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[Guest guest]

WELCOME TO THE GROUP,INDIA;; I PRAY THE DRS GET TO THE BOTTOM OF THIS FOR YOU;TAKE CARE

HUGS

DORT FROM MICH U.S.A.

From: indiaw48 <indiaw48@...>Subject: new here Date: Thursday, April 2, 2009, 6:51 AM

Hiya, I'm new to this group, and I was wondering if any of you could help me identify some symtoms that i've been having for the past year or 2. Usually when I'm already a little hungry, but sometimes it can happen soon after i've eaten, I get a very strange feeling as if I'm going to faint which gets worse and worse until I eat sugar and carbohydrate. It makes me feel like my blood is very hot for some reason :-S I firstly thought it was my blood sugar, but i've had quite a few blood tests from different doctors and they haven't come up with anything. It's been going on for quite a while now and it is getting really hard for me to go out on my own because when it happens I can't look after myself. I have PCOS and was wondering if it has anything to do with that?Any help would be greatly appreciated,thanks,India :-)

[Guest guest]

I just found this group today. I am mother to Hayley, who is 8 years old and

has CVID as well as Cystic Fibrosis. She was diagnosed with CVID a little over

a year ago and we have been doing weekly Hizentra for almost one year. She is

doing really well right now.

We had always thought her recurrent infections were related to her CYstic

Fibrosis (CF), however, her throat cultures never showed most of the common CF

bugs. On a wim, our pulmo decided to run blood work and check her IG level.

Low and behold, her IGG level was extremely low, as well as a few of the others.

She was going into the hospital 3-5 times per year for IV antibiotics. Since we

started the weekly Hizentra, she has only been hospitalized once since last

August.

I am glad to have found this group!

Becky