Subq question

[Guest guest]

Is it harder to get them to agree to put needles in their stomach than their

arm? We can usually manage to distract my son enough to fairly easily start an

IV for IVIG, but we're dealing with lots of side effects from it still. I am

hesistant to switch to subq because of the need to stick his stomach instead.

Seems like it would be harder to distract him. We probably won't have much of a

choice since this is our 3rd IVIG and he's gotten bad headaches/vomiting after

each one. We've slowed it way down, changed brands and added

premeds...everything except steroids.

[Guest guest]

It is such a different kind of needle though. So much smaller than what you

are probably use to. Reminds me of an insulin needle. maybe slightly

longer. It really hides in the skin and feels no different than fishing out

a splinter with a sewing needle. For all the advantages subq offers it

really should be attempted. just my thought though.

We had 7 bad years of IVIG before subq came around. I think if there are no

other obstacles it will become old hat to him.

Macey would have no part of sticking her arm from day one. She sticks her

stomach herself. Started doing that around 12 yrs old. The first year we

stuck her. She sticks to one side of her stomach because she's had an

ostomy on the other. She goes from stomach to love handles and back again

every other week. I've mentioned trying the legs but she's adamant.

Ursula mom to Macey (15,CVID) and Les (CVID) - who should be starting subq

next month.

On Fri, Feb 11, 2011 at 4:08 PM, <stacy171@...> wrote:

>

>

> Is it harder to get them to agree to put needles in their stomach than

> their arm? We can usually manage to distract my son enough to fairly easily

> start an IV for IVIG, but we're dealing with lots of side effects from it

> still. I am hesistant to switch to subq because of the need to stick his

> stomach instead. Seems like it would be harder to distract him. We probably

> won't have much of a choice since this is our 3rd IVIG and he's gotten bad

> headaches/vomiting after each one. We've slowed it way down, changed brands

> and added premeds...everything except steroids.

>

>

>

>

>

[Guest guest]

,

We had bad reactions to IVIG as well and switched to sub q hizentra about a

month ago. Caelan was very upset at first, but now we are on week three of

being totally on our own and he's doing really well with it. We use Emla for

the sites and it is going great. We have only used the stomach and he does

not want to try any other spots.

Good luck!

_____

From: [mailto: ] On Behalf Of

Sent: Friday, February 11, 2011 3:08 PM

Subject: Subq question

Is it harder to get them to agree to put needles in their stomach than their

arm? We can usually manage to distract my son enough to fairly easily start

an IV for IVIG, but we're dealing with lots of side effects from it still. I

am hesistant to switch to subq because of the need to stick his stomach

instead. Seems like it would be harder to distract him. We probably won't

have much of a choice since this is our 3rd IVIG and he's gotten bad

headaches/vomiting after each one. We've slowed it way down, changed brands

and added premeds...everything except steroids.

[Guest guest]

We are still very new to any type of treatments. My son is 3.5 years old and

has had 2 sub-q infusions so far. The first we did in he clinic with the Nurse

Practitioner walking me through the steps as I actually did them. Then the

second one was at home on my own.

We were told by the NP to only did his infusions in his love handle area because

he doesn't have much fatty tissue anywhere else. So far it has not been too

bad. The second time he laid on the couch eating a cracker while I inserted the

needle and didn't fight me on it.

I know when he gets blood work done I usually hold him on my lap and have to

help hold his arm out. So for us it seems like he has less issues with the

sub-q than an IV type needle.