Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 Hi all, We still don't have a diagnosis, but our son's IgG, IGM and now IGA are low. He is 6yo and has chronic diarrhea. We recently did a stool culture that identified a parasite, cryptosporidium, and h. Pylori. We used an anerobic antibiotic to treat the parasite (Alinia) and then we did triple therapy (biaxin, amoxicillin and Prevacid) to treat the h.pylori. So, after all of the antibiotics were done, he now has formed poop. He's never had formed poop. We didn't see much after treating the parasite, so I don't think it was due to the Alinia. I think it was due to the biaxin and amoxicillin. But, h.pylori does not cause diarrhea. So now I'm wondering if we killed some other bacteria and maybe he has small intestine bowel overgrowth (SIBO). He's supposed to have a colonoscopy soon, but I'm wondering if we should rule this out first. Has anyone else had this diagnosed in their kid? Thanks for your help, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 My son has had major problems with SIBO- but he has a very altered anatomy that has greatly contributed to his problems in addition to his CVID. He got NEC (nectrotizing enterocolitis-major bowel infection) as a newborn and had to have 85 % of his small intestines and his ileocecal valve removed. Right now he is on vancocin (vancomycin capsules) 1,000 mg a day and will be on it indefinitely. He has been on many antibiotics specifically for the SIBO (flagyl, xifaxan, alinia,gentamicin, cipro, keflex, bactrim, biaxin..several more I can't remember right now rotations through different types, alternating schedules and types... and different combinations of probiotics. VSL # 3 the big gun probiotic made him worse. There are several non-invasive tests for SIBO including breath hydrogen testing and serum folic acid levels (will be elevated w/SIBO) There is also small bowel aspirate studies that can be helpful too. Taking the vancocin and getting IVIG has helped somewhat w/ the SIBO but he still has major problems w/diarrhea and all the consequences from that..malaborption, electrolytes etc..but he also has had most of his gut removed too. Lori lucky mom blessed with triplets www.caringbridge.org/visit/bradenwild > > Hi all, > > We still don't have a diagnosis, but our son's IgG, IGM and now IGA are low. He is 6yo and has chronic diarrhea. We recently did a stool culture that identified a parasite, cryptosporidium, and h. Pylori. We used an anerobic antibiotic to treat the parasite (Alinia) and then we did triple therapy (biaxin, amoxicillin and Prevacid) to treat the h.pylori. > > So, after all of the antibiotics were done, he now has formed poop. He's never had formed poop. We didn't see much after treating the parasite, so I don't think it was due to the Alinia. I think it was due to the biaxin and amoxicillin. But, h.pylori does not cause diarrhea. So now I'm wondering if we killed some other bacteria and maybe he has small intestine bowel overgrowth (SIBO). He's supposed to have a colonoscopy soon, but I'm wondering if we should rule this out first. Has anyone else had this diagnosed in their kid? > > Thanks for your help, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 My son has had major problems with SIBO- but he has a very altered anatomy that has greatly contributed to his problems in addition to his CVID. He got NEC (nectrotizing enterocolitis-major bowel infection) as a newborn and had to have 85 % of his small intestines and his ileocecal valve removed. Right now he is on vancocin (vancomycin capsules) 1,000 mg a day and will be on it indefinitely. He has been on many antibiotics specifically for the SIBO (flagyl, xifaxan, alinia,gentamicin, cipro, keflex, bactrim, biaxin..several more I can't remember right now rotations through different types, alternating schedules and types... and different combinations of probiotics. VSL # 3 the big gun probiotic made him worse. There are several non-invasive tests for SIBO including breath hydrogen testing and serum folic acid levels (will be elevated w/SIBO) There is also small bowel aspirate studies that can be helpful too. Taking the vancocin and getting IVIG has helped somewhat w/ the SIBO but he still has major problems w/diarrhea and all the consequences from that..malaborption, electrolytes etc..but he also has had most of his gut removed too. Lori lucky mom blessed with triplets www.caringbridge.org/visit/bradenwild > > Hi all, > > We still don't have a diagnosis, but our son's IgG, IGM and now IGA are low. He is 6yo and has chronic diarrhea. We recently did a stool culture that identified a parasite, cryptosporidium, and h. Pylori. We used an anerobic antibiotic to treat the parasite (Alinia) and then we did triple therapy (biaxin, amoxicillin and Prevacid) to treat the h.pylori. > > So, after all of the antibiotics were done, he now has formed poop. He's never had formed poop. We didn't see much after treating the parasite, so I don't think it was due to the Alinia. I think it was due to the biaxin and amoxicillin. But, h.pylori does not cause diarrhea. So now I'm wondering if we killed some other bacteria and maybe he has small intestine bowel overgrowth (SIBO). He's supposed to have a colonoscopy soon, but I'm wondering if we should rule this out first. Has anyone else had this diagnosed in their kid? > > Thanks for your help, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 Really? Everything I found on h.pylori said it was more likely to cause constipation and not related to diarrhea. It would explain why we saw good results with the cocktail, though. ________________________________ From: Ursula Holleman <uahollem@...> Sent: Tue, April 13, 2010 3:16:43 PM Subject: Re: SIBO  H Pylori can cause diarrhea. I've had it since 1995. I've done three sets of cocktails and I'm still positive on my CloTest during endoscopy. My first presenting symptom was diarrhea. Lomotil has been wonderful to keep it at bay though. Ursula Mom to (17) and Macey (14) http://www.caringbridge.org/visit/maceyholleman ____________ _________ _________ __ From: stacy171 <stacy171 (DOT) com> groups (DOT) com Sent: Tue, April 13, 2010 2:36:14 PM Subject: SIBO Hi all, We still don't have a diagnosis, but our son's IgG, IGM and now IGA are low. He is 6yo and has chronic diarrhea. We recently did a stool culture that identified a parasite, cryptosporidium, and h. Pylori. We used an anerobic antibiotic to treat the parasite (Alinia) and then we did triple therapy (biaxin, amoxicillin and Prevacid) to treat the h.pylori. So, after all of the antibiotics were done, he now has formed poop. He's never had formed poop. We didn't see much after treating the parasite, so I don't think it was due to the Alinia. I think it was due to the biaxin and amoxicillin. But, h.pylori does not cause diarrhea. So now I'm wondering if we killed some other bacteria and maybe he has small intestine bowel overgrowth (SIBO). He's supposed to have a colonoscopy soon, but I'm wondering if we should rule this out first. Has anyone else had this diagnosed in their kid? Thanks for your help, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 oh i so wish. Ursula Mom to (17) and Macey (14) Macey's Caringbridge site Macey's Blog ________________________________ From: <stacy171@...> Sent: Tue, April 13, 2010 7:46:49 PM Subject: Re: SIBO Really? Everything I found on h.pylori said it was more likely to cause constipation and not related to diarrhea. It would explain why we saw good results with the cocktail, though. ____________ _________ _________ __ From: Ursula Holleman <uahollem (DOT) com> groups (DOT) com Sent: Tue, April 13, 2010 3:16:43 PM Subject: Re: SIBO H Pylori can cause diarrhea. I've had it since 1995. I've done three sets of cocktails and I'm still positive on my CloTest during endoscopy. My first presenting symptom was diarrhea. Lomotil has been wonderful to keep it at bay though. Ursula Mom to (17) and Macey (14) http://www.caringbridge.org/visit/maceyholleman ____________ _________ _________ __ From: stacy171 <stacy171 (DOT) com> groups (DOT) com Sent: Tue, April 13, 2010 2:36:14 PM Subject: SIBO Hi all, We still don't have a diagnosis, but our son's IgG, IGM and now IGA are low. He is 6yo and has chronic diarrhea. We recently did a stool culture that identified a parasite, cryptosporidium, and h. Pylori. We used an anerobic antibiotic to treat the parasite (Alinia) and then we did triple therapy (biaxin, amoxicillin and Prevacid) to treat the h.pylori. So, after all of the antibiotics were done, he now has formed poop. He's never had formed poop. We didn't see much after treating the parasite, so I don't think it was due to the Alinia. I think it was due to the biaxin and amoxicillin. But, h.pylori does not cause diarrhea. So now I'm wondering if we killed some other bacteria and maybe he has small intestine bowel overgrowth (SIBO). He's supposed to have a colonoscopy soon, but I'm wondering if we should rule this out first. Has anyone else had this diagnosed in their kid? Thanks for your help, Quote Link to comment Share on other sites More sharing options...
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