Guest guest Posted September 3, 2010 Report Share Posted September 3, 2010 As many of you know, Tristen was doing subq for 2 years, we switched insurance companies and the new company wouldn't cover subq. We switched to ivig and within 24 hours Tristen was in the ER with aseptic meningitis. So here we are now, 2 weeks after that episode and Tristen tells me out of the blue the other day that she doesn't want to do her infusions at home anymore, she liked it better in the hospital. (she's only 5 1/2, but I try to give her some say in her treatment). So today after fighting with the insurance company, we finally got approval for subq again. But now I'm not sure I can convince Tristen to go back to it! I'm having a struggle trying to decide what is best. Doing the IVIG and risk her having a reaction again or going back to subq. To be honest, I kinda enjoyed the IVIG and not having to do the infusions and just sitting back for the day. But she has been sick for 4 weeks now and 3 weeks of septra has not kicked this sinus infection. I'm trying to weigh the pros/cons for each and I'm sure the subq is the route to go, but I'm having a hard time going back to it, for both of us. I may try the IVIG one more time and see what happens and then see what's best for us. I have an appt with our immuno next week to discuss this all with him and see what he thinks. I know the immuno and pedi are both worried about her reacting again, which doesn't give me much hope. How does one make this decision? le Quote Link to comment Share on other sites More sharing options...
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