Nerve Pain

[Guest guest]

have they looked at teh gall bladder....Blake has presented with all of these as

well & found that he has gallbladder disease(Do not want to do any surgery right

now because of active clotting). His started with all of this at age 17.  He

also has pancreatic Insufficiency. he is on replacement pancretic enzymes.  did

they do the gallbladder study. 

, Mom to Blake age 18

" Children are like butterflies in the wind.

Some fly higher than others, BUT

each one flies the best they can!!!! "

From: TERESA EOS <tereeos6@...>

Subject: Nerve Pain

" group " < >

Date: Thursday, June 3, 2010, 7:49 PM

 

Hi All,

My son is currently in the hospital and has been since Tuesday. He started out a

month ago with stabbing pain in his mid-back when swallowing, It got really bad

and we ended up in the ER, went through a chest x-ray, blood work, PE study and

nothing found. 2 days later he was starting to feel better and went to

basketball practice-came home with severe chest pain, racing heart, high blood

pressure. Our thought at the time was a new med he was taking so he stopped it

and the heart rate and blood pressure came down but the chest pain and back pain

swallowing stayed. Ended up back in the ER - chest x-ray, blood work, EKG, all

normal.

Went to the doc about every three days over two and half week period, as pain

did not subside, received abdominal CT w/contrast, ultrasound of spleen and

pancreas, MRI of spine additional blood work, 10 days of ceftin. Pain still in

chest and back when swallowing, severe pain and tenderness in chest but now

worst in ribs, lost 10 lbs this last 4 weeks, tried anti-virals, prednisone,

levaquin. So our doc said admit him to hospital and he has had bone scan; which

is clean. Received endoscopy today which looked completely normal. But when he

came back from the endoscopy he was doubled over in pain. He said it was way

worse then before and he had a horrible migraine, two doses of dilauded, a

percocet and zofran he fell asleep.

So after all that they are thinking nerve pain. I know he can't go home in this

much pain as he has been on pain killers almost non-stop over the last month.

Anybody run into anything like this before??

He's also currently off of IVIG, due to go back on next month.

Thanks,

Mom to Devin, 17, CVID

[Guest guest]

his renal function is good, he was diagnosed with a kidney infection in

mid-march that started with the same mid-back pain, then moved to the left lower

back and right lower back in the area of his kidneys. His pain was severe then

also and his blood, and urine showed nothing. After two trips to the ER they

decided to try Levaquin with the thinking he wasn't mounting an inflammatory

response. The back pain did then go away. We did try the Levaquin again this

time with no luck.

thanks

teresa

From: uahollem@...

Date: Thu, 3 Jun 2010 17:12:23 -0700

Subject: Re: Nerve Pain

have they done a spinal tap? I'd be interested in the pressure of his spinal

fluid. also is his renal function ok? none of the scans showed stones or any

ducts clogged?

Ursula

Mom to (17) and Macey (14)

Macey's Caringbridge site

Macey's Blog

________________________________

From: TERESA EOS <tereeos6@...>

group < >

Sent: Thu, June 3, 2010 7:49:17 PM

Subject: Nerve Pain

Hi All,

My son is currently in the hospital and has been since Tuesday. He started out a

month ago with stabbing pain in his mid-back when swallowing, It got really bad

and we ended up in the ER, went through a chest x-ray, blood work, PE study and

nothing found. 2 days later he was starting to feel better and went to

basketball practice-came home with severe chest pain, racing heart, high blood

pressure. Our thought at the time was a new med he was taking so he stopped it

and the heart rate and blood pressure came down but the chest pain and back pain

swallowing stayed. Ended up back in the ER - chest x-ray, blood work, EKG, all

normal.

Went to the doc about every three days over two and half week period, as pain

did not subside, received abdominal CT w/contrast, ultrasound of spleen and

pancreas, MRI of spine additional blood work, 10 days of ceftin. Pain still in

chest and back when swallowing, severe pain and tenderness in chest but now

worst in ribs, lost 10 lbs this last 4 weeks, tried anti-virals, prednisone,

levaquin. So our doc said admit him to hospital and he has had bone scan; which

is clean. Received endoscopy today which looked completely normal. But when he

came back from the endoscopy he was doubled over in pain. He said it was way

worse then before and he had a horrible migraine, two doses of dilauded, a

percocet and zofran he fell asleep.

So after all that they are thinking nerve pain. I know he can't go home in this

much pain as he has been on pain killers almost non-stop over the last month.

Anybody run into anything like this before??

He's also currently off of IVIG, due to go back on next month.

Thanks,

Mom to Devin, 17, CVID

[Guest guest]

Hi All,

Thanks everyone for your suggestions. His gallbladder looks good on the

ultrasounds, he's had 2 done. His pancreatic enzymes are all pretty low. The

pain just seems so wide spread and he has run periodic fevers over the last 4

weeks.

I just looked at his labs - rbc, hct are slightly low, slightly high mch and and

eosinophils. But nothing hugely out of range, so they are not paying much

attention to .But since his labs are usually well within range and his labs do

not fluctuate much unless he has something going on I'm concerned they aren't

paying any attention to them.

Thanks