Re: Biomed, gfcf, 1 step forwards/1 step backwards(S.Boulardii /Sandy)

[Guest guest]

-Hi Sandy,

My daughter has similar problems when I try to introduce

probiotics,the tiniest amount causes severe pain.I'm wondering if I

should try her with S.Boulardii.

How slow did you go? Did you give activated charcoal after it?

Did this not cause the same degree of pain?

Any info would be appreciated as I so want to get Katy on some

probiotics,presently she is only tolerating small amounts of Bifido.

Any advise will be appreciated.

Many Thanks

Sharon.

-- In Autism Treatment , " Sandy and Tim "

<S.I.Woolley@...> wrote:

>

> ,

>

>> Sometimes we found we really had to go slow - some things were

very

> hard to get started. For example, Eddie had a terrible time when

we

> tried to give probiotics. He was in so much pain after the first

> tiniest sprinkle we had to stop and then try again with something

> else later. For us it was S. Boulardii that he could tolerate

first

> and we slowly worked that up and then added probiotics. Now he

takes

> so MUCH it's amazing and they have such a great effect too.

>

> We have found being SCD and low oxalate have helped enormously.

We

> use Houston enzymes and all the usual supplements. Hope you will

be

> encouraged.

>

> Best wishes,

> Sandy

>

>

>

> >

> > Thanks to everyone on this list for sharing. I've learnt so much

> from all your experiences.

> > Someone mentioned seizures, just wanted to say we saw good

results

> with Chiropractic and Cranial Osteopathy, though you can't do both

at

> same time.

> > We've been gfcf since A's 3rd birthday, nearly 2 years now and

it's

> been very worthwhile. Doing biomed for approx 6 months. He's so

> sensitive, we have to go really slow. Keep on getting amazing

results

> and then he crashes, ending up worse than before. After Difflucan

he

> really regressed, it lasted 3 months. On NCD 3rops 3x daily he was

> doing so well and now regressed again, hardly speaking. Gave it a

> week's break and started again at 1 drop 3x daily. This time

seeing

> black rings under eyes, otherwise a very happy little boy, but

speech

> still not back. He didn't lose receptive language this time, he

> understands what we say, just answers with gestures instead of

> talking. I panic with every regression, feeling " will he ever

bounce

> back? " After all it was a regression which started this whole

thing

> off and he didn't recover from that - YET. Does anyone else get

these

> progress/regress cycles? Any advice?

> > HBOT - can anyone recommend UK place, preferably in NE?

> > Any experiences positive/negative? I feel some of our problem is

> caused by oxygen deprivation during seizures, so maybe HBOT makes

> sense.??

> > Thanks to everyone for a very helpful list

> >

> >

>