Cincinnati Children's

[Guest guest]

I thought I'd highjack the posts regarding Cincinnati Children's hospital, I

wanted to chime in and say that we are there regularly, so let me know if any of

you are heading that way! We will actually be there tomorrow.

We also see Dr. Bleesing for immunology and he was our primary transplant

doctor. We think he's a genius and don't believe Conner would have been

diagnosed with NEMO if not for him. Cincinnati has the ability to do extensive

immune testing and I highly recommend going there for parents who are searching

for a more precise diagnosis. Bleesing was the one who finally diagnosed the

complement deficiency in my husband and children. None of the other

immunologists tested for it, either due to lack of testing availability or lack

of knowledge. My family also has some other irregularities in immune function,

but thankfully nothing too serious and everyone has been quite healthy in recent

years thanks to some of the environmental changes Bleesing suggested.

We don't see Dr. , but he is a national legend when it comes to bone

marrow failure issues. People come from all over to see him. He did Conner's

bone marrow biopsy before transplant and is the sweetest guy (although

semi-retired now).

The other specialty we love there is Pulmonology, I highly recommend Dr. Wood.

Thankfully we haven't needed too many other specialties, other than urology,

dermatology and rheumatology. I can recommend names in those departments, if

needed.

Hope to catch up with some of you there!

(NEMO carrier)

Mom to Hayden (16-unknown PID)

Evan (16-unknown PID)

Conner (16-NEMO; bone marrow transplant 8/17/07)

Kelsey (14-unknown PID and NEMO carrier)

Wife to (unknown PID)

www.caringbridge.org/visit/smithkids