Re: chronic fatique syndrome

[Guest guest]

" who " <jeaninem660@...> wrote:

>

> is associated with diminished intracellular perforin

> (http://www.blackwell-synergy.com/doi/abs/10.1111/j.1365-

> 2249.2005.02935.x)

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Re: I've had it, too. Message List

Wed Dec 29 2004

Reply | Forward Message #22310 of 40980 < Prev | Next >

Re: I've had it, too/update from Dr D.

kathryn miller ...> wrote:

> Some people dont really want to hear the truth!! I had a woman,

she is a lab tech. and I had gone in for my 20 vials of blood to be

withdrawn, so that Drs could say they had no clue what was wrong with

me.<

All of us who survived the 1985 Incline Village CFS epidemic sure

recognize the " 20 vials of blood " scenario.

After I had my " Damnit, it's the mold " argument with Dr and

bailed out of his ampligen program to pursue mycotoxin avoidance, I

was sitting in Sierra Nevada Labs where he sends people for blood

workups (with those 20 vials) and getting moldslammed from their

clothing as they walked by. Of course none of them wanted to hear

anything about mold.

But one guy came in carrying his teenage daughter who couldn't even

stand up without help. As they walked by, I got the strongest " hits "

from anyone I felt so far. Their car was obviously contaminated

since the girl started to recover somewhat as she sat in the waiting

area. Yup - she was a CFSer!

After the " 20 vials " were filled and they were leaving, I stopped

them outside in the parking lot and said " I know this sounds crazy,

but I have become hypersensitive to a specific mold which I can feel

very strongly from your clothing. Will you allow me to do a test? "

and they agreed, looking amused and bewildered at my weirdness. So I

walked around them at a distance until I got downwind of them and

felt slammed. Then I walked right in between them and got MAJOR

slammed, and said " Ok, that's good enough " . So I wrote down the

name " Stachybotrys " and my phone number on a scrap of paper and

handed it to them.

I said " Please just do a computer search and compare your symptoms

and tell me what you think. Avoidance of this particular mold has

made the difference between lying helpless in bed and climbing

mountains for me, and I can definitely feel it on your clothes " .

As you suspect, I got no call, but my Karma is good - I gave it a

shot.

Oh, and if Biff is reading this, then he must know about the Teacher

cluster at North Tahoe High school who were dropped by a colony of

Stachy " about the circumference of a baseball " . Their fellow NT

teachers call them fakers, hypochondriacs and malingerers who just

want to " take advantage of the system and live the life of luxury on

a disability check " - yeah, right!, and perhaps you guys on this

board know that the famous Teacher Cluster at Truckee High school

that got the whole CFS thing going was in a conference room that was

found to have Stachy. We put this info on the board a few years ago

but nobody seems to find out what causes CFS.

http://infoventures.com/osh/abs/sbs0001.html

So now all of you people know about the Stachy asociation with CFS.

Of course, Dr knows it too, because I told him in 1998, but

he's decided not to let his patients in on the secret.

Very strange behavior for a doctor who " cares " about his patients.

I can't figure it out.

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