycotoxins for > under a hundred, that's a bargain, but, I kinda > don't think it works that way. For instance, > I've had separate tests for Trichothecene and > Aftlotoxins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Thanks KC. I would have looked it up but was at work today. Everything is so expensive, to me it was one of least expensive tests I took, especially when you consider you don't need to see a doctor to get a Rx to have it done and don't need to see the doctor again to get the results. Then again so often I have paid for the time and money expense for office visit hoping to be tested and I come away without any test, so there is another savings you have to include. I like these do it yourself things. As you said, someone said $100 and I thought he was referring to the urine test from Dr Croft and just defending that his tests could be trusted. I don't have cancelled check from 2004 to check. Sorry I was wrong on the price. Thanks for helping out everyone. --- tigerpaw2c <tigerpaw2c@...> wrote: > A. Croft > Environmental Diagnostics Group, Inc. > N. 9178 County Rd. A > Crivitz, WI 54114 > 715-757-3756 > doccroft@... > http://www.mold-survivor.com/fungalexposure.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 The 40 hour time frame is is really shocking to me and was not mentioned in letter I got from him, since I did get it out to look at! That means at the time I took my test, after having cleaned out the house and air tests being good that I was still getting a whopping 8 out of 18 on test, when he says any amount is too much! According to him, zero is correct amount. I also am very surprised since another person who also scored near me on this test and whom many people here probably, her husband built her a brand new home from scratched, specifically due to her mold problems and she practically travels around in a bubble has high mycotoxins in spite of all that effort!! Also trips to Dallas, the saunas there and at home, etc, and she still has those high levels. Many of you probably know who I mean, but don't want to tell her story for her, to mean that her last test she scored so high, is unbelievable. That just leads me to believe what I have for a long time that the fungus is INSIDE ME, where it is making my own mycotoxins. Certainly I have not practiced avoidance like has but this woman I'm referring to certainly did and she was not having any more success at getting rid of them. I might be the source, which is a depressing scenerio. ***Oh well, I'll hold on to only thing I may have been right on this discussion, that Dr Croft is a respected expert in mycotoxin research. --- Kathy <kathywnb@...> wrote: > Here are excerpts from 2 emails I received from > Dr. Croft. I never did this because I was > specifically interested in T-2 toxin, not > trichothecenes in general. As far as I know, he > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 I think Croft examines other tissue besides urine. Person I know mentioned earlier, he examined tissues from abdominal surgery from her which were removed in surgery and he did that for Dr Rea, but I don't know the status of their affiliation. Anyway, woman had cancer and I was hoping to have Dr Rea do same for me as I had surgery that found cancer in 2004. One doctor I saw recently thought results of pathology lab looked like fungus could be involved, so would like discuss with Dr Rea. It would be nice to know what is probable cause. I was ALREADY in this mold group prior to need for surgery and suspecting mold and fungus but as we all know noone to listen to or care to check it out, then I went in to remove something and there was small amount of cancer, very small but there just the same, pre stage one, on ovarian cyst, so would like this done. Maybe I should redo mycotoxin urine test to see if levels have been reduced since I put fresh air intake in, and done some detoxing. If they are the same, I will be very discouraged. --- who <jeaninem660@...> wrote: > as far as i know, dr. crofts urine test is for > trichathecene > mycotoxins, i cant say what the cost is for > sure. i do know he either > is in the prosses of, or has a patent on it, > and to my lastest > knowledge, he still works closely with dr. > Rea > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 One LITER of urine.. whoa.. That sounds like it is probably wrong as I doubt if most of us can pee a full liter except over a day or two... Especially not if you are sweating (i.e. hot weather) that fluid is going out through your skin, much more than your urine.. IMO... better pack it well or the USPS might get angry! Quote Link to comment Share on other sites More sharing options...
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