WBC elevation/non-elevation and immune Deficiency

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Hi!

My daughter is 2 and has hypogammaglobulinemia and CVID. I had a question for

you all...

Does any of your children when they are acutely ill (i.e. culture out enormous

amounts of bacteria) make NO increase in their WBC?? My daughter can be

borderline bacteriemic and still mount no response from her WBC's or any other

cell for that matter. Her immunologist feels that they've not even begun to

grasp what all is dysfunctional in Cambrie's immune system, but feel strongly

that her inability to mount a response is directly related to the part they just

quite haven't figured out yet. I was wondering if any of you guys experience the

same problem?

And, how do you go about explaining it to other doctors (pediatrician/ER

physician), who the first thing they want to do is draw a CBC and treat based on

numbers and not appearance?

Thanks!

Kymberlie